Jump to content
RemedySpot.com

Our story

Rate this topic


Guest guest

Recommended Posts

Welcome!

Ohhhh if you only knew how many times I've heard that same crapola

from numerous doctors and family members...

This is a REAL illness....and there is NOBODY....no doc....no nurse

anybody that knows our children better than we do..period. Our

children are the lucky ones in a way b/c we have pushed to find

answers and didn't just take the ole " its a virus " routine. Every

single solid month...at the same time?? Sigh. My pediatrician still

argues with me over it and I made him refer me to an infectious

disease dr at childrens hospital pittsburgh. He wasn't happy about

it..but did it to shut me up I think.

Anyway, I pretty much sat and cried in her office....she believed me

and all the symptoms and my fever chart and everything I was

saying...her low weight...she's 3 and only 26 lbs. the pains in her

knees.....belly aches....it was such a relief to find someone that

actually believed me and I didn't have to be on the defensive.

We are now in the process of trying different meds...to see what

works....if nothing works and she's headed into school...I will push

for the T & A at that time.

Take a deep breath, everyone here understands and has sooooo much

experience. When I'm up around the clock for 3 days straight

rotating tylenol and motrin it makes me feel so much better that I am

not alone or crazy.

Tammy

Link to comment
Share on other sites

Welcome!

Ohhhh if you only knew how many times I've heard that same crapola

from numerous doctors and family members...

This is a REAL illness....and there is NOBODY....no doc....no nurse

anybody that knows our children better than we do..period. Our

children are the lucky ones in a way b/c we have pushed to find

answers and didn't just take the ole " its a virus " routine. Every

single solid month...at the same time?? Sigh. My pediatrician still

argues with me over it and I made him refer me to an infectious

disease dr at childrens hospital pittsburgh. He wasn't happy about

it..but did it to shut me up I think.

Anyway, I pretty much sat and cried in her office....she believed me

and all the symptoms and my fever chart and everything I was

saying...her low weight...she's 3 and only 26 lbs. the pains in her

knees.....belly aches....it was such a relief to find someone that

actually believed me and I didn't have to be on the defensive.

We are now in the process of trying different meds...to see what

works....if nothing works and she's headed into school...I will push

for the T & A at that time.

Take a deep breath, everyone here understands and has sooooo much

experience. When I'm up around the clock for 3 days straight

rotating tylenol and motrin it makes me feel so much better that I am

not alone or crazy.

Tammy

Link to comment
Share on other sites

Welcome!

Ohhhh if you only knew how many times I've heard that same crapola

from numerous doctors and family members...

This is a REAL illness....and there is NOBODY....no doc....no nurse

anybody that knows our children better than we do..period. Our

children are the lucky ones in a way b/c we have pushed to find

answers and didn't just take the ole " its a virus " routine. Every

single solid month...at the same time?? Sigh. My pediatrician still

argues with me over it and I made him refer me to an infectious

disease dr at childrens hospital pittsburgh. He wasn't happy about

it..but did it to shut me up I think.

Anyway, I pretty much sat and cried in her office....she believed me

and all the symptoms and my fever chart and everything I was

saying...her low weight...she's 3 and only 26 lbs. the pains in her

knees.....belly aches....it was such a relief to find someone that

actually believed me and I didn't have to be on the defensive.

We are now in the process of trying different meds...to see what

works....if nothing works and she's headed into school...I will push

for the T & A at that time.

Take a deep breath, everyone here understands and has sooooo much

experience. When I'm up around the clock for 3 days straight

rotating tylenol and motrin it makes me feel so much better that I am

not alone or crazy.

Tammy

Link to comment
Share on other sites

Hi,

I think the doctor you are referring to is Dr. Licamelli. He just did my

daughter's T & A on October 14. He'll be a great resource for you as he has

helped over 70 kids with . My daughter never had seizures yet fevered like

clock work from 3years old to 4 and a half, and then from 5 and half to almost 6

years old. She had a break for a little more than a year being on the

medication cimetidine. It's too early to know if the T & A will work for us, yet

she recovered well from her surgery and we are hopefull. Surgery has certain

risks, yet for us, from a recovery standpoint the T & A was easier to deal with

than one of her attacks.

When my daughter first got sick we had a terrible experiences with doctors who

did not know about periodic fevers. They refused to believe her symptoms. I

was told things like, " Get a new thermometer, " and asked, " Do you want your

daughter to be sick? " Unfortunately, some Doctors feel threatened when

presented with something they don't know how to diagnose, and when a parent has

more information about an illness than they do. That Doctor was so

inappropriate to get angry with you. I certainly hope you find a new good

doctor near you. We now have a great local pediatrician. What a difference it

makes. Life with a fevering child is stressful enough. You and your child

deserve better. I'm so glad you know have Dr. Licamelli as a resourse.

Carmela

Mom to Carina, 6 on Saturday, T & A Oct 08

_________________________________________________________________

Get more done, have more fun, and stay more connected with Windows Mobile®.

http://clk.atdmt.com/MRT/go/119642556/direct/01/

Link to comment
Share on other sites

Hi,

I think the doctor you are referring to is Dr. Licamelli. He just did my

daughter's T & A on October 14. He'll be a great resource for you as he has

helped over 70 kids with . My daughter never had seizures yet fevered like

clock work from 3years old to 4 and a half, and then from 5 and half to almost 6

years old. She had a break for a little more than a year being on the

medication cimetidine. It's too early to know if the T & A will work for us, yet

she recovered well from her surgery and we are hopefull. Surgery has certain

risks, yet for us, from a recovery standpoint the T & A was easier to deal with

than one of her attacks.

When my daughter first got sick we had a terrible experiences with doctors who

did not know about periodic fevers. They refused to believe her symptoms. I

was told things like, " Get a new thermometer, " and asked, " Do you want your

daughter to be sick? " Unfortunately, some Doctors feel threatened when

presented with something they don't know how to diagnose, and when a parent has

more information about an illness than they do. That Doctor was so

inappropriate to get angry with you. I certainly hope you find a new good

doctor near you. We now have a great local pediatrician. What a difference it

makes. Life with a fevering child is stressful enough. You and your child

deserve better. I'm so glad you know have Dr. Licamelli as a resourse.

Carmela

Mom to Carina, 6 on Saturday, T & A Oct 08

_________________________________________________________________

Get more done, have more fun, and stay more connected with Windows Mobile®.

http://clk.atdmt.com/MRT/go/119642556/direct/01/

Link to comment
Share on other sites

Hi,

I think the doctor you are referring to is Dr. Licamelli. He just did my

daughter's T & A on October 14. He'll be a great resource for you as he has

helped over 70 kids with . My daughter never had seizures yet fevered like

clock work from 3years old to 4 and a half, and then from 5 and half to almost 6

years old. She had a break for a little more than a year being on the

medication cimetidine. It's too early to know if the T & A will work for us, yet

she recovered well from her surgery and we are hopefull. Surgery has certain

risks, yet for us, from a recovery standpoint the T & A was easier to deal with

than one of her attacks.

When my daughter first got sick we had a terrible experiences with doctors who

did not know about periodic fevers. They refused to believe her symptoms. I

was told things like, " Get a new thermometer, " and asked, " Do you want your

daughter to be sick? " Unfortunately, some Doctors feel threatened when

presented with something they don't know how to diagnose, and when a parent has

more information about an illness than they do. That Doctor was so

inappropriate to get angry with you. I certainly hope you find a new good

doctor near you. We now have a great local pediatrician. What a difference it

makes. Life with a fevering child is stressful enough. You and your child

deserve better. I'm so glad you know have Dr. Licamelli as a resourse.

Carmela

Mom to Carina, 6 on Saturday, T & A Oct 08

_________________________________________________________________

Get more done, have more fun, and stay more connected with Windows Mobile®.

http://clk.atdmt.com/MRT/go/119642556/direct/01/

Link to comment
Share on other sites

Liegey family,

Dr licamelli's full study is posted to this group in the files section. T & A is a

cure for most with . My son had surgery last may when he was 24mos old and

is now no longer suffers fevers. Don't let a doctor scare you away from

surgery, I could not imagine going back to our fever days.

Sent from my BlackBerry® smartphone with SprintSpeed

Link to comment
Share on other sites

Liegey family,

Dr licamelli's full study is posted to this group in the files section. T & A is a

cure for most with . My son had surgery last may when he was 24mos old and

is now no longer suffers fevers. Don't let a doctor scare you away from

surgery, I could not imagine going back to our fever days.

Sent from my BlackBerry® smartphone with SprintSpeed

Link to comment
Share on other sites

Liegey family,

Dr licamelli's full study is posted to this group in the files section. T & A is a

cure for most with . My son had surgery last may when he was 24mos old and

is now no longer suffers fevers. Don't let a doctor scare you away from

surgery, I could not imagine going back to our fever days.

Sent from my BlackBerry® smartphone with SprintSpeed

Link to comment
Share on other sites

Join the conversation

You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

Loading...
×
×
  • Create New...