Re: MTHFR info I just found

[Guest guest]

How do you get tested for MTHFR? Is there a blood work? Does the whole family

with an affected child gets the test done if there is one? We got my daughter's

folate antibodies test done and she had slightly elevated blocking antibody

value.

Thanks much

Pratima

> >

> >

> > & nbsp;

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> > Tammy,

> >

> > I thought of your post on MTHFR & amp; thought I'd send you the info I came

upon & amp; just sent to my neice....feel free to pass to your friend too:

> >

> >

> >

> > https://sites.google.com/site/drjoneskids/mthfr/mthfr-more-notes

> >

> > ps there are 2 other tabs on MTRFR on this site that are also worth checking

out....also, Dr is highly respected in thecircle of docs from many in my

biomedical recovery group.

> >

> >

> >

> > ----Copied from above links site:-----

> >

> > MTHFR Notes

> >

> > Warning to MTHFR patients- Using nitrous oxide (laughing gas- anesthesia)

can cause major problems, including death.

> >

> > Nitrous oxide, when given to people with MTHFR, blocks the production of

methionine, which plays an important role in DNA synthesis of neurotransmitters

and myelin, the insulating material covering nerves.

http://www.fertilethoughts.com/forums/genetic-issues/375471-mthfr-nitrous-oxide.\

html

> >

> > ***

> >

> > Explanation of MTHFR: Most of the population has some form of it causing

easy bruising or a clotting issue. It has also been associated with pregnancy

issues and being able to maintain pregnancies as women will not be able to

support their own folic acid levels and a baby's. Occasionally it will be a

little more serious and can cause early heart disease resulting in heart attacks

as early as late 20's (if not treated). On rare occasion a bad combination of

the 50 MTHFR genes will pair up and a person will end up with the inability to

process metals and sulfates. The metals will deposit directly into their brain

causing Autism, and sulfates will raise a naturally occurring homocystine levels

to toxic state, which destroys nerve and muscle tissue.

> >

> > How do our bodies keep homocystine in check? Folic acid breaks down

homocystine. However, people with MTHFR have issues with absorbing or

maintaining folic acid (they aren't sure), so they have low lvls of it and their

homocystine can get out of control. They also have a tendency to have B vitamin

deficiency, so treatments usually includes a large dose of folic acid and a

gambit of B vitamins. We also have to avoid all metals and sulfates, including

vaccinations (flu has thermerisol and those that don't have aluminum). There is

also a long list of medication we have to avoid that raise homocystine levels

(seizure medicine), lower folic acid, or could kill a person because their body

can't process Nitrous Oxide. http://paws4piper.weebly.com/mthfr-faq.html

> >

> > ***

> >

> > Sulfates are also bad for these kids. It is very confusing to hear about

tons of foods containing sulfites, but I assure you Sulfate and Sulfite are 2

different things. So far there haven't been any links to Sulfites and MTHFR. So

if your child has issues with foods with sulfites, then he/she probably has

sensitivity or an allergy.

> >

> > All of the following either contain metals, sulfates, OR will lower the

folic acid levels or raise the homocystine levels, all of which are detrimental

to someone with MTHFR.

> >

> > Sulfate and Sulfite are 2 different things. So far there haven't been any

links to Sulfites and MTHFR. If you or your child has issues with foods with

sulfites, then he/she probably has a sensitivity or an allergy.

> >

> > Medications to avoid

> >

> > Antiepileptic Drugs (seizure meds)

> >

> > Cyclosporine - immunosuppressant (post organ transplant)

> >

> > Antihypertensive (high blood pressure meds)

> >

> > Erythropoietin (aids RBC production and brain damage repair)

> >

> > Levodopa (parkinsons and RLS)

> >

> > Lithium (mania)

> >

> > Neroleptics (anti-psychotics/depression)

> >

> > Nitrous Oxide

> >

> > Oral Contraceptives

> >

> > Theophylline (breathing treatment)

> >

> > Fish Oil (has Mercury, use Flax Seed as substitute)

> >

> > Clioquinol (antifungal)

> >

> > Diuretics

> >

> > Drug increasing gastric ph (antacids)

> >

> > Isoniazid (TB, depression)

> >

> > Lipid lowering drugs (cholesterol meds)

> >

> > Methotrexate (CA, RA, skin issues) {reduces foliate intake}

> >

> > Nitroglycerin

> >

> > Oral anti-diabetic drugs

> >

> > Sulfates

> >

> > Immunizations

> >

> > Foods and Food Preservatives:

> >

> > Do not eat Shark, Swordfish, King Mackerel, or Tilefish because they contain

high levels of mercury. Albacore ( " white " ) tuna has more mercury than canned

light tuna.

> >

> > Five of the most commonly eaten fish that are low in mercury are shrimp,

canned light tuna, salmon, pollock, and catfish.

> >

> > Fish sticks and " fast-food " sandwiches are commonly made from fish that are

low in mercury.

> >

> > Check local advisories about the safety of fish caught by family and friends

in your local lakes, rivers, and coastal areas. If no advice is available, eat

up to 6 ounces (one average meal) per week of fish you catch from local waters,

but don't consume any other fish during that week.

> >

> > In 2009, the Environmental Health Journal reported on a study conducted by a

team led by Dufault that found high fructose corn syrup had high levels of

mercury.

> >

> > Neil's MTHFR Information Videos (4 continuing clips from one presentation):

> >

> > (http://www.renewashoe.com/medical/MTHFR_1.wmv )

> >

> > (http://www.renewashoe.com/medical/MTHFR_2.wmv )

> >

> > (http://www.renewashoe.com/medical/MTHFR_3.wmv )

> >

> > (http://www.renewashoe.com/medical/MTHFR_4.wmv )

> >

> > Please click here for original webpage and more excellent information.

> >

> > NOTES from videos:

> >

> > Genes 677 and 1298 have different symptoms. Having both is worse/harder to

treat.

> >

> > C677- toxic to nerves, muscles and heart. Blood clots, painful nerves.

Pregnancy outcome problems.

> >

> > 1298- Associated with depression, anxiety, IBS, fibromyalgia, chronic

fatigue, migraines, dementia, nerve pain, schiz, Parkinson's.

> >

> > MTHFR gene takes folic acid and makes it into useful things in your body to

protect nerves, helps serotonin levels.

> >

> > People who don't activate vitamin B-6 well are included in this disorder.

> >

> > Rather than treat with medications that try to address medical conditions,

treat MTHFR to get to root of problem

> >

> > If you have a 677 and 1298 you have worse symptoms and associated with blood

clots.

> >

> > This is the gene (1298) that codes for genius.

> >

> > Glutathione clears body of toxic metals. Traditionally a hair analysis test

was popular for metal testing, but often body is unable to function properly

and/or clear toxins so the toxins can't get to hair to be measured.

> >

> > Glutathione is decreased in MTHFR patients- related to memory problems in

Alzheimer's.

> >

> > If you have defects it causes a hyper stimulation of brain and it can lead

to depression. Need B-12 (methyl foliate). Fresh garden veggies make people

feel better.

> >

> > Participation in music (band) activities because of structure. Piano, etc.

> >

> > Having the gene defects means you don't clear metals well. Trying to clear

them you can overload system and symptoms worsen over time.

> >

> > Genetic susceptibility to cancer because your body can't heal. Kidney

failure related. Addiction is very possible.

> >

> > Limit heavy metal exposure

> >

> > Drink filtered water.

> >

> > Bad diet makes it worse.

> >

> > Certain meds decrease folic acid or increase utilization of folic acid.

> >

> > Laughing gas is bad.

> >

> > Diabetes problems worse in MTHFR

> >

> > Clotting disorders are worse.

> >

> > Aggravates many conditions.

> >

> > Symptoms include- social problems, OCD, depression, poor memory, abdominal,

cancer, liver, lung, immune, premature graying. Linked to

> >

> > autism (98% have one of these gene defects.)

> >

> > Flu vaccine and other vaccines make autism worse in those with MTHFR. If

you must get one, get one without mercury and aluminum.

> >

> > Zantac, prilocect, diabetes drugs, etc can cause problems in MTHFR patients.

> >

> > Hypothyroid problems.

> >

> > Smoking makes it worse.

> >

> > Fresh fruits, especially berries are good to use.

> >

> > Regular folic acid won't work for the genetic disorder. You can get a more

activate form, but if you have defect it won't help much.

> >

> > 15-18% have genetic disorder.

> >

> > Almost ½ population has one gene defect.

> >

> > Benefit of methyl foliate- much more bioavailable.

> >

> > Look at metabolic pathway to determine how to supplement to improve

situation.

> >

> > Trial and error. Which symptoms are bothering you?

> >

> > Methytrilate folic needed for serotonin.

> >

> > Deflin is used as adjunct for depression. Serafolin marketed for

Alzheimer's. Anacedalcystine helps with neuro, nerves, fibro, etc.

> >

> > Meda NX (active form of folic acid and active form of B-6) helps many

problems, especially nerve repair. Use methyl B-12 too.

> >

> > OTC methyltetrahydrofolate can be purchased online- more expensive than

prescription. May be hard to find.

> >

> > Genetic testing can be used against you.

> >

> > Knowing you have disorder can help you address it and it can be addressed.

> >

> > Place you can get testing without doctor's orders. Cost about $300.00 for

MTHFR.

> >

> > Does affect kids, parents. Need to know.

> >

> > If you have MTHFR get rid of mercury fillings.

> >

> > Neuropathy can be very bad in patients with MTHFR.

> >

> > Only add one thing in at a time.

> >

> > Use reverse osmosis filter for water to drink and cook.

> >

> > Consider heavy metal testing. Do chelation if a lot.

> >

> > Take chelating agents- work with someone who does that.

> >

> > Hair and stool tests not good.

> >

> > 10-15 fold in pre-post testing.

> >

> > Most labs do heavy metal tests. Geneva Labs in North Carolina.

> >

> > Methyl foliate- not easy to find. NOT generic kind. Must be the " active "

form.

> >

> > Deplin

> >

> > B-6

> >

> > P5V

> >

> > Anacytalcystine

> >

> > Methyl B-12 and Methyl B-9 must have. B-9 most important.

> >

> > In severe fibro- shots work best but hurt.

> >

> > Lowers blood sugars using meds.

> >

> > Sunlight hurts eyes, but zinc helps with it.

> >

> > -----------------------------------------

> >

>

[Guest guest]

Pratima,

Being a gene disorder makes it a family disorder....one of the articles I read

showed 10% of the population has the disorder, most don't even know they have

it. Just like many other things, knowing about it can help families circumvent

issues that arise from the lack of enzymes & issues having to do with

folate/folic acid and the convertion of the amino acid homocysteine to

methionine. The body uses methionine to make proteins and other important

compounds. If you have concerns with any of the above I would absolutely look

into the DNA testing that looks at MTHFR. It is blood DNA testing.

Here's some brief info...ask your Dr for more info:

http://ghr.nlm.nih.gov/gene/MTHFR

Here's a link to info on the blood test:

http://www.ehow.com/how_6885243_test-mthfr.html

Both people I know had the genetic testing after late term pregnancy losses, my

neice was almost 8 months along. It is my understanding from conversations with

my neice (who has researched this further than I w/a genetics Dr) that the gene

comes from both carrier parents...in our family no one even knew until this

testing was done. Knowing about it now helps our family start to take control of

some of the symptoms & health issues that have impacted our family....knowing &

being proactive is better because there are things we can do to help the body

function better.

I wanted to make highlight this comment from the 2nd link above:

Tips & Warnings

Mutations in the MTHFR gene are only a determinate factor in

hyperhomocysteinemia. The leading cause of hyperhomocysteinemia is folate

deficiency.

Next look up Folate deficiency:

Even basic Wiki shows some of the signs:

http://en.wikipedia.org/wiki/Folate_deficiency

I found it interesting that B12 has a role here too!

Depression, neurotransmitters (e.g. serotonin, epinephrine, nocotinamides,

purines, phospholipids), homocysteine and impaired metabolism of

neurotransmitters (especially dopamine, serotonin from tyrosine and tryptophan),

phospholipids, myelin, and receptors.

All important stuff to our bodies & all items of regular issues w/our kids &

frequent discussion on this list...for that matter w/us parents too.

I'm still in a learn mode myself on this stuff...hope it helps.

Blessings,

Rita

> > >

> > >

> > > & nbsp;

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > > Tammy,

> > >

> > > I thought of your post on MTHFR & amp; thought I'd send you the info I came

upon & amp; just sent to my neice....feel free to pass to your friend too:

> > >

> > >

> > >

> > > https://sites.google.com/site/drjoneskids/mthfr/mthfr-more-notes

> > >

> > > ps there are 2 other tabs on MTRFR on this site that are also worth

checking out....also, Dr is highly respected in thecircle of docs from

many in my biomedical recovery group.

> > >

> > >

> > >

> > > ----Copied from above links site:-----

> > >

> > > MTHFR Notes

> > >

> > > Warning to MTHFR patients- Using nitrous oxide (laughing gas- anesthesia)

can cause major problems, including death.

> > >

> > > Nitrous oxide, when given to people with MTHFR, blocks the production of

methionine, which plays an important role in DNA synthesis of neurotransmitters

and myelin, the insulating material covering nerves.

http://www.fertilethoughts.com/forums/genetic-issues/375471-mthfr-nitrous-oxide.\

html

> > >

> > > ***

> > >

> > > Explanation of MTHFR: Most of the population has some form of it causing

easy bruising or a clotting issue. It has also been associated with pregnancy

issues and being able to maintain pregnancies as women will not be able to

support their own folic acid levels and a baby's. Occasionally it will be a

little more serious and can cause early heart disease resulting in heart attacks

as early as late 20's (if not treated). On rare occasion a bad combination of

the 50 MTHFR genes will pair up and a person will end up with the inability to

process metals and sulfates. The metals will deposit directly into their brain

causing Autism, and sulfates will raise a naturally occurring homocystine levels

to toxic state, which destroys nerve and muscle tissue.

> > >

> > > How do our bodies keep homocystine in check? Folic acid breaks down

homocystine. However, people with MTHFR have issues with absorbing or

maintaining folic acid (they aren't sure), so they have low lvls of it and their

homocystine can get out of control. They also have a tendency to have B vitamin

deficiency, so treatments usually includes a large dose of folic acid and a

gambit of B vitamins. We also have to avoid all metals and sulfates, including

vaccinations (flu has thermerisol and those that don't have aluminum). There is

also a long list of medication we have to avoid that raise homocystine levels

(seizure medicine), lower folic acid, or could kill a person because their body

can't process Nitrous Oxide. http://paws4piper.weebly.com/mthfr-faq.html

> > >

> > > ***

> > >

> > > Sulfates are also bad for these kids. It is very confusing to hear about

tons of foods containing sulfites, but I assure you Sulfate and Sulfite are 2

different things. So far there haven't been any links to Sulfites and MTHFR. So

if your child has issues with foods with sulfites, then he/she probably has

sensitivity or an allergy.

> > >

> > > All of the following either contain metals, sulfates, OR will lower the

folic acid levels or raise the homocystine levels, all of which are detrimental

to someone with MTHFR.

> > >

> > > Sulfate and Sulfite are 2 different things. So far there haven't been any

links to Sulfites and MTHFR. If you or your child has issues with foods with

sulfites, then he/she probably has a sensitivity or an allergy.

> > >

> > > Medications to avoid

> > >

> > > Antiepileptic Drugs (seizure meds)

> > >

> > > Cyclosporine - immunosuppressant (post organ transplant)

> > >

> > > Antihypertensive (high blood pressure meds)

> > >

> > > Erythropoietin (aids RBC production and brain damage repair)

> > >

> > > Levodopa (parkinsons and RLS)

> > >

> > > Lithium (mania)

> > >

> > > Neroleptics (anti-psychotics/depression)

> > >

> > > Nitrous Oxide

> > >

> > > Oral Contraceptives

> > >

> > > Theophylline (breathing treatment)

> > >

> > > Fish Oil (has Mercury, use Flax Seed as substitute)

> > >

> > > Clioquinol (antifungal)

> > >

> > > Diuretics

> > >

> > > Drug increasing gastric ph (antacids)

> > >

> > > Isoniazid (TB, depression)

> > >

> > > Lipid lowering drugs (cholesterol meds)

> > >

> > > Methotrexate (CA, RA, skin issues) {reduces foliate intake}

> > >

> > > Nitroglycerin

> > >

> > > Oral anti-diabetic drugs

> > >

> > > Sulfates

> > >

> > > Immunizations

> > >

> > > Foods and Food Preservatives:

> > >

> > > Do not eat Shark, Swordfish, King Mackerel, or Tilefish because they

contain high levels of mercury. Albacore ( " white " ) tuna has more mercury than

canned light tuna.

> > >

> > > Five of the most commonly eaten fish that are low in mercury are shrimp,

canned light tuna, salmon, pollock, and catfish.

> > >

> > > Fish sticks and " fast-food " sandwiches are commonly made from fish that

are low in mercury.

> > >

> > > Check local advisories about the safety of fish caught by family and

friends in your local lakes, rivers, and coastal areas. If no advice is

available, eat up to 6 ounces (one average meal) per week of fish you catch from

local waters, but don't consume any other fish during that week.

> > >

> > > In 2009, the Environmental Health Journal reported on a study conducted by

a team led by Dufault that found high fructose corn syrup had high levels

of mercury.

> > >

> > > Neil's MTHFR Information Videos (4 continuing clips from one

presentation):

> > >

> > > (http://www.renewashoe.com/medical/MTHFR_1.wmv )

> > >

> > > (http://www.renewashoe.com/medical/MTHFR_2.wmv )

> > >

> > > (http://www.renewashoe.com/medical/MTHFR_3.wmv )

> > >

> > > (http://www.renewashoe.com/medical/MTHFR_4.wmv )

> > >

> > > Please click here for original webpage and more excellent information.

> > >

> > > NOTES from videos:

> > >

> > > Genes 677 and 1298 have different symptoms. Having both is worse/harder

to treat.

> > >

> > > C677- toxic to nerves, muscles and heart. Blood clots, painful nerves.

Pregnancy outcome problems.

> > >

> > > 1298- Associated with depression, anxiety, IBS, fibromyalgia, chronic

fatigue, migraines, dementia, nerve pain, schiz, Parkinson's.

> > >

> > > MTHFR gene takes folic acid and makes it into useful things in your body

to protect nerves, helps serotonin levels.

> > >

> > > People who don't activate vitamin B-6 well are included in this disorder.

> > >

> > > Rather than treat with medications that try to address medical conditions,

treat MTHFR to get to root of problem

> > >

> > > If you have a 677 and 1298 you have worse symptoms and associated with

blood clots.

> > >

> > > This is the gene (1298) that codes for genius.

> > >

> > > Glutathione clears body of toxic metals. Traditionally a hair analysis

test was popular for metal testing, but often body is unable to function

properly and/or clear toxins so the toxins can't get to hair to be measured.

> > >

> > > Glutathione is decreased in MTHFR patients- related to memory problems in

Alzheimer's.

> > >

> > > If you have defects it causes a hyper stimulation of brain and it can lead

to depression. Need B-12 (methyl foliate). Fresh garden veggies make people

feel better.

> > >

> > > Participation in music (band) activities because of structure. Piano,

etc.

> > >

> > > Having the gene defects means you don't clear metals well. Trying to

clear them you can overload system and symptoms worsen over time.

> > >

> > > Genetic susceptibility to cancer because your body can't heal. Kidney

failure related. Addiction is very possible.

> > >

> > > Limit heavy metal exposure

> > >

> > > Drink filtered water.

> > >

> > > Bad diet makes it worse.

> > >

> > > Certain meds decrease folic acid or increase utilization of folic acid.

> > >

> > > Laughing gas is bad.

> > >

> > > Diabetes problems worse in MTHFR

> > >

> > > Clotting disorders are worse.

> > >

> > > Aggravates many conditions.

> > >

> > > Symptoms include- social problems, OCD, depression, poor memory,

abdominal, cancer, liver, lung, immune, premature graying. Linked to

> > >

> > > autism (98% have one of these gene defects.)

> > >

> > > Flu vaccine and other vaccines make autism worse in those with MTHFR. If

you must get one, get one without mercury and aluminum.

> > >

> > > Zantac, prilocect, diabetes drugs, etc can cause problems in MTHFR

patients.

> > >

> > > Hypothyroid problems.

> > >

> > > Smoking makes it worse.

> > >

> > > Fresh fruits, especially berries are good to use.

> > >

> > > Regular folic acid won't work for the genetic disorder. You can get a

more activate form, but if you have defect it won't help much.

> > >

> > > 15-18% have genetic disorder.

> > >

> > > Almost ½ population has one gene defect.

> > >

> > > Benefit of methyl foliate- much more bioavailable.

> > >

> > > Look at metabolic pathway to determine how to supplement to improve

situation.

> > >

> > > Trial and error. Which symptoms are bothering you?

> > >

> > > Methytrilate folic needed for serotonin.

> > >

> > > Deflin is used as adjunct for depression. Serafolin marketed for

Alzheimer's. Anacedalcystine helps with neuro, nerves, fibro, etc.

> > >

> > > Meda NX (active form of folic acid and active form of B-6) helps many

problems, especially nerve repair. Use methyl B-12 too.

> > >

> > > OTC methyltetrahydrofolate can be purchased online- more expensive than

prescription. May be hard to find.

> > >

> > > Genetic testing can be used against you.

> > >

> > > Knowing you have disorder can help you address it and it can be addressed.

> > >

> > > Place you can get testing without doctor's orders. Cost about $300.00 for

MTHFR.

> > >

> > > Does affect kids, parents. Need to know.

> > >

> > > If you have MTHFR get rid of mercury fillings.

> > >

> > > Neuropathy can be very bad in patients with MTHFR.

> > >

> > > Only add one thing in at a time.

> > >

> > > Use reverse osmosis filter for water to drink and cook.

> > >

> > > Consider heavy metal testing. Do chelation if a lot.

> > >

> > > Take chelating agents- work with someone who does that.

> > >

> > > Hair and stool tests not good.

> > >

> > > 10-15 fold in pre-post testing.

> > >

> > > Most labs do heavy metal tests. Geneva Labs in North Carolina.

> > >

> > > Methyl foliate- not easy to find. NOT generic kind. Must be the " active "

form.

> > >

> > > Deplin

> > >

> > > B-6

> > >

> > > P5V

> > >

> > > Anacytalcystine

> > >

> > > Methyl B-12 and Methyl B-9 must have. B-9 most important.

> > >

> > > In severe fibro- shots work best but hurt.

> > >

> > > Lowers blood sugars using meds.

> > >

> > > Sunlight hurts eyes, but zinc helps with it.

> > >

> > > -----------------------------------------

> > >

> >

>

[Guest guest]

Thanks much Rita. We have an appointment with Dr. Amy on the 1st of october. I

will talk to her about the test.

> > > >

> > > >

> > > > & nbsp;

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > > Tammy,

> > > >

> > > > I thought of your post on MTHFR & amp; thought I'd send you the info I

came upon & amp; just sent to my neice....feel free to pass to your friend too:

> > > >

> > > >

> > > >

> > > > https://sites.google.com/site/drjoneskids/mthfr/mthfr-more-notes

> > > >

> > > > ps there are 2 other tabs on MTRFR on this site that are also worth

checking out....also, Dr is highly respected in thecircle of docs from

many in my biomedical recovery group.

> > > >

> > > >

> > > >

> > > > ----Copied from above links site:-----

> > > >

> > > > MTHFR Notes

> > > >

> > > > Warning to MTHFR patients- Using nitrous oxide (laughing gas-

anesthesia) can cause major problems, including death.

> > > >

> > > > Nitrous oxide, when given to people with MTHFR, blocks the production of

methionine, which plays an important role in DNA synthesis of neurotransmitters

and myelin, the insulating material covering nerves.

http://www.fertilethoughts.com/forums/genetic-issues/375471-mthfr-nitrous-oxide.\

html

> > > >

> > > > ***

> > > >

> > > > Explanation of MTHFR: Most of the population has some form of it causing

easy bruising or a clotting issue. It has also been associated with pregnancy

issues and being able to maintain pregnancies as women will not be able to

support their own folic acid levels and a baby's. Occasionally it will be a

little more serious and can cause early heart disease resulting in heart attacks

as early as late 20's (if not treated). On rare occasion a bad combination of

the 50 MTHFR genes will pair up and a person will end up with the inability to

process metals and sulfates. The metals will deposit directly into their brain

causing Autism, and sulfates will raise a naturally occurring homocystine levels

to toxic state, which destroys nerve and muscle tissue.

> > > >

> > > > How do our bodies keep homocystine in check? Folic acid breaks down

homocystine. However, people with MTHFR have issues with absorbing or

maintaining folic acid (they aren't sure), so they have low lvls of it and their

homocystine can get out of control. They also have a tendency to have B vitamin

deficiency, so treatments usually includes a large dose of folic acid and a

gambit of B vitamins. We also have to avoid all metals and sulfates, including

vaccinations (flu has thermerisol and those that don't have aluminum). There is

also a long list of medication we have to avoid that raise homocystine levels

(seizure medicine), lower folic acid, or could kill a person because their body

can't process Nitrous Oxide. http://paws4piper.weebly.com/mthfr-faq.html

> > > >

> > > > ***

> > > >

> > > > Sulfates are also bad for these kids. It is very confusing to hear about

tons of foods containing sulfites, but I assure you Sulfate and Sulfite are 2

different things. So far there haven't been any links to Sulfites and MTHFR. So

if your child has issues with foods with sulfites, then he/she probably has

sensitivity or an allergy.

> > > >

> > > > All of the following either contain metals, sulfates, OR will lower the

folic acid levels or raise the homocystine levels, all of which are detrimental

to someone with MTHFR.

> > > >

> > > > Sulfate and Sulfite are 2 different things. So far there haven't been

any links to Sulfites and MTHFR. If you or your child has issues with foods

with sulfites, then he/she probably has a sensitivity or an allergy.

> > > >

> > > > Medications to avoid

> > > >

> > > > Antiepileptic Drugs (seizure meds)

> > > >

> > > > Cyclosporine - immunosuppressant (post organ transplant)

> > > >

> > > > Antihypertensive (high blood pressure meds)

> > > >

> > > > Erythropoietin (aids RBC production and brain damage repair)

> > > >

> > > > Levodopa (parkinsons and RLS)

> > > >

> > > > Lithium (mania)

> > > >

> > > > Neroleptics (anti-psychotics/depression)

> > > >

> > > > Nitrous Oxide

> > > >

> > > > Oral Contraceptives

> > > >

> > > > Theophylline (breathing treatment)

> > > >

> > > > Fish Oil (has Mercury, use Flax Seed as substitute)

> > > >

> > > > Clioquinol (antifungal)

> > > >

> > > > Diuretics

> > > >

> > > > Drug increasing gastric ph (antacids)

> > > >

> > > > Isoniazid (TB, depression)

> > > >

> > > > Lipid lowering drugs (cholesterol meds)

> > > >

> > > > Methotrexate (CA, RA, skin issues) {reduces foliate intake}

> > > >

> > > > Nitroglycerin

> > > >

> > > > Oral anti-diabetic drugs

> > > >

> > > > Sulfates

> > > >

> > > > Immunizations

> > > >

> > > > Foods and Food Preservatives:

> > > >

> > > > Do not eat Shark, Swordfish, King Mackerel, or Tilefish because they

contain high levels of mercury. Albacore ( " white " ) tuna has more mercury than

canned light tuna.

> > > >

> > > > Five of the most commonly eaten fish that are low in mercury are shrimp,

canned light tuna, salmon, pollock, and catfish.

> > > >

> > > > Fish sticks and " fast-food " sandwiches are commonly made from fish that

are low in mercury.

> > > >

> > > > Check local advisories about the safety of fish caught by family and

friends in your local lakes, rivers, and coastal areas. If no advice is

available, eat up to 6 ounces (one average meal) per week of fish you catch from

local waters, but don't consume any other fish during that week.

> > > >

> > > > In 2009, the Environmental Health Journal reported on a study conducted

by a team led by Dufault that found high fructose corn syrup had high

levels of mercury.

> > > >

> > > > Neil's MTHFR Information Videos (4 continuing clips from one

presentation):

> > > >

> > > > (http://www.renewashoe.com/medical/MTHFR_1.wmv )

> > > >

> > > > (http://www.renewashoe.com/medical/MTHFR_2.wmv )

> > > >

> > > > (http://www.renewashoe.com/medical/MTHFR_3.wmv )

> > > >

> > > > (http://www.renewashoe.com/medical/MTHFR_4.wmv )

> > > >

> > > > Please click here for original webpage and more excellent information.

> > > >

> > > > NOTES from videos:

> > > >

> > > > Genes 677 and 1298 have different symptoms. Having both is worse/harder

to treat.

> > > >

> > > > C677- toxic to nerves, muscles and heart. Blood clots, painful nerves.

Pregnancy outcome problems.

> > > >

> > > > 1298- Associated with depression, anxiety, IBS, fibromyalgia, chronic

fatigue, migraines, dementia, nerve pain, schiz, Parkinson's.

> > > >

> > > > MTHFR gene takes folic acid and makes it into useful things in your body

to protect nerves, helps serotonin levels.

> > > >

> > > > People who don't activate vitamin B-6 well are included in this

disorder.

> > > >

> > > > Rather than treat with medications that try to address medical

conditions, treat MTHFR to get to root of problem

> > > >

> > > > If you have a 677 and 1298 you have worse symptoms and associated with

blood clots.

> > > >

> > > > This is the gene (1298) that codes for genius.

> > > >

> > > > Glutathione clears body of toxic metals. Traditionally a hair analysis

test was popular for metal testing, but often body is unable to function

properly and/or clear toxins so the toxins can't get to hair to be measured.

> > > >

> > > > Glutathione is decreased in MTHFR patients- related to memory problems

in Alzheimer's.

> > > >

> > > > If you have defects it causes a hyper stimulation of brain and it can

lead to depression. Need B-12 (methyl foliate). Fresh garden veggies make

people feel better.

> > > >

> > > > Participation in music (band) activities because of structure. Piano,

etc.

> > > >

> > > > Having the gene defects means you don't clear metals well. Trying to

clear them you can overload system and symptoms worsen over time.

> > > >

> > > > Genetic susceptibility to cancer because your body can't heal. Kidney

failure related. Addiction is very possible.

> > > >

> > > > Limit heavy metal exposure

> > > >

> > > > Drink filtered water.

> > > >

> > > > Bad diet makes it worse.

> > > >

> > > > Certain meds decrease folic acid or increase utilization of folic acid.

> > > >

> > > > Laughing gas is bad.

> > > >

> > > > Diabetes problems worse in MTHFR

> > > >

> > > > Clotting disorders are worse.

> > > >

> > > > Aggravates many conditions.

> > > >

> > > > Symptoms include- social problems, OCD, depression, poor memory,

abdominal, cancer, liver, lung, immune, premature graying. Linked to

> > > >

> > > > autism (98% have one of these gene defects.)

> > > >

> > > > Flu vaccine and other vaccines make autism worse in those with MTHFR.

If you must get one, get one without mercury and aluminum.

> > > >

> > > > Zantac, prilocect, diabetes drugs, etc can cause problems in MTHFR

patients.

> > > >

> > > > Hypothyroid problems.

> > > >

> > > > Smoking makes it worse.

> > > >

> > > > Fresh fruits, especially berries are good to use.

> > > >

> > > > Regular folic acid won't work for the genetic disorder. You can get a

more activate form, but if you have defect it won't help much.

> > > >

> > > > 15-18% have genetic disorder.

> > > >

> > > > Almost ½ population has one gene defect.

> > > >

> > > > Benefit of methyl foliate- much more bioavailable.

> > > >

> > > > Look at metabolic pathway to determine how to supplement to improve

situation.

> > > >

> > > > Trial and error. Which symptoms are bothering you?

> > > >

> > > > Methytrilate folic needed for serotonin.

> > > >

> > > > Deflin is used as adjunct for depression. Serafolin marketed for

Alzheimer's. Anacedalcystine helps with neuro, nerves, fibro, etc.

> > > >

> > > > Meda NX (active form of folic acid and active form of B-6) helps many

problems, especially nerve repair. Use methyl B-12 too.

> > > >

> > > > OTC methyltetrahydrofolate can be purchased online- more expensive than

prescription. May be hard to find.

> > > >

> > > > Genetic testing can be used against you.

> > > >

> > > > Knowing you have disorder can help you address it and it can be

addressed.

> > > >

> > > > Place you can get testing without doctor's orders. Cost about $300.00

for MTHFR.

> > > >

> > > > Does affect kids, parents. Need to know.

> > > >

> > > > If you have MTHFR get rid of mercury fillings.

> > > >

> > > > Neuropathy can be very bad in patients with MTHFR.

> > > >

> > > > Only add one thing in at a time.

> > > >

> > > > Use reverse osmosis filter for water to drink and cook.

> > > >

> > > > Consider heavy metal testing. Do chelation if a lot.

> > > >

> > > > Take chelating agents- work with someone who does that.

> > > >

> > > > Hair and stool tests not good.

> > > >

> > > > 10-15 fold in pre-post testing.

> > > >

> > > > Most labs do heavy metal tests. Geneva Labs in North Carolina.

> > > >

> > > > Methyl foliate- not easy to find. NOT generic kind. Must be the

" active " form.

> > > >

> > > > Deplin

> > > >

> > > > B-6

> > > >

> > > > P5V

> > > >

> > > > Anacytalcystine

> > > >

> > > > Methyl B-12 and Methyl B-9 must have. B-9 most important.

> > > >

> > > > In severe fibro- shots work best but hurt.

> > > >

> > > > Lowers blood sugars using meds.

> > > >

> > > > Sunlight hurts eyes, but zinc helps with it.

> > > >

> > > > -----------------------------------------

> > > >

> > >

> >

>