Re: March issue of Parents magazine Apraxia Article

[Guest guest]

I noticed that also-- was a little disappointed, but thought perhaps there

was a shorter version for the website than the written article???

I have to say that I am THRILLED to even have it in there in the first

place-- it's a great thing to have the " unknown diagnoses " in an article, and on

the other hand-- it's too bad that they didn't give MORE information to

actually alert parents of the " warning signals " etc

becky

**************Ideas to please picky eaters. Watch video on AOL Living.

(http://living.aol.com/video/how-to-please-your-picky-eater/rachel-campos-duffy/

2050827?NCID=aolcmp00300000002598)

[Guest guest]

Is this all there is?:

http://www.parents.com/parents/story.jsp?

storyid=/templatedata/ab/story/data/1201291737124.xml

What Is Childhood Apraxia of Speech?

By Norine Dworkin-Mc

Rated Not yet rated

Rate This

How to tell if your child has a speech delay or childhood apraxia of

speech?

Kids usually start talking a blue streak by 18 to 24 months. But if

your child is having more than the usual trouble getting the words

out, ask his doctor about childhood apraxia of speech.

Different from a speech delay (where kids are just slow to reach

language milestones), this is a condition in which a child can't

coordinate the parts of her mouth to form words.

" The thought is there, but the message doesn't get to the mouth, "

says Doelling, a speech pathologist at Nationwide

Children's Hospital, in Columbus, Ohio.

The good news is that with early speech therapy, most kids go on to

be perfectly fine, says Doelling. For more information, visit

asha.org.

. Used with permission from the February 2008 issue

of American Baby magazine.

All content on this Web site, including medical opinion and any other

health-related information, is for informational purposes only and

should not be considered to be a specific diagnosis or treatment plan

for any individual situation. Use of this site and the information

contained herein does not create a doctor-patient relationship.

Always seek the direct advice of your own doctor in connection with

any questions or issues you may have regarding your own health or the

health of others.

>

> I have been on this group for a few years! My daughter is now 7 -

> she was dx with apraxia at 18 months by her neurologist! Very

young

> for the dx - and there were skeptics - Kaufman met her at 2 -

> and told me to go home and hug my neurologist because he was right

on

> the money. I called one day after spending many nights

> researching apraxia. What the heck was that? And trying to

> explain it to family and friends was so difficult because no one

had

> ever heard of it. Even our pediatrician was clueless.

>

> Well, folks - our day has come! Just received the March 2008 issue

> of Parents magazine! Front cover -- " Does Your Child Have a

Speech

> Delay? " Turn to page 42 and guess what -- the article is all

about

> APRAXIA! Finally!!!!!

>

> For the new members -- be patient. I know that is hard to digest

> and accept when your child is newly dx. We " older " members have

> been there and feel your pain, sadness, frustration.

>

> My daughter has made tremendous progress. She did was almost

> completely nonverbal until 3. She no longer receives private

speech

> therapy -- just what she receives in school. She is in 1st grade,

> learning support for math and reading and mainstreamed for other

> classes! I no longer have to interpret for her. She is a very

> bright little girl!

>

> There is hope and now we are getting more attention with this

article.

>

> Best to all -

>

> Kim Vallin

> Mom to Blythe (for those old members)

>

[Guest guest]

That's wonderful news! Regarding the neurologist, was she able to do

anything for you besides dx the problem? I'm seeing all the signs of

apraxia in my 19 month old, and I'm mulling over which medical

doctors to see. never saw a neurologist, but other doctors

weren't terribly helpful. If I am already aware of apraxia, is there

another reason to see a neurologist?

in NJ

>

> I have been on this group for a few years! My daughter is now 7 -

> she was dx with apraxia at 18 months by her neurologist! Very

young

> for the dx - and there were skeptics - Kaufman met her at 2 -

> and told me to go home and hug my neurologist because he was right

on

> the money. I called one day after spending many nights

> researching apraxia. What the heck was that? And trying to

> explain it to family and friends was so difficult because no one

had

> ever heard of it. Even our pediatrician was clueless.

>

> Well, folks - our day has come! Just received the March 2008 issue

> of Parents magazine! Front cover -- " Does Your Child Have a

Speech

> Delay? " Turn to page 42 and guess what -- the article is all

about

> APRAXIA! Finally!!!!!

>

> For the new members -- be patient. I know that is hard to digest

> and accept when your child is newly dx. We " older " members have

> been there and feel your pain, sadness, frustration.

>

> My daughter has made tremendous progress. She did was almost

> completely nonverbal until 3. She no longer receives private

speech

> therapy -- just what she receives in school. She is in 1st grade,

> learning support for math and reading and mainstreamed for other

> classes! I no longer have to interpret for her. She is a very

> bright little girl!

>

> There is hope and now we are getting more attention with this

article.

>

> Best to all -

>

> Kim Vallin

> Mom to Blythe (for those old members)

>

[Guest guest]

Thanks for the inspiration Kim! Your daughter is one lucky little

girl. So glad you helped her find her voice and her way so that the

world could see her as she is in all her glory.

>

> I have been on this group for a few years! My daughter is now 7 -

> she was dx with apraxia at 18 months by her neurologist! Very

young

> for the dx - and there were skeptics - Kaufman met her at 2 -

> and told me to go home and hug my neurologist because he was right

on

> the money. I called one day after spending many nights

> researching apraxia. What the heck was that? And trying to

> explain it to family and friends was so difficult because no one

had

> ever heard of it. Even our pediatrician was clueless.

>

> Well, folks - our day has come! Just received the March 2008 issue

> of Parents magazine! Front cover -- " Does Your Child Have a

Speech

> Delay? " Turn to page 42 and guess what -- the article is all

about

> APRAXIA! Finally!!!!!

>

> For the new members -- be patient. I know that is hard to digest

> and accept when your child is newly dx. We " older " members have

> been there and feel your pain, sadness, frustration.

>

> My daughter has made tremendous progress. She did was almost

> completely nonverbal until 3. She no longer receives private

speech

> therapy -- just what she receives in school. She is in 1st grade,

> learning support for math and reading and mainstreamed for other

> classes! I no longer have to interpret for her. She is a very

> bright little girl!

>

> There is hope and now we are getting more attention with this

article.

>

> Best to all -

>

> Kim Vallin

> Mom to Blythe (for those old members)

>

[Guest guest]

Please don't get me wrong, it is fabulous to see a mainstream magazine covering

apraxia, but is it really referred to as " Childhood " Apraxia of speech? See,

that was always my gripe about calling it a speech delay - it hints that the

child will " catch up. " If apraxia effects only children, why are there adults

who also suffer the effects of apraxia? Does a child with apraxia of speech

then become a person who has Adult apraxia of speech? Is that different from

childhood apraxia of speech? She also made it sound like it is an easy thing to

overcome with a little speech therapy when we as parents know it is not that

simple. It is too bad she didn't do any interviews with parents or teen/adults

with apraxia. It just irks me because it is one more reason for insurance

companies/school districts to not give services. Maybe I'm just on a rant, I

will go find my happy place

Barbara

[Guest guest]

awesome, can't wait to read it. and i am smiling for you and your

daughter......sabrina

khvallin <kimmiev@...> wrote: I have been on this group for a

few years! My daughter is now 7 -

she was dx with apraxia at 18 months by her neurologist! Very young

for the dx - and there were skeptics - Kaufman met her at 2 -

and told me to go home and hug my neurologist because he was right on

the money. I called one day after spending many nights

researching apraxia. What the heck was that? And trying to

explain it to family and friends was so difficult because no one had

ever heard of it. Even our pediatrician was clueless.

Well, folks - our day has come! Just received the March 2008 issue

of Parents magazine! Front cover -- " Does Your Child Have a Speech

Delay? " Turn to page 42 and guess what -- the article is all about

APRAXIA! Finally!!!!!

For the new members -- be patient. I know that is hard to digest

and accept when your child is newly dx. We " older " members have

been there and feel your pain, sadness, frustration.

My daughter has made tremendous progress. She did was almost

completely nonverbal until 3. She no longer receives private speech

therapy -- just what she receives in school. She is in 1st grade,

learning support for math and reading and mainstreamed for other

classes! I no longer have to interpret for her. She is a very

bright little girl!

There is hope and now we are getting more attention with this article.

Best to all -

Kim Vallin

Mom to Blythe (for those old members)

---------------------------------

Never miss a thing. Make your homepage.

[Guest guest]

Barbara,

The frustration of getting services for older kids is never-ending. You fight

and fight for a teeeny bit of services. Before you know it, they end and then

you are back to square one begging, pleading, basically humiliating yourself as

well as exhausting yourself silly with phone calls, meetings and huge brick

walls! I remember in grade 2, there was a 3 year wait for OT services! I

accused the school board of trying to out-wait my child; he had been approved

for funding but denied actual services due to a wait-list!

After threatening to go to the media, they gave me my OT but that was the last

time we ever saw system funding for dyspraxia. We continued to get SLP until

the end of grade 6 and that is no more as well. Fighting for services can be a

personal nightmare..... so I am right there with you on that vent! You were

actually remarkably polite. I have a few choice expletives for those who have

figured out to permanently hinder and destroy the lives of the kids who need

therapy..... and they are extremely unladylike!

The system knows how to exhaust you silly until you finally give up pestering

them..... at least, that is the way it is here in Canada!

Janice

Mother of Mark, 13

[sPAM]Re: [ ] Re: March issue of Parents magazine

Apraxia Article

Please don't get me wrong, it is fabulous to see a mainstream magazine

covering apraxia, but is it really referred to as " Childhood " Apraxia of speech?

See, that was always my gripe about calling it a speech delay - it hints that

the child will " catch up. " If apraxia effects only children, why are there

adults who also suffer the effects of apraxia? Does a child with apraxia of

speech then become a person who has Adult apraxia of speech? Is that different

from childhood apraxia of speech? She also made it sound like it is an easy

thing to overcome with a little speech therapy when we as parents know it is not

that simple. It is too bad she didn't do any interviews with parents or

teen/adults with apraxia. It just irks me because it is one more reason for

insurance companies/school districts to not give services. Maybe I'm just on a

rant, I will go find my happy place

Barbara

[Guest guest]

Barbara -

I agree that the article was not the " best " , but at least we got some

recognition and that's what I am happy about. I don't think - it

specifically said Childhood Apraxia of Speech in the article -- just

apraxia. And yes, it irks me too that anyone calls it that and when

they do I very quickly correct them.

I am just happy to see an article about apraxia in a mainstream

magazine that perhaps can enlighten our friends, families, insurance

companies, school districts and medical professionals. I also hope

it can provide some information for those parents who started out

just like we all did. The more information that we can get out into

the world about apraxia perhaps the more understanding everyone will

have that it is NOT just a childhood thing.

Also, I want to let you know while my daughter was severe - we did

extensive private speech therapy as well as early intervention

program starting at 12 months. She has made such tremendous

progress; however, her speech, at times, is hard to understand.

Will she ever talk like me? I don't know - I hope and pray - but I

will continue to help her reach her potential. We are happy and

proud of all the progress she has made.

I am just grateful that " apraxia " is getting out there to individuals

who don't know about it first hand!

best,

Kim

>

> Please don't get me wrong, it is fabulous to see a mainstream

magazine covering apraxia, but is it really referred to

as " Childhood " Apraxia of speech? See, that was always my gripe

about calling it a speech delay - it hints that the child will " catch

up. " If apraxia effects only children, why are there adults who also

suffer the effects of apraxia? Does a child with apraxia of speech

then become a person who has Adult apraxia of speech? Is that

different from childhood apraxia of speech? She also made it sound

[Guest guest]

I always thought it was referred to as Childhood Apraxia of speech to

distibguish it from adult stroke victims but you are so right in that

no matter why it does imply growing out of it and that is not the

case typically. As for your rant, rant away. I hear you:)

>

> Please don't get me wrong, it is fabulous to see a mainstream

magazine covering apraxia, but is it really referred to

as " Childhood " Apraxia of speech? See, that was always my gripe

about calling it a speech delay - it hints that the child will " catch

up. " If apraxia effects only children, why are there adults who also

suffer the effects of apraxia? Does a child with apraxia of speech

then become a person who has Adult apraxia of speech? Is that

different from childhood apraxia of speech? She also made it sound

like it is an easy thing to overcome with a little speech therapy

when we as parents know it is not that simple. It is too bad she

didn't do any interviews with parents or teen/adults with apraxia.

It just irks me because it is one more reason for insurance

companies/school districts to not give services. Maybe I'm just on a

rant, I will go find my happy place

>

> Barbara

>

[Guest guest]

It's the same as Juvenile Diabetes vs. Type II. Tyler has

the former, and she obvious not a juvenile anymore. Apraxia has

always been a bad name for this disorder, since it was basically

borrowed from the stroke patients.

in NJ

> >

> > Please don't get me wrong, it is fabulous to see a mainstream

> magazine covering apraxia, but is it really referred to

> as " Childhood " Apraxia of speech? See, that was always my gripe

> about calling it a speech delay - it hints that the child

will " catch

> up. " If apraxia effects only children, why are there adults who

also

> suffer the effects of apraxia? Does a child with apraxia of speech

> then become a person who has Adult apraxia of speech? Is that

> different from childhood apraxia of speech? She also made it sound

> like it is an easy thing to overcome with a little speech therapy

> when we as parents know it is not that simple. It is too bad she

> didn't do any interviews with parents or teen/adults with apraxia.

> It just irks me because it is one more reason for insurance

> companies/school districts to not give services. Maybe I'm just on

a

> rant, I will go find my happy place

> >

> > Barbara

> >

>

[Guest guest]

Kim,

That is fantastic about your daughter's progress! I always try and take a

moment to look how far we have come when I get frustrated with where we are at

and it always brightens my spirit and fills me with pride at how strong my

daughter is!

I am also excited to see the mainstream article. I guess I just have to learn

to be patient. I want it all out NOW...LOL I have to remember just like our

children's progress at times, awareness will come in baby steps.

Barbara

[ ] Re: March issue of Parents magazine Apraxia

Article

Barbara -

I agree that the article was not the " best " , but at least we got some

recognition and that's what I am happy about. I don't think - it

specifically said Childhood Apraxia of Speech in the article -- just

apraxia. And yes, it irks me too that anyone calls it that and when

they do I very quickly correct them.

I am just happy to see an article about apraxia in a mainstream

magazine that perhaps can enlighten our friends, families, insurance

companies, school districts and medical professionals. I also hope

it can provide some information for those parents who started out

just like we all did. The more information that we can get out into

the world about apraxia perhaps the more understanding everyone will

have that it is NOT just a childhood thing.

Also, I want to let you know while my daughter was severe - we did

extensive private speech therapy as well as early intervention

program starting at 12 months. She has made such tremendous

progress; however, her speech, at times, is hard to understand.

Will she ever talk like me? I don't know - I hope and pray - but I

will continue to help her reach her potential. We are happy and

proud of all the progress she has made.

I am just grateful that " apraxia " is getting out there to individuals

who don't know about it first hand!

best,

Kim

--- In , " Barbara Eccleston "

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