Guest guest Posted February 17, 2008 Report Share Posted February 17, 2008 hello to all. thanks for your input, I appreciate hearing from you. The school responded that doctors tend to over prescribe therapy more than what the child needs, when I asked for more speech therapy per her doctors eval. The case manager also directed me to use my private insurance for more speech therapy services. Unfortunately, Healthnet of New Jersey flatly denied covering speech therapy for my autistic child, we went to third level appeal, Department of Labor and Department of Banking and insurance, all to no avail. I was introduced to new terms as ICD AND CPTS, but all it means is $. I am worried sick (again) because the pediatric neurologist is telling me to have an ADOS evaluation done, which may change the course of the services my daughter is getting. It is hard enough for now to convince the school that she needs more speech therapy, even with all her dx and presentation, I wonder how will it look like after another possible change in her diagnosis. If anyone has experience with the ADOS test, I would kindly ask for their input. (Although I know she will always have the dx of heterotopia.) The pediatrician seriously doubts the dx of autism for her, but for now we are still in the process of " finding a cure " for autism... Could you recommend a doctor for apraxia and a specialist for Autism too, in the NJ area please? My pediatric MD from Mountainside Children's Hospital is moving on, such a great loss for me. Just when you get comfortable... Today is Chelsea's birthday, regardless of how many DX, or how many times everyone and anyone changes her diagnoses, she clearly says, I LOVE YOU MAMA, and she says it emphatically with such conviction. She is also composed a song for me titled I love you little Mama, which she sings. Thanks again, Mee [ ] Re: IEP and Diagnoses With the exception of autism, I'm not sure how the dx affects your IEP. We never had to provide a dx to get services, and when we voluntarily said that our private SLP said it was apraxia, the school SLP disagreed and they gave us a lesser level of services anyway. They should be basing your services on their own evaluation of your daughter. They should be able to identify the deficits that need remediation, separate from the dx. If you feel that the level of services is inadequate, a doctor's letter can help you get more sometimes, but it is still no guarantee. in NJ > > Hello, I am new to the group. I was homeless until now, meaning I do > not know what group I belong to, since I had been given several > diagnoses, we rule in, then we rule out or better put, in the process > of ruling in and/or ruling out. the doctors are not done yet, my 7 y/o > daughter and me are waiting for another " official " diagnosis. > > ...But yes, Chelsea did not speak until age 4 and some, yet recognized > words and clicked the right objects and right letters that correspond > to each other. This was when she barely sat up straight in front of a > computer. She was echolalic. Was frustrated. We changed MDs 4x, until > one was smart enough to recommend a neurologist. Positive for > Subependymal grey matter heterotopia in the lateral ventricles of the > brain, via MRI. She had other Dx, ASD, PDD, MULTIPLE MIXED > DEVELOPMENTAL DELAY, RECEPTIVE AND EXPRESSIVE LANGUAGE PROBLEM, lately, > Central Auditory Processing disorder. > > I am facing another IEP, to be scheduled yet. What should I tell them > as far as the doctors changing her Dx, because now, they are trying to > rule out autism, that one definitely thinks its CAPP, and one is not > sure it but would consider it. Should I stick to what ever it is on > record in the school, or change it everytime the docs make a change? > How would one diagnosis affect my daughter's IEP? > > thanks > emayhlmee > ________________________________________________________________________________\ ____ Never miss a thing. Make your home page. http://www./r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2008 Report Share Posted February 18, 2008 Hi, I would ask the school who their medical doctor is on staff. Regardless of what they think, they shouldn't interpret what the doctor prescribes. I too was told to go private for speech and I told them that what I do privately for speech should have no affect on what they should provide. So unless they tell you that they are smarter than your doctor, they need to provide what he has prescribed. At an early age it's sometimes difficult for doctors to say what exactly is your childs diagnosis but if you do have a letter for the school, great. I know our schools require a dx. At this point I'm not concerned with what the dx is, just that we have one to continue services for my son. You are absolutely right when you say that no matter what dx it is, when they say " I love you " it sets your whole world right!! Sandy [childrensapraxiane t] Re: IEP and Diagnoses With the exception of autism, I'm not sure how the dx affects your IEP. We never had to provide a dx to get services, and when we voluntarily said that our private SLP said it was apraxia, the school SLP disagreed and they gave us a lesser level of services anyway. They should be basing your services on their own evaluation of your daughter. They should be able to identify the deficits that need remediation, separate from the dx. If you feel that the level of services is inadequate, a doctor's letter can help you get more sometimes, but it is still no guarantee. in NJ > > Hello, I am new to the group. I was homeless until now, meaning I do > not know what group I belong to, since I had been given several > diagnoses, we rule in, then we rule out or better put, in the process > of ruling in and/or ruling out. the doctors are not done yet, my 7 y/o > daughter and me are waiting for another " official " diagnosis. > > ...But yes, Chelsea did not speak until age 4 and some, yet recognized > words and clicked the right objects and right letters that correspond > to each other. This was when she barely sat up straight in front of a > computer. She was echolalic. Was frustrated. We changed MDs 4x, until > one was smart enough to recommend a neurologist. Positive for > Subependymal grey matter heterotopia in the lateral ventricles of the > brain, via MRI. She had other Dx, ASD, PDD, MULTIPLE MIXED > DEVELOPMENTAL DELAY, RECEPTIVE AND EXPRESSIVE LANGUAGE PROBLEM, lately, > Central Auditory Processing disorder. > > I am facing another IEP, to be scheduled yet. What should I tell them > as far as the doctors changing her Dx, because now, they are trying to > rule out autism, that one definitely thinks its CAPP, and one is not > sure it but would consider it. Should I stick to what ever it is on > record in the school, or change it everytime the docs make a change? > How would one diagnosis affect my daughter's IEP? > > thanks > emayhlmee > ____________ _________ _________ _________ _________ _________ _ Never miss a thing. Make your home page. http://www.. com/r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2008 Report Share Posted February 19, 2008 Hi Sandy, thanks for your time and reply. It is (sometimes) heart breaking that the ones who are suppose to help our kids act like gods and goddesses, granting which wishes at their whim. I bring my child for private speech as a supplement, not to ease the burden of the school. Unfortunately, more likely than not, it is always a fight to get services. I also work at the Veteran's Hospital, my brother is also a gulf war Vet, I mention this because I read an article about how a young vet, who stepped on a land mine, lost his sight and limbs, yet they are not giving him full disability to make him eligible for services. His father has to and is fighting for his rights. Thank heavens for parents like us. [childrensapraxiane t] Re: IEP and Diagnoses With the exception of autism, I'm not sure how the dx affects your IEP. We never had to provide a dx to get services, and when we voluntarily said that our private SLP said it was apraxia, the school SLP disagreed and they gave us a lesser level of services anyway. They should be basing your services on their own evaluation of your daughter. They should be able to identify the deficits that need remediation, separate from the dx. If you feel that the level of services is inadequate, a doctor's letter can help you get more sometimes, but it is still no guarantee. in NJ > > Hello, I am new to the group. I was homeless until now, meaning I do > not know what group I belong to, since I had been given several > diagnoses, we rule in, then we rule out or better put, in the process > of ruling in and/or ruling out. the doctors are not done yet, my 7 y/o > daughter and me are waiting for another " official " diagnosis. > > ...But yes, Chelsea did not speak until age 4 and some, yet recognized > words and clicked the right objects and right letters that correspond > to each other. This was when she barely sat up straight in front of a > computer. She was echolalic. Was frustrated. We changed MDs 4x, until > one was smart enough to recommend a neurologist. Positive for > Subependymal grey matter heterotopia in the lateral ventricles of the > brain, via MRI. She had other Dx, ASD, PDD, MULTIPLE MIXED > DEVELOPMENTAL DELAY, RECEPTIVE AND EXPRESSIVE LANGUAGE PROBLEM, lately, > Central Auditory Processing disorder. > > I am facing another IEP, to be scheduled yet. What should I tell them > as far as the doctors changing her Dx, because now, they are trying to > rule out autism, that one definitely thinks its CAPP, and one is not > sure it but would consider it. Should I stick to what ever it is on > record in the school, or change it everytime the docs make a change? > How would one diagnosis affect my daughter's IEP? > > thanks > emayhlmee > ____________ _________ _________ _________ _________ _________ _ Never miss a thing. Make your home page. http://www.. com/r/hs Quote Link to comment Share on other sites More sharing options...
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