Re: FYI--It's in the works.

[Guest guest]

GREAT news! I've posted this story to my FB page (with a link to information

about PANDAS) and I hope more people will follow suit. Let's get our voices

heard in any way we can!

Donna

>

> Dr. T,

>

> I met you at the conference I know you treated the teens in Leroy and were

> interviewed about it. I'm the mom who wrote about her son's recovery from

> autism and whose email you were kind enough to answer. This story needs to

> be told. Please help and use any of your media contacts to tell them about

> happened to the Wray Family. They went to Boston Children's Hospital for

> treatment of their daughter, . As a result was taken

> from them by Child Protective Services because BCH does not believe in PANS

> exists. Do you know any media who would be interested in doing a story on

> this?

>

>

>

>

>

> Story that needs to go to the Media

>

>

>

> Remember the mystery illness in Leroy New York that caused more than a dozen

> students at Leroy High to come down with the Tourette's-like symptoms? A

> child with a similar condition was taken to Boston Children's Hospital for

> medical treatment by her parents. Boston Children's Hospital does not

> believe that PANDAS exists and tried to place Wray in a

> psychiatric unit. Boston Hospital enlisted the help of Child Protective

> Services to stop the medical treatment her parents were doing under the

> supervision of two doctors. The Wray's lost custody of on October

> 2, 2012 after a CPS court hearing.

>

>

>

> Beth Maloney, attorney and author of Saving Sammy, said in an email, " It is

> with a heavy heart that I inform you Wray was placed in the

> temporary custody of the State of Massachusetts this afternoon. This is a

> picture of 's parents, and Jay. They did absolutely

> nothing wrong. They are caring, lovely people whose daughter was diagnosed

> with PANDAS/PANS by two different physicians, and they diligently sought

> appropriate treatment for her. They have asked me to publicly share their

> story because they are going to need your help to get their daughter back.

> Please reach out to any media contacts you may have. "

>

>

>

> Beth Maloney saved her own child, Sammy, after he came down with PANDAS.

> Sammy is now completely and enjoying life at a major university. Beth

> Maloney was in court with this family trying to help them retain custody of

> . The treatments she used with her own son were similar to the

> ones used to help .

>

> This story needs to be told.

>

>

>

> cid:B3C649B1-0E39-4F0C-8A2F-18A3C3AFDF57@...

>