Guest guest Posted September 29, 2001 Report Share Posted September 29, 2001 Hi Everybody- Figured I would let you know how Pete's doing. His right eye is completely healed and he has sharp clear vision in that eye...even better than Dr.Weiss expected. He will have surgery on his left eye Nov.1st. He is having alot of trouble getting his sugar down...was running between 280-400!!!!! So they put him on insulin. So we'll see what happens. We have had to go to a Rheumatologist at the VA to try and get those meds from them...the doc is kinda gruff and dissapproving of Pete being on so much pred(30 a day)..doesn't believe me that when he starts to taper he can only go down 1/2mg at a time...he thinks he can come down 5mg every couple of weeks...I think I might just forget about the meds and pay for them LOL...I have been reading all the posts and have saved a bunch to answer when I can. BTW...my vote is to leave us as one group only, I was around when we tried 2 groups before and I didn't like it and ended up reading both groups so I didn't miss anything. I do believe putting in the appropriate subject will be very helpful...I only hope I remember to do it !!! My thoughts and prayers are with you all everyday Love and hugs Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2001 Report Share Posted September 29, 2001 Hi Everybody- Figured I would let you know how Pete's doing. His right eye is completely healed and he has sharp clear vision in that eye...even better than Dr.Weiss expected. He will have surgery on his left eye Nov.1st. He is having alot of trouble getting his sugar down...was running between 280-400!!!!! So they put him on insulin. So we'll see what happens. We have had to go to a Rheumatologist at the VA to try and get those meds from them...the doc is kinda gruff and dissapproving of Pete being on so much pred(30 a day)..doesn't believe me that when he starts to taper he can only go down 1/2mg at a time...he thinks he can come down 5mg every couple of weeks...I think I might just forget about the meds and pay for them LOL...I have been reading all the posts and have saved a bunch to answer when I can. BTW...my vote is to leave us as one group only, I was around when we tried 2 groups before and I didn't like it and ended up reading both groups so I didn't miss anything. I do believe putting in the appropriate subject will be very helpful...I only hope I remember to do it !!! My thoughts and prayers are with you all everyday Love and hugs Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2001 Report Share Posted September 29, 2001 Janet, thanks for the update on Pete... I'm so glad his surgery went so well and know the next one will too... It's so good to hear from you...been worried... Tell Pete Hi for me and know I'm thinking of you both Hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2001 Report Share Posted September 29, 2001 Janet, thanks for the update on Pete... I'm so glad his surgery went so well and know the next one will too... It's so good to hear from you...been worried... Tell Pete Hi for me and know I'm thinking of you both Hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2001 Report Share Posted September 30, 2001 So glad his eye is doing good since the surgery Janet, but geez, that sugar is really high. Hope the insulin helps get it under control. Sorry also to read that he now has a "doctor know it all" and he won't listen to what you are telling him. I really wish doctors would realize that we have experienced enough about RP flares to know what works and doesn't work for us. It's a shame too considering you could get all Pete's meds so cheaply. Would he listen to Pete's old Rheumy on this? It might be worth a try. Good luck girl and keep us updated on Pete's sugar. That really worries me. W >>>>>>>>>>>>>>>>>>>>> He is having alot of trouble getting his sugar down...was running between 280-400!!!!! So they put him on insulin. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2001 Report Share Posted September 30, 2001 So glad his eye is doing good since the surgery Janet, but geez, that sugar is really high. Hope the insulin helps get it under control. Sorry also to read that he now has a "doctor know it all" and he won't listen to what you are telling him. I really wish doctors would realize that we have experienced enough about RP flares to know what works and doesn't work for us. It's a shame too considering you could get all Pete's meds so cheaply. Would he listen to Pete's old Rheumy on this? It might be worth a try. Good luck girl and keep us updated on Pete's sugar. That really worries me. W >>>>>>>>>>>>>>>>>>>>> He is having alot of trouble getting his sugar down...was running between 280-400!!!!! So they put him on insulin. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2001 Report Share Posted October 4, 2001 Sorry also to read that he now has a "doctor know it all" and he won't listen to what you are telling him. I really wish doctors would realize that we have experienced enough about RP flares to know what works and doesn't work for us. I just hate doctors like this, my rheumy is like this, I need a new one soon. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2001 Report Share Posted October 4, 2001 Sorry also to read that he now has a "doctor know it all" and he won't listen to what you are telling him. I really wish doctors would realize that we have experienced enough about RP flares to know what works and doesn't work for us. I just hate doctors like this, my rheumy is like this, I need a new one soon. Quote Link to comment Share on other sites More sharing options...
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