Guest guest Posted August 1, 2012 Report Share Posted August 1, 2012 Leigh--- We are all rooting for you. All feeling your pain. I'm sending out a prayer for you tonight and giving you and your sweet daughter all my best... She is fortunate and blessed to have you as her mama. Colleen Chien To: "mb12valtrex " <mb12valtrex > Sent: Wednesday, August 1, 2012 9:27 PM Subject: Re: Re: Is it time to admit defeat? Leigh,I am the mother of a 12 asd son. In my heart I feel for you. Im sending a poem I wrote for parents just like you when you feel at theend of your rope. I hope it helps.Love and Blessings, Teri The Precious Gift I am here, your precious giftAlthough you may not see all of me nowI try to tell you a little about meIt’s just I don’t know how I want you to know I truly feel your loveIt’s in everything you doYou work so hard for meFrom your heartLove like that always comes through Yes I am hereAnd oh! How I love you, tooAlthough it may be hard for you to seeIt’s magnified in small moments and glancesAnd there’s so much more to come…So don’t give up on me I am here and beautifulYour precious giftGiven especially to youYou are truly amazingAnd I am so gratefulFor everything you do How blessed am I For your patience and diligenceAnd in my soul I prayEverything you have doneAnd continue to doWill pay off some day So in those moments you may feel discouragedOn those days it’s tough to get throughRemember me, your precious giftis waitingTo be opened by you Teri Fernandez- To: mb12valtrex Sent: Wednesday, August 1, 2012 11:22 PM Subject: Re: Is it time to admit defeat? Leigh, I have not been on this group for a while...but I will tell you what I have told others in the past and that is God is the ultimate healer..and the great thing is there is no limits to what he can heal ...I have been havin a hard time with my son as I believe the old house I moved into is full of mold and lead.and I have been dealing with regression. pretty ironic when you consider the fact part of the reason I moved the boonies is to get away from the pollution of the citys. so I get fustrated and I still have my screaming episodes (only this time not in my car,I can do it in my back yard next to cows) and then I pray. ask God to do his will...if it is his will for my son to be healed then guide me because I want this child healed and we both deserve good things. then I ask for strength..I have built upsome hard core body armor so I can ask for strength to get thru the day....but there was a time I would have to ask God to give me strength to get thru the next five minutes...and then I would have to ask him to get me thru the next five minutes aftr that. there is a book called "he is not autisitc but..." by tenna merchant this wasnt the greatest biomed book I ever read but it was the greatest autism book I ever read because she was the person that told me God can heal anything...I will be 90 years old if I lived that long chasing my son around with MMS enemas.... we hope....because that is something we all need.. be not discouraged nor dismayed,,be still and know that I am God. > > > > > > > > > > > > Our son 8 non verbal and like that feel worn out we are broke and not seen > > > much progress with 6 years of biomed and everything tried.just joined > > > facebook MMS group run by kerri Riviera she has had 39 recoveries in 20 > > > months,def worth a shot,maybe look into it. Its so hard to keep hope alive > > > but I know he is in there so have to keep looking to find the way > > > Let your email find you with BlackBerry® from Vodafone > > > ------------------------------ > > > *From: *"Christel Church" <revchristelking@> > > > *Sender: mailto:%2Amb12valtrex%40yahoogroups.com > > > *Date: *Sun, 8 Apr 2012 18:13:17 -0400 > > > *To: *<mailto:mb12valtrex%40yahoogroups.com> > > > *ReplyTo: mailto:%2Amb12valtrex%40yahoogroups.com > > > *Subject: *Re: Is it time to admit defeat? > > > > > > > > > > > > I feel the pain in your email and want you to know that at the very least > > > I am praying for you. good news she is still SHE! you still love her, she > > > hasn't changed and recovery or not she is still amazing! she still has > > > hopes and dreams! you job focus now may shift to helping her still acheieve > > > those. helping her work on what you CAN change. you can still offer her as > > > much health as you can, you can help her avoid triggers for seizers, you > > > can research what she has and find resources on it, and you can help get > > > her to drs that are more refinded in her areas to help her be the > > > healthiest HER! different road then you hoped yes, the end of the road > > > no! don't EVER give up! its what I love about amy yasko. she is a dr who > > > works around gene issue and has found you can turn them off and on and > > > assist them in functioning like healthy genes even with right nutrition. > > > you have a step up in that. they may be the new direction to look in and > > > see if there is something on that road that can help you > > > > > > > > > *From:* schnuppit@ > > > *Sent:* Tuesday, March 20, 2012 4:25 PM > > > *To:* mailto:mb12valtrex%40yahoogroups.com > > > *Subject:* Is it time to admit defeat? > > > > > > > > > > > > As a mother of a 7 year old daughter who has been doing biomedical et al > > > since 3 and worrying for my child for 7 years I feel like I have come to > > > the end of the road. I dont want to get out of bed in the morning. Pathetic > > > yes but after all this hope and prayer and hard work we have recently found > > > out my daughter has a gene duplication 22 blocks speech and motor. We have > > > have done everything under the sun from naturals...diets all protocols > > > NIDS, ac chelation, etc etc and we just cant recover her. She is now stuck > > > in this limbo of not in the completely non- functional world and and not > > > the typical world and the worst part is she knows it! This is the part that > > > kills me. I cant protect from the world. I can't make the kids be friends > > > with her because her speech is poor and her ability to articulate her > > > thoughts is so blocked. She asks me everyday when is she going to talk like > > > the kids, when will she have friends and I dont want to lie. She also is > > > excited to grow up and have a family and children of her own and my heart > > > breaks. She is screwed! And there is not a single thing I can do anymore. > > > > > > To make matters worse they have just found on her MRI i malformation which > > > will give her a 90% chance of getting seizures. The could be huge and they > > > might not be treatable with meds...we wont know till they happen. I believe > > > in prayer but am now not naive enough to know the possibility of fully > > > recovering my child is pretty slim. How do I live? When I thought i could > > > heal her I had hope and now that is stolen from us I need to come to accept > > > this reality but for some reason I cannot. I am weak and watching her > > > suffer everyday seems too much for me. I know intellectually I should be > > > there for her but I don't seem to be able to pull it together. > > > > > > I know there are mom's out there with children in the worst possible > > > conditions and am wondering how you pull it together for child and other > > > people. I cant even socialize anymore as I am no longer able to fake for > > > the rest of the people. We do not have other children as we had put our > > > focus on recovering her thinking we could. > > > > > > Leigh > > > > > > No virus found in this message. > > > Checked by AVG - www.avg.com > > > Version: 2012.0.1913 / Virus Database: 2114/4883 - Release Date: 03/20/12 > > > > > > > > > > > > > > > > > -- > > Cotter > > 4 Pollerton Manor > > Carlow > > 059 9134964 > > 087 2637921 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2012 Report Share Posted August 2, 2012 Thanks and gratitude for the most beautiful poem Teri. It is so good to see you back too Channa. All you posts earlier this year kept me going and my daughter has been doing Dr K's protocol for the past 3 months and we are seeing emerging speech skills with DMPS chelation as well as a lot of daily prayer. We have a lot to be grateful and I am so glad I did not give up, hearing my daughters words turn into actual sentences is pure pure pure joy! Leigh > > > > > > > > > > > > > > > > Our son 8 non verbal and like that feel worn out we are broke and not seen > > > > much progress with 6 years of biomed and everything tried.just joined > > > > facebook MMS group run by kerri Riviera she has had 39 recoveries in 20 > > > > months,def worth a shot,maybe look into it. Its so hard to keep hope alive > > > > but I know he is in there so have to keep looking to find the way > > > > Let your email find you with BlackBerry® from Vodafone > > > > ------------------------------ > > > > *From: * " Christel Church " <revchristelking@> > > > > *Sender: mailto:%2Amb12valtrex%40yahoogroups.com > > > > *Date: *Sun, 8 Apr 2012 18:13:17 -0400 > > > > *To: *<mailto:mb12valtrex%40yahoogroups.com> > > > > *ReplyTo: mailto:%2Amb12valtrex%40yahoogroups.com > > > > *Subject: *Re: Is it time to admit defeat? > > > > > > > > > > > > > > > > I feel the pain in your email and want you to know that at the very least > > > > I am praying for you. good news she is still SHE! you still love her, she > > > > hasn't changed and recovery or not she is still amazing! she still has > > > > hopes and dreams! you job focus now may shift to helping her still acheieve > > > > those. helping her work on what you CAN change. you can still offer her as > > > > much health as you can, you can help her avoid triggers for seizers, you > > > > can research what she has and find resources on it, and you can help get > > > > her to drs that are more refinded in her areas to help her be the > > > > healthiest HER! different road then you hoped yes, the end of the road > > > > no! don't EVER give up! its what I love about amy yasko. she is a dr who > > > > works around gene issue and has found you can turn them off and on and > > > > assist them in functioning like healthy genes even with right nutrition. > > > > you have a step up in that. they may be the new direction to look in and > > > > see if there is something on that road that can help you > > > > > > > > > > > > *From:* schnuppit@ > > > > *Sent:* Tuesday, March 20, 2012 4:25 PM > > > > *To:* mailto:mb12valtrex%40yahoogroups.com > > > > *Subject:* Is it time to admit defeat? > > > > > > > > > > > > > > > > As a mother of a 7 year old daughter who has been doing biomedical et al > > > > since 3 and worrying for my child for 7 years I feel like I have come to > > > > the end of the road. I dont want to get out of bed in the morning. Pathetic > > > > yes but after all this hope and prayer and hard work we have recently found > > > > out my daughter has a gene duplication 22 blocks speech and motor. We have > > > > have done everything under the sun from naturals...diets all protocols > > > > NIDS, ac chelation, etc etc and we just cant recover her. She is now stuck > > > > in this limbo of not in the completely non- functional world and and not > > > > the typical world and the worst part is she knows it! This is the part that > > > > kills me. I cant protect from the world. I can't make the kids be friends > > > > with her because her speech is poor and her ability to articulate her > > > > thoughts is so blocked. She asks me everyday when is she going to talk like > > > > the kids, when will she have friends and I dont want to lie. She also is > > > > excited to grow up and have a family and children of her own and my heart > > > > breaks. She is screwed! And there is not a single thing I can do anymore. > > > > > > > > To make matters worse they have just found on her MRI i malformation which > > > > will give her a 90% chance of getting seizures. The could be huge and they > > > > might not be treatable with meds...we wont know till they happen. I believe > > > > in prayer but am now not naive enough to know the possibility of fully > > > > recovering my child is pretty slim. How do I live? When I thought i could > > > > heal her I had hope and now that is stolen from us I need to come to accept > > > > this reality but for some reason I cannot. I am weak and watching her > > > > suffer everyday seems too much for me. I know intellectually I should be > > > > there for her but I don't seem to be able to pull it together. > > > > > > > > I know there are mom's out there with children in the worst possible > > > > conditions and am wondering how you pull it together for child and other > > > > people. I cant even socialize anymore as I am no longer able to fake for > > > > the rest of the people. We do not have other children as we had put our > > > > focus on recovering her thinking we could. > > > > > > > > Leigh > > > > > > > > No virus found in this message. > > > > Checked by AVG - www.avg.com > > > > Version: 2012.0.1913 / Virus Database: 2114/4883 - Release Date: 03/20/12 > > > > > > > > > > > > > > > > > > > > > > > > -- > > > Cotter > > > 4 Pollerton Manor > > > Carlow > > > 059 9134964 > > > 087 2637921 > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2012 Report Share Posted August 3, 2012 DMPS chelation 3 days on 11 days off. We did AC chelation with DMSA AND ALA for a year, saw good results in other areas but never improved speech articulation and verbal apraxia. We are also doing Lyme Nosode a homeopath remedy and this seems to have helped speech too. My daughter has serotonin and dopamine issues so we do paxil and Namenda too which has helped a lot with speech and memory, we did this protocol with a DAN before but when Dr K muscle tested these meds he said they were excellent for her. > > That is brillant ,do you mind asaking what protocol is beringing perogress,I am up since 3. With a giggling non verbal 8 year old,I could put up with anything if he got speech,so glad you are seeing some light in this autism tunnel!! > Let your email find you with BlackBerry® from Vodafone Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2012 Report Share Posted August 3, 2012 We don't for sure. Did the western blot test and had some positive bands. My husband and I both grew up in Africa so he said tick borne/mosquito infections are rife there and said she most likely has the african version. I noticed she responded well when I introduced this remedy, so I presume she has co-infections of some sorts. I am going to look into the MMS protocol for pathogens at some stage too. I will try this myself no doubt I am riddled from my outdoor african life, could be the key to my constant fatigue. Read his thoughts on Lymes etc http://betterhealthguy.com/joomla/blog/264-physicians-round-table-2012 > > > > > > That is brillant ,do you mind asaking what protocol is beringing perogress,I am up since 3. With a giggling non verbal 8 year old,I could put up with anything if he got speech,so glad you are seeing some light in this autism tunnel!! > > > Let your email find you with BlackBerry® from Vodafone > > > > > Quote Link to comment Share on other sites More sharing options...
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