New to the group! Help!

[Guest guest]

Hi All,

My mind is spinning after reading over so many of the postings.

Great info and lots to think about!

Here's a brief summary of our " story " with a couple ?'s at the end:

*Older son (6) mildly dyspraxic, low tone, went to speech for

articulation issues but was fluent early on. Is in O.T. now that

we've identified he's dyspraxic.

*Younger son (2 y.o.+8 mo.) is also low tone, is in speech, P.T. and

O.T., as well as ABA therapy. He has seen several specialists and

everyone (including therapists) agree he doesn't appear to be

autistic. So perhaps more globally dyspraxic? His language has been

extremely slow in coming. At this point he's putting limited 2 words

together, but isnt' having a language explosion. He does attempt

more but I'm discouraged. Therapy rules our life and I'm sick of

it. I truly believe he's apraxic and the Regional Center of O.C.

(here in California) won't respond to me crying out for help for my

dyspraxic child (they just wanted to give him ABA I think because the

funding's there.)

Last Spring I took him to a local DAN doctor and she wanted to treat

him with the DAN protocol (as though he was autistic, even though he

doesn't have many of the signs. Although I know there's some

overlap.) I started him on NN CLO, and put him on a GF/CF/Soy-free

diet....he's had consistent eczema and asthmatic episodes. The new

diet did clear up the eczema and caused better, more consistent bowel

movements. But I haven't done anything else the DAN doctor wanted to

do (all the blood work - out of pocket expense we haven't been able

to afford). She also recommended the vitamin B12 shots in the butt.

Okay, so here are my questions....I searched here and couldn't find

the postings (although it looked like there was a thread)....are the

vitamin B12 shots a viable thing for apraxic children? Or more for

autistic, language-delayed kids (without motor issues)? My son has

definite motor challenges. In fact, I would describe him

as " consistently inconsistent. " All the therapists say he goes up

and down (makes progress, then regresses, etc.) It breaks my heart.

Do you ever feel you are swimming alone in a great big ocean with no

island in sight? That's me. The majority of my friends and our

families don't " get it " and have either said lame things or just

slowly pulled away.

Okay, enough rambling. Thanks for being a safe haven - I can tell

I'll enjoy being a part of your community!