Re: Re: Blood Pyruvates

[Guest guest]

Janice,

Thanks for asking. I too was relieved to see that you son is a little bit

older.

Blood pyruvate I believe is an excretion from the cells that has to do with

energy production in the mitochondria. It does not have anything to do with

blood glucose to my knowledge, but I will ask my sister in law who is a med tech

in a genetics lab. She is very knowledgeable.

Annie has never had any dietary problems, except that oreos make her crazy.

She will not eat them. They even scare her.

She has global dyspraxia, but to have someone put that into words has been

nearly impossible. I have finally concluded that given that she fits every

symptom just about. She has strabismus, wears glasses, and has done vision

therapy. She had low receptive speech, so we did 4 rounds of TLP, and it really

helped alot. She loves for us to read her chapter books, and absorbs all that

she hears. Her reading is at third grade level, and the school is doing fast

forWord, so no expense to us. I have been pleased with this program. We use

the Speech from school, and have them send homework. We do this 5 days a week

now, but used to do this 8 times. The PT sends work as well, and we do this

often. I think all of this has helped, and we have done this for many years.

Not to mention private speech and OT many times over the years. Annie is in

special education, but she does well, and I continue to have great hopes for

her. She amazes my husband, and I with her knowledge.

I am going to move forward with the vitamin E, and ProEFA. The doctor hasn't

mentioned them, but I will discuss them with him next time.

Thanks for the support. It's greatly appreciated. I'm new so you'll probably

be hearing alot from me.

Jo

Janice <jscott@...> wrote:

Jo,

By blood pyruvates are we talking about blood glucose levels? Sorry, my medical

terminology on this is weak. If so, then Mark's level was at a .9 after a 12

hour fast! While it was not diabetic, it certainly was very, very high.

We are also taking L-carnitine as well as a host of other vitamins.

I am so, so happy to see another older child in the group! YEAH!!! We definately

need to share war stories and 'where we are at' to determine the best course for

our kids.

Note that Mark was also low in glutathione, low in sulfates, vitamin A, Omega 6

fatty acids (not 3), COQ10. He was high in trans fats and also tested high in

Lead.

We have normal results in iron, Thyroid and need to test hemoglobin and

auto-immunity. I meant to do this weeks ago but I just have not gotten to it....

We are casien free as well as no artificial colours, dyes, flavours and no MSG.

This seems to be working the best for us. We also do digestive enzymes with each

meal with good success.

As far as therapies go, I take Mark to NACD like many of the gang here. But at

NACD we do a wide assortment of therapies. We did not do fast forward but did do

digit spans and worked with Mark's auditory memory extensively to affect his

language. We do daily exercises designed to strengthen his body core, his hands,

his flat feet (his ankles are beginning to pronate over time.... yuck.... just

another problem I don't need), and we do loops with audio books(using

headphones) to work his writing speed.

Mark spent a few years in special education (grade 4-6) but is back in

mainstream education after a 1.5 years with NACD under his belt.

Does your daughter have global dyspraxia or just apraxia of speech?

Note that I have really found that nuts given to Mark throughout the day really

help with his energy production. When I supplement his L-carnitine, I supplement

his Borage oil and CLO at the same time. The L-carnitine helps the body absorb

the EFA's more efficiently.

How is your daughters absorbtion? Tell me your 'story'...... Would love to hear

it!

Nice meeting you and welcome to the Group.

Janice

Mother of Mark, 13

[sPAM]Re:[ ] Re: Hijacked list - (was Tanner)

We've been seeing a neurologist for several years. She has only had 4 big blood

tests in this time. 1.) Blood Pyruvate was high 2.)Blood Pyruvate was high

3.)After beginning B-Complex 50mg Blood Pyruvate was normal, and 4.)Blood

Pyruvate was high again when she had a serious flu. The doc, who is actually a

metabolic geneticist said that her elevated blood pyruvate would have been

ignored by most doctors. The norm is .03 to .08, hers was .12, .11, .03, .11.

They are waiting for the remainder of the amino acids to be returned, and will

increase her dosage to a prescription level. The L-Carnitine was his suggestion,

and has made her very happy and easier to understand. She has only been on this

for 1 month though. Pronunciation is her biggest problem, definite motor

planning issue. Her vocabulary is good.

The B-Complex has made her healthy. She used to catch everything and did not

recover easily. B-Complex is water soluble, and is good for most people. She had

not been sick for 4 years, until last week. B-Complex was started 4 years ago.

The L-Carnitine helps with the production of energy within the cells. They

believe the high blood pyruvate is a sign that her energy production is not

normal. A typical person would not have an elevated blood pyruvate when they are

sick.

ilizzy03 <lizlaw@...> wrote:

Can you please tell me about how one knows to do L Carnitine.

tested fine initially (in May) but we have had a lot of changes since

then and plan to retest. I can't recall though if this is one of

those things where blood levels don't show all. Please understand I

would only do this under a mainstream physicians care so I am not

asking you to be my doc.

>

> Janice I am new to this website, but you have just described my 12

year old daughter perfectly. Only just recently the neurologist

noticed iregularities in her blood work. We have been tested many

times. My husband, and I have sought lots of therapy, and done alot

of therapy ourselves.

>

> We have done TLP, vision therapy, OT, PT, Speech, and

FastForword. I have to say each of these has helped her

tremendously. I can't say she is healed, but does communicate, and

is fairly happy.

>

> I'm wondering what has been most helpful to your child. Please

share, so that I know what path to take.

>

> We have just started L-Carnitine, and I do notice a change in her

understandability. She is also much calmer. Most of the posts I've

read talk more about carnosine.

>

> Thanks for any help you can offer.

>

> Jo

> Annie's Mom

>