Guest guest Posted January 17, 2007 Report Share Posted January 17, 2007 , I am so appreciative that I found this sight and your nutritional information, too. We ahve always avoided medications whenever possible and try to figure out how to go the natural route for everything, which is very expensive, but worth it we feel. We are starting some of the things you have mapped out, nutritionally. I have one question. In learning all the aspects of my child's diagnosis one of the things that I am becoming very concerned about is the hypotomia and low strength. Do the supplements help this as well as the speech issues? She has undergone mitochondrial tesing which, if I am not mistaken, was done because of the hypotomia (but maybe that was because she had a seizure that was witnessed and there is a significant family history of seizures). It is still all very confusing to learn about and waiting to find out is nerve wracking. If it turns out a child has hypotomia (and maybe mitochondrial issues) as well as apraxia, etc., does the natural approach help all of the above? or would you recommend adding something for the hypotomia and possible mitochondrdial issues? I began this process most concerned with speech issues and now all the other developments concern me even more. Also, my much older child was diagnosed with the low muscle tone and dyspraxia, etc. when he was little, but not speech issues. Back then we didn't do anything to address the issues because nobody made a big deal about it, although he always struggled. Would these supplements help older teens and adults as well, long after the fact? Thanks so much, brgiett " claudia.morris " <claudia.morris@...> wrote: I met up with in December when I had a meeting in Florida. In my book...she deserved a personal hug and thanks for starting this site, allowing information to be easily distributed, and all the time and energy she has given this cause! We wouldn't have a happy ending without the info I got from this site and the Late Talker book. Everyone is so very busy. She was well in Dec when I saw her and her boys are great! I am working on getting an apraxia/autism study funded, so as I mentioned in a previous post - everyone will hear less from me too, because there is just not enough time in the day. However I see that many other families experiencing success with high-dose omega 3/vit E are helping to spread the word, and that is just great. (Takes some pressure off me, since I think this information really needs to get out to the apraxia community). I can't imagine ph trapped in a body that just wouldn't work for him (his old body)...looking at him now and realizing there is actually a clinical cure out there for at least some of these children. I will continue to post new information as I get it. One would think that with the extra time I have... no longer having 3X a week 1-hour speech therapy sessions, 2 special ed group speech (useless, but what the district gave us), and 2 occupational therapy sessions a week - I would have so much more time on my hands. What I am regaining is a little of my sanity, and realizing how much my other 2 children have been neglected by mommy through all this. It was so nice at Christmas to not have to explain to anyone " what is wrong " with ph. No one would believe we went through all this with him if they first met him now. He's totally fine and now excelling in his abilities. He goes on skis for the first time next week. I will post a summary of the information 50 of you have sent to me or posted (I summarized it as best I can, but this is not an ideal way to gather preliminary data from the scientific perspective...but you work with what you have). Some of you may see your own children's results in this. But it is something you can print out and give to your pediatrician for more information. I plan to write it up in a ped developmental journal at some point in the next few months and if/when something is published I will again let you all know. - > Haven't seen a post from since September. If anyone knows > anything, please pass it on. > > all the best, > Joanne > > Joanne, > Jeanne here. I also haven't spoken to her either, I hope she is ok too. > --------------------------------- Everyone is raving about the all-new beta. Quote Link to comment Share on other sites More sharing options...
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