What now?.......Recommendations for Dr's

[Guest guest]

Hi all

I have been MIA from the list recently due to the crazy therapiy,

IEP, and Dr visit life we lead ;o)

My ds, Will, now 3 has been making such great progess he has been

moved out of the " autism " classroom (YEAH!!!) after they finally

started to see what I have known all along (the problem here is not

autism). He is now in a generic spec-ed classrom where he recieves

ST 5d/week (20min sessions) and we do private OT/ST once a week.

A behavioral psychologist has classified him as PDD-NOS because his

language delays are affecting all other areas of his development.

(it does boggle my mind that he gets " marked down " for not being

able to dress himself or use scissors - i dress him because it is

faster......and as for scissors I am ok if he takes a few more years

to gain that skill!!!!)

The developmental pediatrician (supposedly a great one - but the

only one around here) is hesitant to say apraxia because Will does

not fit the classic picture (no hypotonia).

My reg pediatrician is a great guy but frankly clueless about

developmental issues.

So where do I go from here? Will is making progress but I still feel

like a piece of the puzzle is missing. The PDD diagnosis is crap

(kinda like, Yeah we know something is wrong but we don't know

what). I have been told that a language disorder can not be

diagnosed until around age 6 - evidently the testing is very long

and rigorous.

We are wroking on the bio-med approach but I won'tget into that

today.

Should we bite the bullet & go see Dr Agin?

Does anyone know of another apraxia or language specialist in the

midwest? (or anywhere for that matter)

My gut tells me that we are looking at some sort of language delay

combined with apraxia. We have a very strong family history (as in

all males in my husbands family) of various forms of dyslexia and

ADD.

Any & all input is greatly appreciated.

Martha