Re: UPdate on Lu's doctor visit

[Guest guest]

hey lu

just like a real mom, LUANNE, dawn

Gee thanks Dawn, who have you been listening to ??? lol Oh I have to love you both! My doctor visit made me mad as usual. Today he seemed to think I am more depressed than sick and that my fibro is rearing its ugly head. Who wouldn't be a little down when your sick most of the time? Dumb tale doc. I told you all I wasn't going back to him and then I went and did it anyway. I think we both have a personality conflict... I seem it my way and he sees it his way. I know more about Rp so I think he feels intimidated to some extent. I told him today so the Rp just disappeared? He said well we haven't seen any sign of a flare lately. I told him he doesn't see me everyday. Once in three months? I could GRIT my teeth and slap my face for going back to him. Now he wants to do that bone scan that will take 3 hours to do. Okay, what would you do if you were me? Honest, I need some opinions here, and don't worry about giving them. I can take them and still do whatever. lol A friend of mine once said why do you ask for my opinion you never use it. I told her that wasn't what I wanted it for...lol I guess just to see if I am way off base here. Okay group sorry for venting to you all. But gosh, why won't the doctors listen to you. Only you know your body and you know what you have been thru and only you know how your hurt and where you hurt. If they can't see it they don't believe it. Okay, Okay... I'll shut up now. lol

Aren't you glad???? lol

Thanks!

Love you all

Lu

[Guest guest]

hey lu

just like a real mom, LUANNE, dawn

Gee thanks Dawn, who have you been listening to ??? lol Oh I have to love you both! My doctor visit made me mad as usual. Today he seemed to think I am more depressed than sick and that my fibro is rearing its ugly head. Who wouldn't be a little down when your sick most of the time? Dumb tale doc. I told you all I wasn't going back to him and then I went and did it anyway. I think we both have a personality conflict... I seem it my way and he sees it his way. I know more about Rp so I think he feels intimidated to some extent. I told him today so the Rp just disappeared? He said well we haven't seen any sign of a flare lately. I told him he doesn't see me everyday. Once in three months? I could GRIT my teeth and slap my face for going back to him. Now he wants to do that bone scan that will take 3 hours to do. Okay, what would you do if you were me? Honest, I need some opinions here, and don't worry about giving them. I can take them and still do whatever. lol A friend of mine once said why do you ask for my opinion you never use it. I told her that wasn't what I wanted it for...lol I guess just to see if I am way off base here. Okay group sorry for venting to you all. But gosh, why won't the doctors listen to you. Only you know your body and you know what you have been thru and only you know how your hurt and where you hurt. If they can't see it they don't believe it. Okay, Okay... I'll shut up now. lol

Aren't you glad???? lol

Thanks!

Love you all

Lu

[Guest guest]

Lu,

Is this Doc a Rheumy? Does he only see you every 3 months?

I hope you at least get blood work done regularly.

Find a new Doc!!

Sandy

----- Original Message ----- My doctor visit made me mad as usual. Today he seemed to think I am more depressed than sick and that my fibro is rearing its ugly head. Who wouldn't be a little down when your sick most of the time? Dumb tale doc. I told you all I wasn't going back to him and then I went and did it anyway. I think we both have a personality conflict... I seem it my way and he sees it his way. I know more about Rp so I think he feels intimidated to some extent. I told him today so the Rp just disappeared? He said well we haven't seen any sign of a flare lately. I told him he doesn't see me everyday. Once in three months? I could GRIT my teeth and slap my face for going back to him. Now he wants to do that bone scan that will take 3 hours to do. Okay, what would you do if you were me? Honest, I need some opinions here, and don't worry about giving them. I can take them and still do whatever. lol A friend of mine once said why do you ask for my opinion you never use it. I told her that wasn't what I wanted it for...lol I guess just to see if I am way off base here. Okay group sorry for venting to you all. But gosh, why won't the doctors listen to you. Only you know your body and you know what you have been thru and only you know how your hurt and where you hurt. If they can't see it they don't believe it. Okay, Okay... I'll shut up now. lol Aren't you glad???? lol Thanks! Love you all Lu DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

[Guest guest]

Lu,

Is this Doc a Rheumy? Does he only see you every 3 months?

I hope you at least get blood work done regularly.

Find a new Doc!!

Sandy

----- Original Message ----- My doctor visit made me mad as usual. Today he seemed to think I am more depressed than sick and that my fibro is rearing its ugly head. Who wouldn't be a little down when your sick most of the time? Dumb tale doc. I told you all I wasn't going back to him and then I went and did it anyway. I think we both have a personality conflict... I seem it my way and he sees it his way. I know more about Rp so I think he feels intimidated to some extent. I told him today so the Rp just disappeared? He said well we haven't seen any sign of a flare lately. I told him he doesn't see me everyday. Once in three months? I could GRIT my teeth and slap my face for going back to him. Now he wants to do that bone scan that will take 3 hours to do. Okay, what would you do if you were me? Honest, I need some opinions here, and don't worry about giving them. I can take them and still do whatever. lol A friend of mine once said why do you ask for my opinion you never use it. I told her that wasn't what I wanted it for...lol I guess just to see if I am way off base here. Okay group sorry for venting to you all. But gosh, why won't the doctors listen to you. Only you know your body and you know what you have been thru and only you know how your hurt and where you hurt. If they can't see it they don't believe it. Okay, Okay... I'll shut up now. lol Aren't you glad???? lol Thanks! Love you all Lu DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

[Guest guest]

--- Sandy Catalusci wrote:

.. Okay,

> Okay... I'll shut up now. lol

> Aren't you glad???? lol

> Thanks!

> Love you all

> Lu

Oh, Lu, please don't ever shut-up! I love reading

your posts! Sorry your doctor was such a jerk to you.

Sure makes me appreciate mine even more. Take care,

and find a new doctor soon. Love, Sharon

>

>

> DISCLAIMER!!

> WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY

> INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE

> ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING

> ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE

> FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE.

> REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE

> DIFFERENT FOR MANY OF US. THANK YOU

>

>

[Guest guest]

--- Sandy Catalusci wrote:

.. Okay,

> Okay... I'll shut up now. lol

> Aren't you glad???? lol

> Thanks!

> Love you all

> Lu

Oh, Lu, please don't ever shut-up! I love reading

your posts! Sorry your doctor was such a jerk to you.

Sure makes me appreciate mine even more. Take care,

and find a new doctor soon. Love, Sharon

>

>

> DISCLAIMER!!

> WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY

> INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE

> ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING

> ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE

> FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE.

> REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE

> DIFFERENT FOR MANY OF US. THANK YOU

>

>

[Guest guest]

Lu,

Is this Doc a Rheumy? Does he only see you every 3 months?

I hope you at least get blood work done regularly.

Find a new Doc!!

Sandy

yes, he is a rheumy...I intend to find a new one Sandy. How are you doing? Is the cytoxan working? I am behind some...well a lot on my posts, I am reading them from the bottom up. lol so far I am on 650. lol So, I don't know hoe you are doing and what the latest is on you. please let me know.

I pray you are doing good. It was great to meet you in Okieland. I just love you & your whole family. You are just precious. Take care,

Love u

LU

[Guest guest]

Lu,

Is this Doc a Rheumy? Does he only see you every 3 months?

I hope you at least get blood work done regularly.

Find a new Doc!!

Sandy

yes, he is a rheumy...I intend to find a new one Sandy. How are you doing? Is the cytoxan working? I am behind some...well a lot on my posts, I am reading them from the bottom up. lol so far I am on 650. lol So, I don't know hoe you are doing and what the latest is on you. please let me know.

I pray you are doing good. It was great to meet you in Okieland. I just love you & your whole family. You are just precious. Take care,

Love u

LU

[Guest guest]

Oh Sandy that is the best news I've heard in a long time... I'm keeping my

fingers crossed for you... Miss you

<< I have been doing better on the higher dose of Cytoxan.

I'm almost afraid to get my hopes up but my Vasculitis has not flared in

almost a week. I'm also having less flares from the RP.

>>

[Guest guest]

Oh Sandy that is the best news I've heard in a long time... I'm keeping my

fingers crossed for you... Miss you

<< I have been doing better on the higher dose of Cytoxan.

I'm almost afraid to get my hopes up but my Vasculitis has not flared in

almost a week. I'm also having less flares from the RP.

>>

[Guest guest]

Lu,

I'm behind on my mail too. Can't seem to keep up.

I have been doing better on the higher dose of Cytoxan.

I'm almost afraid to get my hopes up but my Vasculitis has not flared in almost a week. I'm also having less flares from the RP.

Are you having any luck finding a new Rheumy?

Hugs,

Sandy

yes, he is a rheumy...I intend to find a new one Sandy. How are you doing? Is the cytoxan working? I am behind some...well a lot on my posts, I am reading them from the bottom up. lol so far I am on 650. lol So, I don't know hoe you are doing and what the latest is on you. please let me know. I pray you are doing good. It was great to meet you in Okieland. I just love you & your whole family. You are just precious. Take care, Love u LU DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

[Guest guest]

Lu,

I'm behind on my mail too. Can't seem to keep up.

I have been doing better on the higher dose of Cytoxan.

I'm almost afraid to get my hopes up but my Vasculitis has not flared in almost a week. I'm also having less flares from the RP.

Are you having any luck finding a new Rheumy?

Hugs,

Sandy

yes, he is a rheumy...I intend to find a new one Sandy. How are you doing? Is the cytoxan working? I am behind some...well a lot on my posts, I am reading them from the bottom up. lol so far I am on 650. lol So, I don't know hoe you are doing and what the latest is on you. please let me know. I pray you are doing good. It was great to meet you in Okieland. I just love you & your whole family. You are just precious. Take care, Love u LU DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

[Guest guest]

,

I'm keeping my fingers crossed too!!

I miss you too. Wish we could get together sooner.

Hugs,

Sandy

Oh Sandy that is the best news I've heard in a long time... I'm keeping my fingers crossed for you... Miss you << I have been doing better on the higher dose of Cytoxan.I'm almost afraid to get my hopes up but my Vasculitis has not flared in almost a week. I'm also having less flares from the RP. >>DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

[Guest guest]

,

I'm keeping my fingers crossed too!!

I miss you too. Wish we could get together sooner.

Hugs,

Sandy

Oh Sandy that is the best news I've heard in a long time... I'm keeping my fingers crossed for you... Miss you << I have been doing better on the higher dose of Cytoxan.I'm almost afraid to get my hopes up but my Vasculitis has not flared in almost a week. I'm also having less flares from the RP. >>DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU