Anyone know about this?

[Guest guest]

Marleen, I have had this happen often. Its almost like a meningitis pain, all

the nerves in your body are sending pain signals to the brain. During these

periods I can't walk or stand hardly at all, complete exhaustion. Sometimes

my is accompanied by severe muscle spasms. My dr has given my percaset for

these very bad days and they seem to help some. It usually is a herx, but

I've been herxing for 6 years now off and on. Although the spaces between

herxs is getting longer. Not every week anymore. Its like a thief in the

night, you start to feel almost human, and maybe even make plans to meet

someone, and WHAM, completely totally helpless, in pain and depressed big

time. It has gotten so I don't ever make any plans because I would ALWAYS be

letting people down because I wouldl get so sick. I am trying to get back to

work now.....but this week I've been VERY sick and let everyone down. Noone

understands it. I'm a realtor, and have a partner and she relied on me to

help with some things when here 20 month old was in holloween parade today. I

couldn't get out of bed/......she missed it....just called me crying and out

of control. I feel like a complete loser...I let her down again. She tells

me just to eat right and exercise and all this will go away.......if it was

only that simple. Where do I go from here?

I can't bear disappointing people anymore.

Regards,

Gail inPA

[Guest guest]

Gail,

Well just wanted to tell you that you made me happy. I just made an

appointment with you doctor that you recommended. The nurses seemed very nice

over the phone. I see Dr.Fein at the end of Nov. Wish me luck. Thank you

for talking to me a couple of weeks ago.

Thanks and I hope you feel better,

Some people in this world are more understanding than others. Just remember

that it's not you letting them down its the disease.

[Guest guest]

Hi Gail,

I understand how frustrated you feel about having to cancel plans. I've had

to do the same thing... So far this year I have missed weddings, family

gatherings, work functions and many other things I had planned. I had also

planned to go back to work, only to get sicker again. IT STINKS, but it's

part of the illness. I think all of us with Lyme have been in the same

situation. But, you shouldn't feel guilty it's something you can't control.

Stress like that only makes you feel worse. I can't tell you how to make

people understand, I still haven't figured that out -- But when I do make

plans I've learned to add the phrase " as long as I'm having a good day. If

I'm not feeling good I can't go " . It's made it easier for me when I have to

say no, I can't do something. Another person with Lyme has told me about a

product called Nutra-Herx, and is very happy with the results. It's made out

of the mineral molybdenum. I haven't bought that brand, but I bought solgar

molybdenum at the health food store, and it seems to help. It's one of the

less expensive supplements. It might be worth a try.

I hope your feeling better soon!

Sullivan

PS I'm new to the mailing list, just got on a few days ago. Hi everyone!

[Guest guest]

welcome susan......boy can i relate.....about making plans and breaking

them.....it sucks when u don't know how u will feel the next day and people

want u to commit to doing something ......certain things i have had to follow

thru with even when i had a bad day....( like i am working the polls this

election day and hope i have a good day but if not must tuff it out) i am on

disability and trhe extra money from this day will help plus its tax

free....went to the class and it was me (41) and a bunch of senior citizens i

was the only one under 80 i think oh well......i just have learned to listen

to my body when it says roll over and pull the covers over ur head thats what

i do ..... i try not to push unless it is really needed.........like i said

welcome again this forum is the best i have found luckily someone forwarded

dit to me....

Reid

[Guest guest]

: I'm SO HAPPY =) THAT YOU HAVE APPOINTMENT WITH DR. FEIN, AND I'M

SO HAPPY THAT I MADE YOU HAPPY> I don't get to do that too much anymore....I

know she will help you. Spend these weeks writing down all your symptoms,

meds, and cycling etc. Its important to write it all down because we

sometimes go off track .....wonder how that happens?

Good Luck, God Bless, and write me back,

Regards,

Gail

[Guest guest]

>

> A friend of mine (with mild candida) has asked me about this

product.

> Does anyone have any feedback regarding it in relation to candida and

> if it would be a positive or negative influence on the candida?

>

> The product is called - Flora Flor-Essence and it's supposed to

> detoxify the body.

>

> Thanks in advance.

==>Caryn, would you please provide a website address for this product

which provides the ingredients in it?

Thanks, Bee

[Guest guest]

http://dan.xtend-life.com/product/Omega_3_~_DHA_Esters.aspx

[Guest guest]

HI LILIAN,

I have had quite a few go in my spam box with links to click on, but not knowing

the nature of them I have no option but to delete them, and I also had one go in

there that should have gone elsewhere with a proble of delivering something with

an attached file to download and open with instructions, but it got deleted, but

take care on opening anything that you do not know as to whereb it has come

from.If it has a message about unsubscribing they then know the email is still

active.

Kathleen

[Guest guest]

It wasn't the fact that it was spam Kathleen, and I would not go to any links or give any information. It was the content of the message that concerned me. What law are they talking about. Is it relevant to UK. Or is it just a load of rubbish.

I just wondered if anyone else had heard anything about it.

Lilian

[Guest guest]

I think it's spam and I think it's just a ruse to get you to order. Ignore and

delete is my advice

in Kent

[Guest guest]

Hi Lilian

Good job you had your wits about you and did not click on any links. My Brother

is in a home, and he keeps getting a phone call saying they want to put some

money back into his account and wanting his card number, but he has told them

that they can send a cheque to him, but they don't want to do that. I have told

him strictly not to give his card number out, unless he is the one to make

contact and know who it is he is giving money to, but it sounds like it is a

con to get his card number.

Kathleen

[Guest guest]

Hi Lilian, One way of looking out safely is to copy the link onto paper and enter it into a public library computer which will have very good security and not compromise your own computer. I have not seen anything like this. thyroid treatment From: lilian15@...Date: Thu, 11 Mar 2010 12:43:14 +0000Subject: Anyone know about this?

I received a message - in my spam box. However I wonder if this is true or not. It could of course be one way of frightening people into buying their product (probably viagra or something like that). This is a copy of the message and I wonder whether it is meant for another country or what - or just a load of rubbish. As far as I know I do not have an account with them. They do not give their name just a link - which I will not click on for security reasons. I have not copied the link here.

FRIDAY REMINDER:(account id enclosed)This is a reminder regarding the Friday March 12th, deadline.At this time the internet-pharmaceutical-law will be in full affect.LAW OUTLINE:- Affecting ALL Online pharmaceutical websites-Controlled products will require full medical prescriptions as of FRIDAYOUR SOLUTION:1. Products ordered before Friday WILL NOT require medicinal prescriptions/consultations.2. If products are ordered through your account ID before Friday, then the account will remain active for a 3 month period. Active accounts will not require medicinal prescriptions/consultations until they expire.

Lilian

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