Guest guest Posted June 4, 2005 Report Share Posted June 4, 2005 has bilateral clubfoot and is almost 19 months old. He's been having physical therapy to strengthen his calves because he is not walking independently yet. We saw his Ponseti doctor today and he seemed concerned that he wasn't walking, even though he only got out of full-time dbb wear about 3 months ago. At our next 3 month check-up he wants to x-ray 's back (I assume for scoliosis), but he also mentioned a possible neurological exam. I know there are other conditions that sometimes go along with clubfoot, but I can't remember what they are. What would he be looking for in a neurological exam? Other than not being able to walk and being a little on the small side he seems perfectly normal to me, his physical therapist and his pediatrician. Now I'm nervous. Can anyone tell me what other problems he could have and how I could tell if he had them? Oh, his feet look great by the way! and 11/10/03 bilateral clubfoot dbb 14/7 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2005 Report Share Posted June 4, 2005 has bilateral clubfoot and is almost 19 months old. He's been having physical therapy to strengthen his calves because he is not walking independently yet. We saw his Ponseti doctor today and he seemed concerned that he wasn't walking, even though he only got out of full-time dbb wear about 3 months ago. At our next 3 month check-up he wants to x-ray 's back (I assume for scoliosis), but he also mentioned a possible neurological exam. I know there are other conditions that sometimes go along with clubfoot, but I can't remember what they are. What would he be looking for in a neurological exam? Other than not being able to walk and being a little on the small side he seems perfectly normal to me, his physical therapist and his pediatrician. Now I'm nervous. Can anyone tell me what other problems he could have and how I could tell if he had them? Oh, his feet look great by the way! and 11/10/03 bilateral clubfoot dbb 14/7 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2005 Report Share Posted June 6, 2005 I don't want to scare you, but my son has clubfeet and also caudal regression syndrome. That is when the sacrum, which is the lowest part of the spine, does not develop or develops only partially. I don't know if this is really correct, but I think of it as a " lesser " form of spina bifida. My son is only 11 months old,so we are not sure of what his problems are going to be, but he has limited movement of his legs because his underdeveloped sacrum means that he has reduced nerves to his legs and feet. Anyway, long story. They may want to check your son for something like this. But if they haven't seen it before, he probably does not have too bad a case of it, that is, of course, if he has it. There is a whole range of ways people can be affected by this syndrome. Let me know if you are totally confused. I know I am! ha. > has bilateral clubfoot and is almost 19 months old. He's been > having physical therapy to strengthen his calves because he is not > walking independently yet. We saw his Ponseti doctor today and he > seemed concerned that he wasn't walking, even though he only got out > of full-time dbb wear about 3 months ago. At our next 3 month check-up > he wants to x-ray 's back (I assume for scoliosis), but he also > mentioned a possible neurological exam. I know there are other > conditions that sometimes go along with clubfoot, but I can't remember > what they are. What would he be looking for in a neurological exam? > Other than not being able to walk and being a little on the small side > he seems perfectly normal to me, his physical therapist and his > pediatrician. Now I'm nervous. Can anyone tell me what other problems > he could have and how I could tell if he had them? Oh, his feet look > great by the way! > > and 11/10/03 bilateral clubfoot dbb 14/7 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2005 Report Share Posted June 6, 2005 I don't want to scare you, but my son has clubfeet and also caudal regression syndrome. That is when the sacrum, which is the lowest part of the spine, does not develop or develops only partially. I don't know if this is really correct, but I think of it as a " lesser " form of spina bifida. My son is only 11 months old,so we are not sure of what his problems are going to be, but he has limited movement of his legs because his underdeveloped sacrum means that he has reduced nerves to his legs and feet. Anyway, long story. They may want to check your son for something like this. But if they haven't seen it before, he probably does not have too bad a case of it, that is, of course, if he has it. There is a whole range of ways people can be affected by this syndrome. Let me know if you are totally confused. I know I am! ha. > has bilateral clubfoot and is almost 19 months old. He's been > having physical therapy to strengthen his calves because he is not > walking independently yet. We saw his Ponseti doctor today and he > seemed concerned that he wasn't walking, even though he only got out > of full-time dbb wear about 3 months ago. At our next 3 month check-up > he wants to x-ray 's back (I assume for scoliosis), but he also > mentioned a possible neurological exam. I know there are other > conditions that sometimes go along with clubfoot, but I can't remember > what they are. What would he be looking for in a neurological exam? > Other than not being able to walk and being a little on the small side > he seems perfectly normal to me, his physical therapist and his > pediatrician. Now I'm nervous. Can anyone tell me what other problems > he could have and how I could tell if he had them? Oh, his feet look > great by the way! > > and 11/10/03 bilateral clubfoot dbb 14/7 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2005 Report Share Posted June 6, 2005 Thanks. When was your son diagnosed? Is it an obvious problem or did they notice it with x-rays. I think scoliosis is what my doctor was concerned about, but I guess the back x-ray will tell. and 11/10/03 bilateral cf dbb 14/7 > > has bilateral clubfoot and is almost 19 months old. He's > been > > having physical therapy to strengthen his calves because he is not > > walking independently yet. We saw his Ponseti doctor today and he > > seemed concerned that he wasn't walking, even though he only got > out > > of full-time dbb wear about 3 months ago. At our next 3 month > check-up > > he wants to x-ray 's back (I assume for scoliosis), but he > also > > mentioned a possible neurological exam. I know there are other > > conditions that sometimes go along with clubfoot, but I can't > remember > > what they are. What would he be looking for in a neurological > exam? > > Other than not being able to walk and being a little on the small > side > > he seems perfectly normal to me, his physical therapist and his > > pediatrician. Now I'm nervous. Can anyone tell me what other > problems > > he could have and how I could tell if he had them? Oh, his feet > look > > great by the way! > > > > and 11/10/03 bilateral clubfoot dbb 14/7 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2005 Report Share Posted June 6, 2005 Thanks. When was your son diagnosed? Is it an obvious problem or did they notice it with x-rays. I think scoliosis is what my doctor was concerned about, but I guess the back x-ray will tell. and 11/10/03 bilateral cf dbb 14/7 > > has bilateral clubfoot and is almost 19 months old. He's > been > > having physical therapy to strengthen his calves because he is not > > walking independently yet. We saw his Ponseti doctor today and he > > seemed concerned that he wasn't walking, even though he only got > out > > of full-time dbb wear about 3 months ago. At our next 3 month > check-up > > he wants to x-ray 's back (I assume for scoliosis), but he > also > > mentioned a possible neurological exam. I know there are other > > conditions that sometimes go along with clubfoot, but I can't > remember > > what they are. What would he be looking for in a neurological > exam? > > Other than not being able to walk and being a little on the small > side > > he seems perfectly normal to me, his physical therapist and his > > pediatrician. Now I'm nervous. Can anyone tell me what other > problems > > he could have and how I could tell if he had them? Oh, his feet > look > > great by the way! > > > > and 11/10/03 bilateral clubfoot dbb 14/7 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2005 Report Share Posted June 6, 2005 It was obvious when he was born that he had problems with his legs and feet and then was diagnosed after getting x-rays with caudal regression. But as I said, people can be affected in all different ways by this syndrome. Some are not as badly affected. Try not to get too worried about things (yeah, right, I know how it is!!!) and just wait until after the x-rays. But if he does have something like this, I can give you more info. > > > has bilateral clubfoot and is almost 19 months old. He's > > been > > > having physical therapy to strengthen his calves because he is > not > > > walking independently yet. We saw his Ponseti doctor today and > he > > > seemed concerned that he wasn't walking, even though he only got > > out > > > of full-time dbb wear about 3 months ago. At our next 3 month > > check-up > > > he wants to x-ray 's back (I assume for scoliosis), but he > > also > > > mentioned a possible neurological exam. I know there are other > > > conditions that sometimes go along with clubfoot, but I can't > > remember > > > what they are. What would he be looking for in a neurological > > exam? > > > Other than not being able to walk and being a little on the > small > > side > > > he seems perfectly normal to me, his physical therapist and his > > > pediatrician. Now I'm nervous. Can anyone tell me what other > > problems > > > he could have and how I could tell if he had them? Oh, his feet > > look > > > great by the way! > > > > > > and 11/10/03 bilateral clubfoot dbb 14/7 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2005 Report Share Posted June 6, 2005 It was obvious when he was born that he had problems with his legs and feet and then was diagnosed after getting x-rays with caudal regression. But as I said, people can be affected in all different ways by this syndrome. Some are not as badly affected. Try not to get too worried about things (yeah, right, I know how it is!!!) and just wait until after the x-rays. But if he does have something like this, I can give you more info. > > > has bilateral clubfoot and is almost 19 months old. He's > > been > > > having physical therapy to strengthen his calves because he is > not > > > walking independently yet. We saw his Ponseti doctor today and > he > > > seemed concerned that he wasn't walking, even though he only got > > out > > > of full-time dbb wear about 3 months ago. At our next 3 month > > check-up > > > he wants to x-ray 's back (I assume for scoliosis), but he > > also > > > mentioned a possible neurological exam. I know there are other > > > conditions that sometimes go along with clubfoot, but I can't > > remember > > > what they are. What would he be looking for in a neurological > > exam? > > > Other than not being able to walk and being a little on the > small > > side > > > he seems perfectly normal to me, his physical therapist and his > > > pediatrician. Now I'm nervous. Can anyone tell me what other > > problems > > > he could have and how I could tell if he had them? Oh, his feet > > look > > > great by the way! > > > > > > and 11/10/03 bilateral clubfoot dbb 14/7 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2005 Report Share Posted June 6, 2005 PS CRS is a very, very, very rare syndrome. I don't want to scare you. Besides, most of the things are correctable that go along with it. It's just that when you said he is having walking problems and they want to x-ray his spine, it jumped out at me because of my son's CRS. I'm sure it couldn't be possilbe that yours has it as well. Keep us posted! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2005 Report Share Posted June 6, 2005 PS CRS is a very, very, very rare syndrome. I don't want to scare you. Besides, most of the things are correctable that go along with it. It's just that when you said he is having walking problems and they want to x-ray his spine, it jumped out at me because of my son's CRS. I'm sure it couldn't be possilbe that yours has it as well. Keep us posted! Quote Link to comment Share on other sites More sharing options...
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