Re: Fw: [MitoAngels] Leanna

[Guest guest]

Thanks for the update, Stacey! I have been combing thru my emails looking for an update.

Suhad, If you are out there, I am praying really hard that Leanna pulls thru this! I hope you are doing as well as possible in this difficult time=)

e, Chelsea's mom, Atypical Rett Syndrome (FKA nonspecific mito)

[Guest guest]

Dear , thanks for the update. OH, I wish there was a way to

change things. Cindy

> This is a message that was sent to the mito angles group, it is

kind of an update for all of you. I feel so bad, it is just not

fair!!

>

> Wayne, , Gentry and ~Angel Aspyn~

> www.aspynblock.com

>

> [MitoAngels] Leanna

>

>

> Dear Friends,

>

> I am Leanna's Cousin Jasmin and because Suhad is not able to write

in this terrible time , I am doing it for her. We are going through a

hard time this week, Leanna is in the hospital and is in critical

condition, she has Leigh's disease and is not yet intibated. We want

to know the opinion of someone who has had the experience of keeping

her in the hospital or bringing her home, with a full time nurse (in

a hospice type situation). We are very confused and would like the

advice of someone who knows what we are going through.

>

> Thank you all for your support

>

> God bless you all

>

> Jasmin

>

>

>

>

[Guest guest]

your welcome, I wish that also. I know what it was like to lose Aspyn, I

cant imagine having to go through it again, its times like this I just sit

back and wonder why? It really isn't fair.

Someone told me after Aspyn passed away that God wont give you more than you

can handle, but I am beginning to think God might be overestimating things.

Take care and please keep Leanna and Suhad in your prayers.

Wayne, , Gentry and ~Angel Aspyn~

www.aspynblock.com

[MitoAngels] Leanna

> >

> >

> > Dear Friends,

> >

> > I am Leanna's Cousin Jasmin and because Suhad is not able to write

> in this terrible time , I am doing it for her. We are going through a

> hard time this week, Leanna is in the hospital and is in critical

> condition, she has Leigh's disease and is not yet intibated. We want

> to know the opinion of someone who has had the experience of keeping

> her in the hospital or bringing her home, with a full time nurse (in

> a hospice type situation). We are very confused and would like the

> advice of someone who knows what we are going through.

> >

> > Thank you all for your support

> >

> > God bless you all

> >

> > Jasmin

> >

> >

> >

> >

>

>

>

>

>

>

> Please contact mito-owner with any problems or questions.

>

[Guest guest]

I don't have the experience of this; but when my dad was dying from prostate

cancer we had him at home with hospice coming in. The one thing that I liked

about that was he was in his own room, with his own things and we would visit

with him often. Read to him, I sang hymns to him. Even on the day that

he was dying and I was singing to him I saw a tear roll down his cheek.

I knew he knew it was me and recognized the song, but he just couldn't use

his voice to express what he was thinking at that time. Talk to some one

at hospice in the hospital so they can explain the process to you. It is

a very difficult time for your family and I am sorry for the decision you

need to be making now. Let Suhad and her husband know we are praying for

them during this time.

Nerenhausen

mom to Leah

and Wayne wrote:

This is a

message that was sent to the mito angles group, it is kind of an update

for all of you. I feel so bad, it is just not fair!!

Wayne, ,

Gentry and ~Angel Aspyn~

www.aspynblock.com

-----

Original Message ----- From:

suhad1970@...

To: MitoAngels

Sent: Thursday, March 17, 2005 9:14 AM

Subject: [MitoAngels] Leanna

Dear Friends,

I am Leanna’s Cousin Jasmin

and because Suhad is not able to write in this terrible time , I am doing

it for her. We are going through a hard time this week, Leanna is in the

hospital and is in critical condition, she has Leigh’s disease and is not

yet intibated. We want to know the opinion of someone who has had the experience

of keeping her in the hospital or bringing her home, with a full time nurse

(in a hospice type situation). We are very confused and would like the advice

of someone who knows what we are going through.

Thank you all for your support

God bless you all

Jasmin

Suhad

Haddad -- Mom to Samya (Died 12-10-02

of Leigh's Synd.) & Leanna with same disease.

Samya's

Memorial Site: www.samyahaddad.com/.org/.net

Email: Suhad1970@...

Alt Email:

Suhad@...

AiM Chat: Suhad1970

Some souls pass through this life time like a gentle summer rain.

They touch our hearts and then return to heaven once again.

Please contact mito-owner with any problems or questions.

This message scanned for

viruses by CoreComm

[Guest guest]

This is so horrible. Please let Suhad know that my thoughts are with her and her family. I also vote for hospice if your area has it. They really do ease the burden. We didn't have it in our area when we lost my dad, but my family would have definitely taken advantage of their services.

Please keep us posted.

ruth

[Guest guest]

Our thoughts and prayer with you Suhad and family.

I also don't have any experience with the hospice,

wishing there were more I could do to help out.

Praying for us all,

AnnMarie L. - Complex IV (pre-diabetic, hypothyroid, adrenal/endocrine

issues)

Married to my best friend Rick,

Very Busy Mom to (15), (12), Cassandra (6) and

Joe (5) - complex IV, lactic acidosis, CP, tethered chord syndrome,

dysautonomia, and

a smile that never quits :-)

stacynwayne@... wrote:

This is

a message that was sent to the mito angles group, it is kind of an

update for all of you. I feel so bad, it is just not fair!!

Wayne,

, Gentry and ~Angel Aspyn~

www.aspynblock.com

-----

Original Message -----

From:

suhad1970@...

To: MitoAngels

Sent: Thursday, March 17, 2005 9:14 AM

Subject: [MitoAngels] Leanna

Dear Friends,

I am Leanna’s Cousin

Jasmin and because Suhad is not able to write in this terrible time , I

am doing it for her. We are going through a hard time this week, Leanna

is in the hospital and is in critical condition, she has Leigh’s

disease and is not yet intibated. We want to know the opinion of

someone who has had the experience of keeping her in the hospital or

bringing her home, with a full time nurse (in a hospice type

situation). We are very confused and would like the advice of someone

who knows what we are going through.

Thank you all for your

support

God bless you all

Jasmin

Suhad Haddad -- Mom to Samya (Died

12-10-02 of Leigh's Synd.) & Leanna with same disease.

Samya's Memorial Site: www.samyahaddad.com/.org/.net

Email:

Suhad1970@...

Alt

Email: Suhad@...

AiM Chat:

Suhad1970

Some souls pass through this life time like a gentle summer

rain. They touch our hearts and then return to heaven once again.

Please contact mito-owner with any problems or

questions.

[Guest guest]

Our thoughts and prayer with you Suhad and family.

I also don't have any experience with the hospice,

wishing there were more I could do to help out.

Praying for us all,

AnnMarie L. - Complex IV (pre-diabetic, hypothyroid, adrenal/endocrine

issues)

Married to my best friend Rick,

Very Busy Mom to (15), (12), Cassandra (6) and

Joe (5) - complex IV, lactic acidosis, CP, tethered chord syndrome,

dysautonomia, and

a smile that never quits :-)

stacynwayne@... wrote:

This is

a message that was sent to the mito angles group, it is kind of an

update for all of you. I feel so bad, it is just not fair!!

Wayne,

, Gentry and ~Angel Aspyn~

www.aspynblock.com

-----

Original Message -----

From:

suhad1970@...

To: MitoAngels

Sent: Thursday, March 17, 2005 9:14 AM

Subject: [MitoAngels] Leanna

Dear Friends,

I am Leanna’s Cousin

Jasmin and because Suhad is not able to write in this terrible time , I

am doing it for her. We are going through a hard time this week, Leanna

is in the hospital and is in critical condition, she has Leigh’s

disease and is not yet intibated. We want to know the opinion of

someone who has had the experience of keeping her in the hospital or

bringing her home, with a full time nurse (in a hospice type

situation). We are very confused and would like the advice of someone

who knows what we are going through.

Thank you all for your

support

God bless you all

Jasmin

Suhad Haddad -- Mom to Samya (Died

12-10-02 of Leigh's Synd.) & Leanna with same disease.

Samya's Memorial Site: www.samyahaddad.com/.org/.net

Email:

Suhad1970@...

Alt

Email: Suhad@...

AiM Chat:

Suhad1970

Some souls pass through this life time like a gentle summer

rain. They touch our hearts and then return to heaven once again.

Please contact mito-owner with any problems or

questions.