Re: I need to scream!!!!!!

[Guest guest]

I saw your post. My daughter has flat feet and pronation as well.

I don't think pediatricians take this seriuosly. When I brought up

my concern to the pediatrician he said to " wait and see " she was

still growing. So I went straight to a podiatrist and had her

fitted for orthotic inserts. It has definitely made a difference.

Just thought I'd mention this option. Also an orthopedist may be

able to address this conern. Hope this helps. Good luck.

>

> I am getting discouraged about Pediatricians on a daily basis. My

3

> year old with severe phonology problems needs orthodic shoes

because

> of a pronation problem. I went to a new pediatrician last week to

get

> a prescription. He said if the PT think sshe needs the shoes he

will

> write the prescription since he does not know a lot about

orthodics.I

> asked her old PT to come to the house to check her feet.Then he

asked

> me if I had any other issues. I said no. I told him that our

> daughter's speech was improving(has alreay mastered 3/4 goals on

her

> IEP that was written 2 weeks ago!), her constipation problem was

> under control, she no longer had hypotonia and does not qualify

for

> PT services, her hearing is perfect now that she had PE tubes

placed

> and adnoids removed. She had not had a cold and we are completely

off

> asthma meds. I said she was great. He then proceeded to look at DD

as

> if he was looking at her under a microscope. As a sped teacher I

knew

> what he was doing as soon as he looked at her hands.(My daughter

has

> fabulous receptive and cognition) I said to the Ped. " She does not

> have Downs " . He then said what I just told him was most of the

> characteristics of Downs. I told him my background having a

masters

> degree and BA in Special Ed with concentration in MR. He then said

it

> is not entirely uncommon to find a 3 year old with trisomy 21. At

> that point I wanted to scream....I just came in for a shoe

> prescription!!!!!! I told him a Dev. Ped, Neurologist, 6 SLP, 3

> PT's, 2 OT's, Pediatricians, and my brother who is a pediatrician

> recognize Downs or trisomy 21.I left his office which I was there

a

> total of 15 minutes pissed off.Fast forward one week. We have been

on

> a wait list for 3 months to see a Dev. Ped for a follow up from

last

> year. Today I got a call for an appointment for tomorrow. The

> Pediatrician we saw called the Dev. Ped. and red flagged our

> daughter. When the Dev. ped's office called she said they know

what

> happened last week and I said I was upset. They said they already

> knew....This doctor saw my daughter with a team last year for 2

1/2

> hours and concluded she was smart , but need intense S & L therapy.

I

> needed to vent on how irresponsible doctors can be . We will see

what

> tomorrow will bring. If we do not like the outcome I will fly to

> where my brother practices and have him pull strings for us to see

> the best Ped. Dev. doctor he knows.

>

> Sorry I just had to vent....none of my friends would understand.

>

[Guest guest]

Think of how I feel. I just spent 6 months on a waiting list to see an ENT here

in Canda. Once my son passed the hearing test (which he always does), the

doctor didn't even look in his ears. I commented on his nasal tone of voice but

no.... the doctor did not examine the mouth or throat.

When I complained, he ordered a CT scan and an ENG.... more tests.... no

physical examination whatsoever! We had 5 minutes with this guy before we were

dismissed. That was it. I was so upset yesterday..... I felt a real pain in

my heart as I realized that because Mark is older, no one wants to look at him

or treat him. He has a neurodevelopmental disorder and that is that. It is

plain and simple in their eyes. When your child is young, the doctors are far

more willing to investigate and pursue other avenues.

Apparently, kids in Canada with neurodevelopmental disorders don't warrant even

a cursory examination! I can't remember the last time that any doctor so much

as took off Mark's shirt to examine him! What happened to good old fashioned

medicine anyway? It makes me feel so helpless and depressed.

It really is worth it to look for an extremely attentive doctor. I get jealous

of all of you in the US who's doctors practices rely upon your 'choosing them'

for how well they do the job!

The nurse practitioner suggested that I change my pediatrician and was horrifed

by his lack of attention to Mark..... but of course, I would require his

permission to get a 'second opinion'. Good luck with that one!

Janice

[sPAM] [ ] I need to scream!!!!!!

I am getting discouraged about Pediatricians on a daily basis. My 3

year old with severe phonology problems needs orthodic shoes because

of a pronation problem. I went to a new pediatrician last week to get

a prescription. He said if the PT think sshe needs the shoes he will

write the prescription since he does not know a lot about orthodics.I

asked her old PT to come to the house to check her feet.Then he asked

me if I had any other issues. I said no. I told him that our

daughter's speech was improving(has alreay mastered 3/4 goals on her

IEP that was written 2 weeks ago!), her constipation problem was

under control, she no longer had hypotonia and does not qualify for

PT services, her hearing is perfect now that she had PE tubes placed

and adnoids removed. She had not had a cold and we are completely off

asthma meds. I said she was great. He then proceeded to look at DD as

if he was looking at her under a microscope. As a sped teacher I knew

what he was doing as soon as he looked at her hands.(My daughter has

fabulous receptive and cognition) I said to the Ped. " She does not

have Downs " . He then said what I just told him was most of the

characteristics of Downs. I told him my background having a masters

degree and BA in Special Ed with concentration in MR. He then said it

is not entirely uncommon to find a 3 year old with trisomy 21. At

that point I wanted to scream....I just came in for a shoe

prescription!!!!!! I told him a Dev. Ped, Neurologist, 6 SLP, 3

PT's, 2 OT's, Pediatricians, and my brother who is a pediatrician

recognize Downs or trisomy 21.I left his office which I was there a

total of 15 minutes pissed off.Fast forward one week. We have been on

a wait list for 3 months to see a Dev. Ped for a follow up from last

year. Today I got a call for an appointment for tomorrow. The

Pediatrician we saw called the Dev. Ped. and red flagged our

daughter. When the Dev. ped's office called she said they know what

happened last week and I said I was upset. They said they already

knew....This doctor saw my daughter with a team last year for 2 1/2

hours and concluded she was smart , but need intense S & L therapy. I

needed to vent on how irresponsible doctors can be . We will see what

tomorrow will bring. If we do not like the outcome I will fly to

where my brother practices and have him pull strings for us to see

the best Ped. Dev. doctor he knows.

Sorry I just had to vent....none of my friends would understand.

[Guest guest]

My Daughter has been wearing orthodics since she was 15 months old. I

need a new prescription every year. This prescription is for

orthopedics shoes and inserts. They cost over $400.00 so I want my

insurance company to pay for them. This is the only reason I went to

the Ped.

> >

> > I am getting discouraged about Pediatricians on a daily basis. My

> 3

> > year old with severe phonology problems needs orthodic shoes

> because

> > of a pronation problem. I went to a new pediatrician last week to

> get

> > a prescription. He said if the PT think sshe needs the shoes he

> will

> > write the prescription since he does not know a lot about

> orthodics.I

> > asked her old PT to come to the house to check her feet.Then he

> asked

> > me if I had any other issues. I said no. I told him that our

> > daughter's speech was improving(has alreay mastered 3/4 goals on

> her

> > IEP that was written 2 weeks ago!), her constipation problem was

> > under control, she no longer had hypotonia and does not qualify

> for

> > PT services, her hearing is perfect now that she had PE tubes

> placed

> > and adnoids removed. She had not had a cold and we are completely

> off

> > asthma meds. I said she was great. He then proceeded to look at

DD

> as

> > if he was looking at her under a microscope. As a sped teacher I

> knew

> > what he was doing as soon as he looked at her hands.(My daughter

> has

> > fabulous receptive and cognition) I said to the Ped. " She does

not

> > have Downs " . He then said what I just told him was most of the

> > characteristics of Downs. I told him my background having a

> masters

> > degree and BA in Special Ed with concentration in MR. He then

said

> it

> > is not entirely uncommon to find a 3 year old with trisomy 21. At

> > that point I wanted to scream....I just came in for a shoe

> > prescription!!!!!! I told him a Dev. Ped, Neurologist, 6 SLP, 3

> > PT's, 2 OT's, Pediatricians, and my brother who is a pediatrician

> > recognize Downs or trisomy 21.I left his office which I was there

> a

> > total of 15 minutes pissed off.Fast forward one week. We have

been

> on

> > a wait list for 3 months to see a Dev. Ped for a follow up from

> last

> > year. Today I got a call for an appointment for tomorrow. The

> > Pediatrician we saw called the Dev. Ped. and red flagged our

> > daughter. When the Dev. ped's office called she said they know

> what

> > happened last week and I said I was upset. They said they already

> > knew....This doctor saw my daughter with a team last year for 2

> 1/2

> > hours and concluded she was smart , but need intense S & L therapy.

> I

> > needed to vent on how irresponsible doctors can be . We will see

> what

> > tomorrow will bring. If we do not like the outcome I will fly to

> > where my brother practices and have him pull strings for us to

see

> > the best Ped. Dev. doctor he knows.

> >

> > Sorry I just had to vent....none of my friends would understand.

> >

>

[Guest guest]

In a message dated 9/25/2007 2:13:45 P.M. Eastern Daylight Time,

jscott@... writes:

I get jealous of all of you in the US who's doctors practices rely upon your

'choosing them' for how well they do the job!

Well, that's not QUITE the case, unfortunately. The primary determination

of the Dr's really is who is covered by your INSURANCE COMPANY!!!

Unfortunately, depending on the insurance a person has here in the states,

you may get someone who knows NOTHING about Apraxia, or you might get lucky and

be able to find an expert who just happens to take your insurance.

We're with an HMO, which means no out of network benefits. That's extremely

limiting when it comes to any of the harder-to-find experts (Neurological

Developmental Pediatrician, Pediatric Orthopedic Surgeon, Physiatrist, etc)

We don't have a decent Ped Ortho, and cannot really go out of network for

one, so we were screwed with the crappy one we had to go to because of the

insurance. This was the man who was stupid enough to say that Asa's severe

toe-over-toe intoeing is " purely cosmetic " . @@ Walking normally is now

considered COSMETIC??

arrrgh

I seem to have a lot of pent-up anger today, huh? LOL

Becky

************************************** See what's new at http://www.aol.com

[Guest guest]

I can't blame you for being frustrated!!! Vent all y ou want!

Becky

************************************** See what's new at http://www.aol.com

[Guest guest]

Not knowing where you live this may be a pointless suggestion but if

you are at all near a Shriners Children's Hospital why not go there?

They are free and can even provide transportation via a volunteer from

your local temple. They have vans for that purpose realizing some

children will be in wheelchairs. The orthotics would be free, too.

We go to the on in Springfield, MA.

Darlene

> > >

> > > I am getting discouraged about Pediatricians on a daily basis. My

> > 3

> > > year old with severe phonology problems needs orthodic shoes

> > because

> > > of a pronation problem. I went to a new pediatrician last week to

> > get

> > > a prescription. He said if the PT think sshe needs the shoes he

> > will

> > > write the prescription since he does not know a lot about

> > orthodics.I

> > > asked her old PT to come to the house to check her feet.Then he

> > asked

> > > me if I had any other issues. I said no. I told him that our

> > > daughter's speech was improving(has alreay mastered 3/4 goals on

> > her

> > > IEP that was written 2 weeks ago!), her constipation problem was

> > > under control, she no longer had hypotonia and does not qualify

> > for

> > > PT services, her hearing is perfect now that she had PE tubes

> > placed

> > > and adnoids removed. She had not had a cold and we are completely

> > off

> > > asthma meds. I said she was great. He then proceeded to look at

> DD

> > as

> > > if he was looking at her under a microscope. As a sped teacher I

> > knew

> > > what he was doing as soon as he looked at her hands.(My daughter

> > has

> > > fabulous receptive and cognition) I said to the Ped. " She does

> not

> > > have Downs " . He then said what I just told him was most of the

> > > characteristics of Downs. I told him my background having a

> > masters

> > > degree and BA in Special Ed with concentration in MR. He then

> said

> > it

> > > is not entirely uncommon to find a 3 year old with trisomy 21. At

> > > that point I wanted to scream....I just came in for a shoe

> > > prescription!!!!!! I told him a Dev. Ped, Neurologist, 6 SLP, 3

> > > PT's, 2 OT's, Pediatricians, and my brother who is a pediatrician

> > > recognize Downs or trisomy 21.I left his office which I was there

> > a

> > > total of 15 minutes pissed off.Fast forward one week. We have

> been

> > on

> > > a wait list for 3 months to see a Dev. Ped for a follow up from

> > last

> > > year. Today I got a call for an appointment for tomorrow. The

> > > Pediatrician we saw called the Dev. Ped. and red flagged our

> > > daughter. When the Dev. ped's office called she said they know

> > what

> > > happened last week and I said I was upset. They said they already

> > > knew....This doctor saw my daughter with a team last year for 2

> > 1/2

> > > hours and concluded she was smart , but need intense S & L therapy.

> > I

> > > needed to vent on how irresponsible doctors can be . We will see

> > what

> > > tomorrow will bring. If we do not like the outcome I will fly to

> > > where my brother practices and have him pull strings for us to

> see

> > > the best Ped. Dev. doctor he knows.

> > >

> > > Sorry I just had to vent....none of my friends would understand.

> > >

> >

>

[Guest guest]

So, basicly we are all in trouble!

Good thing we have each other..... I was soooo alone before I found all of you

(sounds like a bad love song....).

Janice

[sPAM] Re: [ ] I need to scream!!!!!!

In a message dated 9/25/2007 2:13:45 P.M. Eastern Daylight Time,

jscott@... writes:

I get jealous of all of you in the US who's doctors practices rely upon your

'choosing them' for how well they do the job!

Well, that's not QUITE the case, unfortunately. The primary determination

of the Dr's really is who is covered by your INSURANCE COMPANY!!!

Unfortunately, depending on the insurance a person has here in the states,

you may get someone who knows NOTHING about Apraxia, or you might get lucky

and

be able to find an expert who just happens to take your insurance.

We're with an HMO, which means no out of network benefits. That's extremely

limiting when it comes to any of the harder-to-find experts (Neurological

Developmental Pediatrician, Pediatric Orthopedic Surgeon, Physiatrist, etc)

We don't have a decent Ped Ortho, and cannot really go out of network for

one, so we were screwed with the crappy one we had to go to because of the

insurance. This was the man who was stupid enough to say that Asa's severe

toe-over-toe intoeing is " purely cosmetic " . @@ Walking normally is now

considered COSMETIC??

arrrgh

I seem to have a lot of pent-up anger today, huh? LOL

Becky

************************************** See what's new at http://www.aol.com

[Guest guest]

Just brought my son (7) to a Ped Ortho as his feet rotate outward

(duck-footed) and his ankles roll in. After x rays and everything, he said the

problem

was in his hips, not in his feet or his ankles. One previous visit to a

Podiatrist recommended orthotics and the Ped Ortho said if you go to a

Podiatrist with a headache, he will still prescribe orthotics.

It is just the way his bones are attached to his hip that causes the outward

rotation and he didn't even want a follow-up. He is a well recommended

doctor and seems very honest to me. He said as he gets older it will

straighten

out a bit. If your child walks inward, he probably sits in the " w " position

as my child is hyperflexible at the hip and could never sit in the " w "

position but can sit in a yoga style comfortably or put his feet up to and

behind

his head easily.

Hope this helps,

Lori

In a message dated 9/25/2007 11:33:27 P.M. Eastern Daylight Time,

tbniesh@... writes:

We don't have a decent Ped Ortho, and cannot really go out of network for

one, so we were screwed with the crappy one we had to go to because of the

insurance. This was the man who was stupid enough to say that Asa's severe

toe-over-toe intoeing is " purely cosmetic " . @@ Walking normally is now

considered COSMETIC??

arrrgh

I seem to have a lot of pent-up anger today, huh? LOL

Becky

************************************** See what's new at http://www.aol.com

[Guest guest]

Hey,

I am really sorry that happened to you. I had the same thing happen to me

multiple times doctors want to evaluate my son or send him to a ped doctor

for checking for autism. He had already been evaluated by a dev ped that is

very good and specialized in autism and he had ruled out autism for Liam,

(but they didn't know that) So I know how you feel, but try to take solace

in the fact that this doctor was being throughout. It is better for docs to

be looking for these kinds of issues in all their patients rather than

missing it in scores of patients.

My husband is in the military and while the insurance is good, problems

arise because you never see the same doctor. So I have to re-explain my

son's condition to every doctor we go to, even for a common cough, because

they try to tell me " wooooah you need to get your son into a dev ped " , and I

am like, " LOOK AT HIS CHART! He has been and been and been , don't worry I

am on top of this! " They all don't look at his chart or well enough and

think they are the first doc to address any of his special needs. There is

one doc at the military treatment facility who knows Liam, and I trust him

he is really good, so I always try to get into him. The only thing about him

is he won't test for nutritional deficiencies, he just says to take a multi

vitamin and that will cover anything....

Anyway, I am sorry that happened to you. SMILE.

Annie

[Guest guest]

>I am going to get beat up on this but what you are describing is

similar pidgeontoed walking though with that my foot turned inward.

Not much they could do for me beyond orthotics and it still led to

severe back issues in adulthood. The back problems of a decade and

the pidgeon toed thing of 40 yeards all ended when I went off milk.

The current theory is my unaddressed milk allergy caused

malabsorption and this was one of the results.

>

> Just brought my son (7) to a Ped Ortho as his feet rotate outward

> (duck-footed) and his ankles roll in. After x rays and everything,

he said the problem

> was in his hips, not in his feet or his ankles. One previous

visit to a

> Podiatrist recommended orthotics and the Ped Ortho said if you go

to a

> Podiatrist with a headache, he will still prescribe orthotics.

> It is just the way his bones are attached to his hip that causes

the outward

> rotation and he didn't even want a follow-up. He is a well

recommended

> doctor and seems very honest to me. He said as he gets older it

will straighten

> out a bit. If your child walks inward, he probably sits in

the " w " position

> as my child is hyperflexible at the hip and could never sit in

the " w "

> position but can sit in a yoga style comfortably or put his feet

up to and behind

> his head easily.

> Hope this helps,

> Lori

>

>

>

> In a message dated 9/25/2007 11:33:27 P.M. Eastern Daylight Time,

> tbniesh@... writes:

>

> We don't have a decent Ped Ortho, and cannot really go out of

network for

> one, so we were screwed with the crappy one we had to go to because

of the

> insurance. This was the man who was stupid enough to say that Asa's

severe

> toe-over-toe intoeing is " purely cosmetic " . @@ Walking normally is

now

> considered COSMETIC??

> arrrgh

>

> I seem to have a lot of pent-up anger today, huh? LOL

>

> Becky

>

>

>

>

>

>

>

> ************************************** See what's new at

http://www.aol.com

>

>

>

[Guest guest]

In a message dated 9/26/2007 8:31:15 A.M. Eastern Daylight Time,

jscott@... writes:

So, basicly we are all in trouble!

Good thing we have each other..... I was soooo alone before I found all of

you (sounds like a bad love song....).

ROFLOL that's funny!

**Y****Y****Y****Y****Y****

Becky

SAH HSing Mom to 7

The Boys have won!

Aurick Abram

5/2/06

**Y****Y****Y****Y****Y****

Care to read about my day?

_Bek's Blathering_ (http://beksblathering.blogspot.com/)

**Y****Y****Y****Y****Y****

_BeksBounty_

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[Guest guest]

In a message dated 9/26/2007 9:24:43 A.M. Eastern Daylight Time,

boomr3@... writes:

If your child walks inward, he probably sits in the " w " position

as my child is hyperflexible at the hip and could never sit in the " w "

position but can sit in a yoga style comfortably or put his feet up to and

behind

his head easily.

Hope this helps,

This is correct-- he sits in the " W " shape, but that's something we've had

to change since he had Blount's disease.

I believe that it's a little different though-- here's what I think--

Blount's disease is an ortho problem that is extremely rare ( gee, how nice!

lol)

and it causes SEVERE bowing of the legs. The in-toeing is caused BY the

Bowing of the legs.

Now-- the Bowing was treated with leg braces from the waist to the toes, and

it corrects ONLY the bowing, and cannot fix the in-toeing.

So we're done with that treatment, which is a medical necessity and it's all

totally

UN-related to the Apraxia/Dyspraxia

Here's my thought tho-- because while there is a *VERY SLIGHT* medical

reason why he would have ONE leg toe-in, the Ortho man outright said that it

does

NOT warrant his severe in-toeing. In other words, there's no real MEDICAL

reason why he should walk toe over toe.

I believe that because his legs were so severely bowed for the last 2 1/2

yrs, that's how his motor planning tells him the legs should go. At This point,

I believe that the in-toeing is a direct result of that, and that the MOTOR

PLANNING needs to be re-trained to get his mind to catch up with how the legs

need to go.

So while there WAS a definite medical reason for the bowing and in-toeing,

I think that the problem NOW is the Dyspraxia coming to play in all of it.

Soooo-- to get this all on paper in a paper trail with the insurance

company, so prove that it's all medical so they will PAY for all the PT, is

something I'm working on.

Bek

**Y****Y****Y****Y****Y****

Becky

SAH HSing Mom to 7

The Boys have won!

Aurick Abram

5/2/06

**Y****Y****Y****Y****Y****

Care to read about my day?

_Bek's Blathering_ (http://beksblathering.blogspot.com/)

**Y****Y****Y****Y****Y****

_BeksBounty_

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[Guest guest]

In a message dated 9/26/2007 12:53:14 P.M. Eastern Daylight Time,

lizlaw@... writes:

I am going to get beat up on this but what you are describing is

similar pidgeontoed walking though with that my foot turned inward.

Not much they could do for me beyond orthotics and it still led to

severe back issues in adulthood. The back problems of a decade and

the pidgeon toed thing of 40 yeards all ended when I went off milk.

The current theory is my unaddressed milk allergy caused

malabsorption and this was one of the results.

I appreciate your thoughts on this, as it was YOUR experience.

My son actually has a rare orthopedic disease, however, and that is the

definite 100% cause of the severe in-toeing up to this point.

I sent this in a previous email, but just in case it wasn't received---

My thoughts is that due to the Blount's disease which bowed his thighs

severely and forced the in-toeing, I think that his motor planning obviously

tells

him that his feet are to go inward. Now that the MEDICAL issues are cleared

up (very recently), I believe it's a matter of re-training the Motor planning

to have his brain recognize where his feet need to be.

he's a non-milk drinker and doesn't do dairy-- so that's definitely not the

problem!

Becky

**Y****Y****Y****Y****Y****

Becky

SAH HSing Mom to 7

The Boys have won!

Aurick Abram

5/2/06

**Y****Y****Y****Y****Y****

Care to read about my day?

_Bek's Blathering_ (http://beksblathering.blogspot.com/)

**Y****Y****Y****Y****Y****

_BeksBounty_

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