Guest guest Posted January 31, 2008 Report Share Posted January 31, 2008 > The answer to alot of your questions lies in the true mechanism of yeast and why there are problems. If yeast and other foods are allergens - then elimination is the only way to go, and even in small doses, your child will have an inflammatory response. In our house, the cross-contamination of cheese on a spatula that flipped a burger is enough to bring back GI issues for weeks. Rotation of known allergens is just not feasible. Bottom line, we don't understand these mechanisms yet. In our case...my son is outright allergic to yeast and mold. Therefore I suspect that the normal colonies of candida that co-habitate his gut...was enough to trigger chronic inflammation...so when eliminated by nystatin...less inflammation..improved apraxic symptoms. Its like living with a cat when you are allergic to cat dander. Get rid of the cat and your symptoms improve. When exposed to fungus (like the aspergillus in the lipase)...immediate reaction that included changes in behavior (outright autistic behavior that we have NEVER seen in ph before, acute/scary loss of speech and coordination, asthma exacerbation, sudden onset reflux...and ultimately hives. This was an allergic reaction - no doubt about it. It got better on prednisone (also bad for " yeast " - in that it allows it to thrive...however the steroids brought our son back to us). So...seems the anti-inflammatory effect of predniosone was more important than any risk of increased candida. (Not that anyone should want to go out and use prednisone...it has its problems, but is the mainstay of asthma therapy). This is only my personal experience - and only time will tell how many other kids are affected like this. > I skimmed this book last night. It is very good. I had no doubts. > is a dr. with three kids so I doubt she had time to read and > recommend a bad choice. What is great about the book is the recipes > and the way they lay out: this is the kitchen equipment and the food > staples you will need. I could have realy used this when we started. > Still, it is helpful as I tweak diet at this point. > > Some of the recipes are inapplicable as gluten, casein, soy, and rice > are issues for us and we have to go light on corn to get the best > results. However, perhaps if we fully address yeast this may change. > No way to know except to try. > > We have yeast issues. The book, our history, and 's post tell me > that. The extent is another story. The child this book was written > for is much worse off delaywise than we have in this house. BUT my > kids have wierd health stuff so I can't write this off. > > I have plans to seek out mold testing from the allergist for all of > us. > > I am curious about a few things in this book: > > 1) Is nyastatin the cure all he describes? I have read a lot about > yeast and it does not sound that straightforward as it is described > in this book...more of a starting point. > > 2) They tout sunflower and safflower oil. When I made the coconut oil > discovery (I realize allergy prevents some from using this) I read > that coconut oil was best for heating and certain limited olive oils > could be heated but that oxidation was an issue with the rest. In > fact I read that safflower, canola and sunflower oils, the way they > our processed and how they get to us, are rancid by the time we open > the bottle. Anyone know the deal? We had gains using canola oil > heated just the same. So hard to know the truth. Just because I read > it does not make it right. > > 3) He favors elimination rather than rotation. I get why...is there > ever a time that is right for a neurotoxin to enter your mouth? But, > with some things I favor rotation if for no other reason than we live > in a toxic world and that sort of ecercises the body to handle what > is to come. That may be foolish. > > 4) Honey is used a lot in the recipes. Isn't that a yeast feeder? > They actually use clover honey. Perhaps that is different. > > Anyway, just my two cents on a very good book that I'd say was a > necessary read for anyone looking to make any diet change as it is > universally helpful. If anyone has answers or comments, even if it is > to tell me I got a lot wrong, I'd love to hear it. The only way I > learn. > > Thanks! > Liz > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2008 Report Share Posted January 31, 2008 I want to start every post to you with " there are no words. " When I read that book and some of 's info on yeast I saw us in there. In looking at the stages we have needed to go pretty far yet my kids were not as bad off as most I've read about so it is strange, speaking to metabolic or allergy or something. I don't want to run wild with DAN testing. I live in NJ...there is metal everywhere. I have a mold allergy but it seems to only manifest itself in a gut thing. This has been known for years. The improvement in me and the kids long after GFCFSF by simply cooking on coconut oil and rubbing it on feet and hands rivaled Lorenzo's oil. I finally have the courage to test the nursery water. Since fluorine is an allergin I need to get a gauge of exposure and get to the environmental allergist. There is more to our story and both babies in utero were exposed to heavy anesthesia (95% fluorine I think) A DAN might overprescribe Nystatin and I need someone at least familiar with environmental allergins and to address our zinc issue. The DAN I went to, very nice, takes insurance, just did not seem that interested in minerals and I believe zinc to be an issue, particularly with daughter's hair. It is not so obvious though as they never get sick. I am babbling. Bottom line...thankyou! I got a lot of help in there and have a map to start with with a doc who may be able to really help us. Would not have ever known what to read had it not been for you. It also shows that feast without yeast, other than anything I have read, could help people looking at diet. My kids likely need gfcf but not everyone does and the way this book lays it out helps you test that. I will post whatever we learn at the environmental allergist. > > > > The answer to alot of your questions lies in the true mechanism of > yeast and why there are problems. If yeast and other foods are > allergens - then elimination is the only way to go, and even in small > doses, your child will have an inflammatory response. In our house, > the cross-contamination of cheese on a spatula that flipped a burger > is enough to bring back GI issues for weeks. Rotation of known > allergens is just not feasible. Bottom line, we don't understand > these mechanisms yet. In our case...my son is outright allergic to > yeast and mold. Therefore I suspect that the normal colonies of > candida that co-habitate his gut...was enough to trigger chronic > inflammation...so when eliminated by nystatin...less > inflammation..improved apraxic symptoms. Its like living with a cat > when you are allergic to cat dander. Get rid of the cat and your > symptoms improve. When exposed to fungus (like the aspergillus in the > lipase)...immediate reaction that included changes in behavior > (outright autistic behavior that we have NEVER seen in ph before, > acute/scary loss of speech and coordination, asthma exacerbation, > sudden onset reflux...and ultimately hives. This was an allergic > reaction - no doubt about it. It got better on prednisone (also bad > for " yeast " - in that it allows it to thrive...however the steroids > brought our son back to us). So...seems the anti-inflammatory effect > of predniosone was more important than any risk of increased candida. > (Not that anyone should want to go out and use prednisone...it has > its problems, but is the mainstay of asthma therapy). This is only > my personal experience - and only time will tell how many other kids > are affected like this. > > > I skimmed this book last night. It is very good. I had no doubts. > > is a dr. with three kids so I doubt she had time to read > and > > recommend a bad choice. What is great about the book is the recipes > > and the way they lay out: this is the kitchen equipment and the > food > > staples you will need. I could have realy used this when we > started. > > Still, it is helpful as I tweak diet at this point. > > > > Some of the recipes are inapplicable as gluten, casein, soy, and > rice > > are issues for us and we have to go light on corn to get the best > > results. However, perhaps if we fully address yeast this may > change. > > No way to know except to try. > > > > We have yeast issues. The book, our history, and 's post tell > me > > that. The extent is another story. The child this book was written > > for is much worse off delaywise than we have in this house. BUT my > > kids have wierd health stuff so I can't write this off. > > > > I have plans to seek out mold testing from the allergist for all of > > us. > > > > I am curious about a few things in this book: > > > > 1) Is nyastatin the cure all he describes? I have read a lot about > > yeast and it does not sound that straightforward as it is described > > in this book...more of a starting point. > > > > 2) They tout sunflower and safflower oil. When I made the coconut > oil > > discovery (I realize allergy prevents some from using this) I read > > that coconut oil was best for heating and certain limited olive > oils > > could be heated but that oxidation was an issue with the rest. In > > fact I read that safflower, canola and sunflower oils, the way they > > our processed and how they get to us, are rancid by the time we > open > > the bottle. Anyone know the deal? We had gains using canola oil > > heated just the same. So hard to know the truth. Just because I > read > > it does not make it right. > > > > 3) He favors elimination rather than rotation. I get why...is there > > ever a time that is right for a neurotoxin to enter your mouth? > But, > > with some things I favor rotation if for no other reason than we > live > > in a toxic world and that sort of ecercises the body to handle what > > is to come. That may be foolish. > > > > 4) Honey is used a lot in the recipes. Isn't that a yeast feeder? > > They actually use clover honey. Perhaps that is different. > > > > Anyway, just my two cents on a very good book that I'd say was a > > necessary read for anyone looking to make any diet change as it is > > universally helpful. If anyone has answers or comments, even if it > is > > to tell me I got a lot wrong, I'd love to hear it. The only way I > > learn. > > > > Thanks! > > Liz > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2008 Report Share Posted January 31, 2008 My son I think has yeast issues, he has an appt with a DAN Dr in our area but not until June. Can anyone tell me what tests are usually done. Also, my son is 4 and really does not like Dr's. He has few words but understands lots. I know there are ways to prepare a child for an appt, but do DAN Dr's usually require lots of follow up appts???? I don't know what to expect and I am fearful. I am overjoyed also that I finally made the appt and I will know what supplements and what the correct amounts for him are. Thanks Jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2008 Report Share Posted January 31, 2008 Re: Prednisone Interesting info. A few years back one of mymany health things was a bout of scabies after sleeping in a beach bungalow that was, gross. We were all kind of surprised that I got that, and so bad as hubby did not and neither did anyone else in the house share. It was completely debilitating and even when the scabies cleared topically I was not right for a good long while. I almost dropped out of school. At first they misdiagnosed me and gave me prednisone. It did actually give me strength temporarily. I wonder if that fed an ongoing yeast problem I now realize I had at the time on top of this. I always learn so much from your posts. They make me think and revisit a lot. Helps me edit myself by the time I get to the doc. A good thing since I tend to cast very wide nets. > > > > The answer to alot of your questions lies in the true mechanism of > yeast and why there are problems. If yeast and other foods are > allergens - then elimination is the only way to go, and even in small > doses, your child will have an inflammatory response. In our house, > the cross-contamination of cheese on a spatula that flipped a burger > is enough to bring back GI issues for weeks. Rotation of known > allergens is just not feasible. Bottom line, we don't understand > these mechanisms yet. In our case...my son is outright allergic to > yeast and mold. Therefore I suspect that the normal colonies of > candida that co-habitate his gut...was enough to trigger chronic > inflammation...so when eliminated by nystatin...less > inflammation..improved apraxic symptoms. Its like living with a cat > when you are allergic to cat dander. Get rid of the cat and your > symptoms improve. When exposed to fungus (like the aspergillus in the > lipase)...immediate reaction that included changes in behavior > (outright autistic behavior that we have NEVER seen in ph before, > acute/scary loss of speech and coordination, asthma exacerbation, > sudden onset reflux...and ultimately hives. This was an allergic > reaction - no doubt about it. It got better on prednisone (also bad > for " yeast " - in that it allows it to thrive...however the steroids > brought our son back to us). So...seems the anti-inflammatory effect > of predniosone was more important than any risk of increased candida. > (Not that anyone should want to go out and use prednisone...it has > its problems, but is the mainstay of asthma therapy). This is only > my personal experience - and only time will tell how many other kids > are affected like this. > > > I skimmed this book last night. It is very good. I had no doubts. > > is a dr. with three kids so I doubt she had time to read > and > > recommend a bad choice. What is great about the book is the recipes > > and the way they lay out: this is the kitchen equipment and the > food > > staples you will need. I could have realy used this when we > started. > > Still, it is helpful as I tweak diet at this point. > > > > Some of the recipes are inapplicable as gluten, casein, soy, and > rice > > are issues for us and we have to go light on corn to get the best > > results. However, perhaps if we fully address yeast this may > change. > > No way to know except to try. > > > > We have yeast issues. The book, our history, and 's post tell > me > > that. The extent is another story. The child this book was written > > for is much worse off delaywise than we have in this house. BUT my > > kids have wierd health stuff so I can't write this off. > > > > I have plans to seek out mold testing from the allergist for all of > > us. > > > > I am curious about a few things in this book: > > > > 1) Is nyastatin the cure all he describes? I have read a lot about > > yeast and it does not sound that straightforward as it is described > > in this book...more of a starting point. > > > > 2) They tout sunflower and safflower oil. When I made the coconut > oil > > discovery (I realize allergy prevents some from using this) I read > > that coconut oil was best for heating and certain limited olive > oils > > could be heated but that oxidation was an issue with the rest. In > > fact I read that safflower, canola and sunflower oils, the way they > > our processed and how they get to us, are rancid by the time we > open > > the bottle. Anyone know the deal? We had gains using canola oil > > heated just the same. So hard to know the truth. Just because I > read > > it does not make it right. > > > > 3) He favors elimination rather than rotation. I get why...is there > > ever a time that is right for a neurotoxin to enter your mouth? > But, > > with some things I favor rotation if for no other reason than we > live > > in a toxic world and that sort of ecercises the body to handle what > > is to come. That may be foolish. > > > > 4) Honey is used a lot in the recipes. Isn't that a yeast feeder? > > They actually use clover honey. Perhaps that is different. > > > > Anyway, just my two cents on a very good book that I'd say was a > > necessary read for anyone looking to make any diet change as it is > > universally helpful. If anyone has answers or comments, even if it > is > > to tell me I got a lot wrong, I'd love to hear it. The only way I > > learn. > > > > Thanks! > > Liz > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2008 Report Share Posted January 31, 2008 I can't stop replying to this. Sorry. Re: brought our son back to us. I have so been there at least twice, if not 4 times. It is a hell no one should ever have to go through. I am glad you got him back and found this info. Thank you for using that experience and helping us all. > > > > The answer to alot of your questions lies in the true mechanism of > yeast and why there are problems. If yeast and other foods are > allergens - then elimination is the only way to go, and even in small > doses, your child will have an inflammatory response. In our house, > the cross-contamination of cheese on a spatula that flipped a burger > is enough to bring back GI issues for weeks. Rotation of known > allergens is just not feasible. Bottom line, we don't understand > these mechanisms yet. In our case...my son is outright allergic to > yeast and mold. Therefore I suspect that the normal colonies of > candida that co-habitate his gut...was enough to trigger chronic > inflammation...so when eliminated by nystatin...less > inflammation..improved apraxic symptoms. Its like living with a cat > when you are allergic to cat dander. Get rid of the cat and your > symptoms improve. When exposed to fungus (like the aspergillus in the > lipase)...immediate reaction that included changes in behavior > (outright autistic behavior that we have NEVER seen in ph before, > acute/scary loss of speech and coordination, asthma exacerbation, > sudden onset reflux...and ultimately hives. This was an allergic > reaction - no doubt about it. It got better on prednisone (also bad > for " yeast " - in that it allows it to thrive...however the steroids > brought our son back to us). So...seems the anti-inflammatory effect > of predniosone was more important than any risk of increased candida. > (Not that anyone should want to go out and use prednisone...it has > its problems, but is the mainstay of asthma therapy). This is only > my personal experience - and only time will tell how many other kids > are affected like this. > > > I skimmed this book last night. It is very good. I had no doubts. > > is a dr. with three kids so I doubt she had time to read > and > > recommend a bad choice. What is great about the book is the recipes > > and the way they lay out: this is the kitchen equipment and the > food > > staples you will need. I could have realy used this when we > started. > > Still, it is helpful as I tweak diet at this point. > > > > Some of the recipes are inapplicable as gluten, casein, soy, and > rice > > are issues for us and we have to go light on corn to get the best > > results. However, perhaps if we fully address yeast this may > change. > > No way to know except to try. > > > > We have yeast issues. The book, our history, and 's post tell > me > > that. The extent is another story. The child this book was written > > for is much worse off delaywise than we have in this house. BUT my > > kids have wierd health stuff so I can't write this off. > > > > I have plans to seek out mold testing from the allergist for all of > > us. > > > > I am curious about a few things in this book: > > > > 1) Is nyastatin the cure all he describes? I have read a lot about > > yeast and it does not sound that straightforward as it is described > > in this book...more of a starting point. > > > > 2) They tout sunflower and safflower oil. When I made the coconut > oil > > discovery (I realize allergy prevents some from using this) I read > > that coconut oil was best for heating and certain limited olive > oils > > could be heated but that oxidation was an issue with the rest. In > > fact I read that safflower, canola and sunflower oils, the way they > > our processed and how they get to us, are rancid by the time we > open > > the bottle. Anyone know the deal? We had gains using canola oil > > heated just the same. So hard to know the truth. Just because I > read > > it does not make it right. > > > > 3) He favors elimination rather than rotation. I get why...is there > > ever a time that is right for a neurotoxin to enter your mouth? > But, > > with some things I favor rotation if for no other reason than we > live > > in a toxic world and that sort of ecercises the body to handle what > > is to come. That may be foolish. > > > > 4) Honey is used a lot in the recipes. Isn't that a yeast feeder? > > They actually use clover honey. Perhaps that is different. > > > > Anyway, just my two cents on a very good book that I'd say was a > > necessary read for anyone looking to make any diet change as it is > > universally helpful. If anyone has answers or comments, even if it > is > > to tell me I got a lot wrong, I'd love to hear it. The only way I > > learn. > > > > Thanks! > > Liz > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2008 Report Share Posted February 1, 2008 So far, we go back to our DAN every six weeks, although I'm not entirely sure why. We have yet to have follow-up testing to see if what we are doing is working. Each visit, they tweak our diet and supplements and add new ones. We've only done urine and stool tests so far, but there are also blood and hair tests that might be done. To prepare: --Make sure you have all of your previous labs and all of your school and therapy reports with you. Then if they ask you a question, you'll have the answer at your fingertips. I have a giant binder with tabs to keep it all organized. Going forward, always get a copy of labs done by ANY physician, so you personally have a good idea of where he is at a given time, and you can discuss them with the DAN. If you can, get copies all previously-done testing. --Start cleaning up your fridge and pantry. All DANs will tell you to eliminate artificial colors, flavors, and preservatives, so you might as well start that process now. Most will want you to at least try the GFCFSF diet, so start trying subsitute products for mandatory foods now, so that you'll be prepared when you go all-out. You might want to try out some of the natural personal care and cleaning products out there as well. And they hate sugar, so start reducing consumption as best you can (easier said than done). --Start introducing more veggies, beans, nuts (if definitely not allergic) and unprocessed meats (if you eat meat). To some degree, these are the foods that are permitted on most diets, and kids resist many of them. If you can add even one of eat to your child's diet, it will go a long way when you try out a restricted diet. Think about the times it's tough to live with out gluten and dairy, and slowly try out new stuff. A lot of people have a hard time packing school lunches, for example. (Not us, as my kids are big fruit-eaters, but for some, this is huge. FYI -- cantaloupe, honeydew, strawberries, grapes and apple slices all pack well, as do rolled-up slices of deli meats and leftover chicken. Enjoy Life has some good granola bars and snickerdoodle cookies, but they do have some sugar.) Hope that helps! in NJ --Closer to your appointment, you might want to keep a food diary for a few weeks, with notations for potty habits, behavior, developmental spurts or regressions, etc. That goes a long way toward identifying problem foods. --If you think metals are a problem, don't get a haircut close to your appointment day. They might want to send hair in for testing, and they need a certain amount. > > My son I think has yeast issues, he has an appt with a DAN Dr in our area > but not until June. Can anyone tell me what tests are usually done. Also, my > son is 4 and really does not like Dr's. He has few words but understands lots. > I know there are ways to prepare a child for an appt, but do DAN Dr's > usually require lots of follow up appts???? I don't know what to expect and I am > fearful. I am overjoyed also that I finally made the appt and I will know > what supplements and what the correct amounts for him are. Thanks Jen > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2008 Report Share Posted February 1, 2008 Buy the book now and prepare to discuss it with the dan and/or your regular pediatrician. > > My son I think has yeast issues, he has an appt with a DAN Dr in our area > but not until June. Can anyone tell me what tests are usually done. Also, my > son is 4 and really does not like Dr's. He has few words but understands lots. > I know there are ways to prepare a child for an appt, but do DAN Dr's > usually require lots of follow up appts???? I don't know what to expect and I am > fearful. I am overjoyed also that I finally made the appt and I will know > what supplements and what the correct amounts for him are. Thanks Jen > Quote Link to comment Share on other sites More sharing options...
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