Guest guest Posted August 26, 2007 Report Share Posted August 26, 2007 Janice I don't have the home program yet. We should get the dvd next week, and then I am having our more traditional therapists take a look at the things he recommends. I can not tell you whetherhe will recommend patterning for her or no. She is mobile-- she walks but can not stand from the center of the room. she has to have a table or someting to pull up on. She definately learns differently than other kids; she walked and then pulled up etc. We use our traditional therapists as parent advisory session, and we have always taken the bulk of the responsibility for the therapies. She does not do 1 hour a week and then nothing else until next week. You can do this with any therapist, just ask them what you should be working on next. This is how we got her to walk. The pt told us what to do (pt) and we did it every night, until she walked. (It really was not that simple, because she has c.p. dx as well and we went to 5 specialists before we got the right afos for her so that she could even place her right foot on the ground). I just feel a bit attacked and deceived and was shocked to see the words pseudoscience in scientific lieterature regarding Glenn Doman, his uncle. Plus, it does concern me that Bob Doman has no credentials.. not even a pt degree or a developmental degree. He is just going off of aculmination of information that Glenn Doman and Delacotti devised in teh 70s. I do see value in the visual information he gave us. She mainly uses her perriperal vision, and we have been doing vt therapy with her. He said it would never work until we got her to use the central vision more than the peripheral. Also, she waves toys over to the side and everyone always asks me why... I thought it was sensory, but he said that is where her line of vision is. I found this to be fairly accurate. Bob's style was very confrontational with me. I gave feedback on what the best medical doctors in Atlanta have said, and he kept telling me I was wrong on this and wrong on that etc. He never evaluated her, or ever laid a hand on her. She played on the floor and Bob asked me questions. I just think he thinks he knows it all, and no one knows it all. I have no intention of lying to Bob. We will do what we feel can help her for the timeline we can help her, but 4 hours a day is out of the question... it is over the top. I hope we see the kind of results you are seeing, I just think he is too quick to categorize someone so complicated. After all she is the only one with her dx, literally. He has never seen anyone with her dx, so he can't know it all. Even the best geneticists in the world have no idea what her prognosis is, so I don't see how he could in 1 1/2 hours time. Sharon Janice <jscott@...> wrote: Sharon, What are your daughters handicaps? Did Bob tell you that he was going to do patterning with her? (We never did this at all. We did a lot of exercises that as far as I can tell are not 'way out there' with regards to their approach). Does your daughter walk or is she mobile? How old is she? It sounds like you got off to a bad start with Bob and for that, I am disappointed since I have found him completely helpful for our situation. But then, we see Alison as our evaluator. Mark has seen Bob to check some of his vision issues and I got to know him a bit at the Rendezvous this summer. He was wonderful with all of the kids and took me aside and gave me a lot of encouragement with regards to Marks future and his progress so far. I am so hopeful that things turn around for you.... The only reason I can think of that they would want you to do patterning is if your child is not mobile. Here is a book for you to read that espouses the history of neurodevelopmental therapy and gives a lot of history and insight. I read it well before finding NACD and actually sought out NACD because I truly connected with the approach. It is called " How to Help Your Brain-Injured Child " by Glen Doman. You can find it at Amazon or at The Gentle Revolution Press bookstore. Perhaps it will help you to decide whether or not this approach is 'for you' or not. With regards to at the office; remember that she is the administrator and is probably just giving you her opinion. She has seen a lot of kids walk through the door and be helped. Thus, while she should not have made that statement; it is her opinion only. is a good woman but certainly does not design programs for the kids. She's great for booking appointments and troubleshooting lost shipments, etc.! This is home therapy. That's what it is. The reason it does better than other therapies is because it is done daily rather than once a week. It is intensive and requires a committment to be successful. The therapies used are ones that have demonstrated to work with the many kids that have used NACD; if a therapy is not working for your child, they change it and revise it. There are over 3,000 different exercises that they have put together. Patterning is only one of them. If it is on your program and you don't like it, then contact NACD and have it changed. Tell them that you are not comfortable with it and adjust accordingly. Anytime I have done this, my request has been honoured. This is a parent driven organization and you have a lot of power to determine what your program looks like. This has been my experience. For instance, we had one exercise called masking which was designed to improve oxygen flow to the brain. Mark was highly resistant to it and we simply did not do it. I had things revamped and we upped Mark's daily aerobic activity as an alternative to masking. No one made me feel guilty or ashamed for not doing the exercise, it was just changed and modified. Now that I have read more and am better informed, I understand why they wanted Mark to do masking; the results are similiar (but to a far lesser degree) to those of HBOT. It improves oxygenation and blood flow to the brain. I am now sorry that I gave up on it so quickly and may try it again some time. Janice [sPAM] Re: [ ] Re: NACD Info to kathy and monica Hi Kathy and You can have my cds if you like, just email me off list and I will give you my addres.. Send a self addressed stamped envelope and they are yours. I have listened to them 4x already. I am not throwing in the towel on the program, but I do see lots of red flags. I feel like Maddy deserves a shot at seeing if it will help her. I just don't like Bob's tone and recommendations to remove her from school for this program. Plus, there are lots of other parties out there who are calling this pseudoscience, not alternative medicine, but psuedoscience. We do lots of things that are nontraditional, but I thin NACD has crossed the line here. Just my opinion.... My husband is even more skeptical that I am. I committed for a year, and so we will try it as I see that no harm can come to her from it. What program were you referring to that had a lot of potential??? Sharon The cds are $75 plus shipping, BTW. The level II eval is $995?? I believe and $185 a month and evals every 3 months at $385??? That is the expensive part of the program.... How much are the CDs? Maybe you could purchase them (for less) from someone on this board? > > SHaron, > > Ok, read your post. Give me more scoop. You said red > flags and Marketing. We just came back from a program > that had a lot of potential, (if the therapist really > cared and tailored it to the child), but it did seem > like it was great marketing and a big let down after > the end since it was not really tailored and not a lot > of caring. > > Anyway, we were considering doing it soon. I guess the > thing I was surprised about was how expensive the CDs > are that youhave to get before you even get an eval. > Those CDs can be made for pennies. > > Kathy and . > > > > __________________________________________________________ ______________ > Moody friends. Drama queens. Your life? Nope! - their life, your story. Play Sims Stories at Games. > http://sims./ > --------------------------------- Park yourself in front of a world of choices in alternative vehicles. Visit the Auto Green Center. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2007 Report Share Posted August 26, 2007 Remember Bob Doman used to be the clinical director of United Cerebral Palsey so he might know things that traditional therapists do not. If my child had CP, I would want to get information from this man; he knows this illness the better than most. We also had issues with peripheral vision which have now been resolved. What a difference for Mark! Whew! Remember though, that kids who are hyper-peripheral are often great readers! So with a bad often comes a good! You know your therapist and trust your therapist that you are currently using. This program directly competes with your current therapist so I am not surprised that she doesn't support it. The NACD program will not work for you if you don't believe in it. Even when I believe with all my heart, I often get lazy about getting the job done. If you don't believe in what you are doing, then you won't be able to dedicate yourself. Again, I am sorry that you didn't get along with Bob. That's too bad since I believe that the raport between evaluator and individual is important. I love Alison for us and felt an instant kinship with her. I will cross my fingers for you and hope it gets better. I warn you that your program will probably overwhelm you since you feel already put-off. It will probably be quite intensive.... If you want, I will try to hold your hand through some of it. I will tell you that I do probably 3 hours of therapy a day. I am happy for every minute of it since my son has gotten better but you see.... I went through so many years of him NOT getting better with the regular therapy. But, now he is so I am not sorry for one second of therapy that I have put into him during the last year. It has made us close and bonded, unique and loving. It was hard at first but now it is easy since I know that that is what it takes to get better. Doesn't matter who you see, the brain doesn't care. Kim, out there somewhere, designs her own program and her son is having the same success. I will bet that it's 2 to 4 hours a day all total for her as well. That's what it takes to heal our kids. I was watching a DAN seminar and they recommended a minimum of 40 hours a week of therapy. That's what works for many really sick kids. Now, we certainly don't do that much! Yikes. I'd never have a life! Just to let you know about Bob Doman's qualifications and background, here is his bio from the website. It sounds as though you missed it since you don't seem to have a correct take on his background. The following is from: http://www.nacd.org/getting_started/founder.html Founder/Director J. Doman Jr. Founder of the National Association for Child Development and Chairman, Board of Directors Bob Doman traces NACD's unique approach to neurological and perceptual development and education back to his own childhood, when his father, a Physiatrist, immersed him in the dialectic of child development and rehabilitation. His father's research fascinated Bob and led him to the University of Dubuque, where he received a B.A., and on to Temple University to attend graduate school. Frustrated with the limited research on child neurological development, he began cultivating ideas that would soon revolutionize the industry. By the age of 23, his innovative techniques as a teacher for United Cerebral Palsy earned him a promotion to Clinical Director, where he directed the educational and therapeutic staff of the entire agency. By the early 1970s, Bob had designed and directed a number of state and federal model programs for multihandicapped children. He served in many capacities, including: a.. Director of the Visual Motor Testing and Training Center b.. Educational director of the Delacato-Doman Autistic Unit c.. Educational director of the Center for Neurological Rehabilitation Within a few years, he had also designed: a.. Neurodevelopmental programs for the TIKVA organization in Israel b.. The APATHE organization in Spain and the Canary Islands By the time Bob founded NACD in 1979, he had worked side-by-side with some of the greatest innovators in related fields; together, they developed a multitude of neuroeducational programs. Over the years, tens of thousands of parents and children have benefited from Bob Doman's educational and therapeutic techniques through his seminars and audiotape programs. The methodologies he cultivated from conception through proven maturation allow today's children and adults to significantly develop their own sequential-processing skills. Working with a broad range of individuals-from the exceptionally challenged to the supremely gifted-he helps people all over the world overcome brain injuries, unique mental-processing habits, and other mental and behavioral challenges. Thirty years of research and hands-on treatment have made the NACD approach to neurological development an enormous success. Numerous commendations and a demand from those who have witnessed the results of his work have inspired him to create an educational program designed for the average individual-NACD's " Project 9 +/- 2. " Today, Bob is a leading innovator in neurodevelopmental research. More importantly, he is an educator and caregiver who values the strengths and works to overcome the challenges of each individual who comes to him for evaluation and treatment program. Through the National Academy for Child Development, a nonprofit entity that gathers, evaluates, and disseminates information, Bob continues to play a role as both founder of the organization and pioneer of the latest methodologies for overcoming developmental inefficiencies and achieving peak mental processing performance in people of all ages and sensibilities. An unwavering champion of the innate potential within every human being, Bob continues to serve individual clients and their families as well as promote the benefits of the neurodevelopmental approach to educators and public leaders in the United States and around the world. Training and Certification 1974 Studies in Behavior Modification; Teaching Research Monmouth, Oregon 1971-1975 Studies in Developmental Vision Markow, O.Dd.; Drexel Hill, Pennsylvania 1971-1972 Studies in Clinical Psychology as applied to the treatment of brain-injured children Rose Elfaman,Ph.D.; Wellingford, Pennsylvania 1971 Certification in Hypnosis and Relaxology Institute of Relaxation; Blackwood, New Jersey 1970 Teaching Certificate Pennsylvania Department of Education 1970-1971 Graduate Studies in Educational Psychology Temple University; Philadelphia, Pennsylvania 1969 B.A. Degree in Psychology University of Dubuque; Dubuque, Iowa 1965-1977 Training in Child Development and Rehabilitation J. Doman, M.D.; Philadelphia, Pennsylvania Positions and Clinical Experience 1985-Present; President, National Association for Child Development, Inc. Ogden, UT 1979-Present; Founder and Chairman of the Board National Academy for Child Development (6 Regional Centers, 6 Chapters Nationwide) 2006-Present; Member, The Society for Research in Child Development 1979-1999 Founder, NACD Children's Academy Private School Mountain Lakes, NJ 1979-1980 Director, Associacion Nacional Para El Desarrollo De Nino Barcelona, Spain 1979-1980 Program Director, New Jersey Organization for Child Development Mountain Lakes, NJ 1979-1980 Program Director, Help for Brain Injured Children La Habra, CA 1977-1978 Evaluator and Programmer, Developmental Christian Schools of Delaware Wilmington, DE 1976-1980 Director, Doman Developmental Academy (5 preschools for developmentally delayed, normal & accelerated children) Paoli, PA 1976-1978 Director, Morton Center(Parent training center) Morton, PA 1976-1977 Director, Montgomery County Pennsylvania Department of Mental Health Mental retardation funded program for preschool education of retarded children 1975-1978 Evaluator and Programmer, Help for Brain Injured Children La Habra, CA 1975-1977 Evaluator and Programmer, Delacato-Doman Autistic Unit Morton, PA 1975-1977 Evaluator and Programmer, APALCE Barcelona, Spain & Canary Islands, Spain 1975-1977 Educational Director, Centre for Neurological Rehabilitation Morton, PA 1975-1976 Evaluator and Programmer, TIKVA Haifa, Israel 1975-1977 Educational Director, Institute for the Rehabilitation of the Brain Injured Morton, PA 1974-1975 Director, Delaware County Mental Health-Mental Retardation Funded program for preschool education of mentally retarded 1974-1975 Program Director-Federal Title I Grant Demonstration program for preschool multi-handicapped children 1973-1974 Program Director, Developmental Disabilities Federal Grant Early identification and treatment program for children with developmental disabilities 1971-1975 Consulting Lecturer and Instructor in Child Development Weidner College Chester, PA 1971-1975 Consulting Lecturer and Instructor in Child Development Pennsylvania State University; Lima, PA 1971-1975 Consulting Lecturer and Instructor in Child Development-Delaware County Community College; Newton Square, PA 1971-1975 Clinical Director, Crothers Memorial School Wallingford, PA 1971-1975 Clinical Director, United Cerebral Palsy Center of Delaware County Boothwyn, PA 1970-1974 Director, Visual-Motor Testing and Training Center Drexel Hill, PA 1968-1971 Special Education Instructor, Crothers Memorial School Wallingford, PA Associations 1978-1980 Consultant, Children's Center for Therapeutic Activities San Francisco, CA 1978-1980 Consultant, EINIU Barcelona, Spain 1977-1980 Consultant, Spitz Clinic Morton, PA 1977-1980 Consultant, Centre for Neurological Rehabilitation 1976-1980 Consultant, Developmental Christian Schools of Delaware 1976-1980 Consultant, Philadelphia Public Schools 1974-1980 Consultant, Institute of Relaxation Blackwood, NJ 1974-1976 Chairman, Committee for Programs for Special Education Students Delaware County Vocational-Technological Schools Folsom, Lima and Newton Square, PA 1973-1974 Member of the Federal Government Regional Comprehensive Health Planning Commission Publications Audio Productions " Guide to Child Development and Education-Miracles of Child Development " " Guide to Learning Disabilities " " Guide to Child Management " " Guide to The Parent Teacher " Published Articles Ogden Valley Newspaper; semi-monthly articles on Parenting " Cerebral Palsy " , Journal of the National Academy for Child Development, 1980, Volume 1, No. 2 " Child Management " , Journal of the National Academy for Child Development, 1983, Volume 3, No. 1 " Dominance and Emotionality " , Journal of the National Academy for Child Development, 1982, Volume 2, No. 2 " Down Syndrome-Perspectives " , Journal of the National Academy for Child Development, 1999, Volume 12, No. 2 " Establishing A Positive Environment Through Data Collection " , Journal of the National Academy for Child Development 1983, Volume 3, No. 2 " In My Travels " , Journal of the National Academy for Child Development, 1990, Volume 8, No. 1 " Language Acquisition in Children with Down Syndrome " , Journal of the National Academy for Child Development, 1999, Volume 12, No. 1 " Learning Disabilities and Organization " , Journal of the National Academy for Child Development, 1987, Volume 7, No. 1 " Learning Problems and Attention Deficits " , Journal of the National Academy for Child Development, 1984, Volume 4, No. 6 " Philosophy and Rationale " , Journal of the National Academy for Child Development, 1996, Volume 10, No. 5 " Samonas Sound Therapy " , co-authored with Doman, Journal of the National Academy for Child Development, 1996, Volume 10, No. 4 " Sensory Stimulation " , Journal of the National Academy for Child Development, 1980, Volume 1, No. 1 " Special Needs Children, Parents Are The Experts! " , NATHHAN NEWS, Summer 1996, Volume 4 Issue 4 andJournal of the National Academy for Child Development, 1996, Volume 10, No. 6 " The Autistic Child " , Journal of the National Academy for Child Development, 1986, Volume 6, No. 11 " The Home and the School: Conflict or Complement? " , Journal of the National Academy for Child Development, 1987, Volume 7, No. 2 " The Learning Disabled Child " , Journal of the National Academy for Child Development, 1986, Volume 6, No. 8 " The Learning Environment " , Journal of the National Academy for Child Development, 1986, Volume 10, No. 10 " The Network " , Journal of the National Academy for Child Development, 1986, Volume 6, No. 1 " The Role of Phytochemicals in Optimal Health " , co-authored with Doman and E. Morrow, M.D., Journal of the National Academy for Child Development, 1997, Volume 11, No. 1 " Your Father Said-Process Fathering " , Journal of the National Academy for Child Development, 1986, Volume 6, No. 12 " Language Acquisition in Children with Down Syndrome-the significance of auditory function and the contraindication of signing or " Total Communication " , Journal of the National Academy for Child Development, 1999, Volume 12, No. 3 " A Down Syndrome-Perspectives-A message to parents of Down Syndrome Children " , Journal of theNational Academy for Child Development, 2000, Volume 13, No. 1 Other Acheivements a.. Creator of " Simply Smarter Sequential Processing Software " - a software tool to improve sequential processing and short term memory. (A new and improved version of the former Brain Builder software.) b.. Creator of " Brain Builder " software. c.. Co-creator " The Listening Program " - a developmental auditory training tool. d.. Internationally known lecturer having spoken to over 100,000 parents and professionals. e.. He has appeared on numerous national television shows including the following: a.. Inside Edition, July 2000 b.. Essence Awards, July 1999 c.. Ordinary, Extraordinary Show, August 1997 d.. The Other Side, April 1995 f.. Has been interviewed on numerous radio shows including the following: a.. Bob Lee Show-KSL, Salt Lake City, UT b.. Jack Carney Show-KMOX, St. Louis, MO c.. Jim White Show-KMOX, St. Louis, MO Has been featured in newspaper and magazine articles throughout the country. [sPAM] Re: [ ] Re: NACD Info to kathy and monica Hi Kathy and You can have my cds if you like, just email me off list and I will give you my addres.. Send a self addressed stamped envelope and they are yours. I have listened to them 4x already. I am not throwing in the towel on the program, but I do see lots of red flags. I feel like Maddy deserves a shot at seeing if it will help her. I just don't like Bob's tone and recommendations to remove her from school for this program. Plus, there are lots of other parties out there who are calling this pseudoscience, not alternative medicine, but psuedoscience. We do lots of things that are nontraditional, but I thin NACD has crossed the line here. Just my opinion.... My husband is even more skeptical that I am. I committed for a year, and so we will try it as I see that no harm can come to her from it. What program were you referring to that had a lot of potential??? Sharon The cds are $75 plus shipping, BTW. The level II eval is $995?? I believe and $185 a month and evals every 3 months at $385??? That is the expensive part of the program.... How much are the CDs? Maybe you could purchase them (for less) from someone on this board? > > SHaron, > > Ok, read your post. Give me more scoop. You said red > flags and Marketing. We just came back from a program > that had a lot of potential, (if the therapist really > cared and tailored it to the child), but it did seem > like it was great marketing and a big let down after > the end since it was not really tailored and not a lot > of caring. > > Anyway, we were considering doing it soon. I guess the > thing I was surprised about was how expensive the CDs > are that youhave to get before you even get an eval. > Those CDs can be made for pennies. > > Kathy and . > > > > __________________________________________________________ ______________ > Moody friends. Drama queens. Your life? Nope! - their life, your story. Play Sims Stories at Games. > http://sims./ > --------------------------------- Park yourself in front of a world of choices in alternative vehicles. Visit the Auto Green Center. Quote Link to comment Share on other sites More sharing options...
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