Re: what are my son's chances?

[Guest guest]

Hi Michele and welcome!!

Tell us a little bit more about your son. Diagnosis vary depending

upon where you live -what professional does the evaluation etc. We

have parents in this group who have a child that received completely

different diagnosis from different professionals in the same month. Then there

are

some here who have children that were at one time diagnosed as autistic

or PDD that later found out that was a misdiagnosis, or who then

started their child on fish oil and the child appeared to drop some symptoms.

If your child is communication impaired even with one of the most

severe impairments such as apraxia -there's so much hope for complete

mainstream in school and life. The two conditions where the

prognosis may not be as bright are for those with a diagnosis of severe

mental retardation, or severe autism -which in my opinion isn't the

same thing as what most of the children with " autism " have today.

Most in this group that have children diagnosed with autism fall in

the range of mild to moderate autism.

As far as IQ -we make sure the verbal disabled are tested appropriately as most

are not.

I just posted a recent update of my son Tanner who is now 11

http://www.debtsmart.net/talk/tanner.html and prior to EFAs and even

after months of therapy he was diagnosed with severe profound

apraxia -dysarthria -sensory integration dysfunction -hypotonia.

That didn't even include the later constipation issues we dealt with

for years. Just about all of it's resolved now- but his story as

well as the stories of so many more just like him -one success story

after another -are in the archives here. There are many in The Late

Talker book as well -and many of those stories are pulled from the

parents here. (with permission of course!)

In general prognosis depends upon getting an appropriate diagnosis as

early as possible for therapy to be started as early as possible.

Amount of diagnosis and severity of each. Cognitive ability and

motivation. Amount of appropriate therapies.

The fact that you are here in this group and your child is still so

young -it's obvious he has an incredible mom who is doing all she can

to find out how to help him best early -and you are in the right

place! This happens to be an intelligent group of parents and

professionals who don't accept " never " or " slow " or " he can't " -but

when we don't hear what we want for our child start blazing our own

trails to success that others are finding and following. This is an

uncensored group in that all views are shared -so while it may at

times be obvious we don't all agree -as the list owner I don't decide

that only my views are expressed. We all continue to learn and grow

to help our children and each other. And it works. The success rate

in this group is exceptional -check the archives.

So again -tell us a bit more about your child (Georgie?) other than

his age and diagnosis so we can perhaps as a group offer suggestions

that may assist both of you to a brighter future!

=====

[Guest guest]

Michele,

Please don't despair!Your son's chances for recovery are great! Autism is

actually a treatable medical condition. I am not promising anything, but with

proper medical care, many, many children are vastly improving. In some cases,

they make a full recovery.

I joined this list almost 4 years ago in your exact situation. My daughter had

speech, but it wasn't pragmatic or connected in any capacity. We had just

learned that she may have autism in addition to her apraxia, and like so many

moms here, we were scared and devastated.

There is SO much more available to help you now that 4 years ago. There are very

knowledgeable people on this list serve and others who can give you suggestions

about doctors to approach, conferences to attend, books to read, and

interventions to try.

My daughter is now considered 95% recovered from Autism (evaluated by Dr.

Edelson of the Autism Research Institute this past August). When we

treated the root cause of the problem, which in her case was severe heavy metal

toxicity, a leaky gut, derranged mineral transport, immune deficiencies,

nutritional deficiencies, oxidative stress, and food intolerances, we were able

to get her back.

Many doctors are not versed in how to treat these issues in our children because

of theory that these conditions were facilitated by their vaccines. I'm sure you

are aware of the controversy. Regardless of how it happened, something is not

well in our kids, and we have to address their medical issues in addtion to

their other interventions, such as speech therapy, etc.

If you are interested in learning about these biomedical interventions, you may

email me off-list. I would also recommend the following:

1. Purchase the book " Changing the Course of Autism: A Scientific Approach for

Parents and Physicians " by Dr. Jepson. It's available at Amazon. This is

the one-stop book for anyone interested in biomed. Fabulous book. Simply

fabulous. It explains everything about the science to support what's wrong with

our kids and why we need certain interventions.

2. Consider making an appointment with an Autism specialist in your area,

sometimes called a DAN! doctor (Defeat Autism Now!). These doctors vary in their

expertise. Some know what they are doing, and some not so much. Ask for help in

choosing a good one if you want to go that route. Not every child has the same

problems, and they need a very good doctor to help figure out the best

interventions.

3. Consider going to the Autism One Conference this May in Chicago. There will

be incredible presentations on starting the biomedical process from the most

knowledgeable doctors in the field.

You may also visit The National Autism Association for more help or TACA, Talk

About Curing Autism. Depending on what part of the country you are in, these

organizations have fantastic mentor programs and information to help you.

Never give up. Never, never, never. There is always hope.

-------------- Original message --------------

From: " georgies_mama " <babyjjmama@...>

My son is four and has autism and probably apraxia as well based on

his trouble with articulation. His speech is slow to come and he is

hard to understand. When he was two and even three, I didn't worry

too much because I felt he was still young. However, now that he is

over four, I am starting to worry so much more.

I was wondering if this is still pretty typical for a child with

autism and if he can still develop normal speech (conversational) or

if his chances of that are now pretty small? Do most kids with autism

that do converse usually have more speech at his age? He is only

labeling and requesting but often needs lots of prompting.

Sorry, I am the worry type and this whole autism/apraxia thing is so

hard on me.

Thanks.

Michele

[Guest guest]

Every single child is different. I will tell you that my son with

autism and very severe apraxia did not really start speaking until

almost 5.5 years old. He now (a year later) is about 50%

intelligible - which is huge for us. He tells jokes, teases us, tries

to manipulate us. He is not out of the woods, but he's " found the

path " so to speak. He is working at his age level and above at a

spcial needs school that specializes in communication disorders. He

loves science, math and reading. It would not have happened without

intense therapies from great therapists AND some biomedical supports

he is receiving. It's not easy, it's not quick - but it is possible.

Feel free to email me.

>

> My son is four and has autism and probably apraxia as well based on

> his trouble with articulation. His speech is slow to come and he

is

> hard to understand. When he was two and even three, I didn't worry

> too much because I felt he was still young. However, now that he

is

> over four, I am starting to worry so much more.

>

> I was wondering if this is still pretty typical for a child with

> autism and if he can still develop normal speech (conversational)

or

> if his chances of that are now pretty small? Do most kids with

autism

> that do converse usually have more speech at his age? He is only

> labeling and requesting but often needs lots of prompting.

>

> Sorry, I am the worry type and this whole autism/apraxia thing is

so

> hard on me.

>

> Thanks.

> Michele

>

[Guest guest]

Michele,

sent me a subtle post with an offer of help this summer. It

opened my eyes to what may have happened and preventing further

damage. We are hardly a success story yet as I am looking for the

right options and doctor and am not running to any treatments just

yet but I assure you my child and I, my children and I really, are

new and healthier people as the result of her first email. She is

giving you sound advice.

L

>

> Michele,

>

> Please don't despair!Your son's chances for recovery are great!

Autism is actually a treatable medical condition. I am not promising

anything, but with proper medical care, many, many children are

vastly improving. In some cases, they make a full recovery.

>

> I joined this list almost 4 years ago in your exact situation. My

daughter had speech, but it wasn't pragmatic or connected in any

capacity. We had just learned that she may have autism in addition to

her apraxia, and like so many moms here, we were scared and

devastated.

>

> There is SO much more available to help you now that 4 years ago.

There are very knowledgeable people on this list serve and others who

can give you suggestions about doctors to approach, conferences to

attend, books to read, and interventions to try.

>

> My daughter is now considered 95% recovered from Autism (evaluated

by Dr. Edelson of the Autism Research Institute this past

August). When we treated the root cause of the problem, which in her

case was severe heavy metal toxicity, a leaky gut, derranged mineral

transport, immune deficiencies, nutritional deficiencies, oxidative

stress, and food intolerances, we were able to get her back.

>

> Many doctors are not versed in how to treat these issues in our

children because of theory that these conditions were facilitated by

their vaccines. I'm sure you are aware of the controversy. Regardless

of how it happened, something is not well in our kids, and we have to

address their medical issues in addtion to their other interventions,

such as speech therapy, etc.

>

> If you are interested in learning about these biomedical

interventions, you may email me off-list. I would also recommend the

following:

>

> 1. Purchase the book " Changing the Course of Autism: A Scientific

Approach for Parents and Physicians " by Dr. Jepson. It's

available at Amazon. This is the one-stop book for anyone interested

in biomed. Fabulous book. Simply fabulous. It explains everything

about the science to support what's wrong with our kids and why we

need certain interventions.

>

> 2. Consider making an appointment with an Autism specialist in

your area, sometimes called a DAN! doctor (Defeat Autism Now!). These

doctors vary in their expertise. Some know what they are doing, and

some not so much. Ask for help in choosing a good one if you want to

go that route. Not every child has the same problems, and they need a

very good doctor to help figure out the best interventions.

>

> 3. Consider going to the Autism One Conference this May in

Chicago. There will be incredible presentations on starting the

biomedical process from the most knowledgeable doctors in the field.

>

> You may also visit The National Autism Association for more help or

TACA, Talk About Curing Autism. Depending on what part of the country

you are in, these organizations have fantastic mentor programs and

information to help you.

>

> Never give up. Never, never, never. There is always hope.

>

>

>

>

> -------------- Original message --------------

> From: " georgies_mama " <babyjjmama@...>

> My son is four and has autism and probably apraxia as well based on

> his trouble with articulation. His speech is slow to come and he is

> hard to understand. When he was two and even three, I didn't worry

> too much because I felt he was still young. However, now that he is

> over four, I am starting to worry so much more.

>

> I was wondering if this is still pretty typical for a child with

> autism and if he can still develop normal speech (conversational)

or

> if his chances of that are now pretty small? Do most kids with

autism

> that do converse usually have more speech at his age? He is only

> labeling and requesting but often needs lots of prompting.

>

> Sorry, I am the worry type and this whole autism/apraxia thing is

so

> hard on me.

>

> Thanks.

> Michele

>

>

>

>

>

[Guest guest]

I thought I'd post the following archive since there are recently a

few messages that call for it. It teaches the power of hope. To

Georgie's mom. Before we all encourage her to explore more about the

autism world it's most important to know for sure if in fact that her

child 'is' autistic as we know what a buzz word it is even though

there are far more children with apraxia without autism (and that by

the way is the condition where being able to talk is the issue) Some

autism therapies such as ABA are not only inappropriate but can be

detrimental to one with just apraxia. And as always therapies are

most important as the brain responds to multi stimuli.

From: " kiddietalk <kiddietalk@...> " <kiddietalk@...>

Date: Wed Dec 25, 2002 12:35 pm

Subject: " The Day he knew that would be OK " kiddietalk

Dear Brock,

Just wanted to jump in and say I'm sorry that you are not having a

happy day today. I'm not sure why is whiney –could be lots of

reasons like a cold coming on ...or ...he just realized he can't

easily tell Santa what he wanted for Christmas? –which is a good

thing if that is what it is. Why would I say that?

I have a story to tell you that maybe will cheer you up –then I too

have to get back to my relatives!

My ex-boyfriend years ago was in a severe car accident on a

snowy night –his friend was driving –they were just out of high

school. The car went into a skid and the friend lost control of the

car and it went into a snow plow. The snow plow went through the

car's front window –and through 's head/eye/and taking off his

ear. was rushed to the hospital -his father and mother were

told that only had a 2% chance of living –and that even if he

did survive – and - regained consciousness, he will be brain dead.

's parents could afford the best doctors money could buy -and

that was the prognosis from all. With hope -they were told that

the 'best' they could hope for was that within a year they could get

a place in Kessler where -they will teach him how to

put " square pegs in square holes " -I'll never forget his mother

telling me this. didn't die –and went from coma –to semi coma –

to months of not being able to anything for himself. He couldn't

feed himself or dress himself -etc. He was allowed to -after months -

go out with mom and dad once in awhile.

one day 's dad –who is a teacher at FIT in NYC, told me the

following story of " The Day he knew that would be OK "

" I wanted to take to play golf. I knew I wasn't supposed to do

that - wasn't able to do things like that yet, he couldn't even

dress himself yet. It was a beautiful day though and I just wanted

to take him out to smell the fresh air and just try to hit the ball

around a bit. As his father -I knew what was best for him. I knew

couldn't hit the ball or play golf yet -he had trouble even

holding the club -but was so good at golf and really loved

playing it so much before the accident -I just thought this would be

good for him.

tried to swing the club -but he couldn't hold the club or swing

it right. He kept trying though over and over. It was painful for

me to watch my son like this -I was about to say let's go. All of a

sudden - threw down the club and threw himself on the ground and

started to cry. At this point -a tear started to roll down 's

dad's face as he said the next sentence " and that's when I knew

was going to be OK. " I looked at 's dad who never turned to me

as he drove the car -and asked " Why? " He then looked at me and

said " Because he realized he couldn't do it -and he cared -he cared

so I knew he would be OK. "

I met about a year after the accident at a club with my

friends -around the time he was " at best " going to be trying to put

square pegs into square holes. to this day is one of the best

dancers you would ever meet -and was a walking personality/charm/

intelligence people magnet. He went through plastic surgery and eye

surgery -but that was the minor stuff. , just like his dad

thought -was OK!

Since many of you may think this story is made up? His real name is

L. -or L. -and he is from Upper Montclair, NJ and I've

given enough details that you could check this story out -it's 100% a

real life miracle -and it's hopefully a story that will inspire you

Brock. and his parents know me very well -but just in case -

use my maiden name - Fernandez.

I have the last email you posted below -it appears there are some

good things you were seeing in the first three weeks. Again -I don't

know all the whys of whiney -but tears -and the present -isn't

always as bad as they may appear -in fact they may be bright. I hope

they are for you too.

Merry Christmas!

=====

[Guest guest]

Hi Michele,

I agree with 's message. Buy Dr. Jepson's book and also Dr.

McCandless' book, " Children with Starving Brains " . Look into ABA

therapy. The combination of biomedical treatment and ABA has been very

powerful for both my children. Try carnosine (we used carnaware brand

initially, and now use Jarrow carosine caps) and essential GSH from

wellnesshealth.com. I've posted about these before, but they helped my

daughter's language tremendously (she had both PDD-NOS and apraxia,

but is now recovered). I also recommend that you start the gfcf diet

and see a DAN doc who will treat your son's medical/metabolic/immune

issues. The Autism Research Institute has a great website with many

helpful articles - I would check them out. There is a lot you can do

that will help.

>

> My son is four and has autism and probably apraxia as well based on

> his trouble with articulation. His speech is slow to come and he is

> hard to understand. When he was two and even three, I didn't worry

> too much because I felt he was still young. However, now that he is

> over four, I am starting to worry so much more.

>

> I was wondering if this is still pretty typical for a child with

> autism and if he can still develop normal speech (conversational) or

> if his chances of that are now pretty small? Do most kids with autism

> that do converse usually have more speech at his age? He is only

> labeling and requesting but often needs lots of prompting.

>

> Sorry, I am the worry type and this whole autism/apraxia thing is so

> hard on me.

>

> Thanks.

> Michele

>

[Guest guest]

,

I did not realize how well your daughter was doing. Congrats!

I keep forgetting Dr. McCandless. I have to start reading again.

You are generous in your posts as is Stephanee. I love Dr. Jepson and

the families he treats!

L

> >

> > My son is four and has autism and probably apraxia as well based

on

> > his trouble with articulation. His speech is slow to come and he

is

> > hard to understand. When he was two and even three, I didn't

worry

> > too much because I felt he was still young. However, now that he

is

> > over four, I am starting to worry so much more.

> >

> > I was wondering if this is still pretty typical for a child with

> > autism and if he can still develop normal speech (conversational)

or

> > if his chances of that are now pretty small? Do most kids with

autism

> > that do converse usually have more speech at his age? He is only

> > labeling and requesting but often needs lots of prompting.

> >

> > Sorry, I am the worry type and this whole autism/apraxia thing is

so

> > hard on me.

> >

> > Thanks.

> > Michele

> >

>

[Guest guest]

My son at age 4 had only single words and about 50-100 if you counted animal

sounds. He only spoke in nouns and hardly replied to questions at all. He

was diagnosed apraxic at 3.11 years and started in Prompt therapy. He had

had two years of frequent therapy prior to that working with a diagnosis of

autism and he made no progress in speech and language. This past November

at age 6.2 after just over 2 yrs of Prompt therapy he is age appropriate on

one word articulation tests! His vocabulary is still behind for a 6 yr old,

but he is making great gains. His average sentence length is 3.4 words and

he often speaks in much longer sentences and is tying sentences together.

Most strangers understand his words now, but his language issues still

hinder communication. The syntax of his sentences is completely messed up.

After having his autism diagnosis removed he has now been placed back on the

spectrum with semantic-pragmatic language disorder. It is clear to everyone

that his initial diagnosis of " moderate autism " was wrong and now he clearly

doesn't fit the criteria for " core " autism. He has no stimming, great eye

contact and is very social and socially appropriate, doesn't perseverate,

never lost language or skills, etc, but he exhibits much of the criteria for

a more controversial disorder which many place on the spectrum called

Semantic Pragmatic Language Disorder. It was a neuro psych that provided

this diagnosis and his SLP doesn't entirely agree (he has GREAT pragmatics

actually, but didn't show them during the half day neuro psych eval.) He is

a very bright kid and non-verbal IQ tests confirm that. He still has a long

way to go, but he has come really far!

Don't let ANY age make you feel like it's too late for your kid. Our next

big step is diving into the world of reading. The schools aren't having

much success with this, but I'm working with him at home and he's finally

" getting " phonics it seems. He's sounding out just a few words with

specific sounds he has learned. I'm really thinking that reading will be

the key to better syntax. Once he can start SEEING and reading sentences

we're hoping it will sink in. He doesn't seem to learn anything through his

auditory system so perhaps seeing it will help. He has been screened for

AP, but he doesn't fit most of the criteria. He also doesn't fit the " toxic

child " type profile either. It really seems to be a language thing along

with apraxia which is thankfully resolving! Vitamin E supplements really

seemed to have been huge for him!

Miche

On Feb 8, 2008 8:15 PM, georgies_mama <babyjjmama@...> wrote:

> My son is four and has autism and probably apraxia as well based on

> his trouble with articulation. His speech is slow to come and he is

> hard to understand. When he was two and even three, I didn't worry

> too much because I felt he was still young. However, now that he is

> over four, I am starting to worry so much more.

>

> I was wondering if this is still pretty typical for a child with

> autism and if he can still develop normal speech (conversational) or

> if his chances of that are now pretty small? Do most kids with autism

> that do converse usually have more speech at his age? He is only

> labeling and requesting but often needs lots of prompting.

>

> Sorry, I am the worry type and this whole autism/apraxia thing is so

> hard on me.

>

> Thanks.

> Michele

>

[Guest guest]

- Amen sister! Beautifully said.

>

> Michele,

>

> Please don't despair!Your son's chances for recovery are great!

Autism is actually a treatable medical condition. I am not promising

anything, but with proper medical care, many, many children are

vastly improving. In some cases, they make a full recovery.

>

> I joined this list almost 4 years ago in your exact situation. My

daughter had speech, but it wasn't pragmatic or connected in any

capacity. We had just learned that she may have autism in addition to

her apraxia, and like so many moms here, we were scared and

devastated.

>

> There is SO much more available to help you now that 4 years ago.

There are very knowledgeable people on this list serve and others who

can give you suggestions about doctors to approach, conferences to

attend, books to read, and interventions to try.

>

> My daughter is now considered 95% recovered from Autism (evaluated

by Dr. Edelson of the Autism Research Institute this past

August). When we treated the root cause of the problem, which in her

case was severe heavy metal toxicity, a leaky gut, derranged mineral

transport, immune deficiencies, nutritional deficiencies, oxidative

stress, and food intolerances, we were able to get her back.

>

> Many doctors are not versed in how to treat these issues in our

children because of theory that these conditions were facilitated by

their vaccines. I'm sure you are aware of the controversy. Regardless

of how it happened, something is not well in our kids, and we have to

address their medical issues in addtion to their other interventions,

such as speech therapy, etc.

>

> If you are interested in learning about these biomedical

interventions, you may email me off-list. I would also recommend the

following:

>

> 1. Purchase the book " Changing the Course of Autism: A Scientific

Approach for Parents and Physicians " by Dr. Jepson. It's

available at Amazon. This is the one-stop book for anyone interested

in biomed. Fabulous book. Simply fabulous. It explains everything

about the science to support what's wrong with our kids and why we

need certain interventions.

>

> 2. Consider making an appointment with an Autism specialist in

your area, sometimes called a DAN! doctor (Defeat Autism Now!). These

doctors vary in their expertise. Some know what they are doing, and

some not so much. Ask for help in choosing a good one if you want to

go that route. Not every child has the same problems, and they need a

very good doctor to help figure out the best interventions.

>

> 3. Consider going to the Autism One Conference this May in

Chicago. There will be incredible presentations on starting the

biomedical process from the most knowledgeable doctors in the field.

>

> You may also visit The National Autism Association for more help or

TACA, Talk About Curing Autism. Depending on what part of the country

you are in, these organizations have fantastic mentor programs and

information to help you.

>

> Never give up. Never, never, never. There is always hope.

>

>

>

>

> -------------- Original message --------------

> From: " georgies_mama " <babyjjmama@...>

> My son is four and has autism and probably apraxia as well based on

> his trouble with articulation. His speech is slow to come and he is

> hard to understand. When he was two and even three, I didn't worry

> too much because I felt he was still young. However, now that he is

> over four, I am starting to worry so much more.

>

> I was wondering if this is still pretty typical for a child with

> autism and if he can still develop normal speech (conversational)

or

> if his chances of that are now pretty small? Do most kids with

autism

> that do converse usually have more speech at his age? He is only

> labeling and requesting but often needs lots of prompting.

>

> Sorry, I am the worry type and this whole autism/apraxia thing is

so

> hard on me.

>

> Thanks.

> Michele

>

>

>

>

>

[Guest guest]

AP cannot be diagnosed until 7 or 8 if done properly. Any Listening

Program stuff for him?

I love your story and needed to read it today. Thankyou so very much!

>

> > My son is four and has autism and probably apraxia as well

based on

> > his trouble with articulation. His speech is slow to come and he

is

> > hard to understand. When he was two and even three, I didn't worry

> > too much because I felt he was still young. However, now that he

is

> > over four, I am starting to worry so much more.

> >

> > I was wondering if this is still pretty typical for a child with

> > autism and if he can still develop normal speech (conversational)

or

> > if his chances of that are now pretty small? Do most kids with

autism

> > that do converse usually have more speech at his age? He is only

> > labeling and requesting but often needs lots of prompting.

> >

> > Sorry, I am the worry type and this whole autism/apraxia thing is

so

> > hard on me.

> >

> > Thanks.

> > Michele

> >

>

>

>

[Guest guest]

I see your point and to be truthful, do not know enough to say. My

son was evenly unable to speak and talk initially, later he was

behind in both but passed hearing tests but his hearing and

comprehension lagged. TLP did help him but I think you really need to

run your story by someone who knows AP to rule it in or out.

>

> > AP cannot be diagnosed until 7 or 8 if done properly. Any

Listening

> > Program stuff for him?

> >

> > I love your story and needed to read it today. Thankyou so very

much!

> >

>

>

>

[Guest guest]

I can't speak for everyone, but I'm not going to stop worrying until

they all graduate from college, get married, and have kids of their

own without the same issues. You didn't mention how much

intervention you've done so far, but if you haven't read the Bock

book, I would buy it TODAY. It is fantastic, and it has lots of

recovery stories for kids that started seeing him at that age or

older.

in NJ

>

> My son is four and has autism and probably apraxia as well based on

> his trouble with articulation. His speech is slow to come and he

is

> hard to understand. When he was two and even three, I didn't worry

> too much because I felt he was still young. However, now that he

is

> over four, I am starting to worry so much more.

>

> I was wondering if this is still pretty typical for a child with

> autism and if he can still develop normal speech (conversational)

or

> if his chances of that are now pretty small? Do most kids with

autism

> that do converse usually have more speech at his age? He is only

> labeling and requesting but often needs lots of prompting.

>

> Sorry, I am the worry type and this whole autism/apraxia thing is

so

> hard on me.

>

> Thanks.

> Michele

>

[Guest guest]

AMEN on the worry and the book! For the record, I think we have a

shot at not having this harm our grandbabies...I am that hopeful but

it is going to take a lot of work.

[Guest guest]

I just posted a LONG reply to this, and the message came up that my

message is posted intead of waiting for approval. It is not showing

on the list though and when I hit back it is not letting me go back

to my letter. What happened??? Is it gone and I need to re-

write/post? Thanks.

Michele

>

> Hi Michele and welcome!!

>

> Tell us a little bit more about your son. Diagnosis vary depending

> upon where you live -what professional does the evaluation etc. We

> have parents in this group who have a child that received

completely

> different diagnosis from different professionals in the same

month. Then there are

> some here who have children that were at one time diagnosed as

autistic

> or PDD that later found out that was a misdiagnosis, or who then

> started their child on fish oil and the child appeared to drop

some symptoms.

> If your child is communication impaired even with one of the most

> severe impairments such as apraxia -there's so much hope for

complete

> mainstream in school and life. The two conditions where the

> prognosis may not be as bright are for those with a diagnosis of

severe

> mental retardation, or severe autism -which in my opinion isn't the

> same thing as what most of the children with " autism " have today.

> Most in this group that have children diagnosed with autism fall in

> the range of mild to moderate autism.

>

> As far as IQ -we make sure the verbal disabled are tested

appropriately as most are not.

>

> I just posted a recent update of my son Tanner who is now 11

> http://www.debtsmart.net/talk/tanner.html and prior to EFAs and

even

> after months of therapy he was diagnosed with severe profound

> apraxia -dysarthria -sensory integration dysfunction -hypotonia.

> That didn't even include the later constipation issues we dealt

with

> for years. Just about all of it's resolved now- but his story as

> well as the stories of so many more just like him -one success

story

> after another -are in the archives here. There are many in The

Late

> Talker book as well -and many of those stories are pulled from the

> parents here. (with permission of course!)

>

> In general prognosis depends upon getting an appropriate diagnosis

as

> early as possible for therapy to be started as early as possible.

> Amount of diagnosis and severity of each. Cognitive ability and

> motivation. Amount of appropriate therapies.

>

> The fact that you are here in this group and your child is still so

> young -it's obvious he has an incredible mom who is doing all she

can

> to find out how to help him best early -and you are in the right

> place! This happens to be an intelligent group of parents and

> professionals who don't accept " never " or " slow " or " he can't " -but

> when we don't hear what we want for our child start blazing our own

> trails to success that others are finding and following. This is

an

> uncensored group in that all views are shared -so while it may at

> times be obvious we don't all agree -as the list owner I don't

decide

> that only my views are expressed. We all continue to learn and

grow

> to help our children and each other. And it works. The success

rate

> in this group is exceptional -check the archives.

>

> So again -tell us a bit more about your child (Georgie?) other than

> his age and diagnosis so we can perhaps as a group offer

suggestions

> that may assist both of you to a brighter future!

>

> =====

>

[Guest guest]

Yay, it is there! Losing two posts in one day would be terrible

luck (even for me).

Michele

> >

> > Hi Michele and welcome!!

> >

> > Tell us a little bit more about your son. Diagnosis vary

depending

> > upon where you live -what professional does the evaluation etc.

We

> > have parents in this group who have a child that received

> completely

> > different diagnosis from different professionals in the same

> month. Then there are

> > some here who have children that were at one time diagnosed as

> autistic

> > or PDD that later found out that was a misdiagnosis, or who then

> > started their child on fish oil and the child appeared to drop

> some symptoms.

> > If your child is communication impaired even with one of the most

> > severe impairments such as apraxia -there's so much hope for

> complete

> > mainstream in school and life. The two conditions where the

> > prognosis may not be as bright are for those with a diagnosis of

> severe

> > mental retardation, or severe autism -which in my opinion isn't

the

> > same thing as what most of the children with " autism " have today.

> > Most in this group that have children diagnosed with autism fall

in

> > the range of mild to moderate autism.

> >

> > As far as IQ -we make sure the verbal disabled are tested

> appropriately as most are not.

> >

> > I just posted a recent update of my son Tanner who is now 11

> > http://www.debtsmart.net/talk/tanner.html and prior to EFAs and

> even

> > after months of therapy he was diagnosed with severe profound

> > apraxia -dysarthria -sensory integration dysfunction -hypotonia.

> > That didn't even include the later constipation issues we dealt

> with

> > for years. Just about all of it's resolved now- but his story as

> > well as the stories of so many more just like him -one success

> story

> > after another -are in the archives here. There are many in The

> Late

> > Talker book as well -and many of those stories are pulled from

the

> > parents here. (with permission of course!)

> >

> > In general prognosis depends upon getting an appropriate

diagnosis

> as

> > early as possible for therapy to be started as early as possible.

> > Amount of diagnosis and severity of each. Cognitive ability and

> > motivation. Amount of appropriate therapies.

> >

> > The fact that you are here in this group and your child is still

so

> > young -it's obvious he has an incredible mom who is doing all

she

> can

> > to find out how to help him best early -and you are in the right

> > place! This happens to be an intelligent group of parents and

> > professionals who don't accept " never " or " slow " or " he can't " -

but

> > when we don't hear what we want for our child start blazing our

own

> > trails to success that others are finding and following. This

is

> an

> > uncensored group in that all views are shared -so while it may at

> > times be obvious we don't all agree -as the list owner I don't

> decide

> > that only my views are expressed. We all continue to learn and

> grow

> > to help our children and each other. And it works. The success

> rate

> > in this group is exceptional -check the archives.

> >

> > So again -tell us a bit more about your child (Georgie?) other

than

> > his age and diagnosis so we can perhaps as a group offer

> suggestions

> > that may assist both of you to a brighter future!

> >

> > =====

> >