Guest guest Posted December 16, 2007 Report Share Posted December 16, 2007 Liz, I was going to post this very same message about Holidays and family members who quite frankly, " Just dont get it. " I warned my husband that he needs to share with his family that my child is NOT a late bloomer, nor is he Einstein. If one more person tells me Einstein did not talk until he was 4 or 45 or some old age like this I would resort to loosing my cool right infront of their face. They ask us questions, we give them the answers.. then they ask again and we give the same answers again. We offer books we have read them and so on. Any advice so I can keep my cool this holiday would be appreciated. (Maybe the best thing I should do is enjoy my son and when he goes to bed drink a couple extra drinks that night and ask them what they think about aging or some thing rude like that!) Thanks a million. [ ] Help for getting family on board I am in the process of setting up an NACD eval. We have other things in the works as well....transitioning out of EI, setting up some preschool arrangements and other activities, matabolic neuro and genetics appointments. My son, in my family's eyes is cute. He is cute but behind and as we all know the gap gets bigger if left unaddressed. We have had recent setbacks that required pullling fish oil and E. In preparation for the holidays and the whispers of " Isn't he cute? " I can't understand him? " " Does he really need that diet? " " I can't understand him, is he hearing impaired? " " Isn't she going to do anything about this? " I wrote to select family members. These are folks I thought were most likely to get it and from whom I needed support. I did it this way because frankly, the holidays are not a time to discuss this...they are a time to enjoy each other, especially children. Big mistake. An overzealous family member informed me that she thought I was going overboard, NACD was expensive (hello...it is 10% of what his private therapy needs would be), and who told me he had these delays anyway...what is wrong beyond speech. First of all, his delays have been explained to this person. I won't go on as I am too worn out, too p*ssed off, too beaten down. What exactly is it that she thinks I am doing...sitting here making this stuff up. I go to real doctors. Real therapists come to my house. My son's delays are real as are the improvements but their inconsistency is a concern. He is a worls away from where he was a year ago but so much more must be done to get and keep him where he wants to be. I get that people love him and don't want to hear the bad thing but for goodness sakes do they really think we make this stuff up? Nuts! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2007 Report Share Posted December 16, 2007 This will be my first Christmas dealing with the dietary issues, so I've been thinking about how to approach it with the family. We've done away with dairy, and are weeding out gluten foods every day, and I've seen a lot of improvement. I've decided that I'm tired, EXHAUSTED really, and that most people out there DON'T get it (yet). I've decided to tell my family that we've changed his diet under doctor's orders due to constipation and/or digestive issues. It's really not that far from the truth anyway.....I feel like I've been battling doctors, insurance companies, reagional centers/EI, and friends, so I'm in no mood to do battle on Christmas day. And.....as for the Einstein issue.....well,that one gets to me too!! When anyone references the Einstein syndrome, I simply tell them how he (Einstein) had many, MANY struggles in his life, and that the comparasion to my child gives me NO comfort at all! Yeah, I've heard it time and time again..... @...: colleen.somerville@...: Sun, 16 Dec 2007 21:39:34 -0500Subject: RE: [ ] Help for getting family on board -Liz Liz,I was going to post this very same message about Holidays and family memberswho quite frankly, " Just dont get it. " I warned my husband that he needs toshare with his family that my child is NOT a late bloomer, nor is heEinstein. If one more person tells me Einstein did not talk until he was 4or 45 or some old age like this I would resort to loosing my cool rightinfront of their face. They ask us questions, we give them the answers..then they ask again and we give the same answers again. We offer books wehave read them and so on. Any advice so I can keep my cool this holiday would be appreciated. (Maybethe best thing I should do is enjoy my son and when he goes to bed drink acouple extra drinks that night and ask them what they think about aging orsome thing rude like that!)Thanks a million. -----Original Message-----From: [mailto: ] On Behalf Of ilizzy03Sent: Sunday, December 16, 2007 8:19 PMTo: @...: [ ] Help for getting family on boardI am in the process of setting up an NACD eval. We have other things in the works as well....transitioning out of EI, setting up some preschool arrangements and other activities, matabolic neuro and genetics appointments. My son, in my family's eyes is cute. He is cute but behind and as we all know the gap gets bigger if left unaddressed. We have had recent setbacks that required pullling fish oil and E. In preparation for the holidays and the whispers of " Isn't he cute? " I can't understand him? " " Does he really need that diet? " " I can't understand him, is he hearing impaired? " " Isn't she going to do anything about this? " I wrote to select family members. These are folks I thought were most likely to get it and from whom I needed support. I did it this way because frankly, the holidays are not a time to discuss this...they are a time to enjoy each other, especially children. Big mistake. An overzealous family member informed me that she thought I was going overboard, NACD was expensive (hello...it is 10% of what his private therapy needs would be), and who told me he had these delays anyway...what is wrong beyond speech. First of all, his delays have been explained to this person. I won't go on as I am too worn out, too p*ssed off, too beaten down. What exactly is it that she thinks I am doing...sitting here making this stuff up. I go to real doctors. Real therapists come to my house. My son's delays are real as are the improvements but their inconsistency is a concern. He is a worls away from where he was a year ago but so much more must be done to get and keep him where he wants to be. I get that people love him and don't want to hear the bad thing but for goodness sakes do they really think we make this stuff up? Nuts! [Non-text portions of this message have been removed] _________________________________________________________________ The best games are on Xbox 360. Click here for a special offer on an Xbox 360 Console. http://www.xbox.com/en-US/hardware/wheretobuy/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2007 Report Share Posted December 17, 2007 That Einstein thing cracks me up. I always ask more questions like: was he allergic to milk, did he have siezures? Did the A and D clog up his liver and make him talk like a drunk? All things I have seen in my son. The thing I never got, since I was a kid and certainly now is, why the hell does anyone care what your kid eats? > > > This will be my first Christmas dealing with the dietary issues, so I've been thinking about how to approach it with the family. We've done away with dairy, and are weeding out gluten foods every day, and I've seen a lot of improvement. I've decided that I'm tired, EXHAUSTED really, and that most people out there DON'T get it (yet). I've decided to tell my family that we've changed his diet under doctor's orders due to constipation and/or digestive issues. It's really not that far from the truth anyway.....I feel like I've been battling doctors, insurance companies, reagional centers/EI, and friends, so I'm in no mood to do battle on Christmas day. And.....as for the Einstein issue.....well,that one gets to me too!! When anyone references the Einstein syndrome, I simply tell them how he (Einstein) had many, MANY struggles in his life, and that the comparasion to my child gives me NO comfort at all! Yeah, I've heard it time and time again..... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2007 Report Share Posted December 17, 2007 , Kris/Haukoos, has a great post on this in the archives. Basically, tell them the child is allergic and that reexposure will cause explosive diarrhea, that is the trick to getting everyone on board for diet. I got the advice too late but you still have time. Take it, use it to your advntage. L > > > This will be my first Christmas dealing with the dietary issues, so I've been thinking about how to approach it with the family. We've done away with dairy, and are weeding out gluten foods every day, and I've seen a lot of improvement. I've decided that I'm tired, EXHAUSTED really, and that most people out there DON'T get it (yet). I've decided to tell my family that we've changed his diet under doctor's orders due to constipation and/or digestive issues. It's really not that far from the truth anyway.....I feel like I've been battling doctors, insurance companies, reagional centers/EI, and friends, so I'm in no mood to do battle on Christmas day. And.....as for the Einstein issue.....well,that one gets to me too!! When anyone references the Einstein syndrome, I simply tell them how he (Einstein) had many, MANY struggles in his life, and that the comparasion to my child gives me NO comfort at all! Yeah, I've heard it time and time again..... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2007 Report Share Posted December 17, 2007 My advice to us all is to not give these people too much power. Just because you love them and they love you and your children does not mean they are well informed about any of this. You need to discuss this confidently and objectively and do not get defensive. You don't need to be defensive -- YOU ARE RIGHT. You just have to keep telling yourself that over and over. If they keep questioning you, offer to send them books, articles, links, etc. since they have such a big interest and are so committed to being involved. Warn them that it will take a long time to plow through it all, as it is quite complex, etc. etc. Let them know that this is all based on science, professional therapists' evaluations, medical doctors' opinions, lab tests, and so forth. If you are sitting at Christmas dinner debating each item point by point, you have gone down the wrong path. You can't convince them over cocktails, nor should you feel obliged to. And the best way out of all -- say you prefer not to discuss this around the kids, as you want them to enjoy the holiday. I know this doesn't fit all situations (e.g. the in law who insists on sneaking treats to your kid because they don't " believe " , like this is an article of faith), but it is what has worked for me in the past. Mother knows best is my personal mantra. And I do. in NJ > > Liz, > > I was going to post this very same message about Holidays and family members > who quite frankly, " Just dont get it. " I warned my husband that he needs to > share with his family that my child is NOT a late bloomer, nor is he > Einstein. If one more person tells me Einstein did not talk until he was 4 > or 45 or some old age like this I would resort to loosing my cool right > infront of their face. They ask us questions, we give them the answers.. > then they ask again and we give the same answers again. We offer books we > have read them and so on. > > Any advice so I can keep my cool this holiday would be appreciated. (Maybe > the best thing I should do is enjoy my son and when he goes to bed drink a > couple extra drinks that night and ask them what they think about aging or > some thing rude like that!) > > Thanks a million. > > [ ] Help for getting family on board > > > > I am in the process of setting up an NACD eval. We have other things > in the works as well....transitioning out of EI, setting up some > preschool arrangements and other activities, matabolic neuro and > genetics appointments. My son, in my family's eyes is cute. He is > cute but behind and as we all know the gap gets bigger if left > unaddressed. We have had recent setbacks that required pullling fish > oil and E. In preparation for the holidays and the whispers of " Isn't > he cute? " I can't understand him? " " Does he really need that > diet? " " I can't understand him, is he hearing impaired? " " Isn't she > going to do anything about this? " I wrote to select family members. > These are folks I thought were most likely to get it and from whom I > needed support. I did it this way because frankly, the holidays are > not a time to discuss this...they are a time to enjoy each other, > especially children. Big mistake. An overzealous family member > informed me that she thought I was going overboard, NACD was > expensive (hello...it is 10% of what his private therapy needs would > be), and who told me he had these delays anyway...what is wrong > beyond speech. First of all, his delays have been explained to this > person. I won't go on as I am too worn out, too p*ssed off, too > beaten down. What exactly is it that she thinks I am doing...sitting > here making this stuff up. I go to real doctors. Real therapists come > to my house. My son's delays are real as are the improvements but > their inconsistency is a concern. He is a worls away from where he > was a year ago but so much more must be done to get and keep him > where he wants to be. I get that people love him and don't want to > hear the bad thing but for goodness sakes do they really think we > make this stuff up? Nuts! > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2007 Report Share Posted December 17, 2007 Last Christmas was our first gfcf holiday season and I worried so much about it. It was this season that got me into using the enzymes. I just wanted to have a safety net in case she ate something she wasn't supposed to eat. This took a bit of the pressure off. And not in a rude way, but in a direct way, let it be known it isn't up for discussion. Make your statement, let them know he is allergic and state it firmly and confidently. If pushed you may also want to point out that by making these changes, that his diet is actually healthier since there's a lot less junk food. Grandma's love to hear that one. You just have to learn how to say, in a polite manner, that you don't want to discuss it and your wishes need to be honored. And to be able to say it in such a way that they immediately realize that they'll be making a jerk of themselves if they say even one more word. In my family this maneuver is referred to as a " preemptive strike " and it is my method for managing pushy and manipulative relatives (of which we have many). Kris The Knitting Wannabe http://knittingwannabe.typepad.com Sonny & Shear: The I’ve Got Ewe, Babe Yarn Shop http://www.sonnyandshear.com On Dec 17, 2007, at 12:17 AM, Hanagan wrote: > > This will be my first Christmas dealing with the dietary issues, so > I've been thinking about how to approach it with the family. We've > done away with dairy, and are weeding out gluten foods every day, > and I've seen a lot of improvement. I've decided that I'm tired, > EXHAUSTED really, and that most people out there DON'T get it > (yet). I've decided to tell my family that we've changed his diet > under doctor's orders due to constipation and/or digestive issues. > It's really not that far from the truth anyway.....I feel like I've > been battling doctors, insurance companies, reagional centers/EI, > and friends, so I'm in no mood to do battle on Christmas day. > And.....as for the Einstein issue.....well,that one gets to me > too!! When anyone references the Einstein syndrome, I simply tell > them how he (Einstein) had many, MANY struggles in his life, and > that the comparasion to my child gives me NO comfort at all! Yeah, > I've heard it time and time again..... > > To: > @...:colleen.somerville@... > Date: Sun, 16 Dec 2007 21:39:34 -0500Subject: RE: > [ ] Help for getting family on board -Liz > > Liz,I was going to post this very same message about Holidays and > family memberswho quite frankly, " Just dont get it. " I warned my > husband that he needs toshare with his family that my child is NOT > a late bloomer, nor is heEinstein. If one more person tells me > Einstein did not talk until he was 4or 45 or some old age like this > I would resort to loosing my cool rightinfront of their face. They > ask us questions, we give them the answers..then they ask again and > we give the same answers again. We offer books wehave read them and > so on. Any advice so I can keep my cool this holiday would be > appreciated. (Maybethe best thing I should do is enjoy my son and > when he goes to bed drink acouple extra drinks that night and ask > them what they think about aging orsome thing rude like that!) > Thanks a million. -----Original Message----- > From: > [mailto: ] On Behalf Of > ilizzy03Sent: Sunday, December 16, 2007 8:19 > PM@...: > [ ] Help for getting family on boardI am in the > process of setting up an NACD eval. We have other things in the > works as well....transitioning out of EI, setting up some preschool > arrangements and other activities, matabolic neuro and genetics > appointments. My son, in my family's eyes is cute. He is cute but > behind and as we all know the gap gets bigger if left unaddressed. > We have had recent setbacks that required pullling fish oil and E. > In preparation for the holidays and the whispers of " Isn't he > cute? " I can't understand him? " " Does he really need that diet? " " I > can't understand him, is he hearing impaired? " " Isn't she going to > do anything about this? " I wrote to select family members. These > are folks I thought were most likely to get it and from whom I > needed support. I did it this way because frankly, the holidays are > not a time to discuss this...they are a time to enjoy each other, > especially children. Big mistake. An overzealous family member > informed me that she thought I was going overboard, NACD was > expensive (hello...it is 10% of what his private therapy needs > would be), and who told me he had these delays anyway...what is > wrong beyond speech. First of all, his delays have been explained > to this person. I won't go on as I am too worn out, too p*ssed off, > too beaten down. What exactly is it that she thinks I am > doing...sitting here making this stuff up. I go to real doctors. > Real therapists come to my house. My son's delays are real as are > the improvements but their inconsistency is a concern. He is a > worls away from where he was a year ago but so much more must be > done to get and keep him where he wants to be. I get that people > love him and don't want to hear the bad thing but for goodness > sakes do they really think we make this stuff up? Nuts! [Non-text > portions of this message have been removed] > > __________________________________________________________ > The best games are on Xbox 360. Click here for a special offer on > an Xbox 360 Console. > http://www.xbox.com/en-US/hardware/wheretobuy/ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2007 Report Share Posted December 17, 2007 I think what upset me is that I did lay out the science, the person I was counting on to get it did not despite that and this is a very research-oriented person like me. I sent her the stuff, she read it, she kept saying if only you'd go to CHOP, which I did, and still won't see it because she does not want to. It was hard to find that out this week, when so very much went wrong with my son and there are more questions than answers about what to do about it. In the end you are right, I am giving others too much power. On the positive side a few who I never thought would get it seem on board. They did not ask for proof but simply said, " Wow, seems like you are going to the mat for our grandson. " I did not see that coming and am grateful. > > > > Liz, > > > > I was going to post this very same message about Holidays and > family members > > who quite frankly, " Just dont get it. " I warned my husband that he > needs to > > share with his family that my child is NOT a late bloomer, nor is he > > Einstein. If one more person tells me Einstein did not talk until > he was 4 > > or 45 or some old age like this I would resort to loosing my cool > right > > infront of their face. They ask us questions, we give them the > answers.. > > then they ask again and we give the same answers again. We offer > books we > > have read them and so on. > > > > Any advice so I can keep my cool this holiday would be appreciated. > (Maybe > > the best thing I should do is enjoy my son and when he goes to bed > drink a > > couple extra drinks that night and ask them what they think about > aging or > > some thing rude like that!) > > > > Thanks a million. > > > > [ ] Help for getting family on board > > > > > > > > I am in the process of setting up an NACD eval. We have other > things > > in the works as well....transitioning out of EI, setting up some > > preschool arrangements and other activities, matabolic neuro and > > genetics appointments. My son, in my family's eyes is cute. He is > > cute but behind and as we all know the gap gets bigger if left > > unaddressed. We have had recent setbacks that required pullling > fish > > oil and E. In preparation for the holidays and the whispers > of " Isn't > > he cute? " I can't understand him? " " Does he really need that > > diet? " " I can't understand him, is he hearing impaired? " " Isn't she > > going to do anything about this? " I wrote to select family members. > > These are folks I thought were most likely to get it and from whom > I > > needed support. I did it this way because frankly, the holidays are > > not a time to discuss this...they are a time to enjoy each other, > > especially children. Big mistake. An overzealous family member > > informed me that she thought I was going overboard, NACD was > > expensive (hello...it is 10% of what his private therapy needs > would > > be), and who told me he had these delays anyway...what is wrong > > beyond speech. First of all, his delays have been explained to this > > person. I won't go on as I am too worn out, too p*ssed off, too > > beaten down. What exactly is it that she thinks I am > doing...sitting > > here making this stuff up. I go to real doctors. Real therapists > come > > to my house. My son's delays are real as are the improvements but > > their inconsistency is a concern. He is a worls away from where he > > was a year ago but so much more must be done to get and keep him > > where he wants to be. I get that people love him and don't want to > > hear the bad thing but for goodness sakes do they really think we > > make this stuff up? Nuts! > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2007 Report Share Posted December 17, 2007 Even if the Einstein thing is true the guy was smart, lonely and cut off a lot from society...not my exact gols for my kids. > > > > > > > > > This will be my first Christmas dealing with the dietary issues, so > > I've been thinking about how to approach it with the family. We've > > done away with dairy, and are weeding out gluten foods every day, and > > I've seen a lot of improvement. I've decided that I'm tired, > > EXHAUSTED really, and that most people out there DON'T get it (yet). > > I've decided to tell my family that we've changed his diet under > > doctor's orders due to constipation and/or digestive issues. It's > > really not that far from the truth anyway.....I feel like I've been > > battling doctors, insurance companies, reagional centers/EI, and > > friends, so I'm in no mood to do battle on Christmas day. And.....as > > for the Einstein issue.....well,that one gets to me too!! When > > anyone references the Einstein syndrome, I simply tell them how he > > (Einstein) had many, MANY struggles in his life, and that the > > comparasion to my child gives me NO comfort at all! Yeah, I've heard > > it time and time again..... > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2007 Report Share Posted December 17, 2007 My mother, who is supportive and compliant with all dietary requests, does think of the special diets as a grandparenting privilege withheld. She thinks the grandparent job is to give treats to the kids. Given that she rarely bakes, I don't really know what treats she has in mind. She only has two tasty things in her house usually: potato chips (allowed) and Twizzlers (we avoid artificials). As for the rest -- there is a huge trend to be overinvolved in people's lives. And not just relatives. Friends, neighbors, classmates, coworkers all seem to think they have a right to know everything. Probably every person who has a multiple birth is asked about fertility treatments, every person with one kid is asked when the next is coming, and for us with four kids, " was #4 an accident? " is a really popular question. (The answer is NO!) The follow-up to that is usually, " ugh. You're soooo Catholic. " MYOB people! in NJ > > > > > > This will be my first Christmas dealing with the dietary issues, so > I've been thinking about how to approach it with the family. We've > done away with dairy, and are weeding out gluten foods every day, and > I've seen a lot of improvement. I've decided that I'm tired, > EXHAUSTED really, and that most people out there DON'T get it (yet). > I've decided to tell my family that we've changed his diet under > doctor's orders due to constipation and/or digestive issues. It's > really not that far from the truth anyway.....I feel like I've been > battling doctors, insurance companies, reagional centers/EI, and > friends, so I'm in no mood to do battle on Christmas day. And.....as > for the Einstein issue.....well,that one gets to me too!! When > anyone references the Einstein syndrome, I simply tell them how he > (Einstein) had many, MANY struggles in his life, and that the > comparasion to my child gives me NO comfort at all! Yeah, I've heard > it time and time again..... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2007 Report Share Posted December 17, 2007 You really are going to the mat for the kids, and they should all be able to see that, even if they don't agree. Do they really believe that we would rather cook from scratch and schlep food everywhere than go to restaurants and eat junk food on holidays? We only do it because we have to. in NJ > > > > > > Liz, > > > > > > I was going to post this very same message about Holidays and > > family members > > > who quite frankly, " Just dont get it. " I warned my husband that > he > > needs to > > > share with his family that my child is NOT a late bloomer, nor is > he > > > Einstein. If one more person tells me Einstein did not talk until > > he was 4 > > > or 45 or some old age like this I would resort to loosing my cool > > right > > > infront of their face. They ask us questions, we give them the > > answers.. > > > then they ask again and we give the same answers again. We offer > > books we > > > have read them and so on. > > > > > > Any advice so I can keep my cool this holiday would be > appreciated. > > (Maybe > > > the best thing I should do is enjoy my son and when he goes to > bed > > drink a > > > couple extra drinks that night and ask them what they think about > > aging or > > > some thing rude like that!) > > > > > > Thanks a million. > > > > > > [ ] Help for getting family on board > > > > > > > > > > > > I am in the process of setting up an NACD eval. We have other > > things > > > in the works as well....transitioning out of EI, setting up some > > > preschool arrangements and other activities, matabolic neuro and > > > genetics appointments. My son, in my family's eyes is cute. He is > > > cute but behind and as we all know the gap gets bigger if left > > > unaddressed. We have had recent setbacks that required pullling > > fish > > > oil and E. In preparation for the holidays and the whispers > > of " Isn't > > > he cute? " I can't understand him? " " Does he really need that > > > diet? " " I can't understand him, is he hearing impaired? " " Isn't > she > > > going to do anything about this? " I wrote to select family > members. > > > These are folks I thought were most likely to get it and from > whom > > I > > > needed support. I did it this way because frankly, the holidays > are > > > not a time to discuss this...they are a time to enjoy each other, > > > especially children. Big mistake. An overzealous family member > > > informed me that she thought I was going overboard, NACD was > > > expensive (hello...it is 10% of what his private therapy needs > > would > > > be), and who told me he had these delays anyway...what is wrong > > > beyond speech. First of all, his delays have been explained to > this > > > person. I won't go on as I am too worn out, too p*ssed off, too > > > beaten down. What exactly is it that she thinks I am > > doing...sitting > > > here making this stuff up. I go to real doctors. Real therapists > > come > > > to my house. My son's delays are real as are the improvements but > > > their inconsistency is a concern. He is a worls away from where > he > > > was a year ago but so much more must be done to get and keep him > > > where he wants to be. I get that people love him and don't want > to > > > hear the bad thing but for goodness sakes do they really think we > > > make this stuff up? Nuts! > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2007 Report Share Posted December 17, 2007 I often feel like your 5th child. Perhaps you seeing the effort is enough for me at this point. You all are pulling me out of a serious funk! > > > > > > > > Liz, > > > > > > > > I was going to post this very same message about Holidays and > > > family members > > > > who quite frankly, " Just dont get it. " I warned my husband that > > he > > > needs to > > > > share with his family that my child is NOT a late bloomer, nor > is > > he > > > > Einstein. If one more person tells me Einstein did not talk > until > > > he was 4 > > > > or 45 or some old age like this I would resort to loosing my > cool > > > right > > > > infront of their face. They ask us questions, we give them the > > > answers.. > > > > then they ask again and we give the same answers again. We > offer > > > books we > > > > have read them and so on. > > > > > > > > Any advice so I can keep my cool this holiday would be > > appreciated. > > > (Maybe > > > > the best thing I should do is enjoy my son and when he goes to > > bed > > > drink a > > > > couple extra drinks that night and ask them what they think > about > > > aging or > > > > some thing rude like that!) > > > > > > > > Thanks a million. > > > > > > > > [ ] Help for getting family on board > > > > > > > > > > > > > > > > I am in the process of setting up an NACD eval. We have other > > > things > > > > in the works as well....transitioning out of EI, setting up > some > > > > preschool arrangements and other activities, matabolic neuro > and > > > > genetics appointments. My son, in my family's eyes is cute. He > is > > > > cute but behind and as we all know the gap gets bigger if left > > > > unaddressed. We have had recent setbacks that required pullling > > > fish > > > > oil and E. In preparation for the holidays and the whispers > > > of " Isn't > > > > he cute? " I can't understand him? " " Does he really need that > > > > diet? " " I can't understand him, is he hearing impaired? " " Isn't > > she > > > > going to do anything about this? " I wrote to select family > > members. > > > > These are folks I thought were most likely to get it and from > > whom > > > I > > > > needed support. I did it this way because frankly, the holidays > > are > > > > not a time to discuss this...they are a time to enjoy each > other, > > > > especially children. Big mistake. An overzealous family member > > > > informed me that she thought I was going overboard, NACD was > > > > expensive (hello...it is 10% of what his private therapy needs > > > would > > > > be), and who told me he had these delays anyway...what is wrong > > > > beyond speech. First of all, his delays have been explained to > > this > > > > person. I won't go on as I am too worn out, too p*ssed off, too > > > > beaten down. What exactly is it that she thinks I am > > > doing...sitting > > > > here making this stuff up. I go to real doctors. Real > therapists > > > come > > > > to my house. My son's delays are real as are the improvements > but > > > > their inconsistency is a concern. He is a worls away from where > > he > > > > was a year ago but so much more must be done to get and keep > him > > > > where he wants to be. I get that people love him and don't want > > to > > > > hear the bad thing but for goodness sakes do they really think > we > > > > make this stuff up? Nuts! > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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