Re: Archaic Viewpoint of dyspraxia as incurable; acceptance viewpoint

[Guest guest]

Liz,

To explain the viewpoint of some on the Families board..... that is the norm.

WE are the UNUSUAL! We believe and many others.... 'accept'.

Dyspraxia UK groups have been around for a lot longer than anyone elses. All of

the internet propaganda that state, " No Cure " comes from the UK. The thing is,

the UK was originally quite proactive, particularly Ireland where information

about dyspraxia was the 'only' place on the net that even gave you a definition!

(we were diagnosed 7 years ago and there was not much out there if you didn't

know how to look and to research).

So, originally, all of the dyspraxia networks were UK driven and sponsored. The

books that were written ie. Madeline Portwood all came from British authors.

The thing is, the methodogies never went beyond therapy and the 'praxis' or

motor planning. The therapies never extended to auditory processing or to any

of the health issues that we are looking at here on our board. Even ADHD books

admit that diet is important but anything dedicated to dyspraxia, diet/health is

never mentioned.... only 'coping' strategies.

For many years, I would research and research when Mark was little and every

site said, " No cure " . Help with therapy and accomodations can be made but

basicly if you have dyspraxia.... you're outta luck!

Unfortunately, this is the philosophy of most mainstream ideology re dyspraxia.

You can get help and some kids grow 'out of it' somewhat during puberty but it

is lifelong.

Well, it certainly is lifelong if you never get it properly treated! That is

for certain. But, it is expensive to treat conditions like dyspraxia and no

government wants to spend the money. So.... the words 'no cure' and

'acceptance' are the motto of the day.

That is such Baloney! That is govenment propaganda.... a twisted effort to deny

services and medical care to our children. Period. As more and more children

do get help, this attitude will change and better methods will be adopted. The

British 'stiff upper lip' philosophy will be modernized. I would love to see a

change in the way we provide services to our children, ensuring that all kids

gets reasonable access to services and that parents get education so that they

can provide better home therapy services to their little ones. It is shameful

that so many children get so little therapy.

SHAME on our world! Lives are not disposable!

While I do accept and always have accepted that Mark may carry many of his

dyspraxic traits throughout life, I have always considered it my duty and right

to have access to all possible care and medical treatments. That of course, is

not the reality that we face... it is the reality we must vote for in each of

our countries and lobby for.... for all of our children globally.

I would not consider Mark dyspraxic any more though he certain still has some

dyspraxic traits that are not completely eliminated. At this point, I do

consider him 90 to 95% recovered. This has only been through our joint

perseverance. I am not quite sure what a full recovery would look like but I

know that we are not too far away from it.

Just venting....

Janice

[sPAM][ ] Re: Vitamin E - lack of pain sensation

Is that what it is. I could not figure out if the UK folks get hit

more environmentally or get no medical help.

> > > > > > > >

> > > > > > > >

> > > > > http://health.

> > > > > <http://health.

> > > >

> < /links>

> > > > /group/ /links>

> > > > > /group/ /links

> > > > > > > > folder: Vitamin E

> > > > > > > >

> > > > > > > > Vitamin E could help with lack of pain sensation.

>

> > > > > has

> > > > > > > talked

> > > > > > > > about ph being able to feel pain after starting

> > Vitamin

> > > > > E.

> > > > > > >

> > > > > > > > Geng is another person that has mentioned it

helping

> > > > Tanner.

> > > > > > > Please

> > > > > > > > take a look in the Vitamin E folder for information

> to

> > read

> > > > > > through.

> > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > > http://health.

> > > > >

> > > > <http://health.

> > > >

> > >

> >

>

< /message/7235

> > > >

> > > > /group/ /message/7235

> > > > >

> > > > > /group/ /message/7235

> > > > > 6

> > > > > > > > (Neuro symptoms of vit E deficiency: Speech

> > > > > > > > difficulty, coordination problems, low tone, loss

of

> > > > > reflexes,

> > > > > > loss

> > > > > > > > of pain sensation (high pain tolerance), poor

> > > > proprioception

> > > > > and

> > > > > > > > positional sense - ie poor concept of body's

position

> in

> > > > > space -

> > > > > > so

> > > > > > > > walks into walls etc). It is not a coincidence.

> > > > > > > >

> > > > > > > > Hope this is helpful

> > > > > > > > Tina

> > > > > > > >

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > >

[Guest guest]

Acceptance of anything does not come easy to me. Never has. I

accepted my mothers death at age 7. I did not find that unusual

circumstance easy to accept and no one could sugar coat is and make

it sound special. It sucked, plain and simple. The children involved

in this label are special, not the disease, and it is a mistake to

let them wallow in it. The people on that list gave me the " now, now "

lecture when I mentioned bloodwork to rule in or out physical

ailments. I am not a dr. If they pointed that out it would be fine.

But their point was, let us never look at the elephant in the

room...let's just put a bow on it. Hogwash!

By the way...I am Irish. Red hair and all that goes with it. Hig in

copper...good math ability???

> > > > > > > > >

> > > > > > > > >

> > > > > > http://health.

> > > > > > <http://health.

> > > > >

> > < /links>

> > > > > /group/ /links>

> > > > > > /group/ /links

> > > > > > > > > folder: Vitamin E

> > > > > > > > >

> > > > > > > > > Vitamin E could help with lack of pain sensation.

> >

> > > > > > has

> > > > > > > > talked

> > > > > > > > > about ph being able to feel pain after

starting

> > > Vitamin

> > > > > > E.

> > > > > > > >

> > > > > > > > > Geng is another person that has mentioned it

> helping

> > > > > Tanner.

> > > > > > > > Please

> > > > > > > > > take a look in the Vitamin E folder for

information

> > to

> > > read

> > > > > > > through.

> > > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > > http://health.

> > > > > >

> > > > > <http://health.

> > > > >

> > > >

> > >

> >

>

< /message/7235

> > > > >

> > > > > /group/ /message/7235

> > > > > >

> > > > > > /group/ /message/7235

> > > > > > 6

> > > > > > > > > (Neuro symptoms of vit E deficiency: Speech

> > > > > > > > > difficulty, coordination problems, low tone, loss

> of

> > > > > > reflexes,

> > > > > > > loss

> > > > > > > > > of pain sensation (high pain tolerance), poor

> > > > > proprioception

> > > > > > and

> > > > > > > > > positional sense - ie poor concept of body's

> position

> > in

> > > > > > space -

> > > > > > > so

> > > > > > > > > walks into walls etc). It is not a coincidence.

> > > > > > > > >

> > > > > > > > > Hope this is helpful

> > > > > > > > > Tina

> > > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > > > [Non-text portions of this message have been

removed]

> > > > > > > >

> > > > > > >

> > > > > >

> > > > > >

[Guest guest]

Janice,

I totally hear what you have to say. Listening to the Mayer song today

really struck a nerve. " Waiting on the World to Change. " Dont wait. Chart

your own course for your child and change it, today. Running into too too

many little guys with these issues.

Colleen

[ ] Re: Archaic Viewpoint of dyspraxia as

incurable; acceptance viewpoint

Liz,

To explain the viewpoint of some on the Families board..... that is the

norm. WE are the UNUSUAL! We believe and many others.... 'accept'.

Dyspraxia UK groups have been around for a lot longer than anyone elses. All

of the internet propaganda that state, " No Cure " comes from the UK. The

thing is, the UK was originally quite proactive, particularly Ireland where

information about dyspraxia was the 'only' place on the net that even gave

you a definition! (we were diagnosed 7 years ago and there was not much out

there if you didn't know how to look and to research).

So, originally, all of the dyspraxia networks were UK driven and sponsored.

The books that were written ie. Madeline Portwood all came from British

authors. The thing is, the methodogies never went beyond therapy and the

'praxis' or motor planning. The therapies never extended to auditory

processing or to any of the health issues that we are looking at here on our

board. Even ADHD books admit that diet is important but anything dedicated

to dyspraxia, diet/health is never mentioned.... only 'coping' strategies.

For many years, I would research and research when Mark was little and every

site said, " No cure " . Help with therapy and accomodations can be made but

basicly if you have dyspraxia.... you're outta luck!

Unfortunately, this is the philosophy of most mainstream ideology re

dyspraxia. You can get help and some kids grow 'out of it' somewhat during

puberty but it is lifelong.

Well, it certainly is lifelong if you never get it properly treated! That is

for certain. But, it is expensive to treat conditions like dyspraxia and no

government wants to spend the money. So.... the words 'no cure' and

'acceptance' are the motto of the day.

That is such Baloney! That is govenment propaganda.... a twisted effort to

deny services and medical care to our children. Period. As more and more

children do get help, this attitude will change and better methods will be

adopted. The British 'stiff upper lip' philosophy will be modernized. I

would love to see a change in the way we provide services to our children,

ensuring that all kids gets reasonable access to services and that parents

get education so that they can provide better home therapy services to their

little ones. It is shameful that so many children get so little therapy.

SHAME on our world! Lives are not disposable!

While I do accept and always have accepted that Mark may carry many of his

dyspraxic traits throughout life, I have always considered it my duty and

right to have access to all possible care and medical treatments. That of

course, is not the reality that we face... it is the reality we must vote

for in each of our countries and lobby for.... for all of our children

globally.

I would not consider Mark dyspraxic any more though he certain still has

some dyspraxic traits that are not completely eliminated. At this point, I

do consider him 90 to 95% recovered. This has only been through our joint

perseverance. I am not quite sure what a full recovery would look like but I

know that we are not too far away from it.

Just venting....

Janice

[sPAM][ ] Re: Vitamin E - lack of pain sensation

Is that what it is. I could not figure out if the UK folks get hit

more environmentally or get no medical help.

> > > > > > > >

> > > > > > > >

> > > > > http://health.

> > > > > <http://health.

> > > >

> <http://health.

< /links>

/group/ /links>

> > > > /group/ /links>

> > > > > /group/ /links

> > > > > > > > folder: Vitamin E

> > > > > > > >

> > > > > > > > Vitamin E could help with lack of pain sensation.

>

> > > > > has

> > > > > > > talked

> > > > > > > > about ph being able to feel pain after starting

> > Vitamin

> > > > > E.

> > > > > > >

> > > > > > > > Geng is another person that has mentioned it

helping

> > > > Tanner.

> > > > > > > Please

> > > > > > > > take a look in the Vitamin E folder for information

> to

> > read

> > > > > > through.

> > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > > http://health.

> > > > >

> > > > <http://health.

> > > >

> > >

> >

>

<http://health.

< /message/7235>

/group/ /message/7235

> > > >

> > > > /group/ /message/7235

> > > > >

> > > > > /group/ /message/7235

> > > > > 6

> > > > > > > > (Neuro symptoms of vit E deficiency: Speech

> > > > > > > > difficulty, coordination problems, low tone, loss

of

> > > > > reflexes,

> > > > > > loss

> > > > > > > > of pain sensation (high pain tolerance), poor

> > > > proprioception

> > > > > and

> > > > > > > > positional sense - ie poor concept of body's

position

> in

> > > > > space -

> > > > > > so

> > > > > > > > walks into walls etc). It is not a coincidence.

> > > > > > > >

> > > > > > > > Hope this is helpful

> > > > > > > > Tina

> > > > > > > >

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > >

[Guest guest]

The only way out of depression is action. I assure you depression

will follow if you don't act. When you act, do it methodically and

carefully, but act.

> > > > > > > > >

> > > > > > > > >

> > > > > > http://health.

> > > > > > <http://health.

> > > > >

> > <http://health.

> < /links>

> /group/ /links>

> > > > > /group/ /links>

> > > > > > /group/ /links

> > > > > > > > > folder: Vitamin E

> > > > > > > > >

> > > > > > > > > Vitamin E could help with lack of pain sensation.

> >

> > > > > > has

> > > > > > > > talked

> > > > > > > > > about ph being able to feel pain after starting

> > > Vitamin

> > > > > > E.

> > > > > > > >

> > > > > > > > > Geng is another person that has mentioned it

> helping

> > > > > Tanner.

> > > > > > > > Please

> > > > > > > > > take a look in the Vitamin E folder for information

> > to

> > > read

> > > > > > > through.

> > > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > > http://health.

> > > > > >

> > > > > <http://health.

> > > > >

> > > >

> > >

> >

> <http://health.

>

< /message/7235

>

> /group/ /message/7235

> > > > >

> > > > > /group/ /message/7235

> > > > > >

> > > > > > /group/ /message/7235

> > > > > > 6

> > > > > > > > > (Neuro symptoms of vit E deficiency: Speech

> > > > > > > > > difficulty, coordination problems, low tone, loss

> of

> > > > > > reflexes,

> > > > > > > loss

> > > > > > > > > of pain sensation (high pain tolerance), poor

> > > > > proprioception

> > > > > > and

> > > > > > > > > positional sense - ie poor concept of body's

> position

> > in

> > > > > > space -

> > > > > > > so

> > > > > > > > > walks into walls etc). It is not a coincidence.

> > > > > > > > >

> > > > > > > > > Hope this is helpful

> > > > > > > > > Tina

> > > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > > >