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Hello everyone! Just a (not so)quick introduction...

My youngest daughter, Hannah, is 26 months old and has no words at

all. We do not have any official diagnosis at this point, just lots

of doctors and no answers. She's been a bit of a puzzle to the

doctors from the start. Besides being a non-talker, she's had non-

febrile seizures(at birth and 2 after 18 mos), is well below the

growth curve, had an intussception (intestinal obstruction)at 11 mos,

and was a late walker(19 mos). She's been tested for everything they

could think of from celiac to cystic fibrosis, even rett syndrome,

and everything came back normal or near normal. The initial celiac

was abnormal, but the more comprehensive one was fine. Her hearing

is ok, though she did fail the newborn screening and for the first 18

months her tests with the audiologist indicated a mild loss in one

ear. The most recent ABR came back normal. The developmental

pediatrician mentioned something about epileptic aphasia (landau

something syndrome), but he said she really didn't fit it. He was

going to look into it more and see if he could get copies of her

MRI's (they were done in FL and we are now in NJ with all new doctors)

We go back at the end of Feb and hopefully will get a little

further.

Hannah had about a month of ST before we moved and she was starting

to learn a couple of signs. She's pretty stubborn about using them

when we ask her to, but I think she knows please, more, eat and

read. Sometimes it's hard to tell if she knows it or just made a

lucky guess lol. She made her own signs for milk and all done which

she uses regularly, and of course she's an expert at getting what she

wants by pointing and grunting. She's supposed to start getting

services with early intervention in the next couple of weeks. They

want to start with developmental therapy? instead of speech, which I

am unsure of but we'll go with it for a little bit. She really

doesn't have a full range of sounds, so maybe that's why they're

starting where they are.

Anyway, I'm hoping to get some info and " meet " some people who are

going through similar things. My friends and family have used up

their appeasing words like " she'll catch up " , or stories of kids

they've heard of who just blurted out full sentences at 5 years old.

It's getting harder as she's getting older and her delays are

becoming more obvious. I know she's starting to get frustrated with

not being able to communicate also.

Sorry for rambling so long!