Guest guest Posted January 30, 2008 Report Share Posted January 30, 2008 My son has forever had stiff legs. I think it is the fluooride. Even now with all the gains we have him jump and then he cannot lad on his feet and hold the landing. In fact he instead purposely lands on his tush. This really concerns me. Any thoughts, similar stories? He is almost 3. When we tried E we did get leg awakenings for lack of a better term when we used the soy free stuff. I am hoping to return to that after the hematologist visit. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2008 Report Share Posted January 31, 2008 , one thing that helped my daughter learn to jump was the small trampoline with a handle. It was an indoor trampoline. Suddenly, when she was 3, she started jumping on it one day on her own. I had tried getting her to jump previously, and her legs just wouldn't bend and go up. Eventually, it came. Try the trampoline if you haven't already. Carolyn **************Start the year off right. Easy ways to stay in shape. http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2008 Report Share Posted January 31, 2008 , if you live in NJ, you can have mine. I am in Montville ( County). Carolyn **************Start the year off right. Easy ways to stay in shape. http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2008 Report Share Posted January 31, 2008 Jumping is something my son can't do either. It is considered a three year old skill by Early intervention so they were not concerned. Of course now he is three and still can't even come close to a jump. As much as E helped his coordination, this was not helped at all. But he has very low tone in his legs. He is still pretty unstable going up and down stairs. Even at my brother's house who has a two step landing, he sits down on his butt to scoot down the stairs. -------------- Original message -------------- From: Liz <lizlaw@...> My son has forever had stiff legs. I think it is the fluooride. Even now with all the gains we have him jump and then he cannot lad on his feet and hold the landing. In fact he instead purposely lands on his tush. This really concerns me. Any thoughts, similar stories? He is almost 3. When we tried E we did get leg awakenings for lack of a better term when we used the soy free stuff. I am hoping to return to that after the hematologist visit. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2008 Report Share Posted January 31, 2008 Have either of your children been checked for sensory integration dysfunction? Inability to jump, get both feet off the ground, etc. could be a sensory issue (vestibular/proprioceptive senses). My son is 9.5 yo now and still can't jump - he has hypotonia but that has pretty much resolved in his lower extremities, he has global dyspraxia which, of course, could also be playing into the problem, but mostly the therapists all say it's the sensory issues - pretty serious vestibular/proprioceptive/other issues. Might want to check that out. JMTC. Sherry and Josh klbushey@... wrote: Jumping is something my son can't do either. It is considered a three year old skill by Early intervention so they were not concerned. Of course now he is three and still can't even come close to a jump. As much as E helped his coordination, this was not helped at all. But he has very low tone in his legs. He is still pretty unstable going up and down stairs. Even at my brother's house who has a two step landing, he sits down on his butt to scoot down the stairs. -------------- Original message -------------- From: Liz <lizlaw@...> My son has forever had stiff legs. I think it is the fluooride. Even now with all the gains we have him jump and then he cannot lad on his feet and hold the landing. In fact he instead purposely lands on his tush. This really concerns me. Any thoughts, similar stories? He is almost 3. When we tried E we did get leg awakenings for lack of a better term when we used the soy free stuff. I am hoping to return to that after the hematologist visit. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2008 Report Share Posted January 31, 2008 My son has SID as well. They were helped by the fish oil immensely. Before that he could not even touch any food with his hands.(he was two!) He really never even used his hands until after the fish oil. Lots of textures are still hard for him but he did play with playdough yesterday in school and before he would gag at the sight of it! It used to be alot tougher but his sensory issues have really improved. I have a daughter that has sendory issues as well. She is the opposite though-can't stop touching things! -------------- Original message -------------- From: sherry silvern <srsilvern@...> Have either of your children been checked for sensory integration dysfunction? Inability to jump, get both feet off the ground, etc. could be a sensory issue (vestibular/proprioceptive senses). My son is 9.5 yo now and still can't jump - he has hypotonia but that has pretty much resolved in his lower extremities, he has global dyspraxia which, of course, could also be playing into the problem, but mostly the therapists all say it's the sensory issues - pretty serious vestibular/proprioceptive/other issues. Might want to check that out. JMTC. Sherry and Josh klbushey@... wrote: Jumping is something my son can't do either. It is considered a three year old skill by Early intervention so they were not concerned. Of course now he is three and still can't even come close to a jump. As much as E helped his coordination, this was not helped at all. But he has very low tone in his legs. He is still pretty unstable going up and down stairs. Even at my brother's house who has a two step landing, he sits down on his butt to scoot down the stairs. -------------- Original message -------------- From: Liz <lizlaw@...> My son has forever had stiff legs. I think it is the fluooride. Even now with all the gains we have him jump and then he cannot lad on his feet and hold the landing. In fact he instead purposely lands on his tush. This really concerns me. Any thoughts, similar stories? He is almost 3. When we tried E we did get leg awakenings for lack of a better term when we used the soy free stuff. I am hoping to return to that after the hematologist visit. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2008 Report Share Posted January 31, 2008 My son is the near miss kid. A little bit apraxic, a little bit autistic, a little bit sensory but articulation and the leg thing are the only persistent things and they are improving. I am concerning myself less with a label and more with cause because we have targets and a path now. Also, because the OT warned us that is doing so well it is best not to pursue a label just yet. I obviously won'yt let that go if this persists but no one so far, therapists or docs, have seen this type of improvement so fast. Also, both my kids had the signs of classic lead poisoning. The labs came back negative but were done too late to tell. When the lead painted objects were removed from their rooms the turning blue stopped. We only saw it again one other time...at a freshly painted gym. He turned blue, could not breathe, etc. Heart check came back negative. You can see why I am looking at environmental. > Jumping is something my son can't do either. It is considered a three year old skill by Early intervention so they were not concerned. Of course now he is three and still can't even come close to a jump. As much as E helped his coordination, this was not helped at all. But he has very low tone in his legs. He is still pretty unstable going up and down stairs. Even at my brother's house who has a two step landing, he sits down on his butt to scoot down the stairs. > > > > -------------- Original message -------------- > From: Liz <lizlaw@...> > My son has forever had stiff legs. I think it is the fluooride. Even now > with all the gains we have him jump and then he cannot lad on his feet > and hold the landing. In fact he instead purposely lands on his tush. > This really concerns me. Any thoughts, similar stories? He is almost 3. > > When we tried E we did get leg awakenings for lack of a better term when > we used the soy free stuff. I am hoping to return to that after the > hematologist visit. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2008 Report Share Posted January 31, 2008 That definitely seems worth a try. And that is something he could try on his own too-which is something he likes to do. He watches the girls and then tries to do what they do when they aren't around. -------------- Original message -------------- From: aigjr@... , one thing that helped my daughter learn to jump was the small trampoline with a handle. It was an indoor trampoline. Suddenly, when she was 3, she started jumping on it one day on her own. I had tried getting her to jump previously, and her legs just wouldn't bend and go up. Eventually, it came. Try the trampoline if you haven't already. Carolyn **************Start the year off right. Easy ways to stay in shape. http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2008 Report Share Posted January 31, 2008 Yep, the fish oils, gamma tocopherols, E, and lots of therapy have helped tons over the years. As with your son, Josh used to not touch food - now he loves eating with his fingers and doesn't mind at all getting food on his hands (except he also loves getting his hands wet to wash it off, or sticking his fingers in his mouth to clean them!). He still gags at some smells - a friend who was his teacher in K and 1st grade still smiles when she recalls putting shaving cream on the tables to do letter writing and Josh ran out of the room gagging and everything. Now he does play with playdough and he's OK with shaving cream but there are still perfumes and shampoos that get him. FYI - found two good books for SID - The Everything Parents Guide to Sensory Integration Dysfunction, and Meghan's World (written for kids and adults) - lots of things you probably already know but there were other things that I never even thought about - like can your child really sense when s/he is hungry or full? Sherry and Josh klbushey@... wrote: My son has SID as well. They were helped by the fish oil immensely. Before that he could not even touch any food with his hands.(he was two!) He really never even used his hands until after the fish oil. Lots of textures are still hard for him but he did play with playdough yesterday in school and before he would gag at the sight of it! It used to be alot tougher but his sensory issues have really improved. I have a daughter that has sendory issues as well. She is the opposite though-can't stop touching things! -------------- Original message -------------- From: sherry silvern <srsilvern@...> Have either of your children been checked for sensory integration dysfunction? Inability to jump, get both feet off the ground, etc. could be a sensory issue (vestibular/proprioceptive senses). My son is 9.5 yo now and still can't jump - he has hypotonia but that has pretty much resolved in his lower extremities, he has global dyspraxia which, of course, could also be playing into the problem, but mostly the therapists all say it's the sensory issues - pretty serious vestibular/proprioceptive/other issues. Might want to check that out. JMTC. Sherry and Josh klbushey@... wrote: Jumping is something my son can't do either. It is considered a three year old skill by Early intervention so they were not concerned. Of course now he is three and still can't even come close to a jump. As much as E helped his coordination, this was not helped at all. But he has very low tone in his legs. He is still pretty unstable going up and down stairs. Even at my brother's house who has a two step landing, he sits down on his butt to scoot down the stairs. -------------- Original message -------------- From: Liz <lizlaw@...> My son has forever had stiff legs. I think it is the fluooride. Even now with all the gains we have him jump and then he cannot lad on his feet and hold the landing. In fact he instead purposely lands on his tush. This really concerns me. Any thoughts, similar stories? He is almost 3. When we tried E we did get leg awakenings for lack of a better term when we used the soy free stuff. I am hoping to return to that after the hematologist visit. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2008 Report Share Posted January 31, 2008 We did not have any of this. In fact he ate with utensils well early, etc. Noises were an issue and some hypersensitivity to touch that stopped after diet/water change. > Jumping is something my son can't do either. It is considered a three year old skill by Early intervention so they were not concerned. Of course now he is three and still can't even come close to a jump. As much as E helped his coordination, this was not helped at all. But he has very low tone in his legs. He is still pretty unstable going up and down stairs. Even at my brother's house who has a two step landing, he sits down on his butt to scoot down the stairs. > > > > -------------- Original message -------------- > From: Liz <lizlaw@...> > My son has forever had stiff legs. I think it is the fluooride. Even now > with all the gains we have him jump and then he cannot lad on his feet > and hold the landing. In fact he instead purposely lands on his tush. > This really concerns me. Any thoughts, similar stories? He is almost 3. > > When we tried E we did get leg awakenings for lack of a better term when > we used the soy free stuff. I am hoping to return to that after the > hematologist visit. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2008 Report Share Posted January 31, 2008 I see that copying in my son. Great progress:) > > That definitely seems worth a try. And that is something he could try on his own too-which is something he likes to do. He watches the girls and then tries to do what they do when they aren't around. > > > > -------------- Original message -------------- > From: aigjr@... > , one thing that helped my daughter learn to jump was the small > trampoline with a handle. It was an indoor trampoline. Suddenly, when she was 3, > she started jumping on it one day on her own. I had tried getting her to jump > previously, and her legs just wouldn't bend and go up. Eventually, it came. > Try the trampoline if you haven't already. Carolyn > > **************Start the year off right. Easy ways to stay in shape. > http://body.aol.com/fitness/winter-exercise? NCID=aolcmp00300000002489 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2008 Report Share Posted February 1, 2008 I think shaving cream is a universal turn off for sensory avoiders! At my sons holiday party at school they had a mat covered in black garbage bags and they put down shaving cream. They took off the kids socks and shoes and helped them " skate " in it! I couldn't believe my son happily did it! But he cried when they had him play with the fake snow. He only touched it willingly when they told him he could put it away. I will have to check out those books. The ones I had seen my last go around at & Noble were pretty much all the same info under different titles. I'm glad there are some new ones out! -------------- Original message -------------- From: sherry silvern <srsilvern@...> Yep, the fish oils, gamma tocopherols, E, and lots of therapy have helped tons over the years. As with your son, Josh used to not touch food - now he loves eating with his fingers and doesn't mind at all getting food on his hands (except he also loves getting his hands wet to wash it off, or sticking his fingers in his mouth to clean them!). He still gags at some smells - a friend who was his teacher in K and 1st grade still smiles when she recalls putting shaving cream on the tables to do letter writing and Josh ran out of the room gagging and everything. Now he does play with playdough and he's OK with shaving cream but there are still perfumes and shampoos that get him. FYI - found two good books for SID - The Everything Parents Guide to Sensory Integration Dysfunction, and Meghan's World (written for kids and adults) - lots of things you probably already know but there were other things that I never even thought about - like can your child really sense when s/he is hungry or full? Sherry and Josh klbushey@... wrote: My son has SID as well. They were helped by the fish oil immensely. Before that he could not even touch any food with his hands.(he was two!) He really never even used his hands until after the fish oil. Lots of textures are still hard for him but he did play with playdough yesterday in school and before he would gag at the sight of it! It used to be alot tougher but his sensory issues have really improved. I have a daughter that has sendory issues as well. She is the opposite though-can't stop touching things! -------------- Original message -------------- From: sherry silvern <srsilvern@...> Have either of your children been checked for sensory integration dysfunction? Inability to jump, get both feet off the ground, etc. could be a sensory issue (vestibular/proprioceptive senses). My son is 9.5 yo now and still can't jump - he has hypotonia but that has pretty much resolved in his lower extremities, he has global dyspraxia which, of course, could also be playing into the problem, but mostly the therapists all say it's the sensory issues - pretty serious vestibular/proprioceptive/other issues. Might want to check that out. JMTC. Sherry and Josh klbushey@... wrote: Jumping is something my son can't do either. It is considered a three year old skill by Early intervention so they were not concerned. Of course now he is three and still can't even come close to a jump. As much as E helped his coordination, this was not helped at all. But he has very low tone in his legs. He is still pretty unstable going up and down stairs. Even at my brother's house who has a two step landing, he sits down on his butt to scoot down the stairs. -------------- Original message -------------- From: Liz <lizlaw@...> My son has forever had stiff legs. I think it is the fluooride. Even now with all the gains we have him jump and then he cannot lad on his feet and hold the landing. In fact he instead purposely lands on his tush. This really concerns me. Any thoughts, similar stories? He is almost 3. When we tried E we did get leg awakenings for lack of a better term when we used the soy free stuff. I am hoping to return to that after the hematologist visit. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2008 Report Share Posted February 1, 2008 The smell of shaving cream makes me physically ill. EI therapists could not use it here as a result. T test sensory issues (which he really did not haave much, we used nondairy whip cream. > Jumping is something my son can't do either. It is considered a three year old skill by Early intervention so they were not concerned. Of course now he is three and still can't even come close to a jump. As much as E helped his coordination, this was not helped at all. But he has very low tone in his legs. He is still pretty unstable going up and down stairs. Even at my brother's house who has a two step landing, he sits down on his butt to scoot down the stairs. > > > > -------------- Original message -------------- > From: Liz <lizlaw@...> > My son has forever had stiff legs. I think it is the fluooride. Even now > with all the gains we have him jump and then he cannot lad on his feet > and hold the landing. In fact he instead purposely lands on his tush. > This really concerns me. Any thoughts, similar stories? He is almost 3. > > When we tried E we did get leg awakenings for lack of a better term when > we used the soy free stuff. I am hoping to return to that after the > hematologist visit. > > Quote Link to comment Share on other sites More sharing options...
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