gluten free diet

[Guest guest]

Hi Anu,

It's been 8 years since I've been diagnosed with RA. I have tried a couple of

elimination diets thinking that if I eliminate some type of food I may get

better, but they have not worked for me atleast.

There may be certain foods that make one feel worse so you must avoid those. And

perhaps that's what your rheumatologist is saying. Unlike ayuveda, which

identifies and lays great stress what you must stay away from, I think when you

start with allopathy you will have to identify what suits you and what doesn't.

And believe me that's a relief.

I've tried ayurveda too, but well it didn't work for me. Allopathic drugs are

proven and researched disease modifying drugs and they to certain extent arrest

joint damage. Allopathy, so long as it's non-steroidal works well for me and

most people I've known with RA. I'd suggest you give allopathy a chance.

Take care,

a

Subha N <subhapradav@...> wrote:

folks,

how much of a benefit has a gluten free diet given all of you. i'm just

diagnosed with RA and what i read on the internet is in contrast to what my

rheumy says....he says diet has just 10% significance....

am yet to start RA medications...on ayurveda right now which is giving me

definite benefits, thanks

Anu

[Guest guest]

hi anu

my naturopath has put me on a diet that is

wheat free

caffeine free

occasional dairy

minimal meat

lots of fresh fruit and veg

water only or fresh juice

fish every day if possible

also natural anti inflammatories and fish oils

i have never felt healthier and my inflammation has definantly improved - now

i'm not sure if that's because the 'flare' has finished or if the diet and tabs

are working. i figure that the diet will help my general health anyway and so i

am very glad to follow it

i'm not on any other ra meds as yet as i haven't seen my rheumatologist (not til

november)

good luck and any q's just ask

mel

[ ] Gluten free diet

folks,

how much of a benefit has a gluten free diet given all of you. i'm just

diagnosed with RA and what i read on the internet is in contrast to what my

rheumy says....he says diet has just 10% significance....

am yet to start RA medications...on ayurveda right now which is giving me

definite benefits, thanks

Anu

[Guest guest]

Hi Anu.

I tried a gluten free diet with no improvement. Gluten intolerance

has many of the same symptoms as RA and a small number of people

diagnosed with RA may have been misdiagnosed. When they go on a

gluten free diet and get better, they believe that RA can be cured by

diet. It may be a good idea if everyone diagnosed with RA try

eliminating gluten. 10% is a LOT of people. This list has over 1000

members, so that means 100 people on this list may benefit from diet

modifications.

There is a lot of bad information on the internet. I am very cautious

of any site that has something to sell. Some unscrupulous people will

make any claims just to sell their snake oil.

a

On Sep 29, 2005, at 12:20 PM, Subha N wrote:

> folks,

>

> how much of a benefit has a gluten free diet given all of you. i'm

> just diagnosed with RA and what i read on the internet is in

> contrast to what my rheumy says....he says diet has just 10%

> significance....

> am yet to start RA medications...on ayurveda right now which is

> giving me definite benefits, thanks

> Anu

>

>

>

>

>

[Guest guest]

Mel,

It's great that you see improvements. I feel the same way, it's

healthier and I enjoy eating healthy. I believe in the body's ability

to heal itself so I try to eat a close to natural as I can.

Eliminating meat has been the most helpful to me. There are many

foods that help fight inflammation, so I try to add them to my diet.

a

On Sep 29, 2005, at 7:20 PM, P Wheeler wrote:

> hi anu

> my naturopath has put me on a diet that is

> wheat free

> caffeine free

> occasional dairy

> minimal meat

> lots of fresh fruit and veg

> water only or fresh juice

> fish every day if possible

>

> also natural anti inflammatories and fish oils

>

> i have never felt healthier and my inflammation has definantly

> improved - now i'm not sure if that's because the 'flare' has

> finished or if the diet and tabs are working. i figure that the

> diet will help my general health anyway and so i am very glad to

> follow it

> i'm not on any other ra meds as yet as i haven't seen my

> rheumatologist (not til november)

>

> good luck and any q's just ask

> mel

[Guest guest]

>

> Hi, thanks for the warm welcome. I have heard alot about these

type of dietetic changes and the help it seems to provide, I'm just

really hesistant b/c loves his " treats " ie cookies, fruit

snacks etc. and even if I take them from him, my little girl LOVES

them too...I feel cruel!

Oh but there are so many other things you can have as treats!!! I

started the gluten free diet for our entire family to make it easier

and to guard against accidental cross contamination.

Here's a recipe for Scotcheroos...no gluten or casein found in it!

Scotcheroos

Nestles makes lots of different chips that can be used on this dish.

We like to use the milk chocolate/carmel swirl chips, it's our

favorite!

1 cup sugar

1 cup light corn syrup

1 cup peanut butter (look for gluten free ingredients)

6 cups rice crispy cereal

6 oz chocolate chips

6 oz butterscotch chips

Grease a 9x13 in. pan. Combine first three ingredients in a pot and

bring to a boil over medium heat. Mix with cereal. Spread mixture

into prepared pan. Place chocolate and butterscotch chips on top, the

heat will melt the chips within a couple minutes. Spread once melted

and allow to cool for 30 minutes until set, serve at room temperature.

[Guest guest]

I guess I was really confused with the " gluten free " diet...I haven't read

enough about it yet to truly speak intelliegently about it!...I thought you also

had to remove sugars from their diet as well. One question, is soy milk gluten

free and does anyone have any suggestions as to good brands...my son is a

chocolate milk-drinkin' fool! Thanks for the yummy recipe...they look great and

I can't wait to try them.

jandennlinger <jandennlinger@...> wrote:

>

> Hi, thanks for the warm welcome. I have heard alot about these

type of dietetic changes and the help it seems to provide, I'm just

really hesistant b/c loves his " treats " ie cookies, fruit

snacks etc. and even if I take them from him, my little girl LOVES

them too...I feel cruel!

Oh but there are so many other things you can have as treats!!! I

started the gluten free diet for our entire family to make it easier

and to guard against accidental cross contamination.

Here's a recipe for Scotcheroos...no gluten or casein found in it!

Scotcheroos

Nestles makes lots of different chips that can be used on this dish.

We like to use the milk chocolate/carmel swirl chips, it's our

favorite!

1 cup sugar

1 cup light corn syrup

1 cup peanut butter (look for gluten free ingredients)

6 cups rice crispy cereal

6 oz chocolate chips

6 oz butterscotch chips

Grease a 9x13 in. pan. Combine first three ingredients in a pot and

bring to a boil over medium heat. Mix with cereal. Spread mixture

into prepared pan. Place chocolate and butterscotch chips on top, the

heat will melt the chips within a couple minutes. Spread once melted

and allow to cool for 30 minutes until set, serve at room temperature.

[Guest guest]

>

> I guess I was really confused with the " gluten free " diet...I

haven't read enough about it yet to truly speak intelliegently about

it!...

No, you don't have to reduce sugars. I'll explain a little

bit...gluten is a protein found in wheat, oats, barley and rye. The

protein in normal people doesn't have any affect. But in people with

autism, the protein causes a reaction to chemicals in the brain.

Autism is a physical brain disability, the chemical function of an

autistic brain is faulty, and the protein gluten causes this lopsided

chemical balance to become even worse.

I'm not a nurse or doctor (you can probably tell, huh? LOL) so I

don't know if I'm using the right description of how the brain works

but this is the best I can do.

Casein is found in all dairy products, and it affects the brain

chemistry in autistic people as well.

>>>One question, is soy milk gluten free and does anyone have any

suggestions as to good brands...my son is a chocolate milk-drinkin'

fool! Thanks for the yummy recipe...they look great and I can't wait

to try them.

>

Soy milk is made from soybeans, and does not contain gluten or

casein. I buy the Silk brand of chocolate soymilk and it is

delicious!! I buy the Silk brand of regular soymilk too, it is ever

so slightly thicker than dairy milk, but we like it. I add a bit of

water to it for my daughter so it isn't as thick.

[Guest guest]

Subject: ( ) Re: gluten free diet

>

> I guess I was really confused with the " gluten free " diet...I

haven't read enough about it yet to truly speak intelliegently about

it!...

No, you don't have to reduce sugars. I'll explain a little

bit...gluten is a protein found in wheat, oats, barley and rye. The

protein in normal people doesn't have any affect. But in people with

autism, the protein causes a reaction to chemicals in the brain.

Autism is a physical brain disability, the chemical function of an

autistic brain is faulty, and the protein gluten causes this lopsided

chemical balance to become even worse.

I'm not a nurse or doctor (you can probably tell, huh? LOL) so I

don't know if I'm using the right description of how the brain works

but this is the best I can do.

Casein is found in all dairy products, and it affects the brain

chemistry in autistic people as well.

****This is not a proven fact. This is what some people believe to be true.

Other people do not buy into this theory. For me, I would not call Autism a

chemical imbalance in the brain as it's much more than that.

The thing to remember is - if a specific diet works, then go for it. As

long as it is not something that hurts the child and it makes you feel like

you are doing something as well, then why not. But you have to also weigh

the cost of some of these programs. You can spend a lot going to a DAN

doctor and having lots of tests. I have friends who do this and have never

seen a difference in any of their kids. But they swear by it.

Roxanna

[Guest guest]

We found the gluten and casein free diet to work wonderfully for " our "

family. Once our son became gluten free at age 3 his poops went from

frothy and yellow and floaty and frequent to more regular and brown

colored. He gained in height and weight. Our son's behavior DID

improve, and anybody who was around us at the time or sees our videos

can see this. I have heard that the most improvements occur if the

child has what is referred to as a leaky gut, which he clearly had.

In order to get more behavioral improvement, however, we also needed

to remove soy, most sources of corn, and all food dyes. We in fact at

one point did the Specific Carbohydrate Diet which is one of the

hardest diets there is yet has tons of support from parents of kids

with autism. We could only do it for 6 months versus the year they

recommend.

We have never paid a penny to DAN doctors, and our food costs are less

because my kids just eat vegetables, fruits, meats, eggs, slow cooked

rice, and nuts. Processed gfcf foods are used only as treats.

[Guest guest]

We found the gluten and casein free diet to work wonderfully for " our "

family. Once our son became gluten free at age 3 his poops went from

frothy and yellow and floaty and frequent to more regular and brown

colored. He gained in height and weight. Our son's behavior DID

improve, and anybody who was around us at the time or sees our videos

can see this. I have heard that the most improvements occur if the

child has what is referred to as a leaky gut, which he clearly had.

In order to get more behavioral improvement, however, we also needed

to remove soy, most sources of corn, and all food dyes. We in fact at

one point did the Specific Carbohydrate Diet which is one of the

hardest diets there is yet has tons of support from parents of kids

with autism. We could only do it for 6 months versus the year they

recommend.

We have never paid a penny to DAN doctors, and our food costs are less

because my kids just eat vegetables, fruits, meats, eggs, slow cooked

rice, and nuts. Processed gfcf foods are used only as treats.

[Guest guest]

Subject: ( ) Re: gluten free diet

I have heard that the most improvements occur if the

child has what is referred to as a leaky gut, which he clearly had.

**** This is a really odd problem. I work with a little guy who had this

problem and the mom did all the usual things such as the diet. Nothing ever

did help. The regular autism doc just said, " It's autism, try the diet. "

And when that didn't work, there was nothing else. She finally took him to

a real doctor and after tests and scans, he has colitis. Got him the meds

for that and he is doing great.

I have since read an article that said if this happened to any typical kid,

we'd explore and find out what was going on first and not just say, " It's

autism " and do the gfcf diet. I thought that was a really important piece

to remember overall...to know that our kids can have problems not related to

autism as well and not to just say it's part of autism.

Having said that, my 2nd ds had these kinds of problems as well and we never

did a diet anything. When he was probably 5-ish, things started to improve

on their own as well as a lot of things (combined with an ABA program plus a

maturation occurring as well.)

Roxanna

[Guest guest]

GREAT POINT !!!! YES!!

-- ( ) Re: gluten free diet

I have heard that the most improvements occur if the

child has what is referred to as a leaky gut, which he clearly had.

**** This is a really odd problem. I work with a little guy who had this

problem and the mom did all the usual things such as the diet. Nothing ever

did help. The regular autism doc just said, " It's autism, try the diet. "

And when that didn't work, there was nothing else. She finally took him to

a real doctor and after tests and scans, he has colitis. Got him the meds

for that and he is doing great.

I have since read an article that said if this happened to any typical kid,

we'd explore and find out what was going on first and not just say, " It's

autism " and do the gfcf diet. I thought that was a really important piece

to remember overall...to know that our kids can have problems not related to

autism as well and not to just say it's part of autism.

Having said that, my 2nd ds had these kinds of problems as well and we never

did a diet anything. When he was probably 5-ish, things started to improve

on their own as well as a lot of things (combined with an ABA program plus a

maturation occurring as well.)

Roxanna

[Guest guest]

Have many of you found the gluten free diet to help speech?? I have a 3

1/2 year old son with severe apraxia, sensory issues, and auditory

processing difficulties. He is putting some 2-3 word phrases together

with a struggle.

My pediatrician just completed some bloodwork, and it showed that he

had a gluten intolerance. The number was a 42. It was shown as a red

flag on the report, but not sure if this is a high intolerance. Hence,

he suggested the diet. Only gluten free thought, not casein free.

Anyway, we have been at the diet for about 3 weeks. Not sure if we see

any difference, and it is difficult

Any thoughts would be greatly appreciated.

Thanks,

[Guest guest]

I find it is easier to do both GF and Casin Free at the same time.

I just made some GFCFSF & Egg free (only because I was out of eggs) chocolate

cookies and they turned out fab.

It is so worth it to be casin free. We have been working towards GF/SF

since Sept 2005 and just added the CF to it and are now seeing progress. I

have different children.

I think someone else said you won’t “see” the GF improvements for about 6-12

months. We saw the Casin free in a bout a week to week and half. None of

the boys’ casin intolerances showed up in testing.. We found it all by

accident.

_____

From:

[mailto: ] On Behalf Of mallory_julie

Sent: Saturday, September 15, 2007 7:48 AM

Subject: [ ] gluten free diet

Have many of you found the gluten free diet to help speech?? I have a 3

1/2 year old son with severe apraxia, sensory issues, and auditory

processing difficulties. He is putting some 2-3 word phrases together

with a struggle.

My pediatrician just completed some bloodwork, and it showed that he

had a gluten intolerance. The number was a 42. It was shown as a red

flag on the report, but not sure if this is a high intolerance. Hence,

he suggested the diet. Only gluten free thought, not casein free.

Anyway, we have been at the diet for about 3 weeks. Not sure if we see

any difference, and it is difficult

Any thoughts would be greatly appreciated.

Thanks,

[Guest guest]

The gluten free diet primarily helps address gut inflammation. Sometimes a

severe intolerance can show improvement on the diet immediately. If it isn't

severe, it might not appear to be doing much, even though it may be. Consider

also adding probiotics and digestive enzymes to aid in digestion and gut repair.

Your pediatrician seems very open-minded. I would consider having a urinary

porphyrin test run to check for heavy metals, as well as a hair test. It is

possible you could have a mercury problem going on. To be sure, these tests will

at least rule it out.

-------------- Original message --------------

From: " mallory_julie " <michaelmallory@...>

Have many of you found the gluten free diet to help speech?? I have a 3

1/2 year old son with severe apraxia, sensory issues, and auditory

processing difficulties. He is putting some 2-3 word phrases together

with a struggle.

My pediatrician just completed some bloodwork, and it showed that he

had a gluten intolerance. The number was a 42. It was shown as a red

flag on the report, but not sure if this is a high intolerance. Hence,

he suggested the diet. Only gluten free thought, not casein free.

Anyway, we have been at the diet for about 3 weeks. Not sure if we see

any difference, and it is difficult

Any thoughts would be greatly appreciated.

Thanks,

[Guest guest]

,

It takes a minimum of 3 months to see gluten leave the system and sometimes up

to 6 months for older children. So take heart and keep on plugging. Later on

when you are accustomed to the gluten free lifestyle (which is quite difficult);

try a test period of casien free to see if your son is a responder.

Casien elimination completely has helped us with speech and balance issues as it

so profoundly can affect the ears and hearing if your child is a responder.

So...... while 3 weeks is enough time to see results with casien, gluten takes a

whole lot longer. So, while your trying for patience, really work with

stimulating your childs auditory input. Find fun audio-tapes of nursery rhymes

and other audio-books for little tykes and seek out upbeat music to put in his

room or to play around the house. Laugh dance, teach him the hokey, pokey! See

if he will respond to a game of Simon Says or not. If he does, then you learn

something; if he doesn't then you also learn something. You need to find 'where

his ears and hearing are at' with regard to processing and then work it hard.

Teach him sing songs (with you doing the singing) that have gestures involved

such as " head and shoulders, knees and toes, knees and toes " that link words

with meaning. Get everything and anything you can find that he 'responds' to in

an auditory manner and use it to stimulate his hearing abilities.

Good luck and keep up your patience. Gluten is a tough one but keep going and

work your child with home therapy ideas along the way.

Janice

[sPAM] [ ] gluten free diet

Have many of you found the gluten free diet to help speech?? I have a 3

1/2 year old son with severe apraxia, sensory issues, and auditory

processing difficulties. He is putting some 2-3 word phrases together

with a struggle.

My pediatrician just completed some bloodwork, and it showed that he

had a gluten intolerance. The number was a 42. It was shown as a red

flag on the report, but not sure if this is a high intolerance. Hence,

he suggested the diet. Only gluten free thought, not casein free.

Anyway, we have been at the diet for about 3 weeks. Not sure if we see

any difference, and it is difficult

Any thoughts would be greatly appreciated.

Thanks,

[Guest guest]

Can you post the cookie recipe?

Zeissler wrote:

> I find it is easier to do both GF and Casin Free at the same time.

>

> I just made some GFCFSF & Egg free (only because I was out of eggs)

> chocolate

> cookies and they turned out fab.

>

> It is so worth it to be casin free. We have been working towards GF/SF

> since Sept 2005 and just added the CF to it and are now seeing progress. I

> have different children.

>

> I think someone else said you won’t “see” the GF improvements for

> about 6-12

> months. We saw the Casin free in a bout a week to week and half. None of

> the boys’ casin intolerances showed up in testing.. We found it all by

> accident.

>

>

>

> _____

>

> From:

> <mailto: %40>

> [mailto:

> <mailto: %40>] On Behalf Of mallory_julie

> Sent: Saturday, September 15, 2007 7:48 AM

>

> <mailto: %40>

> Subject: [ ] gluten free diet

>

> Have many of you found the gluten free diet to help speech?? I have a 3

> 1/2 year old son with severe apraxia, sensory issues, and auditory

> processing difficulties. He is putting some 2-3 word phrases together

> with a struggle.

>

> My pediatrician just completed some bloodwork, and it showed that he

> had a gluten intolerance. The number was a 42. It was shown as a red

> flag on the report, but not sure if this is a high intolerance. Hence,

> he suggested the diet. Only gluten free thought, not casein free.

> Anyway, we have been at the diet for about 3 weeks. Not sure if we see

> any difference, and it is difficult

>

> Any thoughts would be greatly appreciated.

>

> Thanks,

>

>

>

[Guest guest]

Casein was our big find. We are still watching gluten (we are off but I

can't say what it does)

mallory_julie wrote:

> Have many of you found the gluten free diet to help speech?? I have a 3

> 1/2 year old son with severe apraxia, sensory issues, and auditory

> processing difficulties. He is putting some 2-3 word phrases together

> with a struggle.

>

> My pediatrician just completed some bloodwork, and it showed that he

> had a gluten intolerance. The number was a 42. It was shown as a red

> flag on the report, but not sure if this is a high intolerance. Hence,

> he suggested the diet. Only gluten free thought, not casein free.

> Anyway, we have been at the diet for about 3 weeks. Not sure if we see

> any difference, and it is difficult

>

> Any thoughts would be greatly appreciated.

>

> Thanks,

>

>

>

[Guest guest]

Thanks for all the advice! I am committed to the gluten free for at

least 3 months. I guess I should consider eliminating casein too.

He does not have any gastrointestinal problems. Poops everyday with

a good consistency (sorry to be graphic!) I am not sure if that

means anything or not!

>

> My son would not have made any of the successes this past year had

we not eliminated casien from our lives. Period. He did 9 years of

therapy with little improvement; we eliminated the milk and he is

almost better after one year. Albeit we have done an intensive home

program along with this. But one sip of the 'white stuff' and all of

his dyspraxic qualities return so I know that milk is a HUGE part of

his troubles.

>

> The only way to know if your child is a responder is to ditch the

milk and anything with casien in it for 3 weeks and then to have a

milk day and really observe your child. We all found out this way

and it is the only true way to know for sure whether this is indeed

an issue for your child. If it is, then you have discovered a HUGE

key to defeating your sons issues.

>

> Janice

>

>

> [ ] gluten free diet

>

> Have many of you found the gluten free diet to help speech?? I

have a 3

> 1/2 year old son with severe apraxia, sensory issues, and

auditory

> processing difficulties. He is putting some 2-3 word phrases

together

> with a struggle.

>

> My pediatrician just completed some bloodwork, and it showed that

he

> had a gluten intolerance. The number was a 42. It was shown as a

red

> flag on the report, but not sure if this is a high intolerance.

Hence,

> he suggested the diet. Only gluten free thought, not casein free.

> Anyway, we have been at the diet for about 3 weeks. Not sure if

we see

> any difference, and it is difficult

>

> Any thoughts would be greatly appreciated.

>

> Thanks,

>

>

>

[Guest guest]

kinnikinnick is a great brand that my son does well with. It is the only

brand of gf bagel he can tolerate. They are all hard and you take one out at a

time and thaw it in the fridge overnight and then cut it up and toast it... I

usually cut it in bite size pieces for him. If they are still too hard for

your liking, try English muffins.

************************************** See what's new at http://www.aol.com

[Guest guest]

In the summer our package did say that. I think it was in te baking

soda or powder in them. Something like that but it was actually

listed. I take my conspiracy theories only so far (LOL)

>

> Confused -- how do you know the GF waffles have aluminum in them?

> Surely it doesn't say it on the package!

>

> in NJ

[Guest guest]

>

Elevated antigliadin antibodies suggest gut issues. Would make sure

zinc, iron (with TIBC) and carnitine are checked. Consider having

fecal fat study done (qualitative)...to determine if there is fat

malabsorption (common in the children with elevated antigliadin

antibodies). Even if you go gluten free, but nutritionally are not

absorbing nutrients properly (including omega 3 and vit E)...gluten

free alone will not make a big difference (although important to go

gluten free if gluten intolerant). Many of the best responders to

omega 3 and vit E have been the gluten-sensitive children. Hope you

are supplementing with fish oil and vit E as well?

> Have many of you found the gluten free diet to help speech?? I have

a 3

> 1/2 year old son with severe apraxia, sensory issues, and auditory

> processing difficulties. He is putting some 2-3 word phrases

together

> with a struggle.

>

> My pediatrician just completed some bloodwork, and it showed that

he

> had a gluten intolerance. The number was a 42. It was shown as a

red

> flag on the report, but not sure if this is a high intolerance.

Hence,

> he suggested the diet. Only gluten free thought, not casein free.

> Anyway, we have been at the diet for about 3 weeks. Not sure if we

see

> any difference, and it is difficult

>

> Any thoughts would be greatly appreciated.

>

> Thanks,

>

>