Update

[Guest guest]

Hi,

Thought I'd post an update on my son, Rory aged 6 and Omega & Vit E. It's a bit

long so if you don't have time I am summarising at the beginning!

1. 3 weeks in

2. No real change in speech as yet

3. was very vocal/noisy at the weekend and bit stroppy - normally quite passive

4. teacher says he is picking up the word recognition for new vocab much

quicker.

To start with I'd better sum up his problems...

First of all he is deaf but he has an implant and actually hears quite well so I

am putting that aside for this group.

He has severe verbal apraxia. His oral motor skills are not that impaired, his

comprehension is pretty good and far far ahead of expression. His fine motor

skills are very good BUT I have realised that he has a real problem with doing

different things with each hand, so Playstation is impossible for him (at

present) because he wants to use the joysticks for each hand and can't

co-ordinate the button pushing with the right hand. In somethings he is really

co-ordinated but others hopeless. Regarding his fine motor skills - he saw an

occupational therapist when he was 4 because they were behind, then all of a

sudden he went from only being able to draw straight lines and dots to drawing

pictures!

His pain threshold is higher than most children and i put it down to him being

stoic, now i realise that could be part of the apraxia as it has been mentioned

by other mums.

His language is developing but very slowly. Yeah and no are very clear but

mummy, daddy and james are not so clear. He can count to ten but 4,5,6,7,8 are

the clearest.

He has a problem with retaining information and concentration. School reports

that every now and then they just lose him and it's hard to get him back on

track. Also one day he can do something but the next he can't. And they know now

that he is trying but just can't rather than he's not making any effort.

He's very active and has a very happy sunny nature and loves dressing up.

So, I have been trying omega since August but only really been successfully

achieving regular dosage since going back to school three weeks ago. I am giving

him two half teaspoons of the proefa liquid. One with breakfast and one with

lunch - hidden in a small chocolate spread sandwich each time. i did start with

the vit e but decided to stick to proefa and then add the vit e later.

I have not seen any real increase in his speech yet but this weekend he was

soooo noisy, shouting BAH Bah BAh to get our attention all the time and quite

stroppy - for him. Although it meant a few more stares than normal when we were

out i saw it as positive behaviour as he is really too passive and easy most of

the time.

He's been wide awake each evening and not sleeping until 10. But I am not sure

that is the ProEFA as he often finds it difficult to sleep.

I met with his teacher yesterday and the most positive result she has seen is

that when he was working on new vocabulary and word recoginition, it seemed that

he grasped it quicker and then has retained it. Normally it would take quite a

few days if not longer but he was picking it up after one.

So, I am hopeful and will be continuing with the ProEFA. Any comments would be

appreciated. Do you think this sounds like progress?

Regards

UK Mummy to 8 and Rory 6. Both Deaf with cochlear Implants