Catching up

[Guest guest]

Just a few notes in response to the past week's postings: Hallelujah,

Bert! So glad to hear from you and wish you a very successful

recovery. Please let us know how you're doing regularly.

Karyn, I would like to add some recipes to the cook book. Any

guidelines for submissions, and where do I send them? By e- or snail

mail? I've adapted a few of my old family recipes for no-to-low fat

cooking and I'm really happy with some of them. One thing that I've

been disappointed in when purchasing " general " cookbooks is very few

ethnic recipes and I love Mexican, Italian, Japanese, etc., etc.

It's interesting to read about others' experiences with nausea and

migraines. This is good information that I want to keep on hand. The

nausea I had lasted for about 10 days (I've been so lucky not to have

had it before, I know) and was worse when driving. I have not yet

experienced classic migraine - but I know what it can be like. Once I

quit caffeine without gradually cutting back. PAIN!!! Dark room,

cool damp cloth on the forehead, nausea, whimpering in misery for

hours. If people doubt caffeine is addictive, from personal

experience, I can tell you differently.

Also interesting to read the post (sorry I can't remember the name)

about the newly diagnosed boy whose doctors say that now the enzymes

are normal, his pancreatitis is over??? It has been 1 1/2 years since

I had my first experience with acute pancreatitis. I have never

gotten " over " it. I take the pancreatic enzymes, stick to a very low

fat diet, and every once in a while will have a few days without any

symptoms. But most of the time, there is something reminding me that

I am not over it: from the crushing pain and pressure in the

mid-chest, to bloating, cramping, discomfort on the left side, etc.,

etc. You all know what I'm talking about. But when this boy's

doctors intimate that once enzymes are normal again, everything is

fine, I just get so aggravated. Again and again, we have to deal with

the ignorance of medical professionals as well as the problems of the

disease. Makes me want to scream.

Sorry to go on and on, gang. I rarely post, but when I do I always

think of so much I want to say. Wishing you all a good day...

in Hawaii

[Guest guest]

Hi

That is my boy whose in recovery from acute, whose enzymes are

normal, but he isn't back to his old self and whose doctors are

perplexed, unknowing what it is that is the problem. Thanks to these

boards, and some of the stuff I've been finding through the links

here, I feel pretty confident that it is still sort of smoldering in

his system. We see lethargy, low grade fevers and intermittant pain

and gagging(he can't vomit due to previous GI surgery for reflux).

One difference with him is he can't seem to get enough food in him.

He is in a constant state of hunger. He is non verbal and has severe

mental retardation so he may be mistaking pain for hunger, or maybe

the eating somehow comforts him temporarily(although seems to bother

him after with regularity)

Why doesn't the medical community at large seem caught up with

information that is readily available online? Or at the very least

with patient reports/histories? We've dealt with three doctors so

far, a surgeon, a pediatric GI specialist and our family doctor.

None could explain current problems as within the normal variations

of pancreatitis recovery and it's quite frustrating! None have

offered any possible treatments/solutions either.

Makes me want to scream too!

Beth