Guest guest Posted February 9, 2008 Report Share Posted February 9, 2008 Janice, I am glad to read this email, as this sounds an awful lot like Charlie. Charlie did start to talk and then stopped after MMR and Flu Shot. I often find my self in situations like you did at your beau's house. Sometimes people reach out and ask for help, but then never follow though. " The fish oil smells bad, or how long do I HAVE to do this? " are some of the things I hear. For us we just did what we had to do for our little guy. We had to wake up to the fact that the MD and the Neurologist had diagnosed him but sent us in a direction with no map. That is when I found cherub.org and read the late talker. I contacted Geng and she kindly moved me along to some local people who are well versed with Apraxia. A ST with Early Insights (local) she then told me about Dorfman www.kellydorfman.com . I will email you off line my first 30 days with Charlie on the vitamin protocol. Then we moved right into DAN!. You have a great way with words and I am sure that you can gently move this mother in the right direction. After all, you did email me and tell me in the beginning that apraxia is a sign something else is going wrong. Yes, Einstein did not talk until he was like 4, but did he have biomedical intervention? By the way, Charlie's cousin, Ian, is 18 months and not speaking. I hope they get moving on this soon, as it looks like this is a combo of genetics and envrionment. Grab this mother by the hand and I am sure that she will appreciate it very soon. Make sure she has an open mind! Hope this helps! Colleen Mother of Charlie 31 months Re: [ ] Re: Age equivalence chart for PLS-4? I do agree with this: when your child is small, the difference between him/her and other kids is marginal. As time passes and all of the children mature, the developmental gap widens. It takes a little jump in grade 1 and a huge leap in grade 3. At about grade 5, there is another huge leap. Before your know it, your child is 'noticeably' different. The way they move, speak, dress and approach world problems is vastly different from other kids. If I could do it again...... I'd toss every penny I had into my 3 year old for when my child was 3...... his dyspraxia did not yet set him apart and he was not yet so behind his peer group. Unfortunately because he was not yet so behind his peer group, I foolishly believed the professionals who told me that he would grow out of it. I think they tell you this because the child is social and otherwise seemingly very neuro-typical. Not only that, my child was the best baby in the world. He never fussed, rarely cried and always had a joyous smile on his face. He was just the sweetest little guy. I thought this was a reward by the universe for previously having an extremely colicky baby in my daughter, but in reality..... my son was not 'hearing'. On this topic, a couple came over to my beau's house with their cutest little boy.... I mean just darn sweet.... and I fell absolutely in love with him. This little guy turns 2 in April and after a while I noticed that he had no words. Then I saw it..... and I gasped..... he started to scoot on his bum instead of crawl. I turned to his young mom and asked, " Did he always do this? " She told me that her son rarely crawled and went straight to walking...... I pray for this child and I pray that I am wrong.... but I see dyspraxia all over him just by his developmental similarity to Mark. I turned to his mom and said in a low key manner, " Oh, make sure that he crawls on his hands and knees when he crawls for bum scooting is not good for children. They need to crawl to develop their central nervous system. " I commented further that I had to have Mark 'redo' crawling and creeping at the age of 11. The child in 3.5 hours of Superbowl viewing did not get cranky once and he never had anything but a wonderful smile on his beautiful face. But in that time, I heard no Mamma, Dadda, juice, No or other words...... I may have heard him whisper a couple of slight words.... at the most one or two. Now, I don't know these people well. They are a lovely young couple and the husband works for my Beau at his lawfirm. This kid is absolutely gorgeous. While I don't want to be alarmist, this child should be speaking in 2 word phrases by now, right? Or he should at least be going mmmmmm or ba ba ba or something! All he seemed to say was 'eeeeeeeee'. Those of you who have apraxic babies.... please advise for I have forgotten the relative stages for the ages. Also, how do I tactfully give this couple a copy of The Late Talker? I do have a really 'cool' set of Talktools Straws that serve to strengthen lip tone that I could pass on.... What would you do? This has really been bothering me and my conscience. Janice Mother of Mark, 13 [sPAM][ ] Re: Age equivalence chart for PLS-4? No your son " isn't getting worse " , but, as your child gets older, so do all the other children that he is compared to. These tests take the scores based upon children with no issues, ie. a typical 4 year old can do x,y,z. Yes, there will be some deviation, but not much. As your developmentally delayed child gets older, the farther behind he will be....as compaired to typical peers. Thus the skew on these tests. This doesn't mean that your child isn't making progress, just that the progress isn't as exponential as typical kids. I hear ya - we just went thru the exact same thing with my daughter. I have this same test for her at 2 1/2 yrs old, and then at 6 yrs old. Her IQ dropped...or did it? She was scored very high at 2 1/2, but now, is showing much lower. The evaluator explained that it didn't mean she wasn't " progressing " but that the test was how she did as compared to other kids her age. We did the PLS-4, the Stanford-Binet and the Wexler (? not sure of the name on that one). We specifically did one test that was a non-verbal test. Of course, the language portion really brings down the other scores. ly, I don't care what the number is. She picks up things quick! and demonstrates things she's learned in a variety of ways - and over a variety of situations. She's got a sense of humor, and works her tail off. I only did these tests because I HAD to have them for school apps for the fall. Cheer up and hang in there!! Stephanee > > Do you know where I could find an age equivalence chart for the > Preschool Language Scale Fourth Edition (PLS-4)? > > My son's speaking vocabulary is the age equivalence of 2 years 11 mos > and his speech is the age equivalence of less than 2 years. My son is > now 4 years 8 mos. > > I was wondering what his auditory comprehension and expressive > communication age equivalence is. He received a standard score of 86 > and a percentile rank of 18 for auditory comprehension which places him > one standard deviation below the mean. He received a standard score of > 82 and a percentile of 12 for expressive which also places him one > standard deviation below the mean. His total language score was 82 with > a percentile rank of 12 which places him one standard deviation below > the mean. > > At my son's 3 years 8 mos evaluation at his private ST he was found to > be at 2 years 10 mos. His report said he had a mild vocabulary deficit > and now he has a mild to moderate vocabulary deficit? I hope he's not > getting worse! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2008 Report Share Posted February 9, 2008 I find email and articles and posts written by people other than me get received best. Just have to choose wisely, send solid info. and give them time to absorb it all, hate you for a while, cry it out, etc. Enstein did not have the quality of life our children are and will have. Thanks to both of you and the board from the bottom of my heart. > > > > Do you know where I could find an age equivalence chart for the > > Preschool Language Scale Fourth Edition (PLS-4)? > > > > My son's speaking vocabulary is the age equivalence of 2 years 11 > mos > > and his speech is the age equivalence of less than 2 years. My son > is > > now 4 years 8 mos. > > > > I was wondering what his auditory comprehension and expressive > > communication age equivalence is. He received a standard score of > 86 > > and a percentile rank of 18 for auditory comprehension which places > him > > one standard deviation below the mean. He received a standard score > of > > 82 and a percentile of 12 for expressive which also places him one > > standard deviation below the mean. His total language score was 82 > with > > a percentile rank of 12 which places him one standard deviation > below > > the mean. > > > > At my son's 3 years 8 mos evaluation at his private ST he was found > to > > be at 2 years 10 mos. His report said he had a mild vocabulary > deficit > > and now he has a mild to moderate vocabulary deficit? I hope he's > not > > getting worse! > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2008 Report Share Posted February 9, 2008 Supposed to have 50 words by age 2... we thought we had ten but that was counting the ones he lost (all of them) after 6 catch up shots in 3 months. > > > > Do you know where I could find an age equivalence chart for the > > Preschool Language Scale Fourth Edition (PLS-4)? > > > > My son's speaking vocabulary is the age equivalence of 2 years 11 > mos > > and his speech is the age equivalence of less than 2 years. My son > is > > now 4 years 8 mos. > > > > I was wondering what his auditory comprehension and expressive > > communication age equivalence is. He received a standard score of > 86 > > and a percentile rank of 18 for auditory comprehension which places > him > > one standard deviation below the mean. He received a standard score > of > > 82 and a percentile of 12 for expressive which also places him one > > standard deviation below the mean. His total language score was 82 > with > > a percentile rank of 12 which places him one standard deviation > below > > the mean. > > > > At my son's 3 years 8 mos evaluation at his private ST he was found > to > > be at 2 years 10 mos. His report said he had a mild vocabulary > deficit > > and now he has a mild to moderate vocabulary deficit? I hope he's > not > > getting worse! > > > > Quote Link to comment Share on other sites More sharing options...
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