Pharmacy saga

April 9, 2005

The next day, following Carsen's 13 hr unconscious state, I drove up to the pharmacy window, asked the clerk to see the script I dropped off the day before. He went to get it. The Pharmacist stopped him and started looking at it, comparing to the computer.....and walked over to me himself and said, "Uhhhhhh, this should have been 2 ml's not 4ml." I said, "NO S_ _ _. I know that after 13 hrs of unconsciousness! My son cannot fast that long, especially when sick." He has could have died from low blood sugar twice and that was fasting less than 8 hrs." He started to stumble for words, started saying he needed to drink water with it. etc..trying to change the subject.. I looked at him like he was stupid. He said, "Well, just don't give him a dose this morning." I said, "YOU THINK?" Like that was the FIX... and this never happened! He said, "Let me go get you another label" and started walking away. I told him that I didn't need ANOTHER label and drove off. Cover up his mistake, I think Not! I am still irate and sick that this could have been his heart medicine! What if????????

I took the bottle to another pharmacist this morning to have it checked for accuracy. They said the mixture looked ok but "THIS MEDICINE REALLY SHOULD BE LAST RESORT FOR A CHILD HIS AGE". I explained to them about his pseudomonas infection and he understood then but he said the dose was definitely not correct..

I am concerned that this might happen to another child/person. In less than 5 minutes the pharmacist caught the mistake. If he'd only double checked it yesterday, this would have never happened. He was just in such a "fizz" to get it mixed which wound up costing ME $110!

He never apologized or asked how Carsen was nor did he offer my money back.

None of that would have changed anything but would have been nice to know that he acknowledged his mistake - which makes him human, right. It would have made it so easier to forget & forgive.

I cannot expect a world of perfection or for all of us humans to live in harmony. But, I do expect humans to act like humans and to show a little empathy (ability to enter fully into another's feelings OR Experience) that they were born with. We all were born with it.

Murders too???? Well, yes they were born with it too...only something happened to cause them to lose it.

If suppose if he'd have apologized, then that would have been admittance of WRONG doing. I doubt a pharmacist has room for error in their line of work.

I don't know what might have happened if I'd have given him another dose the next morning. I surely would have, had it not been for my darling husband/Carsen's Daddy.

I can't believe I claim the intelligence that I do, and never caught this. I feel somewhat responsible. I was the one to give it to him.

Many who know me, know I'm anything but convinced with one opinion - from doctors. That's just my inborn nature or possibly my acquired nature since we went through WAR trying to get a dx for Caden.

I lost faith in doctors for a long time. It has taken a while for me to come to trust again ( and I DO now, have a selected few specialist that I trust and rely on fully - feels GREAT). That doesn't keep me from being skeptical

My point is, WHY have I never thought to question the pharmacist, who has great responsibility for my children's health as well. Cause they'd never wrong me before???

Again, another learning experience. I suppose it's really not an inborn nature after all. It's life experiences that mold us to who we are and how we behave.

A friend of mine told me this as I was down on myself for having not caught the error: "It's so hard being on the ball all of the time, because the ball keeps rolling."

Final thought: I will double check even my weight from now on.

Thanks for listening,

Krystena sMom to:Caden 6 yrs MADD/GA2 variantCarsen 19 mths MADD/GA2 varianthttp://www2.caringbridge.org/ky/cadencarsen/ Warren 10 yrs Unaffected

"Hope is the companion of power and the mother of success, For those of us who hope strongest, have within us the gift of miracles." ---S. Bremer

April 13, 2005

Ugh, thats so scary!!!

I never thought to check perscriptions, I have always had a blind

faith in pharmacists... I think I will be a little more cautious

from now on!

Im glad Carsen pulled through OK despite the fasting, how is he

today? is the same, if he fasts for more than 8 hours his

Blood Sugar drops well below normal.. its scary! I would be losing

it after 13 hours!

((hug)) i agree with the ball quote... i have to remember that...

If the pharmacy you went to is a chain, I Would reccomend calling

the head office and letting them know what happened... it is NOT ok

to have a pharmacist that wont acknowledge his mistakes... making th

emistake is one thing, hes human... but to blindly ignore it is

dangerous...

Keely

> The next day, following Carsen's 13 hr unconscious state, I drove

up to the pharmacy window, asked the clerk to see the script I

dropped off the day before. He went to get it. The Pharmacist

stopped him and started looking at it, comparing to the

computer.....and walked over to me himself and said, " Uhhhhhh, this

should have been 2 ml's not 4ml. " I said, " NO S_ _ _. I know that

after 13 hrs of unconsciousness! My son cannot fast that long,

especially when sick. " He has could have died from low blood sugar

twice and that was fasting less than 8 hrs. " He started to stumble

for words, started saying he needed to drink water with it.

etc..trying to change the subject.. I looked at him like he was

stupid. He said, " Well, just don't give him a dose this morning. " I

said, " YOU THINK? " Like that was the FIX... and this never

happened! He said, " Let me go get you another label " and started

walking away. I told him that I didn't need ANOTHER label and drove

off. Cover up his mistake, I think Not! I am still irate and sick

that this could have been his heart medicine! What if????????

> I took the bottle to another pharmacist this morning to have it

checked for accuracy. They said the mixture looked ok but " THIS

MEDICINE REALLY SHOULD BE LAST RESORT FOR A CHILD HIS AGE " . I

explained to them about his pseudomonas infection and he understood

then but he said the dose was definitely not correct..

>

> I am concerned that this might happen to another child/person. In

less than 5 minutes the pharmacist caught the mistake. If he'd only

double checked it yesterday, this would have never happened. He was

just in such a " fizz " to get it mixed which wound up costing ME

$110!

>

> He never apologized or asked how Carsen was nor did he offer my

money back.

> None of that would have changed anything but would have been nice

to know that he acknowledged his mistake - which makes him human,

right. It would have made it so easier to forget & forgive.

>

> I cannot expect a world of perfection or for all of us humans to

live in harmony. But, I do expect humans to act like humans and to

show a little empathy (ability to enter fully into another's

feelings OR Experience) that they were born with. We all were born

with it.

> Murders too???? Well, yes they were born with it too...only

something happened to cause them to lose it.

>

> If suppose if he'd have apologized, then that would have been

admittance of WRONG doing. I doubt a pharmacist has room for error

in their line of work.

>

> I don't know what might have happened if I'd have given him

another dose the next morning. I surely would have, had it not been

for my darling husband/Carsen's Daddy.

> I can't believe I claim the intelligence that I do, and never

caught this. I feel somewhat responsible. I was the one to give it

to him.

>

> Many who know me, know I'm anything but convinced with one

opinion - from doctors. That's just my inborn nature or possibly my

acquired nature since we went through WAR trying to get a dx for

Caden.

> I lost faith in doctors for a long time. It has taken a while for

me to come to trust again ( and I DO now, have a selected few

specialist that I trust and rely on fully - feels GREAT). That

doesn't keep me from being skeptical

> My point is, WHY have I never thought to question the pharmacist,

who has great responsibility for my children's health as well. Cause

they'd never wrong me before???

> Again, another learning experience. I suppose it's really not an

inborn nature after all. It's life experiences that mold us to who

we are and how we behave.

>

> A friend of mine told me this as I was down on myself for having

not caught the error: " It's so hard being on the ball all of the

time, because the ball keeps rolling. "

>

> Final thought: I will double check even my weight from now on.

>

> Thanks for listening,

>

> Krystena s

> Mom to:

> Caden 6 yrs MADD/GA2 variant

> Carsen 19 mths MADD/GA2 variant

> http://www2.caringbridge.org/ky/cadencarsen/

> Warren 10 yrs Unaffected

>

> " Hope is the companion of power and the mother of success, For

those of us who hope strongest, have within us the gift of

miracles. "

> ---S. Bremer

April 15, 2005

That is unbelievable! Wow, what nerve to not even apologize or ask how

your son is doing. It is so easy to place our trust in doctors and

pharmacists believing they will do the right thing, but like you, I think it

is so important to recheck all meds and question anything we don't think

sounds or looks right. Hope he is doing better now.

See www.caringbridge.org/ia/mitomomof9 and www.heartbeatsformito.org (a

photo look into Mito)

Darla: mommy to

Asenath (5) Probable Mito, CNS Vasculitis, strokes, migraines, seizures,

G-tube, hypotonicity, disautonomia, SID, global delays, cyclic vomiting,

bladder issues, some wheelchair use, eye issues, gastric emptying issues...

Zipporrah (17 months) Probable Mito, strokes, neuro-motor planning, SID,

GERD, dysphasia, G-tube fed, speech delays, extreme fatigue, aberrant

subclavian artery, disautonomia, hypertonicity, migraines, possible

seizures, dumping syndrome, iron deficiency...

Luke (17) migraines, sensory issues, & some evidence of SLE's...

Leah (14), Rachael (13), Isaac (11), Tirzah (8), Kezia (4), Marquis (3)

Joey (15 months) with hydrocephalus, dysgenesis of the corpus callosum,

encephalomalacia & leukomalacia, G-tube, GERD, immobile, severe dev. delays,

left hemiplegia (arm)...

(15 months) SID, dev. delays, right hemiparesis issues...

Pharmacy saga

The next day, following Carsen's 13 hr unconscious state, I drove up to the

pharmacy window, asked the clerk to see the script I dropped off the day

before. He went to get it. The Pharmacist stopped him and started looking at

it, comparing to the computer.....and walked over to me himself and said,

" Uhhhhhh, this should have been 2 ml's not 4ml. " I said, " NO S_ _ _. I

know that after 13 hrs of unconsciousness! My son cannot fast that long,

especially when sick. " He has could have died from low blood sugar twice and

that was fasting less than 8 hrs. " He started to stumble for words,

started saying he needed to drink water with it. etc..trying to change the

subject.. I looked at him like he was stupid. He said, " Well, just don't

give him a dose this morning. " I said, " YOU THINK? " Like that was the

FIX... and this never happened! He said, " Let me go get you another label "

and started walking away. I told him that I didn't need ANOTHER label and

drove off. Cover up his mistake, I think Not! I am still irate and sick

that this could have been his heart medicine! What if????????

I took the bottle to another pharmacist this morning to have it checked for

accuracy. They said the mixture looked ok but " THIS MEDICINE REALLY SHOULD

BE LAST RESORT FOR A CHILD HIS AGE " . I explained to them about his

pseudomonas infection and he understood then but he said the dose was

definitely not correct..

I am concerned that this might happen to another child/person. In less than

5 minutes the pharmacist caught the mistake. If he'd only double checked it

yesterday, this would have never happened. He was just in such a " fizz " to

get it mixed which wound up costing ME $110!

He never apologized or asked how Carsen was nor did he offer my money back.

None of that would have changed anything but would have been nice to know

that he acknowledged his mistake - which makes him human, right. It would

have made it so easier to forget & forgive.

I cannot expect a world of perfection or for all of us humans to live in

harmony. But, I do expect humans to act like humans and to show a little

empathy (ability to enter fully into another's feelings OR Experience) that

they were born with. We all were born with it.

Murders too???? Well, yes they were born with it too...only something

happened to cause them to lose it.

If suppose if he'd have apologized, then that would have been admittance of

WRONG doing. I doubt a pharmacist has room for error in their line of work.

I don't know what might have happened if I'd have given him another dose

the next morning. I surely would have, had it not been for my darling

husband/Carsen's Daddy.

I can't believe I claim the intelligence that I do, and never caught this. I

feel somewhat responsible. I was the one to give it to him.

Many who know me, know I'm anything but convinced with one opinion - from

doctors. That's just my inborn nature or possibly my acquired nature since

we went through WAR trying to get a dx for Caden.

I lost faith in doctors for a long time. It has taken a while for me to come

to trust again ( and I DO now, have a selected few specialist that I trust

and rely on fully - feels GREAT). That doesn't keep me from being skeptical

My point is, WHY have I never thought to question the pharmacist, who has

great responsibility for my children's health as well. Cause they'd never

wrong me before???

Again, another learning experience. I suppose it's really not an inborn

nature after all. It's life experiences that mold us to who we are and how

we behave.

A friend of mine told me this as I was down on myself for having not caught

the error: " It's so hard being on the ball all of the time, because the ball

keeps rolling. "

Final thought: I will double check even my weight from now on.

Thanks for listening,

Krystena s

Mom to:

Caden 6 yrs MADD/GA2 variant

Carsen 19 mths MADD/GA2 variant

http://www2.caringbridge.org/ky/cadencarsen/

Warren 10 yrs Unaffected

" Hope is the companion of power and the mother of success, For those of us

who hope strongest, have within us the gift of miracles. "

---S. Bremer

April 15, 2005

The horror of what you went through is something that I pray never ever comes again to anyone. You were right when you said that it is hard to stay on the ball when the ball keeps rolling. This is why we put faith and trust in others. If we never had faith, never trusted even for a moment someone else...where would we be to fight for our children? We need the help when we are too tired to see, of even think. I am sure that if I were you my feelings would be much the same. Pain Horror and the one thing we all fight daily..."what if."

You are a wonderful mother, and a friend to have offered your experience that we all might be wiser. Thank you.

Warm Regard,

MystKrystena s wrote:

The next day, following Carsen's 13 hr unconscious state, I drove up to the pharmacy window, asked the clerk to see the script I dropped off the day before. He went to get it. The Pharmacist stopped him and started looking at it, comparing to the computer.....and walked over to me himself and said, "Uhhhhhh, this should have been 2 ml's not 4ml." I said, "NO S_ _ _. I know that after 13 hrs of unconsciousness! My son cannot fast that long, especially when sick." He has could have died from low blood sugar twice and that was fasting less than 8 hrs." He started to stumble for words, started saying he needed to drink water with it. etc..trying to change the subject.. I looked at him like he was stupid. He said, "Well, just don't give him a dose this morning." I said, "YOU THINK?" Like that was the FIX... and this never happened! He said, "Let me go get you another label" and started walking away. I

told him that I didn't need ANOTHER label and drove off. Cover up his mistake, I think Not! I am still irate and sick that this could have been his heart medicine! What if????????