Re: Rambling on board hijacking/carnitine

[Guest guest]

Hi Liz,

Read more about the carnitine in the 4 A's book. It's really quite

interesting. It's more about energy on the cellular level, good for

tone, heart (which is a muscle), etc. It seems to be included in

some sports supplements for athletes. It works best with CoQ10,

which apparently most children are low on anyway. It's effects do

seem to be less obvious than the fish oil, but I am now giving it to

as well as Tyler. Tyler is getting more (2,000mg vs.

1,000mg), since he has further to go at this point. has a

benign heart murmur, so I figure anything that's good for the heart

is going to be good for him.

Also, my reading suggests that even if your carnitine blood levels

test as normal, supplementation might be helpful. Blood doesn't

detect amount at the cellular level. If 's remaining

articulation issue is due to low tone, carnitine might help a

little.

in NJ

>

> The direction of the board has been weighing on me heavily for a

good

> while.

>

> The point I was trying to make in direct response to one of 's

fish

> oil is talk medicine posts (not the weight gain one where I

mistakenly

> mentioned FOD IF going to genetics in the wrong thread) is that

there

> are people, old and new (old ones who come to mind are Kim, the

's

> and ) who have children diagnosed with apraxia (though Kim's

guy

> is also light PDD I think) who are fish oil and E responders and

still

> need more but just did not talk about it until recently. They were

the

> nontalkers back in the day.

>

> Make no mistake, is a responder. He is in fact closer to

apraxia

> than autism, as I suspected all along. I once gave him CLO when I

> worried autism and likely screwed up his vision as a result. He

would

> likely get full or at least very good articulation if I could get

100 IU

> in him safely with the right fish oil combo based on my

experiments.

> That is my goal AFTER hematology. I actually need help with the

fish oil

> doseage but can only wonder where I'll find that since I am so

unpopular

> today, and apparently for a while.

>

> Despite the insinuations it was and not who was

closer

> to the road to autism and that was likely as a result of genetics

set

> off by the MMR and the water. I shudder to think what would have

> happened had I not fought for her to get apraxia labs too.

>

> What has been ignored is what I am trying to do NOW. As soon as

Janice

> started chelating I was concerned we were going to hear about

chelation

> and people would get scared and overreact with little ones not

realizing

> Mark's deal. That and the fact that I realize many see me

as " taking up

> too many seats on the bus " pushed me to remind people of the

mainstream

> offerings labwise in the folders that mentioned along with

diet

> and environmental. Also, Janice had a mold problem Mark grew up

with and

> that subsequently may have caused issues for another kid later

residing

> in his room. That could help with allergy theory and could

help

> others on the board.Just a thought.

>

> I have been trying since the main biomed breakout to recommend

books so

> people, on their own, might rule in or out things in their kid:

>

> 1) Is this your child? to investigate allergy rather than debate it

on

> the board

> 2) The 4 As: to help people rule in or out metal and/or gut stuff

and

> help with allergy theiry

> 3) Chabging the Course of Autism: to see how the body works

> 4) Feast without Yeast: to help people realize how to address diet

> responsibly if they are going to bother. Again to not fight over it.

>

> Gluten Sensitivity: The study is proposing deals with this.

> does not want to touch this which is fine for her BUT if people are

> really following 's study for their kid they should not act

as if

> the formula is the cure-all and testing for this is irrelevant. My

son,

> the responder, is not atypical and has the gene being looked at as

part

> of the study.

>

> I will not lie. This hurts...A LOT. I have spent three devastating

years

> watching my entire family's health decline and feeling helpless in

> trying to address it until nearly nine months ago. This has been

like a

> third pregnancy of sorts. I found answers on this board:

>

> 1) is an allergy kid (flourine and milk).

> 2) is a gut kid

> 3) is an autoimmune kid (DQ1 gluten sensitivity).

>

> Are these not the very things in 's study? He is not the

> exception. The only thing is cannot handle as much E as

most.

> Could be not the right combo or that his immune system is on

overdrive

> and fights extra E but I am not going to stroke him out trying to

prove

> he is a responder.

>

> When we get enough fluorine out safely (studies say calmag for that

and

> iodine (he is currently getting that from fish oil) to avoid

endocrine

> system damage) I bet the speech issues will improve. I just have to

find

> out if I can do the calmag safely or if, ironically, chelation is

safer.

> I will do that via testing at the regular allergist and the

> environmental one. I will only consider that after hematology,

's

> labs, many big discussions with Dr. friends, cousin, scientist

hubby,

> reading studies, review of long-term effects, etc.

>

> Fluorine, in some ways, is my friend:

>

> It is an antibacterial of sorts (so overworks the system I think

that

> the body is always in fight mode so rarely gets sick but

when he

> does he improves from excreting from the head). Wouldn't it be nice

if

> we were just a few head colds away from perfect speech?

>

> The tone issues are gone. Articulation is the last battle with a

smidge

> of midline stuff.

>

> I went through this before with catherine's hair loss. Had I

listened to

> the doctors and support group who told me she was fine and not to

look

> for a cause but simply build her self-esteem her celiac would have

> remained unaddressed and she'd have suffered immensely. Had I

lstened to

> them the GI would not have said to her the last time we went:

> " , you are a much healthier little girl than the one I met

last

> May. " That hair loss, like 's speech, was the tip of the

iceberg.

> She had celiac and early signs of Ricketts and neither was

obvious...the

> many doctors who saw her before that will tell you that.

>

> Lastly, I see things in that board being done by the very folks who

> don't like me that I find interesting. Two supplements come to mind:

>

> Carnitine: I think Tanner used this but can't say: The article in

the

> magazine I read tonight that had the above in it said the following:

>

> Title: " Age With Grace and Carnitine "

> " It is common for the ELDERLY to experience poor endurance,

impaired

> mobility, and decreased mental health. Evidence points to L-

Carnitine

> and acetyl L-Carnitine for improved physical ability and cognitive

> function.

>

> OK, let us just take these two things and not address the

underlying

> problems. What happens later if the kids do not grow out of this

need

> for assistance and grow into worse trouble?

> Toddlers and grade schoolers should not have bodies reflective of

the

> elderly. Sure immune systems are immature but something is impeding

> these kids and parents should be curious just as I was curious

about my

> own decline and the one I saw starting in my children. Thank God

for us

> it is environmental. Easier to fix in some ways.

>

> That is all I got. I have a lot on my plate but I really did not

need

> this. Still it helped me see where I was headed for my family.

>

[Guest guest]

Very helpful. That is a big book and I am in the middle of three so

it helps to get a heads up. At least part of the articulation is a

tone issue and he is otherwise a proper energied kid if that makes

any sense. Oddly, sine I just have not gotten around to making the

hippy tooth powder our new toothpaste actually has that in it. Funny.

>

> Hi Liz,

>

> Read more about the carnitine in the 4 A's book. It's really quite

> interesting. It's more about energy on the cellular level, good

for

> tone, heart (which is a muscle), etc. It seems to be included in

> some sports supplements for athletes. It works best with CoQ10,

> which apparently most children are low on anyway. It's effects do

> seem to be less obvious than the fish oil, but I am now giving it

to

> as well as Tyler. Tyler is getting more (2,000mg vs.

> 1,000mg), since he has further to go at this point. has a

> benign heart murmur, so I figure anything that's good for the heart

> is going to be good for him.

>

> Also, my reading suggests that even if your carnitine blood levels

> test as normal, supplementation might be helpful. Blood doesn't

> detect amount at the cellular level. If 's remaining

> articulation issue is due to low tone, carnitine might help a

> little.

>

> in NJ

>