Re: question about adenoids-Jeanne

February 20, 2008

Thanks, Jeanne, your email actually put me at ease. Yes, the ENT said he

prefers handling his special needs patients as in-patient for one night just to

make sure there are fluids in them and everything is OK before being released.

I don't mind in the least, I'm all for being safe!

I've already arranged with my boss to work from home for the two weeks, and

Josh is actually on spring break for one full week following surgery so he won't

miss too much school (and I plan on making it up to him with a fun trip during

the summer!), special olympics state competition will be over, so he won't miss

too much of anything. My parents will come by to visit/relieve me, some other

relatives will come by, some friends are planning on coming by after he's

feeling a bit better - keeping him quiet may be tricky but I think all of these

people understand the situation.

The sleeping on the futon with you and bonding just brought tears to my eyes -

there is always good that comes out of everything.

Thanks again and take care - good luck with your appt!

Sherry and Josh

Jeanne <jamie199866@...> wrote:

your welcome Sherry,

Well keep in mind that with he was and still is small child today. He was

7 when he had them out it was in April of 2006. now only weighs 52 lbs and

will be 10 in July. most likely you will not have to carry Josh though since the

tylenol will most likely not make him have the same effect of not being able to

stand up. Since Josh weighs more than did. but you will probably have to

help him by making sure when he first stands up that he is able to stand. They

told me that when they first stand from a laying down position it could make

them light headed at first and dizzy.

We had no problems with the bleeding. but had a longer than usual recovery time

though. did sleep most of the first 24 hrs after surgery though. Plus he

had to prop his head up on an angle for 2 weeks while sleeping. thought

that was cool. Well was pretty easy to entertain due to the fact that he

had to stay quiet for the 2 weeks after surgery. I made sure to prepare

before the surgery by explaining to him that after the surgery he was going to

miss 2 weeks of school, that he would have to stay calm and quiet during that

time. We went and bought some special things to do while he was home. I bought

some dvds he wanted, I went online and downloaded a bunch of games off some kid

sites he could play, I let him use the internet also ( with my being right there

with him), I let him watch as much tv as he wanted again with my watching it

with him monitoring what he was watching, i read books with him, i even invited

his favorite cousin over a few days

after the surgery who thought was just great ( he was just 3 1/2 months at

the time)to spend time with him , you see jamie would lie still if he could hold

the baby ( so we laid him beside jamie on the couch and he just thought that was

neat), Those were some of the things we did the first week. Then the second week

when he was feeling better. we even took to burger king for milk shakes ,

we even took him for rides in the car short distances. But the thing that

entertained the most was his portable dvd player. But he lived on my futon

the whole two weeks. The down side was that would only sleep if I slept

with him and he insisted that i hold his hand while he slept. So for us it was a

real bonding time. I spent the whole 2 weeks with I never left him at all.

Interesting that Josh has to stay overnight in the hospital. was day

surgery. We went to the hospital at 7 am and we were home by 6pm that night.

The older you are when you have them out the worse it is for you. They claim

that the pain is worse and the risk of bleeding is worse and recovery is also.

sorry to hear about you exes bad experience.

Yes the meds helped also to keep on the less active side. However during

the last few days before he went back to see the ent to make sure he was ready

to return to school. Was the hardest period to keep still. he wanted to be

up running around playing. So I did find myself on edge with the constantly

having to tell him to sit down and be calm. But for him that was a good sign.

Good Luck Josh. Let me know how it goes.

Now I am on edge. our appt is tommorrow at 12 pm. When we find out if they are

back.

sherry silvern <srsilvern@...> wrote:

Thanks, Jeanne -

Yes, the communication is what I'm most concerned about - with the speech issues

Josh has I am really worried that he won't be able to adequately let me (or

whoever might be over helping out) know how he's feeling and the tylenol with

codeine is, like you said, going to make him dopey (carrying Josh, at 9 1/2 yo

and weighing 123 pounds is not something I'm looking forward to!!). On the other

hand, maybe it will keep him sleeping through a good deal of the pain. Josh had

ear tubes years ago so I know he can handle anasthetic (although I will be

talking to the docs about it like crazy). And the doc has said it was fine for

me to stay overnight in hospital with Josh.

Like with you, we're hoping the tonsils (and adenoids?) being gone will help

with sleep issues (and thereby behavior issues), drooling, snoring, etc. He

didn't have that many sore throats but enough that he did miss out on some

school (and was nice enough to share them with me - Ha!).

The bleeding potential is a worry also - my now-ex husband had his tonsils out

around the same age as Josh and, according to my ex-MIL, the doc botched it and

he lost so much blood he had 11 pints transfused - so my ex is a bit nervous

about the surgery generally speaking. Also, my nephew had his tonsils out before

Thanksgiving (he's 28 years old!) and wound up back at the hospital three days

later with bleeding - had to have a bit more surgery to close up where scabs

opened up.

How did you keep you child less active during the recovery? Did the meds help

with that?

Sherry and Josh

February 20, 2008

Thank you Sherry. Weel we had our appt today. The news on the adenoids after the

ent scoped ( he amazingly did well, I thought he was going to freak) he

just let him do it. then in the middle of it he sneezed and jamie thought that

was funny. The adenoids are there somewhat. but the ent told me today that he

remembered when he did s surgery. That he did not remove all of his

adenoids due to the fact that they are so hard to remove that they almost never

get them all. The adenoids that are left are the ones he originally left behind

and that is just a little bit of them. They are not blocking or causing anything

with . In fact he says there is a huge space there and that should

not experience any problem with them. He was gald I took him to be checked

though. He feels all of s illnesses maighht be related to his allergies and

asthma.

However does have to have surgery next week Thursday the 28th to remove

a raised hard movable bump between his eyelid and eyebrow on one eye which was

the other reason we had to see the ent. The surgery should take all of 20

minutes to do under general anesthesia ( due to his age and his sensory issues,

our ped thought if he was out it would be better). He should be home within a

few hours. He will have 2-5 regular stitches afterwards with little bleeding.

The risks I was told were little maybe some post op bleeding (stitches should

prevent that) and possibly an infection maybe. The riskiest part is the general

anesthesia with the mask due to his asthma. Which the ent and the

anesthesiologist are both aware of. The anesthesiologist will be in the room

until he wakes up. At least he stayed in the room with us until woke up

from it during his last surgery. I am not to worried though. This will be s

third time under anesthesia. So I pretty know what to

expect. The second time was for a sedated MRI which he had been given iv

anesthesia. I will be worried the day of the surgery. That is normal though. Now

the worst part for us will be how to deal with having real stitches and having

them removed afterwards. That will be a new experience for us. freaks out

literally at the mere mention of a blood test. Oh it was fun hanging out on my

futon for two weeks with and not doing anything but take care of him and

spend time with him. My mom came in everyday to help when needed and to give me

a break too. But she also stayed up all night

with a few times for me. She even stayed up his first night home with me

listening to him cry and holding my hand when I could not stand watching him in

pain. She was wonderful.

It sounds like you have everything well planned out for Joshs surgery. You

will definately need help after surgery. It is normal to anxious and worried

about Joshs surgery. Maybe you can paly some board games with Josh if he plays

them. Or maybe you can make up funny jokes or stories to tell him to entertain

him. He most likely will not be feeling like moving a whole lot anyway. But

maybe your relatives could help with keeping hims still also.

Good luck and let me know how it goes.

If you would to contact of list you may.

Jeanne

sherry silvern <srsilvern@...> wrote:

Thanks, Jeanne, your email actually put me at ease. Yes, the ENT said

he prefers handling his special needs patients as in-patient for one night just

to make sure there are fluids in them and everything is OK before being

released. I don't mind in the least, I'm all for being safe!

I've already arranged with my boss to work from home for the two weeks, and Josh

is actually on spring break for one full week following surgery so he won't miss

too much school (and I plan on making it up to him with a fun trip during the

summer!), special olympics state competition will be over, so he won't miss too

much of anything. My parents will come by to visit/relieve me, some other