issues

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Hello Everyone-

My 3 1/2 yr old son has had a huge regression in the last two days. (he

woke up Thursday morning with it being physically evident)

We already have an SLP who has diagnosed him with Apraxia, Oral Motor

weakness, etc, but we also know that he has Global Apraxia (of

Developmental

Dyspraxia I guess, depending on where you're located)

We really need to find a LOCAL Expert on Apraxia who is able to help us

with

the MEDICAL issues that he's facing. We have our private SLP, a 2nd SLP,

OT

and PT that we're dealing with at Valley CCD, in combination with a

Physiatrist, and an Orthopedic Md. We've also been to a regular

neurologist

(was NOT

impressed with him AT ALL) and a Neurological Developmental Pediatrician,

but

it seems that while they're all experts in what they do, they don't seem

to

know much about APRAXIA, and how his physical issues will be affected with

the

neurological sometimes.

I have no idea what caused this regression/set-back, but we definitely

feel

that we need to find a local Apraxia Expert that would be able to help us

out

with all of this. Bergen or Passaic Counties are ideal, but County

is

also a possibility if we can't find one in the other counties.

We have an appt on Monday to see the Orthopedic, but I KNOW this isn't an

Ortho issue, his PT knows this, his OT knows it, the Chiropractor knows

this,

but we just have to find someone that DOES know what they are doing.

Anyone know where to send me?

Thanks in advance

Becky<~ a mom who's at the end of her rope

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