RE: Re: Darla- Anyone deal with hydrocephalus?

[Guest guest]

I will ask her next week if she is willing. I'm not sure if she has a computer, but if she does is it ok to give her your email address? She was a really great resource when my neice was suspected to have it.

Best wishes on all those diapers, Geez I thought it was bad with 2 in diapers. (let alone expensive)

Find the music you love with MSN Music – tracks are just 99c!

[Guest guest]

I will ask her next week if she is willing. I'm not sure if she has a computer, but if she does is it ok to give her your email address? She was a really great resource when my neice was suspected to have it.

Best wishes on all those diapers, Geez I thought it was bad with 2 in diapers. (let alone expensive)

Find the music you love with MSN Music – tracks are just 99c!

[Guest guest]

Yes, feel free to give her my e-mail address. honeybear50317@...

See www.caringbridge.org/ia/mitomomof9 and www.heartbeatsformito.org to see

a photo look into what Mito looks like

Darla: mommy to

Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube,

hypotonicity, disautonomy, SID, global delays, asthma, cyclic vomiting,

bladder issues, wheelchair for distances, eye issues, autistic behaviors,

gastric emptying issues...

Zipporrah (14 months) Mito, strokes, neuro-motor planning dys., SID, GERD,

dysphasia, 100% G-tube fed, speech delays, extreme fatigue, excessive

phlegm, asthma, trach issues, aberrant subclavian artery, disautonomy,

hypertonicity, migraines, possible seizures, dumping syndrome, iron

deficiency, ...

Luke (16), Leah (14), Rachael (13), Isaac (10), Tirzah (8), Kezia (4), &

Marquis (3), Joey & (12 months) (some with Mito symptoms)

RE: Re: Darla- Anyone deal with hydrocephalus?

>

> I will ask her next week if she is willing. I'm not sure if she has a

> computer, but if she does is it ok to give her your email address? She

> was a really great resource when my neice was suspected to have it.

>

> Best wishes on all those diapers, Geez I thought it was bad with 2 in

> diapers. (let alone expensive)

>

>

>

>

>

>

>

--------------------------------------------------------------------------------

> Find the music you love with MSN Music - tracks are just 99c!

>

> Please contact mito-owner with any problems or questions.

>

>

>

>

--------------------------------------------------------------------------------

>

[Guest guest]

Yes, feel free to give her my e-mail address. honeybear50317@...

See www.caringbridge.org/ia/mitomomof9 and www.heartbeatsformito.org to see

a photo look into what Mito looks like

Darla: mommy to

Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube,

hypotonicity, disautonomy, SID, global delays, asthma, cyclic vomiting,

bladder issues, wheelchair for distances, eye issues, autistic behaviors,

gastric emptying issues...

Zipporrah (14 months) Mito, strokes, neuro-motor planning dys., SID, GERD,

dysphasia, 100% G-tube fed, speech delays, extreme fatigue, excessive

phlegm, asthma, trach issues, aberrant subclavian artery, disautonomy,

hypertonicity, migraines, possible seizures, dumping syndrome, iron

deficiency, ...

Luke (16), Leah (14), Rachael (13), Isaac (10), Tirzah (8), Kezia (4), &

Marquis (3), Joey & (12 months) (some with Mito symptoms)

RE: Re: Darla- Anyone deal with hydrocephalus?

>

> I will ask her next week if she is willing. I'm not sure if she has a

> computer, but if she does is it ok to give her your email address? She

> was a really great resource when my neice was suspected to have it.

>

> Best wishes on all those diapers, Geez I thought it was bad with 2 in

> diapers. (let alone expensive)

>

>

>

>

>

>

>

--------------------------------------------------------------------------------

> Find the music you love with MSN Music - tracks are just 99c!

>

> Please contact mito-owner with any problems or questions.

>

>

>

>

--------------------------------------------------------------------------------

>