Guest guest Posted December 14, 2001 Report Share Posted December 14, 2001 Hello! I can't tell you how happy I am to find this list. The web sites are so scary! I am going to be 38 in two weeks and have just had my first intense flare up and diagnosis of RP. I am anxious to hear about others' experiences, as I don't see a rheumatologist until Christmas Eve day. I have heard enough about the dangers and prognosis, but I want to hear how people are LIVING with this rare condition. Please offer any information, experiences, etc... I don't know if it's proper to post my email, so I will wait until i hear about that, but if it is, people can also email me directly. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2001 Report Share Posted December 14, 2001 Hello! I can't tell you how happy I am to find this list. The web sites are so scary! I am going to be 38 in two weeks and have just had my first intense flare up and diagnosis of RP. I am anxious to hear about others' experiences, as I don't see a rheumatologist until Christmas Eve day. I have heard enough about the dangers and prognosis, but I want to hear how people are LIVING with this rare condition. Please offer any information, experiences, etc... I don't know if it's proper to post my email, so I will wait until i hear about that, but if it is, people can also email me directly. Quote Link to comment Share on other sites More sharing options...
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