Guest guest Posted June 8, 2005 Report Share Posted June 8, 2005 Every day Sydney is getting more relaxed with the casts. They said she wouldnt move them very much but she raises them up about an inch to two inches upwards. She is such a strong baby. She doesnt act like they bother her until it is late at night when she gets upset and tries to curl up. I am doing a whole lot better. I still have the baby blue and find myself crying for no reason BUT because of the postive feedback about Dr. Dobbs and the fact that i can learn so much on this group I am coping alot better with her club feet. There is still guilt and we are in the process of trying to find which side of the family had a connection to this. Is there any parents who didnt know about club foot in their family intially and had more children? I am very nervous about the fact of having another child and having to go through treatment again. I KNOW IT COULD BE WORSE! and that I am very lucky to be getting the treatment for Sydney that she is receiving but even though they say it is a 10% chance it still makes me nervous! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2005 Report Share Posted June 8, 2005 Every day Sydney is getting more relaxed with the casts. They said she wouldnt move them very much but she raises them up about an inch to two inches upwards. She is such a strong baby. She doesnt act like they bother her until it is late at night when she gets upset and tries to curl up. I am doing a whole lot better. I still have the baby blue and find myself crying for no reason BUT because of the postive feedback about Dr. Dobbs and the fact that i can learn so much on this group I am coping alot better with her club feet. There is still guilt and we are in the process of trying to find which side of the family had a connection to this. Is there any parents who didnt know about club foot in their family intially and had more children? I am very nervous about the fact of having another child and having to go through treatment again. I KNOW IT COULD BE WORSE! and that I am very lucky to be getting the treatment for Sydney that she is receiving but even though they say it is a 10% chance it still makes me nervous! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2005 Report Share Posted June 8, 2005 Does it matter what side of the family it came from? Seems like trying to find out would add much more stress. wrote:Every day Sydney is getting more relaxed with the casts. They said she wouldnt move them very much but she raises them up about an inch to two inches upwards. She is such a strong baby. She doesnt act like they bother her until it is late at night when she gets upset and tries to curl up. I am doing a whole lot better. I still have the baby blue and find myself crying for no reason BUT because of the postive feedback about Dr. Dobbs and the fact that i can learn so much on this group I am coping alot better with her club feet. There is still guilt and we are in the process of trying to find which side of the family had a connection to this. Is there any parents who didnt know about club foot in their family intially and had more children? I am very nervous about the fact of having another child and having to go through treatment again. I KNOW IT COULD BE WORSE! and that I am very lucky to be getting the treatment for Sydney that she is receiving but even though they say it is a 10% chance it still makes me nervous! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2005 Report Share Posted June 8, 2005 Does it matter what side of the family it came from? Seems like trying to find out would add much more stress. wrote:Every day Sydney is getting more relaxed with the casts. They said she wouldnt move them very much but she raises them up about an inch to two inches upwards. She is such a strong baby. She doesnt act like they bother her until it is late at night when she gets upset and tries to curl up. I am doing a whole lot better. I still have the baby blue and find myself crying for no reason BUT because of the postive feedback about Dr. Dobbs and the fact that i can learn so much on this group I am coping alot better with her club feet. There is still guilt and we are in the process of trying to find which side of the family had a connection to this. Is there any parents who didnt know about club foot in their family intially and had more children? I am very nervous about the fact of having another child and having to go through treatment again. I KNOW IT COULD BE WORSE! and that I am very lucky to be getting the treatment for Sydney that she is receiving but even though they say it is a 10% chance it still makes me nervous! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2005 Report Share Posted June 8, 2005 its not that is matters what side is comes from. Everyone is just curious so the grandparents on both sides have been going back trying to figure out if we can figure out where it came from since it was so unexpected. We have found that there is cousin on my husbands side of the family that had to wear a brace when he was young but no one is sure if it was for a club foot and my husband had extremlely weak ankles. We are kinda curious if either of those might have had something to do with it. Alot of our concern is that we dont know ANYTHING about club foot so we are trying to figure it all out. We are both young parents and this is our first child; w are just concerned and trying our best to figure it out mom to Sydney (05-25-05) reid jones wrote: Does it matter what side of the family it came from? Seems like trying to find out would add much more stress. wrote:Every day Sydney is getting more relaxed with the casts. They said she wouldnt move them very much but she raises them up about an inch to two inches upwards. She is such a strong baby. She doesnt act like they bother her until it is late at night when she gets upset and tries to curl up. I am doing a whole lot better. I still have the baby blue and find myself crying for no reason BUT because of the postive feedback about Dr. Dobbs and the fact that i can learn so much on this group I am coping alot better with her club feet. There is still guilt and we are in the process of trying to find which side of the family had a connection to this. Is there any parents who didnt know about club foot in their family intially and had more children? I am very nervous about the fact of having another child and having to go through treatment again. I KNOW IT COULD BE WORSE! and that I am very lucky to be getting the treatment for Sydney that she is receiving but even though they say it is a 10% chance it still makes me nervous! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2005 Report Share Posted June 8, 2005 its not that is matters what side is comes from. Everyone is just curious so the grandparents on both sides have been going back trying to figure out if we can figure out where it came from since it was so unexpected. We have found that there is cousin on my husbands side of the family that had to wear a brace when he was young but no one is sure if it was for a club foot and my husband had extremlely weak ankles. We are kinda curious if either of those might have had something to do with it. Alot of our concern is that we dont know ANYTHING about club foot so we are trying to figure it all out. We are both young parents and this is our first child; w are just concerned and trying our best to figure it out mom to Sydney (05-25-05) reid jones wrote: Does it matter what side of the family it came from? Seems like trying to find out would add much more stress. wrote:Every day Sydney is getting more relaxed with the casts. They said she wouldnt move them very much but she raises them up about an inch to two inches upwards. She is such a strong baby. She doesnt act like they bother her until it is late at night when she gets upset and tries to curl up. I am doing a whole lot better. I still have the baby blue and find myself crying for no reason BUT because of the postive feedback about Dr. Dobbs and the fact that i can learn so much on this group I am coping alot better with her club feet. There is still guilt and we are in the process of trying to find which side of the family had a connection to this. Is there any parents who didnt know about club foot in their family intially and had more children? I am very nervous about the fact of having another child and having to go through treatment again. I KNOW IT COULD BE WORSE! and that I am very lucky to be getting the treatment for Sydney that she is receiving but even though they say it is a 10% chance it still makes me nervous! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2005 Report Share Posted June 8, 2005 I'm glad to hear that Sydney is doing so much better with the casts. I know the whole thing seems overwhelming right now and I completely understand your need to figure out why. Unfortunately a whole lot of very scientific minds have spent years and years trying to figure that out and still don't know why clubfoot happens. There definitely is a genetic aspect and kids from families with a history of clubfoot are more likely to have clubfoot. But that is by no means the general rule. Countless kids are born every year to parents with no history of clubfoot at all. We have no history of clubfoot or any foot problems in either side of our family for as far back as anybody can remember, but here we are with a daughter that was born with a severe left clubfoot. Why? Who knows. I can remember after her birth playing the why game, but honestly at three and a half years into the clubfoot journey, it really no longer matters to me. It just happened and we deal with it. Our first child was not born with clubfoot, but our second was. For us, we knew before her birth that she was probably going to be our last child. After she was born, in those first few months I couldn't imagine having another child if there was any possibility that he/she might have clubfoot. But, again, three and a half years later, I can honestly say that the chance of having another baby born with clubfoot would in no way influence our decision to have another. It truly is that much of a non-issue for us. We have decided not to have anymore children naturally, but are seriously considering adoption and have even looked into adopting a clubfoot baby since we are familiar with the treatment. Anyway, I just wanted to say hang in there! You are with a great doctor and I know things seem overwhelming right now, but there will come a day when it will not be the all consuming thing that it seems like right now! I'm glad you found the board and look forward to Sydney's progress updates! Jen & Livie (10-18-01 severe left clubfoot) doing better Every day Sydney is getting more relaxed with the casts. They said she wouldnt move them very much but she raises them up about an inch to two inches upwards. She is such a strong baby. She doesnt act like they bother her until it is late at night when she gets upset and tries to curl up. I am doing a whole lot better. I still have the baby blue and find myself crying for no reason BUT because of the postive feedback about Dr. Dobbs and the fact that i can learn so much on this group I am coping alot better with her club feet. There is still guilt and we are in the process of trying to find which side of the family had a connection to this. Is there any parents who didnt know about club foot in their family intially and had more children? I am very nervous about the fact of having another child and having to go through treatment again. I KNOW IT COULD BE WORSE! and that I am very lucky to be getting the treatment for Sydney that she is receiving but even though they say it is a 10% chance it still makes me nervous! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2005 Report Share Posted June 8, 2005 I'm glad to hear that Sydney is doing so much better with the casts. I know the whole thing seems overwhelming right now and I completely understand your need to figure out why. Unfortunately a whole lot of very scientific minds have spent years and years trying to figure that out and still don't know why clubfoot happens. There definitely is a genetic aspect and kids from families with a history of clubfoot are more likely to have clubfoot. But that is by no means the general rule. Countless kids are born every year to parents with no history of clubfoot at all. We have no history of clubfoot or any foot problems in either side of our family for as far back as anybody can remember, but here we are with a daughter that was born with a severe left clubfoot. Why? Who knows. I can remember after her birth playing the why game, but honestly at three and a half years into the clubfoot journey, it really no longer matters to me. It just happened and we deal with it. Our first child was not born with clubfoot, but our second was. For us, we knew before her birth that she was probably going to be our last child. After she was born, in those first few months I couldn't imagine having another child if there was any possibility that he/she might have clubfoot. But, again, three and a half years later, I can honestly say that the chance of having another baby born with clubfoot would in no way influence our decision to have another. It truly is that much of a non-issue for us. We have decided not to have anymore children naturally, but are seriously considering adoption and have even looked into adopting a clubfoot baby since we are familiar with the treatment. Anyway, I just wanted to say hang in there! You are with a great doctor and I know things seem overwhelming right now, but there will come a day when it will not be the all consuming thing that it seems like right now! I'm glad you found the board and look forward to Sydney's progress updates! Jen & Livie (10-18-01 severe left clubfoot) doing better Every day Sydney is getting more relaxed with the casts. They said she wouldnt move them very much but she raises them up about an inch to two inches upwards. She is such a strong baby. She doesnt act like they bother her until it is late at night when she gets upset and tries to curl up. I am doing a whole lot better. I still have the baby blue and find myself crying for no reason BUT because of the postive feedback about Dr. Dobbs and the fact that i can learn so much on this group I am coping alot better with her club feet. There is still guilt and we are in the process of trying to find which side of the family had a connection to this. Is there any parents who didnt know about club foot in their family intially and had more children? I am very nervous about the fact of having another child and having to go through treatment again. I KNOW IT COULD BE WORSE! and that I am very lucky to be getting the treatment for Sydney that she is receiving but even though they say it is a 10% chance it still makes me nervous! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2005 Report Share Posted June 8, 2005 Before Aleksander was born, and I had no idea what clubfoot was, let alone how to fix it. Please don't beat yourself up if you can't find a family history...or even if you can. We discovered that there is a history in 's family and possibly in mine, but until Aleksander came along, no one even thought of it. Plus, I think his uncle and cousin probably had a much milder form than Aleksander, and neither has an memory of being treated. The bottom line is, you didn't cause your baby's clubfoot. I know our human nature is to try to find out the reason for everything, but don't let that search for a reason consume you. Enjoy your little one, and just wait, I bet soon she'll be kicking them all over the place and will lift her legs like any normal baby. Towards the end of Aleksander's treatment, he was kicking his legs up so high, we thought he was going to clunk himself in the head. Ah, one more thing, if you can, ask to save the casts. It is really cool to see how much the foot changes from the first cast to the last. And, someday your little one may want to see how tiny her little feet were, and how they looked from start to finish. We kept all of Aleksander's casts and take them out to remind us how far he's come when we get discouraged or frustrated. It helps us keep perspective, that's for sure! Every day Sydney is getting more relaxed with the casts. They said she > wouldnt move them very much but she raises them up about an inch to > two inches upwards. She is such a strong baby. She doesnt act like > they bother her until it is late at night when she gets upset and > tries to curl up. > > I am doing a whole lot better. I still have the baby blue and find > myself crying for no reason BUT because of the postive feedback about > Dr. Dobbs and the fact that i can learn so much on this group I am > coping alot better with her club feet. There is still guilt and we are > in the process of trying to find which side of the family had a > connection to this. > > Is there any parents who didnt know about club foot in their family > intially and had more children? I am very nervous about the fact of > having another child and having to go through treatment again. I KNOW > IT COULD BE WORSE! and that I am very lucky to be getting the > treatment for Sydney that she is receiving but even though they say it > is a 10% chance it still makes me nervous! > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2005 Report Share Posted June 8, 2005 Before Aleksander was born, and I had no idea what clubfoot was, let alone how to fix it. Please don't beat yourself up if you can't find a family history...or even if you can. We discovered that there is a history in 's family and possibly in mine, but until Aleksander came along, no one even thought of it. Plus, I think his uncle and cousin probably had a much milder form than Aleksander, and neither has an memory of being treated. The bottom line is, you didn't cause your baby's clubfoot. I know our human nature is to try to find out the reason for everything, but don't let that search for a reason consume you. Enjoy your little one, and just wait, I bet soon she'll be kicking them all over the place and will lift her legs like any normal baby. Towards the end of Aleksander's treatment, he was kicking his legs up so high, we thought he was going to clunk himself in the head. Ah, one more thing, if you can, ask to save the casts. It is really cool to see how much the foot changes from the first cast to the last. And, someday your little one may want to see how tiny her little feet were, and how they looked from start to finish. We kept all of Aleksander's casts and take them out to remind us how far he's come when we get discouraged or frustrated. It helps us keep perspective, that's for sure! Every day Sydney is getting more relaxed with the casts. They said she > wouldnt move them very much but she raises them up about an inch to > two inches upwards. She is such a strong baby. She doesnt act like > they bother her until it is late at night when she gets upset and > tries to curl up. > > I am doing a whole lot better. I still have the baby blue and find > myself crying for no reason BUT because of the postive feedback about > Dr. Dobbs and the fact that i can learn so much on this group I am > coping alot better with her club feet. There is still guilt and we are > in the process of trying to find which side of the family had a > connection to this. > > Is there any parents who didnt know about club foot in their family > intially and had more children? I am very nervous about the fact of > having another child and having to go through treatment again. I KNOW > IT COULD BE WORSE! and that I am very lucky to be getting the > treatment for Sydney that she is receiving but even though they say it > is a 10% chance it still makes me nervous! > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2005 Report Share Posted June 8, 2005 Mandy, I understand your thought process. Our child is due Aug 1st, and it has BCF. I guess I have a lot more in store than I really know or maybe prepared for. At this juncture, I pray that the only thing wrong with him is the club feet. With the Ponseti Method, it is reasonable to assume that he can be active and have a normal life. Thats what I want for my child and for yours. I didn't mean to imply you shouldn't worry about what side of the family it came from. It's only natural. Mandy Schrader wrote: its not that is matters what side is comes from. Everyone is just curious so the grandparents on both sides have been going back trying to figure out if we can figure out where it came from since it was so unexpected. We have found that there is cousin on my husbands side of the family that had to wear a brace when he was young but no one is sure if it was for a club foot and my husband had extremlely weak ankles. We are kinda curious if either of those might have had something to do with it. Alot of our concern is that we dont know ANYTHING about club foot so we are trying to figure it all out. We are both young parents and this is our first child; w are just concerned and trying our best to figure it out mom to Sydney (05-25-05) reid jones wrote: Does it matter what side of the family it came from? Seems like trying to find out would add much more stress. wrote:Every day Sydney is getting more relaxed with the casts. They said she wouldnt move them very much but she raises them up about an inch to two inches upwards. She is such a strong baby. She doesnt act like they bother her until it is late at night when she gets upset and tries to curl up. I am doing a whole lot better. I still have the baby blue and find myself crying for no reason BUT because of the postive feedback about Dr. Dobbs and the fact that i can learn so much on this group I am coping alot better with her club feet. There is still guilt and we are in the process of trying to find which side of the family had a connection to this. Is there any parents who didnt know about club foot in their family intially and had more children? I am very nervous about the fact of having another child and having to go through treatment again. I KNOW IT COULD BE WORSE! and that I am very lucky to be getting the treatment for Sydney that she is receiving but even though they say it is a 10% chance it still makes me nervous! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2005 Report Share Posted June 8, 2005 Mandy, I understand your thought process. Our child is due Aug 1st, and it has BCF. I guess I have a lot more in store than I really know or maybe prepared for. At this juncture, I pray that the only thing wrong with him is the club feet. With the Ponseti Method, it is reasonable to assume that he can be active and have a normal life. Thats what I want for my child and for yours. I didn't mean to imply you shouldn't worry about what side of the family it came from. It's only natural. Mandy Schrader wrote: its not that is matters what side is comes from. Everyone is just curious so the grandparents on both sides have been going back trying to figure out if we can figure out where it came from since it was so unexpected. We have found that there is cousin on my husbands side of the family that had to wear a brace when he was young but no one is sure if it was for a club foot and my husband had extremlely weak ankles. We are kinda curious if either of those might have had something to do with it. Alot of our concern is that we dont know ANYTHING about club foot so we are trying to figure it all out. We are both young parents and this is our first child; w are just concerned and trying our best to figure it out mom to Sydney (05-25-05) reid jones wrote: Does it matter what side of the family it came from? Seems like trying to find out would add much more stress. wrote:Every day Sydney is getting more relaxed with the casts. They said she wouldnt move them very much but she raises them up about an inch to two inches upwards. She is such a strong baby. She doesnt act like they bother her until it is late at night when she gets upset and tries to curl up. I am doing a whole lot better. I still have the baby blue and find myself crying for no reason BUT because of the postive feedback about Dr. Dobbs and the fact that i can learn so much on this group I am coping alot better with her club feet. There is still guilt and we are in the process of trying to find which side of the family had a connection to this. Is there any parents who didnt know about club foot in their family intially and had more children? I am very nervous about the fact of having another child and having to go through treatment again. I KNOW IT COULD BE WORSE! and that I am very lucky to be getting the treatment for Sydney that she is receiving but even though they say it is a 10% chance it still makes me nervous! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2005 Report Share Posted June 8, 2005 , Please do not feel guilty, you did nothing wrong to cause Sydney's clubfeet. It is one of those tricky little genes that doesn't always show up each generation (sometimes not for many generations). In my family we never had any documented cases of clubfoot, but I was born with it and so was my son. Your odds are slightly increased to have a second child w/ clubfoot, however, the odds are still in your favor to have a non-clubfoot baby the next time around. Many, many of the parents on this group have several children with only 1 being affected by clubfoot. You should be relaxing and spending quality time with your DD instead of worrying. Best wishes, > Every day Sydney is getting more relaxed with the casts. They said she > wouldnt move them very much but she raises them up about an inch to > two inches upwards. She is such a strong baby. She doesnt act like > they bother her until it is late at night when she gets upset and > tries to curl up. > > I am doing a whole lot better. I still have the baby blue and find > myself crying for no reason BUT because of the postive feedback about > Dr. Dobbs and the fact that i can learn so much on this group I am > coping alot better with her club feet. There is still guilt and we are > in the process of trying to find which side of the family had a > connection to this. > > Is there any parents who didnt know about club foot in their family > intially and had more children? I am very nervous about the fact of > having another child and having to go through treatment again. I KNOW > IT COULD BE WORSE! and that I am very lucky to be getting the > treatment for Sydney that she is receiving but even though they say it > is a 10% chance it still makes me nervous! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2005 Report Share Posted June 8, 2005 , Please do not feel guilty, you did nothing wrong to cause Sydney's clubfeet. It is one of those tricky little genes that doesn't always show up each generation (sometimes not for many generations). In my family we never had any documented cases of clubfoot, but I was born with it and so was my son. Your odds are slightly increased to have a second child w/ clubfoot, however, the odds are still in your favor to have a non-clubfoot baby the next time around. Many, many of the parents on this group have several children with only 1 being affected by clubfoot. You should be relaxing and spending quality time with your DD instead of worrying. Best wishes, > Every day Sydney is getting more relaxed with the casts. They said she > wouldnt move them very much but she raises them up about an inch to > two inches upwards. She is such a strong baby. She doesnt act like > they bother her until it is late at night when she gets upset and > tries to curl up. > > I am doing a whole lot better. I still have the baby blue and find > myself crying for no reason BUT because of the postive feedback about > Dr. Dobbs and the fact that i can learn so much on this group I am > coping alot better with her club feet. There is still guilt and we are > in the process of trying to find which side of the family had a > connection to this. > > Is there any parents who didnt know about club foot in their family > intially and had more children? I am very nervous about the fact of > having another child and having to go through treatment again. I KNOW > IT COULD BE WORSE! and that I am very lucky to be getting the > treatment for Sydney that she is receiving but even though they say it > is a 10% chance it still makes me nervous! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2005 Report Share Posted June 8, 2005 i know that her clubfoot comes from my side of the family.. but does it really matter? i don't think so.. and i hope that my husband doesn't " blame " me.. i don't think so.. but i just hate to see anyone " blame " themselves... so please don't and don't worry about what " side " if came from... save yourself that agony.. mommy to Grace 12-03-03 BCF Dobb's Brace 14/7 --- wrote: > Every day Sydney is getting more relaxed with the > casts. They said she > wouldnt move them very much but she raises them up > about an inch to > two inches upwards. She is such a strong baby. She > doesnt act like > they bother her until it is late at night when she > gets upset and > tries to curl up. > > I am doing a whole lot better. I still have the baby > blue and find > myself crying for no reason BUT because of the > postive feedback about > Dr. Dobbs and the fact that i can learn so much on > this group I am > coping alot better with her club feet. There is > still guilt and we are > in the process of trying to find which side of the > family had a > connection to this. > > Is there any parents who didnt know about club foot > in their family > intially and had more children? I am very nervous > about the fact of > having another child and having to go through > treatment again. I KNOW > IT COULD BE WORSE! and that I am very lucky to be > getting the > treatment for Sydney that she is receiving but even > though they say it > is a 10% chance it still makes me nervous! > > > love, lisa before i made you in the womb, i knew you... love God. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2005 Report Share Posted June 8, 2005 i know that her clubfoot comes from my side of the family.. but does it really matter? i don't think so.. and i hope that my husband doesn't " blame " me.. i don't think so.. but i just hate to see anyone " blame " themselves... so please don't and don't worry about what " side " if came from... save yourself that agony.. mommy to Grace 12-03-03 BCF Dobb's Brace 14/7 --- wrote: > Every day Sydney is getting more relaxed with the > casts. They said she > wouldnt move them very much but she raises them up > about an inch to > two inches upwards. She is such a strong baby. She > doesnt act like > they bother her until it is late at night when she > gets upset and > tries to curl up. > > I am doing a whole lot better. I still have the baby > blue and find > myself crying for no reason BUT because of the > postive feedback about > Dr. Dobbs and the fact that i can learn so much on > this group I am > coping alot better with her club feet. There is > still guilt and we are > in the process of trying to find which side of the > family had a > connection to this. > > Is there any parents who didnt know about club foot > in their family > intially and had more children? I am very nervous > about the fact of > having another child and having to go through > treatment again. I KNOW > IT COULD BE WORSE! and that I am very lucky to be > getting the > treatment for Sydney that she is receiving but even > though they say it > is a 10% chance it still makes me nervous! > > > love, lisa before i made you in the womb, i knew you... love God. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2005 Report Share Posted June 8, 2005 - I remember having that same overwhelming feeling you are having, when our son was born with a left clubfoot. He was our second and our first was born with straight feet. It was quite a shock. However 3 years and 3 months later it is no big deal. When I tell people they are shocked because you would never know. Even people who saw him as a baby in the casts and dbb completely forget. I promise it won't always consume your life like it is now! > Every day Sydney is getting more relaxed with the casts. They said she > wouldnt move them very much but she raises them up about an inch to > two inches upwards. She is such a strong baby. She doesnt act like > they bother her until it is late at night when she gets upset and > tries to curl up. > > I am doing a whole lot better. I still have the baby blue and find > myself crying for no reason BUT because of the postive feedback about > Dr. Dobbs and the fact that i can learn so much on this group I am > coping alot better with her club feet. There is still guilt and we are > in the process of trying to find which side of the family had a > connection to this. > > Is there any parents who didnt know about club foot in their family > intially and had more children? I am very nervous about the fact of > having another child and having to go through treatment again. I KNOW > IT COULD BE WORSE! and that I am very lucky to be getting the > treatment for Sydney that she is receiving but even though they say it > is a 10% chance it still makes me nervous! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2005 Report Share Posted June 8, 2005 - I remember having that same overwhelming feeling you are having, when our son was born with a left clubfoot. He was our second and our first was born with straight feet. It was quite a shock. However 3 years and 3 months later it is no big deal. When I tell people they are shocked because you would never know. Even people who saw him as a baby in the casts and dbb completely forget. I promise it won't always consume your life like it is now! > Every day Sydney is getting more relaxed with the casts. They said she > wouldnt move them very much but she raises them up about an inch to > two inches upwards. She is such a strong baby. She doesnt act like > they bother her until it is late at night when she gets upset and > tries to curl up. > > I am doing a whole lot better. I still have the baby blue and find > myself crying for no reason BUT because of the postive feedback about > Dr. Dobbs and the fact that i can learn so much on this group I am > coping alot better with her club feet. There is still guilt and we are > in the process of trying to find which side of the family had a > connection to this. > > Is there any parents who didnt know about club foot in their family > intially and had more children? I am very nervous about the fact of > having another child and having to go through treatment again. I KNOW > IT COULD BE WORSE! and that I am very lucky to be getting the > treatment for Sydney that she is receiving but even though they say it > is a 10% chance it still makes me nervous! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2005 Report Share Posted June 9, 2005 Hi there Firstly congratulations on the birth of Sydney (I haven't replied to you before) and secondly I am so pleased to hear that things are going so well for you all. We have no history of clubfoot in either my nor my husband's family (well, none as far back as we can trace it!), but we have an incredibly beautiful daughter, who happened to have a severely clubbed right foot. Now 6.5 months down the line, her foot is looking fantastic and she is wearing the DBB brace 23/7. Berry is our third child and although we discovered the club foot in utero, it was a huge suprise as neither our son, Roman, nor our other daughter, Medi, have a problem with their foot. Sometimes, it just happens........ Like someone else mentioned, this would no way put us off having another baby, Berry is our third and last but I am still incredibly broody and if I were able I would have another, club foot or no!!!! I would make no difference. Things will look brighter soon, as they are beginning too, looking after a newborn baby is hard particulary with your first and even more so when that baby has a problem of it's own. But soon, you'll look back and think " all that worry, and look how far we've come already " . Good luck to you, and lots of love, , Berry and co --- " and Jen " wrote: Date: Wed, 8 Jun 2005 14:37:03 -0400 To: <nosurgery4clubfoot > Subject: Re: doing better I'm glad to hear that Sydney is doing so much better with the casts. I know the whole thing seems overwhelming right now and I completely understand your need to figure out why. Unfortunately a whole lot of very scientific minds have spent years and years trying to figure that out and still don't know why clubfoot happens. There definitely is a genetic aspect and kids from families with a history of clubfoot are more likely to have clubfoot. But that is by no means the general rule. Countless kids are born every year to parents with no history of clubfoot at all. We have no history of clubfoot or any foot problems in either side of our family for as far back as anybody can remember, but here we are with a daughter that was born with a severe left clubfoot. Why? Who knows. I can remember after her birth playing the why game, but honestly at three and a half years into the clubfoot journey, it really no longer matters to me. It just happened and we deal with it. Our first child was not born with clubfoot, but our second was. For us, we knew before her birth that she was probably going to be our last child. After she was born, in those first few months I couldn't imagine having another child if there was any possibility that he/she might have clubfoot. But, again, three and a half years later, I can honestly say that the chance of having another baby born with clubfoot would in no way influence our decision to have another. It truly is that much of a non-issue for us. We have decided not to have anymore children naturally, but are seriously considering adoption and have even looked into adopting a clubfoot baby since we are familiar with the treatment. Anyway, I just wanted to say hang in there! You are with a great doctor and I know things seem overwhelming right now, but there will come a day when it will not be the all consuming thing that it seems like right now! I'm glad you found the board and look forward to Sydney's progress updates! Jen & Livie (10-18-01 severe left clubfoot) doing better Every day Sydney is getting more relaxed with the casts. They said she wouldnt move them very much but she raises them up about an inch to two inches upwards. She is such a strong baby. She doesnt act like they bother her until it is late at night when she gets upset and tries to curl up. I am doing a whole lot better. I still have the baby blue and find myself crying for no reason BUT because of the postive feedback about Dr. Dobbs and the fact that i can learn so much on this group I am coping alot better with her club feet. There is still guilt and we are in the process of trying to find which side of the family had a connection to this. Is there any parents who didnt know about club foot in their family intially and had more children? I am very nervous about the fact of having another child and having to go through treatment again. I KNOW IT COULD BE WORSE! and that I am very lucky to be getting the treatment for Sydney that she is receiving but even though they say it is a 10% chance it still makes me nervous! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2005 Report Share Posted June 9, 2005 Hi there Firstly congratulations on the birth of Sydney (I haven't replied to you before) and secondly I am so pleased to hear that things are going so well for you all. We have no history of clubfoot in either my nor my husband's family (well, none as far back as we can trace it!), but we have an incredibly beautiful daughter, who happened to have a severely clubbed right foot. Now 6.5 months down the line, her foot is looking fantastic and she is wearing the DBB brace 23/7. Berry is our third child and although we discovered the club foot in utero, it was a huge suprise as neither our son, Roman, nor our other daughter, Medi, have a problem with their foot. Sometimes, it just happens........ Like someone else mentioned, this would no way put us off having another baby, Berry is our third and last but I am still incredibly broody and if I were able I would have another, club foot or no!!!! I would make no difference. Things will look brighter soon, as they are beginning too, looking after a newborn baby is hard particulary with your first and even more so when that baby has a problem of it's own. But soon, you'll look back and think " all that worry, and look how far we've come already " . Good luck to you, and lots of love, , Berry and co --- " and Jen " wrote: Date: Wed, 8 Jun 2005 14:37:03 -0400 To: <nosurgery4clubfoot > Subject: Re: doing better I'm glad to hear that Sydney is doing so much better with the casts. I know the whole thing seems overwhelming right now and I completely understand your need to figure out why. Unfortunately a whole lot of very scientific minds have spent years and years trying to figure that out and still don't know why clubfoot happens. There definitely is a genetic aspect and kids from families with a history of clubfoot are more likely to have clubfoot. But that is by no means the general rule. Countless kids are born every year to parents with no history of clubfoot at all. We have no history of clubfoot or any foot problems in either side of our family for as far back as anybody can remember, but here we are with a daughter that was born with a severe left clubfoot. Why? Who knows. I can remember after her birth playing the why game, but honestly at three and a half years into the clubfoot journey, it really no longer matters to me. It just happened and we deal with it. Our first child was not born with clubfoot, but our second was. For us, we knew before her birth that she was probably going to be our last child. After she was born, in those first few months I couldn't imagine having another child if there was any possibility that he/she might have clubfoot. But, again, three and a half years later, I can honestly say that the chance of having another baby born with clubfoot would in no way influence our decision to have another. It truly is that much of a non-issue for us. We have decided not to have anymore children naturally, but are seriously considering adoption and have even looked into adopting a clubfoot baby since we are familiar with the treatment. Anyway, I just wanted to say hang in there! You are with a great doctor and I know things seem overwhelming right now, but there will come a day when it will not be the all consuming thing that it seems like right now! I'm glad you found the board and look forward to Sydney's progress updates! Jen & Livie (10-18-01 severe left clubfoot) doing better Every day Sydney is getting more relaxed with the casts. They said she wouldnt move them very much but she raises them up about an inch to two inches upwards. She is such a strong baby. She doesnt act like they bother her until it is late at night when she gets upset and tries to curl up. I am doing a whole lot better. I still have the baby blue and find myself crying for no reason BUT because of the postive feedback about Dr. Dobbs and the fact that i can learn so much on this group I am coping alot better with her club feet. There is still guilt and we are in the process of trying to find which side of the family had a connection to this. Is there any parents who didnt know about club foot in their family intially and had more children? I am very nervous about the fact of having another child and having to go through treatment again. I KNOW IT COULD BE WORSE! and that I am very lucky to be getting the treatment for Sydney that she is receiving but even though they say it is a 10% chance it still makes me nervous! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2005 Report Share Posted June 9, 2005 In our case we had four children and then number five has a right club foot. As far as we can find, there is no history of club foot on either my side or my husbands side of the family. An uncle had bow legs and my brother did also. That is it. As for having more children. It won't be the club foot that stops us. Good luck, doing better Every day Sydney is getting more relaxed with the casts. They said she wouldnt move them very much but she raises them up about an inch to two inches upwards. She is such a strong baby. She doesnt act like they bother her until it is late at night when she gets upset and tries to curl up. I am doing a whole lot better. I still have the baby blue and find myself crying for no reason BUT because of the postive feedback about Dr. Dobbs and the fact that i can learn so much on this group I am coping alot better with her club feet. There is still guilt and we are in the process of trying to find which side of the family had a connection to this. Is there any parents who didnt know about club foot in their family intially and had more children? I am very nervous about the fact of having another child and having to go through treatment again. I KNOW IT COULD BE WORSE! and that I am very lucky to be getting the treatment for Sydney that she is receiving but even though they say it is a 10% chance it still makes me nervous! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2005 Report Share Posted June 9, 2005 In our case we had four children and then number five has a right club foot. As far as we can find, there is no history of club foot on either my side or my husbands side of the family. An uncle had bow legs and my brother did also. That is it. As for having more children. It won't be the club foot that stops us. Good luck, doing better Every day Sydney is getting more relaxed with the casts. They said she wouldnt move them very much but she raises them up about an inch to two inches upwards. She is such a strong baby. She doesnt act like they bother her until it is late at night when she gets upset and tries to curl up. I am doing a whole lot better. I still have the baby blue and find myself crying for no reason BUT because of the postive feedback about Dr. Dobbs and the fact that i can learn so much on this group I am coping alot better with her club feet. There is still guilt and we are in the process of trying to find which side of the family had a connection to this. Is there any parents who didnt know about club foot in their family intially and had more children? I am very nervous about the fact of having another child and having to go through treatment again. I KNOW IT COULD BE WORSE! and that I am very lucky to be getting the treatment for Sydney that she is receiving but even though they say it is a 10% chance it still makes me nervous! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2005 Report Share Posted June 9, 2005 I'm so glad to hear that you are doing better as well as Sydney. Kolby was my 3rd child (only child with cf) and we can't trace anything to any family member on either side. We finally gave up....I think once things return to being somewhat normal for you, your fear of having another child will decrease. It is a lot to cope with at first but it all will get easier. So cry all you need to and hang in there. When you see Sydney adjusting, you will start to feel better. Keep us posted mom of Kolby 11-19-03 bcf Brice 6-22-01 Adam 6-7-88 > Every day Sydney is getting more relaxed with the casts. They said she > wouldnt move them very much but she raises them up about an inch to > two inches upwards. She is such a strong baby. She doesnt act like > they bother her until it is late at night when she gets upset and > tries to curl up. > > I am doing a whole lot better. I still have the baby blue and find > myself crying for no reason BUT because of the postive feedback about > Dr. Dobbs and the fact that i can learn so much on this group I am > coping alot better with her club feet. There is still guilt and we are > in the process of trying to find which side of the family had a > connection to this. > > Is there any parents who didnt know about club foot in their family > intially and had more children? I am very nervous about the fact of > having another child and having to go through treatment again. I KNOW > IT COULD BE WORSE! and that I am very lucky to be getting the > treatment for Sydney that she is receiving but even though they say it > is a 10% chance it still makes me nervous! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2005 Report Share Posted June 9, 2005 I'm so glad to hear that you are doing better as well as Sydney. Kolby was my 3rd child (only child with cf) and we can't trace anything to any family member on either side. We finally gave up....I think once things return to being somewhat normal for you, your fear of having another child will decrease. It is a lot to cope with at first but it all will get easier. So cry all you need to and hang in there. When you see Sydney adjusting, you will start to feel better. Keep us posted mom of Kolby 11-19-03 bcf Brice 6-22-01 Adam 6-7-88 > Every day Sydney is getting more relaxed with the casts. They said she > wouldnt move them very much but she raises them up about an inch to > two inches upwards. She is such a strong baby. She doesnt act like > they bother her until it is late at night when she gets upset and > tries to curl up. > > I am doing a whole lot better. I still have the baby blue and find > myself crying for no reason BUT because of the postive feedback about > Dr. Dobbs and the fact that i can learn so much on this group I am > coping alot better with her club feet. There is still guilt and we are > in the process of trying to find which side of the family had a > connection to this. > > Is there any parents who didnt know about club foot in their family > intially and had more children? I am very nervous about the fact of > having another child and having to go through treatment again. I KNOW > IT COULD BE WORSE! and that I am very lucky to be getting the > treatment for Sydney that she is receiving but even though they say it > is a 10% chance it still makes me nervous! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2005 Report Share Posted June 9, 2005 Hi, I'm sure you've heard numerous times that the way you are feeling is completely normal. It really is. Things really will get better. Plus, you'll realize that you learn so much from having a child that has a small issue (that is correctable...important to remember). My son has a lot of medical issues, and I know because of it I have become a better person because of him. I no longer take things for granted and have learned what is truly important. Dr. Dobbs is WONDERFUL...we see him also. This is a great group and will be very helpful. Take care, Proud Mom to undiagnosed syndrome: microcephaly, bilateral ptosis, bilateral clubfeet, undescended testes, GERD, low muscle tone, left kidney- hydronephrosis due to Grade IV reflux, right kidney-cysts on upper 20% and low functioning, heart murmur, global developmental delays and a big snuggle-bug that is determined to do things. > > Every day Sydney is getting more relaxed with the casts. They said > she > > wouldnt move them very much but she raises them up about an inch to > > two inches upwards. She is such a strong baby. She doesnt act like > > they bother her until it is late at night when she gets upset and > > tries to curl up. > > > > I am doing a whole lot better. I still have the baby blue and find > > myself crying for no reason BUT because of the postive feedback > about > > Dr. Dobbs and the fact that i can learn so much on this group I am > > coping alot better with her club feet. There is still guilt and we > are > > in the process of trying to find which side of the family had a > > connection to this. > > > > Is there any parents who didnt know about club foot in their family > > intially and had more children? I am very nervous about the fact of > > having another child and having to go through treatment again. I > KNOW > > IT COULD BE WORSE! and that I am very lucky to be getting the > > treatment for Sydney that she is receiving but even though they say > it > > is a 10% chance it still makes me nervous! Quote Link to comment Share on other sites More sharing options...
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