Re: Mb12 shots and stimming off the charts-CARLA!

[Guest guest]

B12 does these things and it is acceptable. Mouthing

is because they are actually feeling things with their

tongue, lips.... sometimes for the first real time.

This is actually a good thing- a " positive negative

thing " according to Dr. Neubrander, who is an expert

in B12. stimming is common too and not necessarily

due to yeast. YOu need to rethink not starting it

again. Please go to www.drneubrander.com and hit the

icon download and then go to B12 info -one of the

article names is Myths..... . read it.

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[Guest guest]

Wow, thx for this info ! I will check it on his website and

then discuss it again with our DAN. I really appreciate the advice.

Carla

>

> B12 does these things and it is acceptable. Mouthing

> is because they are actually feeling things with their

> tongue, lips.... sometimes for the first real time.

> This is actually a good thing- a " positive negative

> thing " according to Dr. Neubrander, who is an expert

> in B12. stimming is common too and not necessarily

> due to yeast. YOu need to rethink not starting it

> again. Please go to www.drneubrander.com and hit the

> icon download and then go to B12 info -one of the

> article names is Myths..... . read it.

>

>

>

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> Looking for last minute shopping deals?

> Find them fast with Search.

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category=shopping

>

[Guest guest]

I agree with you, I had been told the same info, by a therapist, who

stateed that the b12 is a stimualte that causes the brain to be

stimulated and the stimming is just children reacting to the

stimulation and organize it so they can cope My son stims but find

another way to level off and eventually stops. I notice if I get

him center on working with something he stops also. Stimming

although annoying to us is helping them cope with all the stimulus

around them.

>

> B12 does these things and it is acceptable. Mouthing

> is because they are actually feeling things with their

> tongue, lips.... sometimes for the first real time.

> This is actually a good thing- a " positive negative

> thing " according to Dr. Neubrander, who is an expert

> in B12. stimming is common too and not necessarily

> due to yeast. YOu need to rethink not starting it

> again. Please go to www.drneubrander.com and hit the

> icon download and then go to B12 info -one of the

> article names is Myths..... . read it.

>

>

>

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_______________

> Looking for last minute shopping deals?

> Find them fast with Search.

http://tools.search./newsearch/category.php?

category=shopping

>

[Guest guest]

I know in the grand scheme of things MB12 can be a beautiful and safe

thing. What I want to know is do the kids ever get off and retain

gains. I did not get that impression from neubranders site and to me

the question is why? I am not satisfied with " that child was too far

gone. " Is is the need for other intervention, heallingm environmental

or dietary measures recycling a problem??

[Guest guest]

Kids who see results with the shots should stay on

them at least 2 years. They continue to improve over

this time. I don't recall reading that one needs to be

on it for life. BUT, if so, why would that be a

concern. I would love to have a kid who was treated

successfully with something but they needed to

continue being on it. If my kid could be " typical "

with a painless B12 shot 3 times a week- bring it on!

Kathy

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[Guest guest]

Since this topic popped up, I've been re-reading the " Starving

Brains " sections on B12. It seems to me that it is nearly impossible

to be low on dietary B12 unless you are a vegan, so that leaves three

causes of B12 deficiency:

--a specific, rare genetic disorder

--transport problem

--absorption problem

For the most part, these kids do not have the genetic disorder (at

least, the one that is known). And any kid seeing a DAN is working

on all the many causes of malabsorption -- yeast, bacteria, celiac,

etc. -- but that seems to be the emphasis in most of my reading.

There aren't many therapies to address transport issues, and I don't

think kids have a major response to the ones out there.

Does anyone have a different impression from their reading?

in NJ

>

> I know in the grand scheme of things MB12 can be a beautiful and

safe

> thing. What I want to know is do the kids ever get off and retain

> gains. I did not get that impression from neubranders site and to me

> the question is why? I am not satisfied with " that child was too far

> gone. " Is is the need for other intervention, heallingm

environmental

> or dietary measures recycling a problem??

>

[Guest guest]

This is how my doctor explained it to me - and as i am a science dunce, please

excuse any inaccuracies, and please give any corrections. Gluten is absorbed

through the intestine and not through the stomach. Some intestines let through

larger molecules of gluten. The body cannot deal with the larger molecules and

they lodge in the brain. The gluten closely mimics opium - so it becomes a drug.

That is why my son wants to eat only gluten foods - a junkie getting his fix. As

he 'withdraws' we see personaility changes. This same 'leaky gut' also leaches

out the B12 we all get from everyday foods, so he is not getting B12 naturally

even though he should be getting enough through is diet and supplements. It is

for this reson, as I understand it, the B12 is best given as an injection and

not orally.

My doctor talks about healing his immune system, and he has never given me the

indication that we will be on this for life. But right now, with the changes I

have seen with , he can stay GFCF, MB12 injected and swallow litres of DMG.

I would also be interested to know - does the gut 'heal'?

[ ] Re: Mb12 shots and stimming off the

charts-CARLA!

Since this topic popped up, I've been re-reading the " Starving

Brains " sections on B12. It seems to me that it is nearly impossible

to be low on dietary B12 unless you are a vegan, so that leaves three

causes of B12 deficiency:

--a specific, rare genetic disorder

--transport problem

--absorption problem

For the most part, these kids do not have the genetic disorder (at

least, the one that is known). And any kid seeing a DAN is working

on all the many causes of malabsorption -- yeast, bacteria, celiac,

etc. -- but that seems to be the emphasis in most of my reading.

There aren't many therapies to address transport issues, and I don't

think kids have a major response to the ones out there.

Does anyone have a different impression from their reading?

in NJ

>

> I know in the grand scheme of things MB12 can be a beautiful and

safe

> thing. What I want to know is do the kids ever get off and retain

> gains. I did not get that impression from neubranders site and to me

> the question is why? I am not satisfied with " that child was too far

> gone. " Is is the need for other intervention, heallingm

environmental

> or dietary measures recycling a problem??

>

[Guest guest]

We have kidney and liver concerns here so that would be my

issue...continuously adding to their work BUT if it was helping with

filtration AMEN!

>

> Kids who see results with the shots should stay on

> them at least 2 years. They continue to improve over

> this time. I don't recall reading that one needs to be

> on it for life. BUT, if so, why would that be a

> concern. I would love to have a kid who was treated

> successfully with something but they needed to

> continue being on it. If my kid could be " typical "

> with a painless B12 shot 3 times a week- bring it on!

>

> Kathy

>

>

>

______________________________________________________________________

______________

> Never miss a thing. Make your home page.

> http://www./r/hs

>

[Guest guest]

If this is so (time for me to start reading again) then would it not

be best to remove the barrier (like yeast or allergen) when possible.

Obviously if the kid is just so sensitive the shots sound like a

lifesaver. I have to bone up on B12 sources to be sure we are getting

them. Millem today was a beautiful thing. Easy to boil and hide in

pancakes.

I will ask GI if celiacs on diet need to be concerned.

> >

> > I know in the grand scheme of things MB12 can be a beautiful and

> safe

> > thing. What I want to know is do the kids ever get off and retain

> > gains. I did not get that impression from neubranders site and to

me

> > the question is why? I am not satisfied with " that child was too

far

> > gone. " Is is the need for other intervention, heallingm

> environmental

> > or dietary measures recycling a problem??

> >

>

[Guest guest]

,

If you go to DrNeubrander.com, he explains that it is

not a deficiency, but more of a dependence that you

are treating. Most of the kids who are B12 responders

have high normal to high B12 levels before they are

even put on B12 injections. The B12 may be high per

the serum level that was drawn but it is not being

utilized correctly or recycled correctly.

Kathy

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[Guest guest]

In addition, the subQ injection slowly releases the

B12 so that the amount a child is getting is more

constant over the days, hence you usually only need to

get it every 3 days. If the injection is given by

accident in a intramuscular injection, the body uses

it quickly, you may see a spike in gains, that may go

away in a day or 2. Orally, who knows how much a child

is getting, too many variables. Kathy

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[Guest guest]

In addition, the subQ injection slowly releases the

B12 so that the amount a child is getting is more

constant over the days, hence you usually only need to

get it every 3 days. If the injection is given by

accident in a intramuscular injection, the body uses

it quickly, you may see a spike in gains, that may go

away in a day or 2. Orally, who knows how much a child

is getting, too many variables. Kathy

________________________________________________________________________________\

____

Never miss a thing. Make your home page.

http://www./r/hs

[Guest guest]

This is very helpful. The gut can heal so long as the right supports

are in place and nothing is tearing it down worse as it is

regenerating. Less is known about the part of the bowel that absorbs

B12, the ileum. I don't think they can see it in typical scoping and

while it can be seen on the swallow camera that is newer and you

don't see it all or all the same sections as it is floating and

moving.

I am a science dunce as well though so take this for what it is

worth. I do a lot of praying because I am not sure if any of what I

have done or have not done is working, hurting, harming. I hate this.

> >

> > I know in the grand scheme of things MB12 can be a beautiful

and

> safe

> > thing. What I want to know is do the kids ever get off and

retain

> > gains. I did not get that impression from neubranders site and

to me

> > the question is why? I am not satisfied with " that child was

too far

> > gone. " Is is the need for other intervention, heallingm

> environmental

> > or dietary measures recycling a problem??

> >

>

>

>

>

>

>

[Guest guest]

Big help!

In , Kolackovsky

<kkolackovsky@...> wrote:

>

> In addition, the subQ injection slowly releases the

> B12 so that the amount a child is getting is more

> constant over the days, hence you usually only need to

> get it every 3 days. If the injection is given by

> accident in a intramuscular injection, the body uses

> it quickly, you may see a spike in gains, that may go

> away in a day or 2. Orally, who knows how much a child

> is getting, too many variables. Kathy

>

>

>

______________________________________________________________________

______________

> Never miss a thing. Make your home page.

> http://www./r/hs

>

[Guest guest]

We found some helpful advice regarding tics and yeast overgrowth:

http://littlelink.webtrouble.com/?NYLk

It says a page or so down that

" Another common root cause was Candida albicans yeast in the patient's

intestines. "

We have been trying to get our son to eat foods with coconut oil,

honey, garlic, oregano. All of these are just plain old foods but they

seem to help - maybe because they help with yeast?

Marty

[Guest guest]

I haven't read the information from his site recently. I'll go back

and re-read it. Is that another way of saying transport problem? My

thing is that I always want to know the cause, the underlying

problem, so I know if it can be fixed or just managed.

in NJ

>

> ,

>

> If you go to DrNeubrander.com, he explains that it is

> not a deficiency, but more of a dependence that you

> are treating. Most of the kids who are B12 responders

> have high normal to high B12 levels before they are

> even put on B12 injections. The B12 may be high per

> the serum level that was drawn but it is not being

> utilized correctly or recycled correctly.

>

> Kathy

>

>

>

______________________________________________________________________

______________

> Be a better friend, newshound, and

> know-it-all with Mobile. Try it now.

http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

>

[Guest guest]

I wish they could put ALL of this stuff in a shot. I would much

rather zap my son and know he's getting what he needs.

in NJ

[Guest guest]

That is what I am getting at. My kids showed high B12 before diet. I

gave them very little B and they showed up well within range after 6

months...strange for a water soluble vitamin. I did start giving B6

and the hyper one calmed down and the other became less sensitive to

touch and more social. These things were kind of getting better on

their own (except hypersensitivity to the back of the neck) but it

just seemed it was time to address the Bs to avoid longer term stuff.

I ran out of multi and await a shipment of a new one high in B12.

That and the millen in food should tell me if we need to do shots I

suppose.

>

> I haven't read the information from his site recently. I'll go

back

> and re-read it. Is that another way of saying transport problem?

My

> thing is that I always want to know the cause, the underlying

> problem, so I know if it can be fixed or just managed.

>

> in NJ

[Guest guest]

Amen to that! I wish for that every single day!

From:

[mailto: ] On Behalf Of bigcheech91

Sent: Thursday, January 24, 2008 5:50 PM

Subject: [ ] Re: Mb12 shots and stimming off the

charts-CARLA!

I wish they could put ALL of this stuff in a shot. I would much

rather zap my son and know he's getting what he needs.

in NJ