Guest guest Posted September 12, 2005 Report Share Posted September 12, 2005 Christee- I am so angry for you. I wish I could come and just give you a big hug. This is to me close to medical malpractice-to allow an infant to suffer like this is ridiculous. ARGH! Please keep us posted/updated. I would begin the application process for shriner's- I believe it is even available on the web. http://www.shrinershq.org/hospitals/eligible.html I trust the Dr P will help you handle this as I hear he has an immeasurable about of compassion. Good luck and keep us posted! Kathleen mom to bcf FAB 14/7 > I got ahold of Dr. Barmada's castinf tech. as he is not there. The tech told me that her foot slipping fwd was Ok, and that her foor at 0 to -5% was alright also!!! YES THAT IS WHAT HE SAID! I have totally lost confidence in anything they do at this point. So of course, they do not want to change the cast. I DONT KNOW WHAT TO DO! All the Dr.' s at Shriners and Dornbeckers are not in till next week that can change her cast. And the lady I spoke to said I need to have the application done and approved BEFORE she gets an appointment to be seen. She said it would be like next week! There are no other Dr.s around here that does this method! I have a call into Dr. Ponseti to see what he says, so I am waiting to hear from him... > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2005 Report Share Posted September 12, 2005 I live in Hood River, Oregon wrote:Hmmm. where do you live? Good idea to call Dr. P. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2005 Report Share Posted September 12, 2005 I live in Hood River, Oregon wrote:Hmmm. where do you live? Good idea to call Dr. P. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2005 Report Share Posted September 12, 2005 Okay, so I have been awol for a few days and living without sleep at this point so.... Just an idea.... I know Dr. Ponseti is the best, but Christee if you can't get to Iowa could you get to Boise, Idaho maybe. A bit closer and there is a good doc. there. Just a thought Re: More drama...what to do? too freaking close to me... one of the worst parts of the country to have a CF baby in. grrrr... Oregon BTW. Kori At 10:26 AM 9/12/2005, you wrote: >Hmmm. where do you live? Good idea to call Dr. P. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2005 Report Share Posted September 13, 2005 Hi Christee, I saw the pics of that cast on cfpics...no wonder you have no confidence in her treatment, that thing is huge! I would be totally pissed! We had a really bad first casting experience with our daughter before finding a Ponseti doctor. Good to hear that you have called Dr. Ponseti, he will have some good advise and soothing words for you I bet. Hang in there girl and give that little girl of yours a big hug from us! ps...if it was me and Gracies foot was slipping, I would take that huge bloody thing off and wait until her doctor could see her. You may loose a bit of correction in a week but if the cast has not been applied right and her foot is slipping what is the point of having it on anyway? Just my thoughts. & Grace > I got ahold of Dr. Barmada's castinf tech. as he is not there. The tech told me that her foot slipping fwd was Ok, and that her foor at 0 to -5% was alright also!!! YES THAT IS WHAT HE SAID! I have totally lost confidence in anything they do at this point. So of course, they do not want to change the cast. I DONT KNOW WHAT TO DO! All the Dr.' s at Shriners and Dornbeckers are not in till next week that can change her cast. And the lady I spoke to said I need to have the application done and approved BEFORE she gets an appointment to be seen. She said it would be like next week! There are no other Dr.s around here that does this method! I have a call into Dr. Ponseti to see what he says, so I am waiting to hear from him... > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2005 Report Share Posted September 13, 2005 Not only does she have no right to do that, but I would think legally she could have a serious problem by doing that. My mom just graduated nursing and they make a BIG deal out of differentiating between *recording* symptoms and *making* a diagnosis...as a nurse you CAN NOT give a patient a diagnosis. They were told that time and time again during clinicals--and to me that would include telling someone to have/not have surgery. > > > > >Hello All, > > > > > >Christee Here. > > > > > >As most of you probably know, I have has alot of issues with this Dr. > > >Barmada that calls himself a Ponseti Dr. Last thing he did was put a > > >1/2-3/4 " cut on the back of her heel to do the Tenotomy. Well, here we go > > >again...Her foot has slipped in the cast...AGAIN! This time it has > > slipped > > >forwards! Her cast is soft on the foot as if he didnt put enough plaster > > >there. And it has just gotten worse! She has a large gap between her > > >theigh and cast. I can stick my middle finger all the way, as far as I > > >can, without any struggle. It is thin on the bottom of the foot, and way > > >thick on the back where the theigh is, and on the side of the foot where > > >the little toe is. Maybe Kori will host the pics for me so you can see > > >them? KORI? Her heel has slipped fwd too about 1/4 " . I send several pics > > >to Kori, ans she says it is dorsoflexed at bout 0 to -5%. And the flex > > >outwards is at about 27% when it shoudl be 70%. WTF is wrong with this > > DR? > > >I need to get to Ponseti's NOW/ASAP, but dont have the $$$. > > > Any help here? Does anyone know what I can do? If there is any > > fundings? > > > KORI, can you tell them whats going on in your opinion, cause you > > > understand better than I?! > > > > > > > > > > > >--------------------------------- > > >Yahoo! for Good > > > Watch the Hurricane Katrina Shelter From The Storm concert > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2005 Report Share Posted September 13, 2005 You are very right about that. My mom is in nursing school right now too! She would probably flip if I told her about this situation. Very wrong what that nurse did. Marcia Re: More drama...what to do? Not only does she have no right to do that, but I would think legally she could have a serious problem by doing that. My mom just graduated nursing and they make a BIG deal out of differentiating between *recording* symptoms and *making* a diagnosis...as a nurse you CAN NOT give a patient a diagnosis. They were told that time and time again during clinicals--and to me that would include telling someone to have/not have surgery. > > > > >Hello All, > > > > > >Christee Here. > > > > > >As most of you probably know, I have has alot of issues with this Dr. > > >Barmada that calls himself a Ponseti Dr. Last thing he did was put a > > >1/2-3/4 " cut on the back of her heel to do the Tenotomy. Well, here we go > > >again...Her foot has slipped in the cast...AGAIN! This time it has > > slipped > > >forwards! Her cast is soft on the foot as if he didnt put enough plaster > > >there. And it has just gotten worse! She has a large gap between her > > >theigh and cast. I can stick my middle finger all the way, as far as I > > >can, without any struggle. It is thin on the bottom of the foot, and way > > >thick on the back where the theigh is, and on the side of the foot where > > >the little toe is. Maybe Kori will host the pics for me so you can see > > >them? KORI? Her heel has slipped fwd too about 1/4 " . I send several pics > > >to Kori, ans she says it is dorsoflexed at bout 0 to -5%. And the flex > > >outwards is at about 27% when it shoudl be 70%. WTF is wrong with this > > DR? > > >I need to get to Ponseti's NOW/ASAP, but dont have the $$$. > > > Any help here? Does anyone know what I can do? If there is any > > fundings? > > > KORI, can you tell them whats going on in your opinion, cause you > > > understand better than I?! > > > > > > > > > > > >--------------------------------- > > >Yahoo! for Good > > > Watch the Hurricane Katrina Shelter From The Storm concert > > > > > > Quote Link to comment Share on other sites More sharing options...
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