Re: Gluten/casein peptide test results help

[Guest guest]

Who did this test?

>

> I just rec'd my daughter's gluten/casein peptide test results. They

> LOOK to be negative, low in fact, but I'm not sure how to read the

> results. I set up a phone appt. with the lab for next week but would

> appreciate help if any of you have run this test on your kids and know

> how to read the results. Here are our results:

> Casomorphin: peptides 7.2, creatinine 44, relative ratio .16, relative

> normal ratio .56

>

> Gliadorphin: peptides 3.1, creatinine 44, relative ration .07,

relative

> normal ratio .58

>

> Thanks so much in advance for your help,

>

> 2yo daughter with verbal/oral apraxia, hypotonia, and SID

>

[Guest guest]

They do appear low. How did you get this test done. Was it through the Great

Plains lab. I was thinking of doing the urine organic acid test through them. Do

you need a doc order them?

<mrmansfan@...> wrote: I just rec'd my daughter's

gluten/casein peptide test results. They

LOOK to be negative, low in fact, but I'm not sure how to read the

results. I set up a phone appt. with the lab for next week but would

appreciate help if any of you have run this test on your kids and know

how to read the results. Here are our results:

Casomorphin: peptides 7.2, creatinine 44, relative ratio .16, relative

normal ratio .56

Gliadorphin: peptides 3.1, creatinine 44, relative ration .07, relative

normal ratio .58

Thanks so much in advance for your help,

2yo daughter with verbal/oral apraxia, hypotonia, and SID

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[Guest guest]

The values do look low...but

- was your daughter actively eating glutine and casein (i.e. not doing

the GFCF diet) at the time the test samples were taken?

- which lab did the tests?

- remember the accuracy of these tests is only 50% (as stated by the

test creator Dr. Shaw who runs Great Plains Lab)

- Removing the foods for at least 3 weeks then reintroducing is the most

accurate way of identifying an intollerance to them...it is called " food

elimination test " in allergist circles.

My elder son who really DOES have very obvious casein intollerance

problems - and they were clearly evident in his physical and behavioral

symptoms, his peptyde test came back in the " normal " range BUT he

improved only by supplementing with enzymes to cut the effects and then

finally removing it all together...not so much stool issues as his

pupils were not dialating and constricting normally due to the

caseomorphine, he was insensitive to cold and pain, hypersensitive to

light and being touched (including clothes), was always " wired " . He's

improved greatly but still has major issues with digesting milk and

grain proteins if he ingests them.

The tests do require a doctor's order, but if you want to do the tests

without going through your regular doctor or DAN!, go to the website

www.directlabs.com -- via this website you can order lab tests for lots

of things and select via which lab you want them done. There are

doctors at this company who write the doctor's orders for them and send

them to you with the sample collection kits. There are some issues

for some of the tests not being " legal " for NY residents, but I think

that is specified on the website...like fecal testing.

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[Guest guest]

My daughter was GFCF for 2.5 weeks before this test. It was run by

Great Plains Laboratory and ordered by my DAN! doc.