Re: Re: Reintroduction: Raphael's first cast

[Guest guest]

I am having a concern about my daughters foot. She has been out of her Tonotomy

cast now for 4 days. He foot is NOT fully corrected. We are in the process of

getting $ to see Dr. Ponseti. Anyhow, her ankle seemed to be a bit puffy, but

over the last couple days it has gotten better. She was in the Markell's for the

1st 3 days. HORRIBLE EXPIERENCE! They are like a torchure device for kids with

A-Typical like her! Anyways, She has been wearing her s all day

today...WONDERFUL THEY ARE! After giving her a bath this evening after her being

cranky, but not having the Mithcells on for about an hour at this point, I

noticed she has a red mark and a little puffy where the middle strap would be.

This didnt concern me too much as what else I noticed. Th ewhole top of her foot

is real swollen. Seemed to come in in just a day. I honestly dont think its from

the s, but I dont know what caused this! Its making me worry a bit if

something unseen is damaged in there from the idiot Dr.

I had! Anyone else have this expierence? What was it from? Any suggestions? I

am not going to put her s back on for the night as I dont want the

swelling to increase. So I am going to see what it looks like in the morning.

Please let me know if you think I should be concerned about this!. THanks

__________________________________________________

[Guest guest]

Christee,

Take a pic and send it to the CFPics list. Just send as an

attachment from the yahoo email addy you're subbed with.

Kori

At 10:21 PM 9/23/2005, you wrote:

>I am having a concern about my daughters foot. She has been out of

>her Tonotomy cast now for 4 days. He foot is NOT fully corrected. We

>are in the process of getting $ to see Dr. Ponseti. Anyhow, her

>ankle seemed to be a bit puffy, but over the last couple days it has

>gotten better. She was in the Markell's for the 1st 3 days. HORRIBLE

>EXPIERENCE! They are like a torchure device for kids with A-Typical

>like her! Anyways, She has been wearing her s all day

>today...WONDERFUL THEY ARE! After giving her a bath this evening

>after her being cranky, but not having the Mithcells on for about an

>hour at this point, I noticed she has a red mark and a little puffy

>where the middle strap would be. This didnt concern me too much as

>what else I noticed. Th ewhole top of her foot is real swollen.

>Seemed to come in in just a day. I honestly dont think its from the

>s, but I dont know what caused this! Its making me worry a

>bit if something unseen is damaged in there from the idiot Dr.

> I had! Anyone else have this expierence? What was it from? Any

> suggestions? I am not going to put her s back on for the

> night as I dont want the swelling to increase. So I am going to see

> what it looks like in the morning. Please let me know if you think

> I should be concerned about this!. THanks

>

>__________________________________________________

>

[Guest guest]

I met the doctor in training w/Dr. Mosca as well. He seems to know what he is

doing. You should be fine with him for one cast.

My daughter, Addison (bcf, 7/3/04), had her 3-month checkup with Dr. Mosca last

week. He said she's doing great, and now we'll see him in 4 months instead of

3! I had a concern about her left foot - it looked like it was turning in, but

he said it definitely was NOT. I'm so relieved. I really like Dr. Mosca, but

man, I do miss Dr. sy in Atlanta! Maybe it's because he's the one who

" fixed " her in the beginning.

I do have a question about Markells - the strap was starting to break on her

shoes, and by the time we got out of our appt, the darn orthotics dept was

closed, so I called the next day and they just sent me a new pair. These are

size 2 1/2. The length is good for her, but she is on the LAST hole in the

strap. I'm wondering if her foot is just extremely narrow? Do they make

Markells in a narrow width? If so, I'm going to call the Orthotics department

and ask that they change them out. She has slipped out of the shoes once this

past week, and I cannot go any tighter with the strap.

Thanks!

Re: Reintroduction: Raphael's first cast

Glad to hear things are going so well for your little man! The tech,

by the way, is Sam, and he is awesome! He gave Kai cotton wrap last

time we were there, because Kai wanted so badly to help put the cast

on!

We met the young man training with Dr Mosca, too. He seemed very

nice and very interested in everything that was going on. I have

heard that it is relatively easy to learn the manipulation process,

so hopefully he will do great for you. By the same token, I really

hope Kai doesnt end up scheduled with him (Kai's manipulation is

different than average) ... but I dont think Dr Mosca would do that

to us lol

I am thinking I was taking time away from the group durring your

first postings. Where are you located? We live just outside Yakima

and have been travelling to see Dr Mosca for almost 3 years now (wow,

I cant believe that!) He is a good doc ... but you have to watch him

when it comes time to reduce hours from 23/7. He will most likely

tell you to go directly to 12 hours ... DONT DO IT! Everyone here

will be happy to help you thru that time period ... and we have all

found that it is far better to do the transition as Dr Ponseti

describes rather than to drop straight down to 12 hours

Angel

> Hi folks,

>

> I posted here a few months ago when Raphael (born 9/12/05) was

> diagonsed in utero with unilateral cf, and Joybelle pointed me to

> this group! I haven't been able to keep up in the meantime, but

> will try to do so now. Great information here, but I wish that

> Yahoo! had a better UI for their groups.

>

> We had our first appointment with Dr. Mosca on 9/21/05, after

> cancelling the one we had scheduled for 9/9 since Raphael

> hadn't decided to make an appearance yet! I'm glad that we

> had those 9 days pre-cast to settle in with Raphael and cuddle

> his cute little foot. We took a lot of pictures of it the morning

> his cast was going on.

>

> Dr. Mosca classified Rafe's case as " moderate " when we asked him.

> The pediatricians who looked at it before said it has pretty good

> flexibility. Lucky for us, Rafe is a very mellow baby, and hasn't

> seemed too bothered by the cast. He's already a good sleeper,

> and the pattern hasn't changed since the cast. I wonder how we'll

> know if he's developing any pressure sores, though. I try to keep

> his leg elevated, but can't all the time...

>

> The technician who did the wrapping on the cast (while Dr. Mosca

held

> his foot in the right position) suggested we use some toddler socks

> with the toes cut off to create a sleeve at the top of the cast to

> keep it clean in case of diaper leaks. This seems to be working

so

> far for us (and good thing we have lots of toddler socks around

> from our older child). Any other tips on keeping the cast clean?

>

> The week that Raphael should be getting his third cast, Dr. Mosca is

> going to be out of town, so we're going to be seen by a fellow who

> is training with Dr. Mosca (a young Dr. from New Zealand). I hope

> that his technique is up to snuff. It's just one cast, though, and

> the next week we'll see Dr. Mosca again.

>

> Thanks,

>

> --

> Toby 5/02

> Raphael lcf 9/05, first cast

[Guest guest]

Well not to sound like being a sneak is the best method here but does your dh go

off to work through the day? Then you could extend the FAB hours with out

arguing with him about it, kwim? You really need to aim for the maximum

hours.

s.

Thanks for the info. I'll start working on him early, I think :-)

> > Sam is absolutely amazing --- he's got lightning fingers!

> >

> > We're in Seattle, actually, north end even, making it very easy to

> > get over to Dr. Mosca.

> >

> > Thanks for the tip about the brace hours. I'll ask him about it,

> > when the time comes, but really, I think the person to convince

> > will be my husband. It's not like the Dr. can keep us from doing

> > more hours with the brace...

> >

> >

> >

[Guest guest]

Hm, that stinks....but I know what you mean, we work from home too. What do you

think is your husband's issue with the longer hours? Does he fear developmental

delay or does he just feel sorry for the kid?

s.

Re: Reintroduction: Raphael's first cast

That wouldn't work. DH and I both often work from home, and Raphael will

be in childcare starting around 6mo --- so we'll need to tell the center what

to do. Anyway, I think I can convince DH...

> > > Sam is absolutely amazing --- he's got lightning fingers!

> > >

> > > We're in Seattle, actually, north end even, making it very easy to

> > > get over to Dr. Mosca.

> > >

> > > Thanks for the tip about the brace hours. I'll ask him about it,

> > > when the time comes, but really, I think the person to convince

> > > will be my husband. It's not like the Dr. can keep us from doing

> > > more hours with the brace...

> > >

> > >

> > >

>

>

>

>

>

[Guest guest]

Oh, that's kind of a tough spot, doctors always know best don't they????? HA HA

HA, sorry. I am fortunate in this area (if you can call it fortunate anyway)

that my dh has family members with cf and then my older son who also has cf and

all of them were treated wrongly so he's all for doing what ever we need for

Everett.

s.

Re: Reintroduction: Raphael's first cast

We haven't talked about it in detail, but what I'm anticipating is

him valuing the doctor's stance over some info I've found on the

internet...

> > > > Sam is absolutely amazing --- he's got lightning fingers!

> > > >

> > > > We're in Seattle, actually, north end even, making it very easy to

> > > > get over to Dr. Mosca.

> > > >

> > > > Thanks for the tip about the brace hours. I'll ask him about it,

> > > > when the time comes, but really, I think the person to convince

> > > > will be my husband. It's not like the Dr. can keep us from doing

> > > > more hours with the brace...

> > > >

> > > >

> > > >

> >

> >

> >

> >

> >

[Guest guest]

Oh, that's kind of a tough spot, doctors always know best don't they????? HA HA

HA, sorry. I am fortunate in this area (if you can call it fortunate anyway)

that my dh has family members with cf and then my older son who also has cf and

all of them were treated wrongly so he's all for doing what ever we need for

Everett.

s.

Re: Reintroduction: Raphael's first cast

We haven't talked about it in detail, but what I'm anticipating is

him valuing the doctor's stance over some info I've found on the

internet...

> > > > Sam is absolutely amazing --- he's got lightning fingers!

> > > >

> > > > We're in Seattle, actually, north end even, making it very easy to

> > > > get over to Dr. Mosca.

> > > >

> > > > Thanks for the tip about the brace hours. I'll ask him about it,

> > > > when the time comes, but really, I think the person to convince

> > > > will be my husband. It's not like the Dr. can keep us from doing

> > > > more hours with the brace...

> > > >

> > > >

> > > >

> >

> >

> >

> >

> >

[Guest guest]

Ah, perfect!!!!

well then, all you have to do is email Dr. Ponseti and ask him to

detail the bracing protocol for your husband so the he can see the

instructions come from the man himself.

problem solved! hehehe!

Kori

At 12:25 PM 9/27/2005, you wrote:

>We haven't talked about it in detail, but what I'm anticipating is

>him valuing the doctor's stance over some info I've found on the

>internet...

>

>

>

>

> > > > > Sam is absolutely amazing --- he's got lightning fingers!

> > > > >

> > > > > We're in Seattle, actually, north end even, making it very easy to

> > > > > get over to Dr. Mosca.

> > > > >

> > > > > Thanks for the tip about the brace hours. I'll ask him about it,

> > > > > when the time comes, but really, I think the person to convince

> > > > > will be my husband. It's not like the Dr. can keep us from doing

> > > > > more hours with the brace...

> > > > >

> > > > >

> > > > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Ah, perfect!!!!

well then, all you have to do is email Dr. Ponseti and ask him to

detail the bracing protocol for your husband so the he can see the

instructions come from the man himself.

problem solved! hehehe!

Kori

At 12:25 PM 9/27/2005, you wrote:

>We haven't talked about it in detail, but what I'm anticipating is

>him valuing the doctor's stance over some info I've found on the

>internet...

>

>

>

>

> > > > > Sam is absolutely amazing --- he's got lightning fingers!

> > > > >

> > > > > We're in Seattle, actually, north end even, making it very easy to

> > > > > get over to Dr. Mosca.

> > > > >

> > > > > Thanks for the tip about the brace hours. I'll ask him about it,

> > > > > when the time comes, but really, I think the person to convince

> > > > > will be my husband. It's not like the Dr. can keep us from doing

> > > > > more hours with the brace...

> > > > >

> > > > >

> > > > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

well then, all you have to do is email Dr. Ponseti and ask him to

detail the bracing protocol for your husband so the he can see the

instructions come from the man himself.

problem solved! hehehe!

Kori

At 12:25 PM 9/27/2005, you wrote:

>We haven't talked about it in detail, but what I'm anticipating is

>him valuing the doctor's stance over some info I've found on the

>internet...

>

>

>

>

> > > > > Sam is absolutely amazing --- he's got lightning fingers!

> > > > >

> > > > > We're in Seattle, actually, north end even, making it very easy to

> > > > > get over to Dr. Mosca.

> > > > >

> > > > > Thanks for the tip about the brace hours. I'll ask him about it,

> > > > > when the time comes, but really, I think the person to convince

> > > > > will be my husband. It's not like the Dr. can keep us from doing

> > > > > more hours with the brace...

> > > > >

> > > > >

> > > > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

well then, all you have to do is email Dr. Ponseti and ask him to

detail the bracing protocol for your husband so the he can see the

instructions come from the man himself.

problem solved! hehehe!

Kori

At 12:25 PM 9/27/2005, you wrote:

>We haven't talked about it in detail, but what I'm anticipating is

>him valuing the doctor's stance over some info I've found on the

>internet...

>

>

>

>

> > > > > Sam is absolutely amazing --- he's got lightning fingers!

> > > > >

> > > > > We're in Seattle, actually, north end even, making it very easy to

> > > > > get over to Dr. Mosca.

> > > > >

> > > > > Thanks for the tip about the brace hours. I'll ask him about it,

> > > > > when the time comes, but really, I think the person to convince

> > > > > will be my husband. It's not like the Dr. can keep us from doing

> > > > > more hours with the brace...

> > > > >

> > > > >

> > > > >

> > >

> > >

> > >

> > >

> > >