Guest guest Posted August 8, 2003 Report Share Posted August 8, 2003 Dear Bob, I read your post and it sounded very familiar. My daughter is 17 and suffers from CP with a Hyperlipidemia Type V. Its mixed lipidemia with high cholesterol & triglycerides, she was dx'd at age 9. She is treated for the lipid disorder with Lopid. This has helped lower her numbers remarkably. I'm not suggesting its a cure all but her numbers went from 1200 to 300. She needs to be very careful with her diet as well. Stress definitely exerbates her attacks, no doubt about it. She's in a flare up as I write this letter. This is a good medical article of reference. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi? cmd=Retrieve & db=PubMed & list_uids=12488710 & dopt=Abstract Best to all, New Jersey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2003 Report Share Posted August 9, 2003 Thanks for the post. I've been on Lopid for years and it has only been marginal at best. The only thing that seemed to help at first was Fish Oil tablets. They seemed to help with triglycerides, but as of the last test they went up, at 800 now. They wanted me to go on niacin tablets again. I have them but have not started taking them again. I was on them for a year before. They had bad side effects, I was glowing like a spark plug. I would sun burn easily and bad, too. The end result (after the doctor assured me it would knock them down) was they went up dramatically! Diet doesn't seem to be the problem because even in the hospital being fed by a tube with no fat in it at all, my levels would go up and down. The doctors are getting ready to punt me to another specialists now. > My daughter is 17 and > suffers from CP with a Hyperlipidemia Type V. Its mixed lipidemia > with high cholesterol & triglycerides, she was dx'd at age 9. > She is treated for the lipid disorder with Lopid. This has helped > lower her numbers remarkably. > I'm not suggesting its a cure all but her numbers went from 1200 to > 300. > She needs to be very careful with her diet as well. > > Stress definitely exerbates her attacks, no doubt about it. > She's in a flare up as I write this letter. > > This is a good medical article of reference. > http://www.ncbi.nlm.nih.gov/entrez/query.fcgi? > cmd=Retrieve & db=PubMed & list_uids=12488710 & dopt=Abstract > > Best to all, > > New Jersey Quote Link to comment Share on other sites More sharing options...
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