- a long shot for research funding

[Guest guest]

, if you are lurking out there, this is probably another dead

end, but thought I'd mention it.

Dr. Sears wrote the Zone Diet and is doing lots of research on high

dose fish oil. His fish oil (30 grams/day) was used in the Sago mine

survivor with amazing results. He also did the recent study on 16

grams/day of fish oil for ADHD. Here is a paragraph from his website:

Dr. Sears continues his research in treating heart disease, type 2

diabetes and neurological disorders as president of Zone Labs, a

biotechnology company in Danvers, Mass. He has recently expanded his

research to develop innovative dietary approaches to treating

neurological conditions and improving cognitive functions. His

clinical research is funded through the non-profit Inflammation

Research Foundation.

Gretchen

>

> Who is using more than 16 grams/day of omegas for apraxia? We are

> using 9 capsules/day which is only 4.5 grams (1000 mg omega in 2

> capsules or 500 mg per capsule). 16 grams a day is a very high

dose -

> though higher doses may be what is needed for some of these

conditions.

> I read this article and it didn't register that they were using

such

> high doses. Will have to go back and check again...maybe its time

to

> increase ph's fish oil higher if they really used that much.

But

> the enemy of good is perfect. And things are pretty darn good when

it

> comes to my little guy.

>

> We just pulled out videos from when he was 2 - before fish oil and

vit

> E (viewed for the first time...since I couldn't bear to watch them

in

> the past). It was really so sad to watch him struggle. The candle-

> blowing attempt on his 2nd b-day was particularly sad. He said 100

> words with his eyes, but grunted and pointed, or otherwise was

silent.

> We even jokingly called him the " caveman " - not realizing at the

time

> that he had a serious neurological disorder. It was a reminder of

how

> severely apraxic he was - how far we've come, and just how lucky we

> are. But this was 2 years ago...a lifetime ago - and I remember the

> feelings of hopelessness as I came to understand his diagnosis

shortly

> after this. So much progress with the right therapy. I wish this

for

> everyone... there is lots of hope for these childrens' future. It

just

> takes patience, hard work, love and a continued stream of sharing

of

> information among families dealing with this to determine what is

> working. In time, the sheer number of children will ultimately cry

out

> for a study to validate the findings that have been described on

this

> board (my attempts at securing funding have yet been

> unsuccessful)...just like the recent Lancet article decribes hyper

> behavior in children resulting from preservatives...not new info to

> parents of allergic children whose behavior quickly changes in a

Jekyl-

> Hyde manner when they ingest something they are allergic/intolerant

to.

> When the medical community finally agrees that omega 3 and vit E

help

> apraxia of speech...I for one will not be surprised. But who knows

how

> many years from now that will be.

>

> -

>

>

>

> > Here are a couple of links to very recent article on high dose

fish

> oil

> > to treat ADHD. the dose used was 16 gm/day, less than most of us

are

> > using here, I think. It describes blood levels that can be

followed

> to

> > optimize the dose.

> >

> > http://www.nutritionj.com/content/6/1/16

> >

> > http://www.medicalnewstoday.com/articles/79071.php

> >

> > Gretchen

> >

>