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Re: Thanks & & Everyone

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Thanks & ,

I appreciate it but you know all of you

are all like my family. We have talked, vented, cried, got happy, silly, and discussed almost everything for a long time now. I feel like if I can do anything that might help us as a group I am willing to devote my extra time to do it. I need no thanks, I'm doing it because I care about all of you and I want you all well and pain free. So please encourage each other to participate and e-mail me. The list is growing we want to be there for this doctor. Besides she just got a newer larger laboratory just to research RP. Hang in there, my friends, hopefully one day we will have a cure.

Love you all

Lu

I want to first apologize to all those on digest for not putting just a snippet of the email I am replying to on here, but I felt it VERY important for everyone to read what Lu and wrote here.

Dr. Buckner is doing research specifically on POLYCHONDRITIS. Our disease. our uncommon, rare disease. This is unheard of. There is no money in this disease, yet this wonderful doctor is STILL doing MAJOR research on RP.

PLEASE, consider donating a few vials of blood to help us all, help Dr. Buckner find a CURE for this disease that has already taken many of my/our friends. Please!

I want to also join in thanking Lu for all she is doing to help us and Dr. Buckner find a cure of RP.

W

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Thanks & ,

I appreciate it but you know all of you

are all like my family. We have talked, vented, cried, got happy, silly, and discussed almost everything for a long time now. I feel like if I can do anything that might help us as a group I am willing to devote my extra time to do it. I need no thanks, I'm doing it because I care about all of you and I want you all well and pain free. So please encourage each other to participate and e-mail me. The list is growing we want to be there for this doctor. Besides she just got a newer larger laboratory just to research RP. Hang in there, my friends, hopefully one day we will have a cure.

Love you all

Lu

I want to first apologize to all those on digest for not putting just a snippet of the email I am replying to on here, but I felt it VERY important for everyone to read what Lu and wrote here.

Dr. Buckner is doing research specifically on POLYCHONDRITIS. Our disease. our uncommon, rare disease. This is unheard of. There is no money in this disease, yet this wonderful doctor is STILL doing MAJOR research on RP.

PLEASE, consider donating a few vials of blood to help us all, help Dr. Buckner find a CURE for this disease that has already taken many of my/our friends. Please!

I want to also join in thanking Lu for all she is doing to help us and Dr. Buckner find a cure of RP.

W

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In a message dated 9/14/01 9:12:43 PM Pacific Daylight Time, Lu1953@...

writes:

<< Besides she just got a newer larger laboratory just to research RP.

Hang in there, my friends, hopefully one day we will have a cure.

Love you all

Lu

>>

We will have a cure someday Lu.... we just all need to want it to happen...

Come on guys... Lu is just waiting for your name... Please send it to her and

then when you get the kit.... go out and get the blood taken.... don't let it

set there.... Dr. Buckner has a new lab and is just waiting for us... Lets

show her what t great bunch we are.

hugs

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In a message dated 9/14/01 9:12:43 PM Pacific Daylight Time, Lu1953@...

writes:

<< Besides she just got a newer larger laboratory just to research RP.

Hang in there, my friends, hopefully one day we will have a cure.

Love you all

Lu

>>

We will have a cure someday Lu.... we just all need to want it to happen...

Come on guys... Lu is just waiting for your name... Please send it to her and

then when you get the kit.... go out and get the blood taken.... don't let it

set there.... Dr. Buckner has a new lab and is just waiting for us... Lets

show her what t great bunch we are.

hugs

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