Allergic to Cheese? Please Advice

[Guest guest]

Hi all,

Please I will need advice on this. I have noticed that whenever my son eats

cheese, he passes a lot of gas with a horrible smell. (The kind of smell that

will want to make you leave the room - I'm sorry). I had stopped giving him

gold fish because it was really bad whenever he ate it. I had to stop him also

on Vitamin E - he had the same issue while on it.

Could it be that he is allergic to diary products? I am already planning to

See a GI very soon once I can get a referral from his peds.

His bowel movement is fine though, no loose stools, no constipation, pretty

normal.

Please advice.

Thanks,

Jola

(That if you confess with your mouth, " Jesus is Lord, " and believe in your heart

that God raised him from the dead, you will be saved - Romans 10:9)

________________________________________________________________________________\

____

Pinpoint customers who are looking for what you sell.

http://searchmarketing./

[Guest guest]

Mark has terrible gas with dairy and also extremely foul smelling breath. This

was not always the case but worsened with age. Lose the dairy!

Janice

[sPAM] [ ] Allergic to Cheese? Please Advice

Hi all,

Please I will need advice on this. I have noticed that whenever my son eats

cheese, he passes a lot of gas with a horrible smell. (The kind of smell that

will want to make you leave the room - I'm sorry). I had stopped giving him gold

fish because it was really bad whenever he ate it. I had to stop him also on

Vitamin E - he had the same issue while on it.

Could it be that he is allergic to diary products? I am already planning to

See a GI very soon once I can get a referral from his peds.

His bowel movement is fine though, no loose stools, no constipation, pretty

normal.

Please advice.

Thanks,

Jola

(That if you confess with your mouth, " Jesus is Lord, " and believe in your

heart that God raised him from the dead, you will be saved - Romans 10:9)

__________________________________________________________

Pinpoint customers who are looking for what you sell.

http://searchmarketing./

[Guest guest]

Sounds like our life before dairy free. It may be the casein in the milk

and the soy in the E. They are similar and can cause similar effects. I

am still looking for a soy-free E w/o gluten.

Ben & Jola Obire wrote:

> Hi all,

>

> Please I will need advice on this. I have noticed that whenever my son

> eats cheese, he passes a lot of gas with a horrible smell. (The kind

> of smell that will want to make you leave the room - I'm sorry). I had

> stopped giving him gold fish because it was really bad whenever he ate

> it. I had to stop him also on Vitamin E - he had the same issue while

> on it.

>

> Could it be that he is allergic to diary products? I am already

> planning to See a GI very soon once I can get a referral from his peds.

>

> His bowel movement is fine though, no loose stools, no constipation,

> pretty normal.

>

> Please advice.

>

> Thanks,

> Jola

>

> (That if you confess with your mouth, " Jesus is Lord, " and believe in

> your heart that God raised him from the dead, you will be saved -

> Romans 10:9)

>

> __________________________________________________________

> Pinpoint customers who are looking for what you sell.

> http://searchmarketing./ <http://searchmarketing./>

>

>

[Guest guest]

Hi Janice,

Thanks for your response. Are you saying that he has to be completely off diary

products like 2% milk, yogurt? If you say 100% completely off, what is the

substitute? Please advice.

Jola

(That if you confess with your mouth, " Jesus is Lord, " and believe in your heart

that God raised him from the dead, you will be saved - Romans 10:9)

[sPAM] [childrensapraxiane t] Allergic to Cheese? Please Advice

Hi all,

Please I will need advice on this. I have noticed that whenever my son eats

cheese, he passes a lot of gas with a horrible smell. (The kind of smell that

will want to make you leave the room - I'm sorry). I had stopped giving him gold

fish because it was really bad whenever he ate it. I had to stop him also on

Vitamin E - he had the same issue while on it.

Could it be that he is allergic to diary products? I am already planning to See

a GI very soon once I can get a referral from his peds.

His bowel movement is fine though, no loose stools, no constipation, pretty

normal.

Please advice.

Thanks,

Jola

(That if you confess with your mouth, " Jesus is Lord, " and believe in your heart

that God raised him from the dead, you will be saved - Romans 10:9)

[Guest guest]

Jola I hope you are also discussing this with your child's ped. I'm sure

Janice is just sharing and doesn't want to advice you, someone she

doesn't know, to eliminate milk in your son's diet over a grouplist! Perhaps

your child

is lactose intolerant, perhaps not -but find out -there are ways to

test for it. Be aware that " in addition to calcium, dairy products

provide us with other nutrients that are critical to our health,

which include:

high quality protein

phosphorus

potassium

riboflavin

vitamin B12

vitamin A

magnesium

Vitamin B6

thiamin

Vitamin D

niacin (Skolnik, 2000; National Dairy Council, 2001a).

And hope that " kale, turnip greens, oysters, and salmon with bones "

doesn't make his breath stink! )

Getting Enough Calcium and Other Nutrients

People intolerant of dairy products must find some way to replace the

calcium and other nutrients lost by not ingesting dairy products.

While many nondairy foods are high in calcium, such as many green

vegetables and fish with soft, edible bones, getting enough calcium

with no dairy in the diet is very difficult. Further, maintaining an

adequate intake of calcium without dairy requires substantial

nutritional knowledge. For example, while some vegetables are high in

calcium such as Swiss chard, spinach, and rhubarb, the calcium in

them cannot be utilized by the body. These products contain

substances called oxalates, which stop calcium absorption (National

Institute of Diabetes and Digestive and Kidney Diseases, 1998a).

Here is a sample list of alternative food sources of calcium:

broccoli

Chinese cabbage (bok choy)

kale

turnip greens

oysters

salmon with bones

sardines

shrimp

tofu

molasses.

It is also important to note that although these foods are somewhat

calcium-rich, it is very difficult to get enough calcium through

these sources. A cup of milk has 300mg of calcium and a cup of yogurt

400mg; to equal that, you would need to eat approximately 3 cups of

cooked broccoli or 2 cups of cooked collard greens.

more on lactose intolerance here:

http://fcs.tamu.edu/health/health_education_rural_outreach/Health_Hints/2001/sep\

tember/september-2001.php#section1

Of course there are conditions where food causes one to stink -the

following is very rare:

Pediatric Database (PEDBASE)

Discipline: MET

Last Updated: 2/05/98

TRIMETHYLAMINURIA

DEFINITION:

An inborn error of glycine metabolism characterized by elevated

levels of trimethylamine resulting in a prominent odour of rotting

fish.

EPIDEMIOLOGY:

incidence: rare, over 18 cases reported

also called Fish Odor Syndrome, Stale Fish Syndrome... "

http://www.icondata.com/health/pedbase/files/TRIMETHY.HTM

If your child does suffer from this -here is a very child friendly

way to break it to them (and keep them away from all the foods they

suggest!!)

" Sometimes I smell like a fish

Dear Dr. Zebra: I wash all the time, but the other kids say I stink

like rotten fish. They make up rhymes about me and nobody will eat

lunch with me. Nobody will sit beside me on the bus. It makes me

cry. I take baths all the time. I used to scrub myself with a scrub

brush until my mother found out. Sometimes it's okay, but then I

stink again. I cry a lot, because nothing helps. Even my grandma

says I don't wash right. Sometimes I would like to crawl under my

bed and never come out. What can I do?

Please don't use my real name.

" Hal " from Denmark, South Carolina

Cheer up, Hal--I am almost certain the problem is something you eat.

If that's right, the smell will go away as soon as you stop eating

those foods.

To find out, your doctor should test you for trimethylaminuria,

which is a long way to say that when you eat fish, eggs, liver,

kidney, or soybeans, your body does not digest these things quite

the way other bodies do. These foods have a chemical called choline

(say it like KO-leen), which germs in the gut digest into trimeth-

ylamines (just call them TMA). TMA smells fishy--very fishy, in

fact.

For most people that fishy smell doesn't matter because their body

turns TMA into something else, TMA oxide, which does not smell at

all. But in people with trimethylaminuria, their bodies cannot

change the TMA. So the TMA comes out in their sweat, urine, and

breath, and no matter how much these people scrub, the TMA makes

them smelly. Having this problem does not make people sick in any

way, but it certainly is embarrassing.

You say that sometimes the fishy smell goes away, which makes me

think that if you stay away from foods with choline, you'll be fine.

The worst foods for you would be fish, eggs, liver, and kidney.

Avoid them. If that's not enough, then you should also stay away

from soybeans, peas, and mayonnaise. (Think of that--a doctor's

excuse not to eat liver and tofu!)

Eggs, soybeans, and mayonnaise can be hard to avoid, because they

are part of many packaged foods. At first, you'll have to think a

lot about things like whether a Big Mac has mayonnaise (it does).

You and your family will have to read the labels on packages very

carefully. But you'll soon learn what you can and cannot eat.

This diet is a pain, there's no doubt about that. But it's much less

of a pain than smelling like rotten fish. "

http://www.jhu.edu/~jhumag/496web/derzebra.html

=====

[Guest guest]

, I do not believe most pediatricians are going to recommend going dairy

free. I say

this because my pediatrician doesn't really seem to believe there is a

connection between

dairy and apraxia. He doesn't even support testing for milk allergy, because my

child has

no stomach issues. However, I also get the " blank stare " when I speak about

fish oil and

apraxia, and I haven't yet disclosed exactly how much fish oil I'm giving.

I also am thinking there is a difference between milk allergy and lactose

intolerance? I

think -- and I could be wrong because I am just starting to look into this --

the people on

this board believe their children have a milk allergy/sensitivity. I think you

bring up a

great question though -- if you test for gluten or milk allergy, and test

negative, does that

mean going gluten or casein free is not going to help.

On the Oprah show, the mom said he son was tested, and the test showed he was

not

sensitive to gluten, but she " had " to take him off it to get the progress she

did.

It is confusing. I really like my dairy, but I do want to do everything

necessary to help my

child.

>

> Jola I hope you are also discussing this with your child's ped. I'm sure

> Janice is just sharing and doesn't want to advice you, someone she

> doesn't know, to eliminate milk in your son's diet over a grouplist! Perhaps

your child

> is lactose intolerant, perhaps not -but find out -there are ways to

> test for it. Be aware that " in addition to calcium, dairy products

> provide us with other nutrients that are critical to our health,

> which include:

>

> high quality protein

> phosphorus

> potassium

> riboflavin

> vitamin B12

> vitamin A

> magnesium

> Vitamin B6

> thiamin

> Vitamin D

> niacin (Skolnik, 2000; National Dairy Council, 2001a).

>

> And hope that " kale, turnip greens, oysters, and salmon with bones "

> doesn't make his breath stink! )

>

>

> Getting Enough Calcium and Other Nutrients

> People intolerant of dairy products must find some way to replace the

> calcium and other nutrients lost by not ingesting dairy products.

> While many nondairy foods are high in calcium, such as many green

> vegetables and fish with soft, edible bones, getting enough calcium

> with no dairy in the diet is very difficult. Further, maintaining an

> adequate intake of calcium without dairy requires substantial

> nutritional knowledge. For example, while some vegetables are high in

> calcium such as Swiss chard, spinach, and rhubarb, the calcium in

> them cannot be utilized by the body. These products contain

> substances called oxalates, which stop calcium absorption (National

> Institute of Diabetes and Digestive and Kidney Diseases, 1998a).

>

> Here is a sample list of alternative food sources of calcium:

>

> broccoli

> Chinese cabbage (bok choy)

> kale

> turnip greens

> oysters

> salmon with bones

> sardines

> shrimp

> tofu

> molasses.

> It is also important to note that although these foods are somewhat

> calcium-rich, it is very difficult to get enough calcium through

> these sources. A cup of milk has 300mg of calcium and a cup of yogurt

> 400mg; to equal that, you would need to eat approximately 3 cups of

> cooked broccoli or 2 cups of cooked collard greens.

>

>

> more on lactose intolerance here:

> http://fcs.tamu.edu/health/health_education_rural_outreach/Health_Hints/2001/

september/september-2001.php#section1

>

> Of course there are conditions where food causes one to stink -the

> following is very rare:

>

> Pediatric Database (PEDBASE)

> Discipline: MET

> Last Updated: 2/05/98

> TRIMETHYLAMINURIA

> DEFINITION:

> An inborn error of glycine metabolism characterized by elevated

> levels of trimethylamine resulting in a prominent odour of rotting

> fish.

> EPIDEMIOLOGY:

> incidence: rare, over 18 cases reported

> also called Fish Odor Syndrome, Stale Fish Syndrome... "

> http://www.icondata.com/health/pedbase/files/TRIMETHY.HTM

>

> If your child does suffer from this -here is a very child friendly

> way to break it to them (and keep them away from all the foods they

> suggest!!)

>

> " Sometimes I smell like a fish

> Dear Dr. Zebra: I wash all the time, but the other kids say I stink

> like rotten fish. They make up rhymes about me and nobody will eat

> lunch with me. Nobody will sit beside me on the bus. It makes me

> cry. I take baths all the time. I used to scrub myself with a scrub

> brush until my mother found out. Sometimes it's okay, but then I

> stink again. I cry a lot, because nothing helps. Even my grandma

> says I don't wash right. Sometimes I would like to crawl under my

> bed and never come out. What can I do?

> Please don't use my real name.

> " Hal " from Denmark, South Carolina

>

> Cheer up, Hal--I am almost certain the problem is something you eat.

> If that's right, the smell will go away as soon as you stop eating

> those foods.

>

> To find out, your doctor should test you for trimethylaminuria,

> which is a long way to say that when you eat fish, eggs, liver,

> kidney, or soybeans, your body does not digest these things quite

> the way other bodies do. These foods have a chemical called choline

> (say it like KO-leen), which germs in the gut digest into trimeth-

> ylamines (just call them TMA). TMA smells fishy--very fishy, in

> fact.

>

> For most people that fishy smell doesn't matter because their body

> turns TMA into something else, TMA oxide, which does not smell at

> all. But in people with trimethylaminuria, their bodies cannot

> change the TMA. So the TMA comes out in their sweat, urine, and

> breath, and no matter how much these people scrub, the TMA makes

> them smelly. Having this problem does not make people sick in any

> way, but it certainly is embarrassing.

>

> You say that sometimes the fishy smell goes away, which makes me

> think that if you stay away from foods with choline, you'll be fine.

> The worst foods for you would be fish, eggs, liver, and kidney.

> Avoid them. If that's not enough, then you should also stay away

> from soybeans, peas, and mayonnaise. (Think of that--a doctor's

> excuse not to eat liver and tofu!)

>

> Eggs, soybeans, and mayonnaise can be hard to avoid, because they

> are part of many packaged foods. At first, you'll have to think a

> lot about things like whether a Big Mac has mayonnaise (it does).

> You and your family will have to read the labels on packages very

> carefully. But you'll soon learn what you can and cannot eat.

>

> This diet is a pain, there's no doubt about that. But it's much less

> of a pain than smelling like rotten fish. "

> http://www.jhu.edu/~jhumag/496web/derzebra.html

>

> =====

>

[Guest guest]

Our ped just kept telling me to retry milk every few months. Most of

the ones that I've been around don't seem to take allergies very

seriously and you can forget any real awareness of things like celiac

disease.

If I was concerned about missing nutrients from milk, I'd talk to a

nutritionist who knows about developmentally delayed kids.

Dorfman is just one example.

Vicki

>

> Jola I hope you are also discussing this with your child's ped.

I'm sure

> Janice is just sharing and doesn't want to advice you, someone she

> doesn't know, to eliminate milk in your son's diet over a

grouplist! Perhaps your child

> is lactose intolerant, perhaps not -but find out -there are ways to

> test for it. Be aware that " in addition to calcium, dairy products

> provide us with other nutrients that are critical to our health,

> which include:

>

> high quality protein

> phosphorus

> potassium

> riboflavin

> vitamin B12

> vitamin A

> magnesium

> Vitamin B6

> thiamin

> Vitamin D

> niacin (Skolnik, 2000; National Dairy Council, 2001a).

>

> And hope that " kale, turnip greens, oysters, and salmon with bones "

> doesn't make his breath stink! )

>

>

> Getting Enough Calcium and Other Nutrients

> People intolerant of dairy products must find some way to replace

the

> calcium and other nutrients lost by not ingesting dairy products.

> While many nondairy foods are high in calcium, such as many green

> vegetables and fish with soft, edible bones, getting enough calcium

> with no dairy in the diet is very difficult. Further, maintaining an

> adequate intake of calcium without dairy requires substantial

> nutritional knowledge. For example, while some vegetables are high

in

> calcium such as Swiss chard, spinach, and rhubarb, the calcium in

> them cannot be utilized by the body. These products contain

> substances called oxalates, which stop calcium absorption

> > [sPAM] [childrensapraxiane t] Allergic to Cheese? Please

> Advice

> >

> > Hi all,

> >

> > Please I will need advice on this. I have noticed that whenever my

> son eats cheese, he passes a lot of gas with a horrible smell. (The

> kind of smell that will want to make you leave the room - I'm

sorry).

> I had stopped giving him gold fish because it was really bad

whenever

> he ate it. I had to stop him also on Vitamin E - he had the same

> issue while on it.

[Guest guest]

We are completely dairy free and really just don't use any substitute. I tried

to find suitable things in the beginning but we outside of Almond milk for rice

cereal, nothing else really appealed to us. So, I just quit doing that and we

do fine. Mark is the only one in the family who no longer eats cheese but

again, he is older and has come to the personal realization that it hurts him.

He realizes that he loses his speech and believe me, his social awareness is

high. This is a kid who plays with his buddies daily and his social life is far

more important to him than cheese or milk. In essence, once he realized how

poorly he functions and that the milk was responsible for his stomach ailments,

he wanted nothing more to do with it. My daugher still eats cheese.

Janice

[sPAM] [childrensapraxiane t] Allergic to Cheese? Please Advice

Hi all,

Please I will need advice on this. I have noticed that whenever my son eats

cheese, he passes a lot of gas with a horrible smell. (The kind of smell that

will want to make you leave the room - I'm sorry). I had stopped giving him gold

fish because it was really bad whenever he ate it. I had to stop him also on

Vitamin E - he had the same issue while on it.

Could it be that he is allergic to diary products? I am already planning to

See a GI very soon once I can get a referral from his peds.

His bowel movement is fine though, no loose stools, no constipation, pretty

normal.

Please advice.

Thanks,

Jola

(That if you confess with your mouth, " Jesus is Lord, " and believe in your

heart that God raised him from the dead, you will be saved - Romans 10:9)

[Guest guest]

Re: [ ] Allergic to Cheese? Please Advice

Sounds like our life before dairy free. It may be the casein in the milk

and the soy in the E. They are similar and can cause similar effects. I

am still looking for a soy-free E w/o gluten.

Ben & Jola Obire wrote:

> Hi all,

>

> Please I will need advice on this. I have noticed that whenever my son

> eats cheese, he passes a lot of gas with a horrible smell. (The kind

> of smell that will want to make you leave the room - I'm sorry). I had

> stopped giving him gold fish because it was really bad whenever he ate

> it. I had to stop him also on Vitamin E - he had the same issue while

> on it.

>

> Could it be that he is allergic to diary products? I am already

> planning to See a GI very soon once I can get a referral from his peds.

>

> His bowel movement is fine though, no loose stools, no constipation,

> pretty normal.

>

> Please advice.

>

> Thanks,

> Jola

>

> (That if you confess with your mouth, " Jesus is Lord, " and believe in

> your heart that God raised him from the dead, you will be saved -

> Romans 10:9)

>

> ____________ _________ _________ _________ _________ _________ _

> Pinpoint customers who are looking for what you sell.

> http://searchmarket ing.. com/ <http://searchmarket ing.. com/>

>

>

[Guest guest]

I have been wondering about the nutrients in milk, particularly in the

wrong kid. Here is where I am coming from:

Calcium...poorly absorbed from milk

Vitamin A...the type used in milk is apparently gut-damaging according

to Dr. Megson

Protein...can be gotten elsewhere...admittedly tougher on the no nut crowd

potassium...bananas

vitamin D...for all the milk my daughter got she came up D deficient and

she was outdoors

The B vitamins...still working on replacing those

But the real question is...are these things naturally in milk or added.

If added I would not tout milk as the answer.

Thanks for the reminder of how much replacement I must address.

fridgudare2003 wrote:

> Our ped just kept telling me to retry milk every few months. Most of

> the ones that I've been around don't seem to take allergies very

> seriously and you can forget any real awareness of things like celiac

> disease.

>

> If I was concerned about missing nutrients from milk, I'd talk to a

> nutritionist who knows about developmentally delayed kids.

> Dorfman is just one example.

>

> Vicki

>

>

> >

> > Jola I hope you are also discussing this with your child's ped.

> I'm sure

> > Janice is just sharing and doesn't want to advice you, someone she

> > doesn't know, to eliminate milk in your son's diet over a

> grouplist! Perhaps your child

> > is lactose intolerant, perhaps not -but find out -there are ways to

> > test for it. Be aware that " in addition to calcium, dairy products

> > provide us with other nutrients that are critical to our health,

> > which include:

> >

> > high quality protein

> > phosphorus

> > potassium

> > riboflavin

> > vitamin B12

> > vitamin A

> > magnesium

> > Vitamin B6

> > thiamin

> > Vitamin D

> > niacin (Skolnik, 2000; National Dairy Council, 2001a).

> >

> > And hope that " kale, turnip greens, oysters, and salmon with bones "

> > doesn't make his breath stink! )

> >

> >

> > Getting Enough Calcium and Other Nutrients

> > People intolerant of dairy products must find some way to replace

> the

> > calcium and other nutrients lost by not ingesting dairy products.

> > While many nondairy foods are high in calcium, such as many green

> > vegetables and fish with soft, edible bones, getting enough calcium

> > with no dairy in the diet is very difficult. Further, maintaining an

> > adequate intake of calcium without dairy requires substantial

> > nutritional knowledge. For example, while some vegetables are high

> in

> > calcium such as Swiss chard, spinach, and rhubarb, the calcium in

> > them cannot be utilized by the body. These products contain

> > substances called oxalates, which stop calcium absorption

>

> > > [sPAM] [childrensapraxiane t] Allergic to Cheese? Please

> > Advice

> > >

> > > Hi all,

> > >

> > > Please I will need advice on this. I have noticed that whenever my

> > son eats cheese, he passes a lot of gas with a horrible smell. (The

> > kind of smell that will want to make you leave the room - I'm

> sorry).

> > I had stopped giving him gold fish because it was really bad

> whenever

> > he ate it. I had to stop him also on Vitamin E - he had the same

> > issue while on it.

>

>

[Guest guest]

My kids have technically negative celiac panels (though informed

me, as did the GI, that the results were telling us something was up)

and no milk allergies per testing. There is no testing that can fully

address the milk and glten testing does not get it all. It is trial and

error.

emonline2000 wrote:

> , I do not believe most pediatricians are going to recommend going

> dairy free. I say

> this because my pediatrician doesn't really seem to believe there is a

> connection between

> dairy and apraxia. He doesn't even support testing for milk allergy,

> because my child has

> no stomach issues. However, I also get the " blank stare " when I speak

> about fish oil and

> apraxia, and I haven't yet disclosed exactly how much fish oil I'm giving.

>

> I also am thinking there is a difference between milk allergy and

> lactose intolerance? I

> think -- and I could be wrong because I am just starting to look into

> this -- the people on

> this board believe their children have a milk allergy/sensitivity. I

> think you bring up a

> great question though -- if you test for gluten or milk allergy, and

> test negative, does that

> mean going gluten or casein free is not going to help.

>

> On the Oprah show, the mom said he son was tested, and the test showed

> he was not

> sensitive to gluten, but she " had " to take him off it to get the

> progress she did.

>

> It is confusing. I really like my dairy, but I do want to do

> everything necessary to help my

> child.

>

>

> >

> > Jola I hope you are also discussing this with your child's ped. I'm sure

> > Janice is just sharing and doesn't want to advice you, someone she

> > doesn't know, to eliminate milk in your son's diet over a grouplist!

> Perhaps your child

> > is lactose intolerant, perhaps not -but find out -there are ways to

> > test for it. Be aware that " in addition to calcium, dairy products

> > provide us with other nutrients that are critical to our health,

> > which include:

> >

> > high quality protein

> > phosphorus

> > potassium

> > riboflavin

> > vitamin B12

> > vitamin A

> > magnesium

> > Vitamin B6

> > thiamin

> > Vitamin D

> > niacin (Skolnik, 2000; National Dairy Council, 2001a).

> >

> > And hope that " kale, turnip greens, oysters, and salmon with bones "

> > doesn't make his breath stink! )

> >

> >

> > Getting Enough Calcium and Other Nutrients

> > People intolerant of dairy products must find some way to replace the

> > calcium and other nutrients lost by not ingesting dairy products.

> > While many nondairy foods are high in calcium, such as many green

> > vegetables and fish with soft, edible bones, getting enough calcium

> > with no dairy in the diet is very difficult. Further, maintaining an

> > adequate intake of calcium without dairy requires substantial

> > nutritional knowledge. For example, while some vegetables are high in

> > calcium such as Swiss chard, spinach, and rhubarb, the calcium in

> > them cannot be utilized by the body. These products contain

> > substances called oxalates, which stop calcium absorption (National

> > Institute of Diabetes and Digestive and Kidney Diseases, 1998a).

> >

> > Here is a sample list of alternative food sources of calcium:

> >

> > broccoli

> > Chinese cabbage (bok choy)

> > kale

> > turnip greens

> > oysters

> > salmon with bones

> > sardines

> > shrimp

> > tofu

> > molasses.

> > It is also important to note that although these foods are somewhat

> > calcium-rich, it is very difficult to get enough calcium through

> > these sources. A cup of milk has 300mg of calcium and a cup of yogurt

> > 400mg; to equal that, you would need to eat approximately 3 cups of

> > cooked broccoli or 2 cups of cooked collard greens.

> >

> >

> > more on lactose intolerance here:

> >

> http://fcs.tamu.edu/health/health_education_rural_outreach/Health_Hints/2001/

>

<http://fcs.tamu.edu/health/health_education_rural_outreach/Health_Hints/2001/>

> september/september-2001.php#section1

> >

> > Of course there are conditions where food causes one to stink -the

> > following is very rare:

> >

> > Pediatric Database (PEDBASE)

> > Discipline: MET

> > Last Updated: 2/05/98

> > TRIMETHYLAMINURIA

> > DEFINITION:

> > An inborn error of glycine metabolism characterized by elevated

> > levels of trimethylamine resulting in a prominent odour of rotting

> > fish.

> > EPIDEMIOLOGY:

> > incidence: rare, over 18 cases reported

> > also called Fish Odor Syndrome, Stale Fish Syndrome... "

> > http://www.icondata.com/health/pedbase/files/TRIMETHY.HTM

> <http://www.icondata.com/health/pedbase/files/TRIMETHY.HTM>

> >

> > If your child does suffer from this -here is a very child friendly

> > way to break it to them (and keep them away from all the foods they

> > suggest!!)

> >

> > " Sometimes I smell like a fish

> > Dear Dr. Zebra: I wash all the time, but the other kids say I stink

> > like rotten fish. They make up rhymes about me and nobody will eat

> > lunch with me. Nobody will sit beside me on the bus. It makes me

> > cry. I take baths all the time. I used to scrub myself with a scrub

> > brush until my mother found out. Sometimes it's okay, but then I

> > stink again. I cry a lot, because nothing helps. Even my grandma

> > says I don't wash right. Sometimes I would like to crawl under my

> > bed and never come out. What can I do?

> > Please don't use my real name.

> > " Hal " from Denmark, South Carolina

> >

> > Cheer up, Hal--I am almost certain the problem is something you eat.

> > If that's right, the smell will go away as soon as you stop eating

> > those foods.

> >

> > To find out, your doctor should test you for trimethylaminuria,

> > which is a long way to say that when you eat fish, eggs, liver,

> > kidney, or soybeans, your body does not digest these things quite

> > the way other bodies do. These foods have a chemical called choline

> > (say it like KO-leen), which germs in the gut digest into trimeth-

> > ylamines (just call them TMA). TMA smells fishy--very fishy, in

> > fact.

> >

> > For most people that fishy smell doesn't matter because their body

> > turns TMA into something else, TMA oxide, which does not smell at

> > all. But in people with trimethylaminuria, their bodies cannot

> > change the TMA. So the TMA comes out in their sweat, urine, and

> > breath, and no matter how much these people scrub, the TMA makes

> > them smelly. Having this problem does not make people sick in any

> > way, but it certainly is embarrassing.

> >

> > You say that sometimes the fishy smell goes away, which makes me

> > think that if you stay away from foods with choline, you'll be fine.

> > The worst foods for you would be fish, eggs, liver, and kidney.

> > Avoid them. If that's not enough, then you should also stay away

> > from soybeans, peas, and mayonnaise. (Think of that--a doctor's

> > excuse not to eat liver and tofu!)

> >

> > Eggs, soybeans, and mayonnaise can be hard to avoid, because they

> > are part of many packaged foods. At first, you'll have to think a

> > lot about things like whether a Big Mac has mayonnaise (it does).

> > You and your family will have to read the labels on packages very

> > carefully. But you'll soon learn what you can and cannot eat.

> >

> > This diet is a pain, there's no doubt about that. But it's much less

> > of a pain than smelling like rotten fish. "

> > http://www.jhu.edu/~jhumag/496web/derzebra.html

> <http://www.jhu.edu/%7Ejhumag/496web/derzebra.html>

> >

> > =====

> >

[Guest guest]

Our GI specialist said it was milk intolerance which is different from a

milk allergy. Our allergist said that it is very difficult to test for milk

allergies as there are over 1200 different proteins in milk and difficult to

pinpoint. His advice was to eliminate milk and then add back and watch for

differences. There isn't always an accurate way to test to show one way or

another. The best " test " is trial and error through elimination. Young

children are especially difficult to test allergies/intolerances in.

As a parent who has seen SIGNIFICANT changes (for the good) in my 3 boys

since going 100% dairy free, I highly suggest to others to try the Casin

free diet for 2-3 weeks. It is less invasive & less expensive than some of

the other therapies that are touted on this list serve.

My apraxic son has just a few more sessions of OT left. He has made the most

progress since going dairy free this summer. My 2nd son is down to 1 ST

session a week from 2 sessions, his major drool, excema etc. has cleared up.

The baby is doing very well.

I am very thankful that people like Janice advise others and tell it like it

is for their family. Anyone reading a list serve must exercise some sense

in implementing some of the ideas shared, however, given the shear number of

families who have mentioned eliminating milk makes a difference, it is a

really good starting point for new parents. I feel it is less invasive than

the Fish Oil/Vit E regimen touted on this list.

The " Traditional medical profession " will not agree with eliminating milk,

however, you can't argue with results. A good multi vitamin is a must -

regardless.

Be your own scientist!

_____

From:

[mailto: ] On Behalf Of fridgudare2003

Sent: Saturday, September 22, 2007 11:19 PM

Subject: [ ] Re: Allergic to Cheese? Please Advice

Our ped just kept telling me to retry milk every few months. Most of

the ones that I've been around don't seem to take allergies very

seriously and you can forget any real awareness of things like celiac

disease.

If I was concerned about missing nutrients from milk, I'd talk to a

nutritionist who knows about developmentally delayed kids.

Dorfman is just one example.

Vicki

>

> Jola I hope you are also discussing this with your child's ped.

I'm sure

> Janice is just sharing and doesn't want to advice you, someone she

> doesn't know, to eliminate milk in your son's diet over a

grouplist! Perhaps your child

> is lactose intolerant, perhaps not -but find out -there are ways to

> test for it. Be aware that " in addition to calcium, dairy products

> provide us with other nutrients that are critical to our health,

> which include:

>

> high quality protein

> phosphorus

> potassium

> riboflavin

> vitamin B12

> vitamin A

> magnesium

> Vitamin B6

> thiamin

> Vitamin D

> niacin (Skolnik, 2000; National Dairy Council, 2001a).

>

> And hope that " kale, turnip greens, oysters, and salmon with bones "

> doesn't make his breath stink! )

>

>

> Getting Enough Calcium and Other Nutrients

> People intolerant of dairy products must find some way to replace

the

> calcium and other nutrients lost by not ingesting dairy products.

> While many nondairy foods are high in calcium, such as many green

> vegetables and fish with soft, edible bones, getting enough calcium

> with no dairy in the diet is very difficult. Further, maintaining an

> adequate intake of calcium without dairy requires substantial

> nutritional knowledge. For example, while some vegetables are high

in

> calcium such as Swiss chard, spinach, and rhubarb, the calcium in

> them cannot be utilized by the body. These products contain

> substances called oxalates, which stop calcium absorption

> > [sPAM] [childrensapraxiane t] Allergic to Cheese? Please

> Advice

> >

> > Hi all,

> >

> > Please I will need advice on this. I have noticed that whenever my

> son eats cheese, he passes a lot of gas with a horrible smell. (The

> kind of smell that will want to make you leave the room - I'm

sorry).

> I had stopped giving him gold fish because it was really bad

whenever

> he ate it. I had to stop him also on Vitamin E - he had the same

> issue while on it.

[Guest guest]

The statistics vary -- but I keep seeing these basic %

About 20% of the population should avoid gluten and

about 30% of the population should avoid dairy.

It's pretty easy to get dairy out of your diet -- gluten is a little

more difficult. I believe it's vital to do it 100% for at least 2

months -- taking about 2 months to slide into it. It takes several

weeks to figure things out, buy the flour mixes, etc.

Many people do GFCF for a year or more and then graduate to SCD. We

haven't been able to make that leap yet due to my son's dairy

allergy is too pronounced.

It makes a diffence for many kids -- and IMO you owe it to your kid

to give it a try. I'm a single mom with not one speck of extra

time -- and I consider the diet to be well worth the time and effort.

> > >

> > > Jola I hope you are also discussing this with your child's ped.

> > I'm sure

> > > Janice is just sharing and doesn't want to advice you, someone

she

> > > doesn't know, to eliminate milk in your son's diet over a

> > grouplist! Perhaps your child

> > > is lactose intolerant, perhaps not -but find out -there are

ways to

> > > test for it. Be aware that " in addition to calcium, dairy

products

> > > provide us with other nutrients that are critical to our

health,

> > > which include:

> > >

> > > high quality protein

> > > phosphorus

> > > potassium

> > > riboflavin

> > > vitamin B12

> > > vitamin A

> > > magnesium

> > > Vitamin B6

> > > thiamin

> > > Vitamin D

> > > niacin (Skolnik, 2000; National Dairy Council, 2001a).

> > >

> > > And hope that " kale, turnip greens, oysters, and salmon with

bones "

> > > doesn't make his breath stink! )

> > >

> > >

> > > Getting Enough Calcium and Other Nutrients

> > > People intolerant of dairy products must find some way to

replace

> > the

> > > calcium and other nutrients lost by not ingesting dairy

products.

> > > While many nondairy foods are high in calcium, such as many

green

> > > vegetables and fish with soft, edible bones, getting enough

calcium

> > > with no dairy in the diet is very difficult. Further,

maintaining an

> > > adequate intake of calcium without dairy requires substantial

> > > nutritional knowledge. For example, while some vegetables are

high

> > in

> > > calcium such as Swiss chard, spinach, and rhubarb, the calcium

in

> > > them cannot be utilized by the body. These products contain

> > > substances called oxalates, which stop calcium absorption

> >

> > > > [sPAM] [childrensapraxiane t] Allergic to Cheese?

Please

> > > Advice

> > > >

> > > > Hi all,

> > > >

> > > > Please I will need advice on this. I have noticed that

whenever my

> > > son eats cheese, he passes a lot of gas with a horrible smell.

(The

> > > kind of smell that will want to make you leave the room - I'm

> > sorry).

> > > I had stopped giving him gold fish because it was really bad

> > whenever

> > > he ate it. I had to stop him also on Vitamin E - he had the

same

> > > issue while on it.

> >

> >

>

[Guest guest]

It is true there is more to milk than calcium. It is also true there are a

variety of other sources to replace these nutrients. All of my kids who are off

milk are thriving.

Here's the thing. Even if a person is not " allergic " to milk, milk clogs up

the system. Cheese is one of the most constipating foods around. I've had even

mainstream doctors say to avoid milk if you have a cold because milk causes

extra mucus build up. My mother was told by a mainstream doctor to keep my

sister off milk because she had recurring strep throat and he said the mucus

effects of milk could be contributing to the problem.

If milk truly were the wonder food many people purport it to be, why would

dairy products be notorious for causing constipation and excessive mucus build

up? There is far more to this than whether or not a person is " allergic " or

not. And by the way, I've even had specialists tell me the most accurate test

for a milk problem is the elimination diet, not some test given at a doctor's

office.

Kim with 4 cuties

Liz <lizlaw@...> wrote:

I have been wondering about the nutrients in milk, particularly in the

wrong kid. Here is where I am coming from:

Calcium...poorly absorbed from milk

Vitamin A...the type used in milk is apparently gut-damaging according

to Dr. Megson

Protein...can be gotten elsewhere...admittedly tougher on the no nut crowd

potassium...bananas

vitamin D...for all the milk my daughter got she came up D deficient and

she was outdoors

The B vitamins...still working on replacing those

But the real question is...are these things naturally in milk or added.

If added I would not tout milk as the answer.

Thanks for the reminder of how much replacement I must address.

fridgudare2003 wrote:

> Our ped just kept telling me to retry milk every few months. Most of

> the ones that I've been around don't seem to take allergies very

> seriously and you can forget any real awareness of things like celiac

> disease.

>

> If I was concerned about missing nutrients from milk, I'd talk to a

> nutritionist who knows about developmentally delayed kids.

> Dorfman is just one example.

>

> Vicki

>

>

> >

> > Jola I hope you are also discussing this with your child's ped.

> I'm sure

> > Janice is just sharing and doesn't want to advice you, someone she

> > doesn't know, to eliminate milk in your son's diet over a

> grouplist! Perhaps your child

> > is lactose intolerant, perhaps not -but find out -there are ways to

> > test for it. Be aware that " in addition to calcium, dairy products

> > provide us with other nutrients that are critical to our health,

> > which include:

> >

> > high quality protein

> > phosphorus

> > potassium

> > riboflavin

> > vitamin B12

> > vitamin A

> > magnesium

> > Vitamin B6

> > thiamin

> > Vitamin D

> > niacin (Skolnik, 2000; National Dairy Council, 2001a).

> >

> > And hope that " kale, turnip greens, oysters, and salmon with bones "

> > doesn't make his breath stink! )

> >

> >

> > Getting Enough Calcium and Other Nutrients

> > People intolerant of dairy products must find some way to replace

> the

> > calcium and other nutrients lost by not ingesting dairy products.

> > While many nondairy foods are high in calcium, such as many green

> > vegetables and fish with soft, edible bones, getting enough calcium

> > with no dairy in the diet is very difficult. Further, maintaining an

> > adequate intake of calcium without dairy requires substantial

> > nutritional knowledge. For example, while some vegetables are high

> in

> > calcium such as Swiss chard, spinach, and rhubarb, the calcium in

> > them cannot be utilized by the body. These products contain

> > substances called oxalates, which stop calcium absorption

>

> > > [sPAM] [childrensapraxiane t] Allergic to Cheese? Please

> > Advice

> > >

> > > Hi all,

> > >

> > > Please I will need advice on this. I have noticed that whenever my

> > son eats cheese, he passes a lot of gas with a horrible smell. (The

> > kind of smell that will want to make you leave the room - I'm

> sorry).

> > I had stopped giving him gold fish because it was really bad

> whenever

> > he ate it. I had to stop him also on Vitamin E - he had the same

> > issue while on it.

>

>

[Guest guest]

I think this is a great statement of what the nonmilkers are trying to

say. I found something helpful and want to share. That is all I see

others doing. By going off milk for a trial you are not thumbing your

nose at the medical establishment. My husband is still reeling at our

ENT for agreeing only after the ear tube surgery did not produce the

desired result. My husband was thinking it would have been nice to have

known this prior to what may have been unnecessary surgery. I look at it

this way: The ENT was one of the few who listened and tried to help my

boy with his speech. Getting mad at him is not the answer. He did what

he thought was right. But, I do hope that my speaking up to him about

the milk changes will make him consider it with the next patient.

Another reason I can't be mad at the ENT is that patients and families

are reluctant to make lifestyle changes and often want a pill to fix it

all.