Guest guest Posted October 31, 2007 Report Share Posted October 31, 2007 Does anyone know what happens in an apraxic child's mind when they finally have an explosion of speech? My son is 4 with PDD NOS and apraxia. I don't understand this speech problem very well, he is highly intelligent and such a good boy, he has lots to say but he just cant. He is making progress but it is so slow. I am just waiting for something spontaneous. He is getting appropriate therapies. Does anyone know as a child gets older do the chances get smaller they will learn speech. Jen ************************************** See what's new at http://www.aol.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2007 Report Share Posted October 31, 2007 More typically than not, it is slow and steady progress. Hard work esp. if he is already verbal. That said, of course, I have an exception. We have seen explosions of speech (if you can call them that) when we hit a nail on the head with a supplement - EFAs or vitamin E or carnitine. There is something else going on right now physically that we are trying to figure out. I'm sure when we hit that nail - another burst will happen. Hang in there - > > Does anyone know what happens in an apraxic child's mind when they finally > have an explosion of speech? My son is 4 with PDD NOS and apraxia. I don't > understand this speech problem very well, he is highly intelligent and such a > good boy, he has lots to say but he just cant. He is making progress but it is > so slow. I am just waiting for something spontaneous. He is getting > appropriate therapies. Does anyone know as a child gets older do the chances get > smaller they will learn speech. Jen > > > > ************************************** See what's new at http://www.aol.com > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2007 Report Share Posted October 31, 2007 Don't know, but a speech therapist just told me one child (age 9) just started speaking! Never give up. --- jennyjudy@... wrote: > Does anyone know what happens in an apraxic child's > mind when they finally > have an explosion of speech? My son is 4 with PDD > NOS and apraxia. I don't > understand this speech problem very well, he is > highly intelligent and such a > good boy, he has lots to say but he just cant. He is > making progress but it is > so slow. I am just waiting for something > spontaneous. He is getting > appropriate therapies. Does anyone know as a child > gets older do the chances get > smaller they will learn speech. Jen > > > > ************************************** See what's > new at http://www.aol.com > > > [Non-text portions of this message have been > removed] > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2007 Report Share Posted November 1, 2007 a little bit of hope...my son didn't utter 2 word sentences until about the age of 4...and today @ 6 y.o., he is speaking in sentences. The words that he does know come out really clear & coherent. He does have receptive & expressive delays and I blame this on his late development. Just last year he could not form a letter in his name ..and today, he is writing his name and knows how to spell..so, alot can change in a year's time...in 3 months alot can change. Keep very positive attitude...and continue his therapies... jennyjudy@... Sent by: childrensapraxian To et@... m cc Subject 10/31/2007 03:10 Re: [ ] explosion PM of speech Please respond to childrensapraxian et@... m Does anyone know what happens in an apraxic child's mind when they finally have an explosion of speech? My son is 4 with PDD NOS and apraxia. I don't understand this speech problem very well, he is highly intelligent and such a good boy, he has lots to say but he just cant. He is making progress but it is so slow. I am just waiting for something spontaneous. He is getting appropriate therapies. Does anyone know as a child gets older do the chances get smaller they will learn speech. Jen ************************************** See what's new at http://www.aol.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2007 Report Share Posted November 1, 2007 I love hearing these kinds of stories! Sometimes it's hard imagining my son ever talking in sentences, but I know it WILL happen eventually. He's only 32 months, so I'm still holding out hope that he has this sudden speech/language explosion at 3. Just another little positive story of how quickly something can click: Just last week my son showed NO signs of recognizing colors. I mean he couldn't even hand me a blue block if I held up a blue block and showed him what blue looks like. The whole color concept just seemed to be beyond his comprehension. Well, just yesterday it was like he's known his colors all along! He still can't say any of the colors, but receptively he seems to know all the primary colors. I can just say, " can you find a blue block? " and he does it without any problem. Now I have definite proof that he really is filing away all the information he's presented. It might take him longer than an average child to figure out a way to access the information, but once he accesses it he's able to use it quickly and easily. I'm just so proud of him and it gave me new hope that I seemed to have lost for a little while. Bridget > > > a little bit of hope...my son didn't utter 2 word sentences until about the > age of 4...and today @ 6 y.o., he is speaking in sentences. The words that > he does know come out really clear & coherent. He does have receptive & > expressive delays and I blame this on his late development. Just last year > he could not form a letter in his name ..and today, he is writing his name > and knows how to spell..so, alot can change in a year's time...in 3 months > alot can change. Keep very positive attitude...and continue his > therapies... > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2007 Report Share Posted November 1, 2007 Most times we refer to speech explosions in children with developmental delays in speech. Many children with disorders of speech need to be taught via therapy to say every new sound and word. Not to say children with apraxia don't have speech surges -but it's not like those with developmental delays where they go from delayed to normal -but yes there are surges. In the archives there is a message from BJ who has a child with apraxia/PDD with a speech explosion you may want to read below. Actually there really is much in the archives about language/speech explosions in this group in relationship to children with apraxia - but when I advanced searched the key words " speech explosion apraxia " all links primarily were in regards to the EFAs. Going back just a year or so ago parents didn't do all they are today -just therapy and EFAs -but results were amazing as you'll read in the archives. I advanced search here the words " speech explosion apraxia " (did not include ProEFA or any EFA wording) and almost nothing came up for 2007 -lots for 2006 -but an overwhelming amount the further back you go -below are just a few. Sadly we don't hear from many of these parents anymore. But apraxia isn't just a childhood condition and I do wish those with older children/teens will feel free to start posting questions and sharing updates again. Speech therapy of course is always a given -and even without EFAs it's what will help children with apraxia -just way slower. The surges are addictive -you always want more. Apraxia is not like a developmental delay however so even with a surge it doesn't necessarily bring the child up to normal speech -just up to where the hope increases and fear fades. Over time -like my son Tanner they get to where most won't know there is a speech problem, unless he needs to express complex words in complex thought -the breakdown is the same but ages with them. For those of you with older children just make sure that teachers are aware that just because your child can't always eloquently express answers verbally doesn't mean he or she doesn't know the answer as they should. Apraxia is a disability of motor planning that can be overcome which many of the children who are now older, including teens and young adults are showing. For those that still have trouble with speech -like (real life Little Mermaid http://www.cherab.org/news/.html ) they can use augmentative devices to communicate. (Robin do you want to jump in to update all on ?) For new parents you may want to archive messages as many of the more recent ones don't have to do with the traditional or simple alternative therapies for apraxia that have worked for most over the past years. Below are just a few -and again I'm sure you'll love BJs ~~~~~~~~~~~~start of archives From: BJBlackler@... Date: Sun Dec 9, 2001 8:06am Subject: 1-week " progress " report on ProEFA Hi all -- Short version: RUN . . . do not walk . . . to try ProEFA for yourselves!!!! I am absolutely astounding with my son's progress. Prior to starting this product, he was diagnosed with severe dyspraxia and never talked unless prompted. Long version: Well . . . we started (4, PDD-NOS, verbal dyspraxia) on the Nordic Naturals ProEFA capsules one week ago. He takes one gelcap per day. Here are some random notes I made this week . . . Day #1: he appeared to sleep a more restful sleep at night Day #2: he appeared to be " seeing " things in a new light -- i.e. he was more curious about things than usual, really looking stuff over (like he was on LSD or something). Answers questions more readily when prompted than before. Day #3: he is starting spontaneous, commenting behavior (for instance, telling me that " it's raining " in the cartoon he was watching) totally out of the blue. He also appears to be " following " the storyline of the cartoons and actually understanding what's going on. Actually laughing out loud at the cartoons when appropriate. When the commercial comes on advertising that kid's songs video, he is actually singing short little phrases along with it -- this has NEVER happened before. Apparently he's known the words all along, just couldn't voice them. Day #4: spontaneous speech blitz. Commenting on everything. Expanding from his original repetoire of 2-3 word phrases (i.e. more juice please) to 5-6 word phrases (can I have more juice, please?) and using intonation as well. Striking up " conversations " with his younger sister (1.5 years old), as in " Hi, Jacy, let's play. Do you want to play? " " Come on, Mom. Need new diaper. " New vocabulary words are being used that I think he's been " storing " in his head for quite a while. They're coming out of nowhere -- I'm not prompting these. I did not tell anyone I was beginning these supplements on . His private SLP commented about what a leap in progress he's made in the past week or so. His special ed preschool teacher, and the school SLP, also both commented about this in our IEP meeting this week. Teacher's comment from our communication notebook: " tons of spontaneous phrases today -- he said, " Look, here comes Lydia " and " We are going this way " while leading us to the playground at recess. " SLP commented about his eagerness to work this week. Says he readily repeats anything she prompts him to. His articulation appears to be getting clearer. Private SLP commented that is starting to " direct " her group therapy sessions, telling everyone where to sit, etc. Funny! saw a parent running across the parking lot yesterday (she was running late for pickup of her child). He shouted out clear as day, " NO RUNNING!!!! " I cracked up! The parent stopped dead in her tracks -- up to this day she had never heard say anything spontaneously. Wow!!!!!!!!!!!!! Listmates, just so you know where we are coming from here .. . . I have had my son on a strict gluten-free/casein-free diet for a little over a year now. I keep an accurate daily report on his food intake, behavior, disposition which helps me track down possible causes when he's having a bad day. The only thing we've been doing differently this week is the ProEFA supplementation. There is a direct correlation here to his speech improvements, as far as I can tell. My only regret is that I didn't have the $22 to shell out earlier on to start on this regimen sooner. I will probably write more later today, I still have a couple of questions and comments about our earlier discussion of whether or not to cut down on the hydrogenated oils. But I just wanted to pass along this great news. Thanks to the listowners and CHERAB for pointing me in the right direction. -BJ in polis, MD Fri Aug 31, 2007 12:57 am Hanagan hanagan_8@... ????? Hello, I'm new to this group, and have a few questions..... My 2 1/2 year old is showing some signs of apraxia (per speech therapist). He has difficulty moving his tongue (up, down, sideways), and often deletes the beginning or ending sounds of words. Currently he has about 40 single syllable words that he uses spontaneously and clearly (i.e. up, out, work, eat, knee, etc....). He has several babble words (mama, dada, wawa) quiet a few words that he mimicks or says unclearly. This is actually the result of a recent verbal explosion.....He had only a couple of words a month ago. Anyway, I've been giving him the fish oil (hence the verbal explosion), and I have a few questions about it: 1. How much fish oil should I be giving him. I'm currently giving him the Nordic Naturals Omega 3,6, 9. The dose I'm giving is two or three capsules a day. Is this OK?? Should I give him more or less???? The adult recommended dose is two caps per day. 2. How much vitamin E is suggested? I've given him 1/3 to 1/2 capsule a few times (not regularly). 3. I've seen some behavioral changes since giving him the supplements, too. I don't know if it's the result of the supplements or not, but at first I saw more tantrums.....Then he seemed calmer at the park (more attentive to things/being more of an observer). This is unusual for he's known as the kid that doesn't sit down.....Sometimes he has a " wild " look in his eyes, and it seems that information is racing through his head. I've just never seen these behaviors before and wondered if they're linked to the supplements. I know that two year olds experience lots of changes, though!! Anyway, he's two and weighs 33 pounds.....I just didn't want to give him too much of the supplements and potentially hurt him. As I stated earlier, I have seen a remarkable difference in his verbal abilities since adding them! Any advice or suggestions will help. I realize that this information might be tucked away on the site already, but I'm terrible with technology.....and am currently confused about how to access it. Thanks so much, Fri Sep 15, 2006 5:17 pm " anncat1996 " anncat1996@... Re: Question about speech therapy Honestly, I'm not sure what to think about the once a week versus more so I'll give you my thoughts for both sides and our experience. Take from it what you will. My daughter finally got in with a great SLP in January 2006 at age 2.5 years. She has lots of training and experience with apraxia and lots of understanding of SID and autism behavioral issues as well. I think she really takes into account how to best overall treat any individual child. For most of this year we have only been to see her once a week for 60 minutes. I asked her about going more times per week and she said her experience had been that kids this young got burnt-out on speech therapy if they went several times a week. She recommended therapy once per week and then us working with her at home. She said she wanted us to have at least a couple of targeted language times at home each week. We did see some real progress in this format. Charlotte was largely non-verbal and really started vocalizing a lot more. This summer (mid-July) she started a language explosion. We had started 1 Pro-EFA per day about a month before that so I'm sure that played a role in the explosion. Truth be told driving distance and cost also played a role in the decision to have only one time per week, but had our therapist recommended more we would have done that without a thought. This last month we have started going 2 times per week, but one of those times is 30 minutes of therapy in the swimming pool (which Charlotte really responds to). Really my bigger concern than only getting therapy one time per week is if the therapist knows how to work with kids with apraxia. They need different therapy and can really languish in more traditional speech therapy. Our therapist through early intervention, while a nice, good traditional therapist had no idea how to work with Charlotte's apraxia. Wed Sep 13, 2006 1:03 pm " epoxycozy " epoxycozy@... Re: ProEFA dosage for 18 month old My son was @22 months and weighed around 21-22 lbs when I started him on ProEFA. I started with one capsule and had good results within 10 days (more sounds, more willingness and ability to imitate) and WOW results within about 6 weeks (more words, 2 syllable words, and eventually putting 2-3 words together.) With 1 capsule I saw no negative effects (BTW, his mild eczema disappeared as well). I waited 5 months and then added another capsule. This time I did have some mild mushy stools for a few days and about 10 days of sleep disturbance (refusing naps)and moody and cranky behavior both of which stopped suddenly after that 10 days. Then we saw another explosion of speech. Mostly increase in length of speech utterances (and a short-term decline in articulation..sigh..), starting to sing some, more imaginative language (talking about the past and future), and his speech became more conversational. I would recommend starting with 1 capsule at first (give in the morning) and wait for a couple of weeks-1 month just to make sure that your child doesn't have a negative reaction. If it looks good I would probably increase to 2 capsules after 2-3 months and then add the Pro-EPA after another 2-3 months. I tend to go slow on things and be cautious. (Max's Mom, 2.6 suspected oral/verbal apraxia) Thu Jul 27, 2006 12:54 am " anncat1996 " anncat1996@... Big Changes I am trying to be cautiously realistic here, but I had to post about the changes we have seen in our daughter in the last few days. We started her on ProEFA 4 weeks ago and I find it hard to believe all of these changes at the same time are coincidental. My daughter has spina bifida and hydrocephalus to complicate her apraxia. She learned to walk (no braces or anything ) right around her second birthday. Her gross motor skills have slowly been developing just have been delayed. Her occupational therapist commented though that looking back the apraxia has probably complicated her gross motor skill development as well. I feel fortunate that we have breastfed for as long as we have (for many reasons), but I think also all of the DHA and EPA in breastmilk have really been helpful for her. Anyway in the last few days Charlotte has suddenly started saying lots of words. I mean we've heard her say probably 25 or 30 new identifiable (by us anyway) words! She already had two words phrases through her signs and limited (3 word) oral vocabulary and she is now using 2 word oral phrases quite a bit! She brought me two little plastic Bs (those cheap plastic magnetic letters) tonight and clearly said " two Bs. " Then I said " yes 2 Bs, one green and one yellow. " She said " green, yellow. " Wow! Of course then I screwed it up. She does not like any recognition of her speech at all, especially positive reinforcement when she says something. We are extremely careful to not point it out to her at all or she completely melts down and shuts down. Well I said " yes, green and yellow " a little too enthusiastically and she melted down. It was still a fabulous moment to hear her saying so many things. My husband hears a lot more than I do as she is much more willing to play around with her speech with him. He heard it a lot last night, but I didn't hear anything really until tonight. It was very cool. Also, today we went to a playdate and she was climbing things that really surprised me. Her climbing skills have definitely been slowing improving, but this seemed like a bigger jump forward to me. Her self-help skills are also starting to improve in the last couple of weeks. These are things we've been working on so maybe she's just getting them figured out, but the timing is really amazing. Her speech therapist has commented to me that she thinks Charlotte is just going to have a language explosion some day when she is able to get over her anxiety about speech, but I think even she is going to be a little amazed at how many different words we are hearing this week. (Not that the therapist will hear any of it I suspect as Charlotte doesn't speak much at speech, but I can report it to her anyway). For anyone who has gotten this far and wants to know we are just giving her one capsule of the ProEFA each day. She also get a couple of tablespoons of flax oil every morning, but she's been getting that for a year at least. I know we still have a long row to hoe, but it's nice to really see some progress. ~~~~~~~~~~~~~~end of archives ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2007 Report Share Posted November 2, 2007 That is wonderful to hear. Your description of your son filing away all the info for future use sounds just like my daughter (33 mos)! I am always amazed when she draws out something from days, weeks, months ago that I've long forgotten. :-) > > > > > > a little bit of hope...my son didn't utter 2 word sentences until > about the > > age of 4...and today @ 6 y.o., he is speaking in sentences. The > words that > > he does know come out really clear & coherent. He does have receptive & > > expressive delays and I blame this on his late development. Just > last year > > he could not form a letter in his name ..and today, he is writing > his name > > and knows how to spell..so, alot can change in a year's time...in 3 > months > > alot can change. Keep very positive attitude...and continue his > > therapies... > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2007 Report Share Posted November 2, 2007 Goodness, that post from 2001 sure brought back some memories LOL . . . thanks for reminding us how far we've come down this road! -BJ ************************************** See what's new at http://www.aol.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2007 Report Share Posted November 2, 2007 I so see what you mean in our house. My son is doing well and while diet was a big find for us he would not be doing as well as he is without the therapy he has had over the past year and the homework regimen we followed from the therapists, the concerts, play gyms and other stuff we took him to to be around other kids and people to add to his experiences and the ear tube surgery he had. The fish oil protocol most used did not work for him in the same way as others here on the board but every kid is different and we now see that an autoimmune thing he has may have prevented the typical fish oil progress seen here. I am going to give him straight cod liver oil, something I did see some help with over the summer and see what happens. My kids get a lot of A and D though so I'll do small amounts. , big cheech, advised me wisely to not rule out things that did not work in the past because as the kids progress and change so do their needs. That is why I am returning to fish oil in a new way. > Hi all -- > > Short version: RUN . . . do not walk . . . to try ProEFA for > yourselves!!!! > I am absolutely astounding with my son's progress. Prior to starting > this > product, he was diagnosed with severe dyspraxia and never talked > unless > prompted. > > Long version: > Well . . . we started (4, PDD-NOS, verbal dyspraxia) on the > Nordic > Naturals ProEFA capsules one week ago. He takes one gelcap per day. > Here are > some random notes I made this week . . . > > Day #1: he appeared to sleep a more restful sleep at night > > Day #2: he appeared to be " seeing " things in a new light -- i.e. he > was more > curious about things than usual, really looking stuff over (like he > was on > LSD or something). Answers questions more readily when prompted than > before. > > Day #3: he is starting spontaneous, commenting behavior (for > instance, > telling me that " it's raining " in the cartoon he was watching) > totally out of > the blue. He also appears to be " following " the storyline of the > cartoons and > actually understanding what's going on. Actually laughing out loud at > the > cartoons when appropriate. When the commercial comes on advertising > that > kid's songs video, he is actually singing short little phrases along > with it > -- this has NEVER happened before. Apparently he's known the words > all along, > just couldn't voice them. > > Day #4: spontaneous speech blitz. Commenting on everything. Expanding > from > his original repetoire of 2-3 word phrases (i.e. more juice please) > to 5-6 > word phrases (can I have more juice, please?) and using intonation as > well. > Striking up " conversations " with his younger sister (1.5 years old), > as in > " Hi, Jacy, let's play. Do you want to play? " " Come on, Mom. Need new > diaper. " > New vocabulary words are being used that I think he's been " storing " > in his > head for quite a while. They're coming out of nowhere -- I'm not > prompting > these. > > I did not tell anyone I was beginning these supplements on . > His > private SLP commented about what a leap in progress he's made in the > past > week or so. His special ed preschool teacher, and the school SLP, > also both > commented about this in our IEP meeting this week. > > Teacher's comment from our communication notebook: " tons of > spontaneous > phrases today -- he said, " Look, here comes Lydia " and " We are going > this > way " while leading us to the playground at recess. " > > SLP commented about his eagerness to work this week. Says he readily > repeats > anything she prompts him to. His articulation appears to be getting > clearer. > > Private SLP commented that is starting to " direct " her group > therapy > sessions, telling everyone where to sit, etc. Funny! > > saw a parent running across the parking lot yesterday (she was > running > late for pickup of her child). He shouted out clear as day, " NO > RUNNING!!!! " > I cracked up! The parent stopped dead in her tracks -- up to this day > she had > never heard say anything spontaneously. > > Wow!!!!!!!!!!!!! Listmates, just so you know where we are coming from > here > . . . I have had my son on a strict gluten-free/casein-free diet for > a little > over a year now. I keep an accurate daily report on his food intake, > behavior, disposition which helps me track down possible causes when > he's > having a bad day. The only thing we've been doing differently this > week is > the ProEFA supplementation. There is a direct correlation here to his > speech > improvements, as far as I can tell. > > My only regret is that I didn't have the $22 to shell out earlier on > to start > on this regimen sooner. > > I will probably write more later today, I still have a couple of > questions > and comments about our earlier discussion of whether or not to cut > down on > the hydrogenated oils. But I just wanted to pass along this great > news. > Thanks to the listowners and CHERAB for pointing me in the right > direction. > > -BJ in polis, MD > > > > Fri Aug 31, 2007 12:57 am > Hanagan hanagan_8@... > ????? > > Hello, > I'm new to this group, and have a few questions..... > > My 2 1/2 year old is showing some signs of apraxia (per speech > therapist). He > has difficulty moving his tongue (up, down, sideways), and often > deletes the > beginning or ending sounds of words. Currently he has about 40 single > syllable > words that he uses spontaneously and clearly (i.e. up, out, work, > eat, knee, > etc....). He has several babble words (mama, dada, wawa) quiet a few > words that > he mimicks or says unclearly. This is actually the result of a recent > verbal > explosion.....He had only a couple of words a month ago. Anyway, I've > been > giving him the fish oil (hence the verbal explosion), and I have a few > questions about it: > > 1. How much fish oil should I be giving him. I'm currently giving him > the > Nordic Naturals Omega 3,6, 9. The dose I'm giving is two or three > capsules a > day. Is this OK?? Should I give him more or less???? The adult > recommended dose > is two caps per day. > > 2. How much vitamin E is suggested? I've given him 1/3 to 1/2 capsule > a few > times (not regularly). > > 3. I've seen some behavioral changes since giving him the > supplements, too. I > don't know if it's the result of the supplements or not, but at first > I saw more > tantrums.....Then he seemed calmer at the park (more attentive to > things/being > more of an observer). This is unusual for he's known as the kid that > doesn't sit > down.....Sometimes he has a " wild " look in his eyes, and it seems that > information is racing through his head. I've just never seen these > behaviors > before and wondered if they're linked to the supplements. I know that > two year > olds experience lots of changes, though!! > > Anyway, he's two and weighs 33 pounds.....I just didn't want to give > him too > much of the supplements and potentially hurt him. As I stated > earlier, I have > seen a remarkable difference in his verbal abilities since adding > them! > > Any advice or suggestions will help. I realize that this information > might be > tucked away on the site already, but I'm terrible with > technology.....and am > currently confused about how to access it. > > Thanks so much, > > > > Fri Sep 15, 2006 5:17 pm > " anncat1996 " anncat1996@... > Re: Question about speech therapy > > > Honestly, I'm not sure what to think about the once a week versus more > so I'll give you my thoughts for both sides and our experience. Take > from it what you will. > > My daughter finally got in with a great SLP in January 2006 at age 2.5 > years. She has lots of training and experience with apraxia and lots > of understanding of SID and autism behavioral issues as well. I think > she really takes into account how to best overall treat any individual > child. > > For most of this year we have only been to see her once a week for 60 > minutes. I asked her about going more times per week and she said her > experience had been that kids this young got burnt-out on speech > therapy if they went several times a week. She recommended therapy > once per week and then us working with her at home. She said she > wanted us to have at least a couple of targeted language times at home > each week. We did see some real progress in this format. Charlotte > was largely non-verbal and really started vocalizing a lot more. This > summer (mid-July) she started a language explosion. We had started 1 > Pro-EFA per day about a month before that so I'm sure that played a > role in the explosion. Truth be told driving distance and cost also > played a role in the decision to have only one time per week, but had > our therapist recommended more we would have done that without a > thought. > > This last month we have started going 2 times per week, but one of > those times is 30 minutes of therapy in the swimming pool (which > Charlotte really responds to). > > Really my bigger concern than only getting therapy one time per week > is if the therapist knows how to work with kids with apraxia. They > need different therapy and can really languish in more traditional > speech therapy. Our therapist through early intervention, while a > nice, good traditional therapist had no idea how to work with > Charlotte's apraxia. > > Wed Sep 13, 2006 1:03 pm > " epoxycozy " epoxycozy@... > Re: ProEFA dosage for 18 month old > > > My son was @22 months and weighed around 21-22 lbs when I started > him on ProEFA. I started with one capsule and had good results > within 10 days (more sounds, more willingness and ability to > imitate) and WOW results within about 6 weeks (more words, 2 > syllable words, and eventually putting 2-3 words together.) > > With 1 capsule I saw no negative effects (BTW, his mild eczema > disappeared as well). > > I waited 5 months and then added another capsule. This time I did > have some mild mushy stools for a few days and about 10 days of > sleep disturbance (refusing naps)and moody and cranky behavior both > of which stopped suddenly after that 10 days. Then we saw another > explosion of speech. Mostly increase in length of speech utterances > (and a short-term decline in articulation..sigh..), starting to sing > some, more imaginative language (talking about the past and future), > and his speech became more conversational. > > I would recommend starting with 1 capsule at first (give in the > morning) and wait for a couple of weeks-1 month just to make sure > that your child doesn't have a negative reaction. If it looks good > I would probably increase to 2 capsules after 2-3 months and then > add the Pro-EPA after another 2-3 months. I tend to go slow on > things and be cautious. > > (Max's Mom, 2.6 suspected oral/verbal apraxia) > > Thu Jul 27, 2006 12:54 am > " anncat1996 " anncat1996@... > Big Changes > > I am trying to be cautiously realistic here, but I had to post about > the changes we have seen in our daughter in the last few days. We > started her on ProEFA 4 weeks ago and I find it hard to believe all of > these changes at the same time are coincidental. > > My daughter has spina bifida and hydrocephalus to complicate her > apraxia. She learned to walk (no braces or anything ) right > around her second birthday. Her gross motor skills have slowly been > developing just have been delayed. Her occupational therapist > commented though that looking back the apraxia has probably > complicated her gross motor skill development as well. I feel > fortunate that we have breastfed for as long as we have (for many > reasons), but I think also all of the DHA and EPA in breastmilk have > really been helpful for her. > > Anyway in the last few days Charlotte has suddenly started saying lots > of words. I mean we've heard her say probably 25 or 30 new > identifiable (by us anyway) words! She already had two words phrases > through her signs and limited (3 word) oral vocabulary and she is now > using 2 word oral phrases quite a bit! She brought me two little > plastic Bs (those cheap plastic magnetic letters) tonight and clearly > said " two Bs. " Then I said " yes 2 Bs, one green and one yellow. " She > said " green, yellow. " Wow! Of course then I screwed it up. She does > not like any recognition of her speech at all, especially positive > reinforcement when she says something. We are extremely careful to > not point it out to her at all or she completely melts down and shuts > down. Well I said " yes, green and yellow " a little too > enthusiastically and she melted down. It was still a fabulous moment > to hear her saying so many things. My husband hears a lot more than I > do as she is much more willing to play around with her speech with > him. He heard it a lot last night, but I didn't hear anything really > until tonight. It was very cool. > > Also, today we went to a playdate and she was climbing things that > really surprised me. Her climbing skills have definitely been slowing > improving, but this seemed like a bigger jump forward to me. Her > self-help skills are also starting to improve in the last couple of > weeks. These are things we've been working on so maybe she's just > getting them figured out, but the timing is really amazing. > > Her speech therapist has commented to me that she thinks Charlotte is > just going to have a language explosion some day when she is able to > get over her anxiety about speech, but I think even she is going to be > a little amazed at how many different words we are hearing this week. > (Not that the therapist will hear any of it I suspect as Charlotte > doesn't speak much at speech, but I can report it to her anyway). > > For anyone who has gotten this far and wants to know we are just > giving her one capsule of the ProEFA each day. She also get a couple > of tablespoons of flax oil every morning, but she's been getting that > for a year at least. > > I know we still have a long row to hoe, but it's nice to really see > some progress. > > ~~~~~~~~~~~~~~end of archives > > ===== > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2007 Report Share Posted November 2, 2007 I agree with Will if your child has not had an evaluation already- which is late. So has he had one yet? Also I'm not sure what you mean by blabber -do you mean jargon? Most children do go through the jargon stage during the first year or so -but apraxia can create developmental lags so perhaps this is a stage your child didn't go through before and is going through it now. If you check the archives -quite a few kids start doing activities that appear to be immature for their age once on the fish oil -even sucking and teething!!! -but it passes. If anyone needs archives on this and can't find them let me know. Here's some more about developmental stages -again with apraxia the kids at times go through these stages a bit late. Better late then never at times -at least most children in this group evolve into vocal communicators! " Hearing children produce " vocal jargon babbling " (meaningless jargon babbling that sound like sentences) at 12-14 months " http://pages.slc.edu/~ebj/IM_97/Lecture13/L13.html Was he pretty quiet (not much or any babble) before fish oils? The part that is a concern is that you appear to have trouble getting his attention. Was he always like this? If a bunch of people are standing around pointing to a plane or a puppy does he look to see what everyone else is looking at? When he is on his own what does he like to play and does he play with his toys appropriately? How is he around other children in groups or one on one? Does he have any friends? Is he in any type of preschool placement/is he in any type of therapy? What do others say about him? ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2007 Report Share Posted November 2, 2007 BJ where have you been?!!! Please do update and let us know how everything is! It always seems like we have a new group so it's awesome to hear from you again!! Hope your days have been and are filled with miracles! ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2007 Report Share Posted November 2, 2007 > > > > Does anyone know what happens in an apraxic child's mind when they > finally > > have an explosion of speech? My son is 4 with PDD NOS and apraxia. > I don't > > understand this speech problem very well, he is highly intelligent > and such a > > good boy, he has lots to say but he just cant. He is making > progress but it is > > so slow. I am just waiting for something spontaneous. He is > getting > > appropriate therapies. Does anyone know as a child gets older do > the chances get > > smaller they will learn speech. Jen > > > > > > > > ************************************** See what's new at > http://www.aol.com > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2007 Report Share Posted November 3, 2007 In order to get out of bed every day I must believe both my kids have treatable conditions. I totally understand you must maintain a greater level of scrutiny with those feelings as a physician. To hear your optimism is great after all you and yours have endured. You have helped me personally so much and you have made it possible for so many of us to ask the right questions and get needed testing. In the end I believe apraxia can be treated. I further believe that you will have a lot to do with it being treated safely. Best wishes and I hope you personally get more answers for your own child on Monday. All these kids are different but everyone's puzzle helps get answers for the affliction as a whole. Best Wishes and God Bless! > > > > > > Does anyone know what happens in an apraxic child's mind when > they > > finally > > > have an explosion of speech? My son is 4 with PDD NOS and > apraxia. > > I don't > > > understand this speech problem very well, he is highly > intelligent > > and such a > > > good boy, he has lots to say but he just cant. He is making > > progress but it is > > > so slow. I am just waiting for something spontaneous. He is > > getting > > > appropriate therapies. Does anyone know as a child gets older do > > the chances get > > > smaller they will learn speech. Jen > > > > > > > > > > > > ************************************** See what's new at > > http://www.aol.com > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2007 Report Share Posted November 3, 2007 It's a good sign that you saw an initial surge. How long did the surge last? What dosage is he on and for how long again? Sometimes you have to increase the dosage a bit or tweak the formula or both when you see the plateau. ===== Quote Link to comment Share on other sites More sharing options...
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