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I dont know if I,m in the right place,Ihave got a little boy and the

doctor belived he got a metabolic genetic illness,he presents with

motor regression (ataxia)he has been getting worse over the past

year,can not walk outside,on even floor he uses a reverse

walker ,indoors he is always bumping into everything he wears a

protective helmet.Most of the time he is very,very tired .He

adquired nystagmus on his eyes and does not have periferial

vision ,he needs to sleep with a raised mattress as he feels sick

often at night,when he got an illness like virus,etc ,he feels

really unwell,and gets really floppy and tired.At school he is

starting to get emotional and cry a lot.At the moment he does not

havea diagnosis yet but is having lot of test eegs,awake and

sleeping,blood and urine test,he had an mri about a year ago who was

inclonclusive,and a lumbar tab.At times at home he is getting

really difficult trobing things about in the air,bumping into

rverything,not lisening or calming down,like he can not

understand ,when he is not like that or too tired he is lovely,tals

nicelly and is great,but sometimes is really hard getting him

lisening,and calming down,I dont know if you got any ideas or tricks

helping him to listen as is affecting his meal times,dressing,and

anything we may be doing if he is in that mood,