Guest guest Posted November 24, 2008 Report Share Posted November 24, 2008 Welcome! Ohhhh if you only knew how many times I've heard that same crapola from numerous doctors and family members... This is a REAL illness....and there is NOBODY....no doc....no nurse anybody that knows our children better than we do..period. Our children are the lucky ones in a way b/c we have pushed to find answers and didn't just take the ole " its a virus " routine. Every single solid month...at the same time?? Sigh. My pediatrician still argues with me over it and I made him refer me to an infectious disease dr at childrens hospital pittsburgh. He wasn't happy about it..but did it to shut me up I think. Anyway, I pretty much sat and cried in her office....she believed me and all the symptoms and my fever chart and everything I was saying...her low weight...she's 3 and only 26 lbs. the pains in her knees.....belly aches....it was such a relief to find someone that actually believed me and I didn't have to be on the defensive. We are now in the process of trying different meds...to see what works....if nothing works and she's headed into school...I will push for the T & A at that time. Take a deep breath, everyone here understands and has sooooo much experience. When I'm up around the clock for 3 days straight rotating tylenol and motrin it makes me feel so much better that I am not alone or crazy. Tammy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2008 Report Share Posted November 24, 2008 Welcome! Ohhhh if you only knew how many times I've heard that same crapola from numerous doctors and family members... This is a REAL illness....and there is NOBODY....no doc....no nurse anybody that knows our children better than we do..period. Our children are the lucky ones in a way b/c we have pushed to find answers and didn't just take the ole " its a virus " routine. Every single solid month...at the same time?? Sigh. My pediatrician still argues with me over it and I made him refer me to an infectious disease dr at childrens hospital pittsburgh. He wasn't happy about it..but did it to shut me up I think. Anyway, I pretty much sat and cried in her office....she believed me and all the symptoms and my fever chart and everything I was saying...her low weight...she's 3 and only 26 lbs. the pains in her knees.....belly aches....it was such a relief to find someone that actually believed me and I didn't have to be on the defensive. We are now in the process of trying different meds...to see what works....if nothing works and she's headed into school...I will push for the T & A at that time. Take a deep breath, everyone here understands and has sooooo much experience. When I'm up around the clock for 3 days straight rotating tylenol and motrin it makes me feel so much better that I am not alone or crazy. Tammy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2008 Report Share Posted November 24, 2008 Welcome! Ohhhh if you only knew how many times I've heard that same crapola from numerous doctors and family members... This is a REAL illness....and there is NOBODY....no doc....no nurse anybody that knows our children better than we do..period. Our children are the lucky ones in a way b/c we have pushed to find answers and didn't just take the ole " its a virus " routine. Every single solid month...at the same time?? Sigh. My pediatrician still argues with me over it and I made him refer me to an infectious disease dr at childrens hospital pittsburgh. He wasn't happy about it..but did it to shut me up I think. Anyway, I pretty much sat and cried in her office....she believed me and all the symptoms and my fever chart and everything I was saying...her low weight...she's 3 and only 26 lbs. the pains in her knees.....belly aches....it was such a relief to find someone that actually believed me and I didn't have to be on the defensive. We are now in the process of trying different meds...to see what works....if nothing works and she's headed into school...I will push for the T & A at that time. Take a deep breath, everyone here understands and has sooooo much experience. When I'm up around the clock for 3 days straight rotating tylenol and motrin it makes me feel so much better that I am not alone or crazy. Tammy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2008 Report Share Posted November 24, 2008 Hi, I think the doctor you are referring to is Dr. Licamelli. He just did my daughter's T & A on October 14. He'll be a great resource for you as he has helped over 70 kids with . My daughter never had seizures yet fevered like clock work from 3years old to 4 and a half, and then from 5 and half to almost 6 years old. She had a break for a little more than a year being on the medication cimetidine. It's too early to know if the T & A will work for us, yet she recovered well from her surgery and we are hopefull. Surgery has certain risks, yet for us, from a recovery standpoint the T & A was easier to deal with than one of her attacks. When my daughter first got sick we had a terrible experiences with doctors who did not know about periodic fevers. They refused to believe her symptoms. I was told things like, " Get a new thermometer, " and asked, " Do you want your daughter to be sick? " Unfortunately, some Doctors feel threatened when presented with something they don't know how to diagnose, and when a parent has more information about an illness than they do. That Doctor was so inappropriate to get angry with you. I certainly hope you find a new good doctor near you. We now have a great local pediatrician. What a difference it makes. Life with a fevering child is stressful enough. You and your child deserve better. I'm so glad you know have Dr. Licamelli as a resourse. Carmela Mom to Carina, 6 on Saturday, T & A Oct 08 _________________________________________________________________ Get more done, have more fun, and stay more connected with Windows Mobile®. http://clk.atdmt.com/MRT/go/119642556/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2008 Report Share Posted November 24, 2008 Hi, I think the doctor you are referring to is Dr. Licamelli. He just did my daughter's T & A on October 14. He'll be a great resource for you as he has helped over 70 kids with . My daughter never had seizures yet fevered like clock work from 3years old to 4 and a half, and then from 5 and half to almost 6 years old. She had a break for a little more than a year being on the medication cimetidine. It's too early to know if the T & A will work for us, yet she recovered well from her surgery and we are hopefull. Surgery has certain risks, yet for us, from a recovery standpoint the T & A was easier to deal with than one of her attacks. When my daughter first got sick we had a terrible experiences with doctors who did not know about periodic fevers. They refused to believe her symptoms. I was told things like, " Get a new thermometer, " and asked, " Do you want your daughter to be sick? " Unfortunately, some Doctors feel threatened when presented with something they don't know how to diagnose, and when a parent has more information about an illness than they do. That Doctor was so inappropriate to get angry with you. I certainly hope you find a new good doctor near you. We now have a great local pediatrician. What a difference it makes. Life with a fevering child is stressful enough. You and your child deserve better. I'm so glad you know have Dr. Licamelli as a resourse. Carmela Mom to Carina, 6 on Saturday, T & A Oct 08 _________________________________________________________________ Get more done, have more fun, and stay more connected with Windows Mobile®. http://clk.atdmt.com/MRT/go/119642556/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2008 Report Share Posted November 24, 2008 Hi, I think the doctor you are referring to is Dr. Licamelli. He just did my daughter's T & A on October 14. He'll be a great resource for you as he has helped over 70 kids with . My daughter never had seizures yet fevered like clock work from 3years old to 4 and a half, and then from 5 and half to almost 6 years old. She had a break for a little more than a year being on the medication cimetidine. It's too early to know if the T & A will work for us, yet she recovered well from her surgery and we are hopefull. Surgery has certain risks, yet for us, from a recovery standpoint the T & A was easier to deal with than one of her attacks. When my daughter first got sick we had a terrible experiences with doctors who did not know about periodic fevers. They refused to believe her symptoms. I was told things like, " Get a new thermometer, " and asked, " Do you want your daughter to be sick? " Unfortunately, some Doctors feel threatened when presented with something they don't know how to diagnose, and when a parent has more information about an illness than they do. That Doctor was so inappropriate to get angry with you. I certainly hope you find a new good doctor near you. We now have a great local pediatrician. What a difference it makes. Life with a fevering child is stressful enough. You and your child deserve better. I'm so glad you know have Dr. Licamelli as a resourse. Carmela Mom to Carina, 6 on Saturday, T & A Oct 08 _________________________________________________________________ Get more done, have more fun, and stay more connected with Windows Mobile®. http://clk.atdmt.com/MRT/go/119642556/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2008 Report Share Posted November 25, 2008 Liegey family, Dr licamelli's full study is posted to this group in the files section. T & A is a cure for most with . My son had surgery last may when he was 24mos old and is now no longer suffers fevers. Don't let a doctor scare you away from surgery, I could not imagine going back to our fever days. Sent from my BlackBerry® smartphone with SprintSpeed Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2008 Report Share Posted November 25, 2008 Liegey family, Dr licamelli's full study is posted to this group in the files section. T & A is a cure for most with . My son had surgery last may when he was 24mos old and is now no longer suffers fevers. Don't let a doctor scare you away from surgery, I could not imagine going back to our fever days. Sent from my BlackBerry® smartphone with SprintSpeed Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2008 Report Share Posted November 25, 2008 Liegey family, Dr licamelli's full study is posted to this group in the files section. T & A is a cure for most with . My son had surgery last may when he was 24mos old and is now no longer suffers fevers. Don't let a doctor scare you away from surgery, I could not imagine going back to our fever days. Sent from my BlackBerry® smartphone with SprintSpeed Quote Link to comment Share on other sites More sharing options...
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