Guest guest Posted January 31, 2008 Report Share Posted January 31, 2008 Hello everyone! Just a (not so)quick introduction... My youngest daughter, Hannah, is 26 months old and has no words at all. We do not have any official diagnosis at this point, just lots of doctors and no answers. She's been a bit of a puzzle to the doctors from the start. Besides being a non-talker, she's had non- febrile seizures(at birth and 2 after 18 mos), is well below the growth curve, had an intussception (intestinal obstruction)at 11 mos, and was a late walker(19 mos). She's been tested for everything they could think of from celiac to cystic fibrosis, even rett syndrome, and everything came back normal or near normal. The initial celiac was abnormal, but the more comprehensive one was fine. Her hearing is ok, though she did fail the newborn screening and for the first 18 months her tests with the audiologist indicated a mild loss in one ear. The most recent ABR came back normal. The developmental pediatrician mentioned something about epileptic aphasia (landau something syndrome), but he said she really didn't fit it. He was going to look into it more and see if he could get copies of her MRI's (they were done in FL and we are now in NJ with all new doctors) We go back at the end of Feb and hopefully will get a little further. Hannah had about a month of ST before we moved and she was starting to learn a couple of signs. She's pretty stubborn about using them when we ask her to, but I think she knows please, more, eat and read. Sometimes it's hard to tell if she knows it or just made a lucky guess lol. She made her own signs for milk and all done which she uses regularly, and of course she's an expert at getting what she wants by pointing and grunting. She's supposed to start getting services with early intervention in the next couple of weeks. They want to start with developmental therapy? instead of speech, which I am unsure of but we'll go with it for a little bit. She really doesn't have a full range of sounds, so maybe that's why they're starting where they are. Anyway, I'm hoping to get some info and " meet " some people who are going through similar things. My friends and family have used up their appeasing words like " she'll catch up " , or stories of kids they've heard of who just blurted out full sentences at 5 years old. It's getting harder as she's getting older and her delays are becoming more obvious. I know she's starting to get frustrated with not being able to communicate also. Sorry for rambling so long! Quote Link to comment Share on other sites More sharing options...
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