Guest guest Posted February 24, 2003 Report Share Posted February 24, 2003 Dear Becky, Hey there, I am so sorry that your having a hold up . The law says that only can be dispensed with an RX. I think that is silly, but the law is a universal one. If you want, our pharmacist can call the doc for one..Or you can just have them fax one .It is acceptable as well. You make the call to your ped.they make the call/fax to us . We ship , bill you :) You all are already in the computer , right?? ... You did say CF Pharmacy, FL. ?? We are the only one with name CF Pharmacy -have been for 18+ years. The CFF has one called CF Services. is that who you are taking about? If we had other Rx's we would send & have Dr send us Rx ......... If not enrolled with us, then just as quick , give us a call here Call toll free 1-7 , as for Meloyde & tell her your ordering nebs, etc. She will ask for shipping address(cant get them to you without), phone number Patients name , & date of birth........... Doctors name..................... Who / how will it be paid for.?................ (we take all charge cards. & will bill your insurance company too.) Then the doc faxes -calls in Rx for nebs/whatever you want We fill & ship right away Please call right now.............It is 3:45 pm here in FL> LOVE & HUGS, grandmomBEv Grandma Bev Bev- Is it possible to purchase Pari LC Nebulizers from you directly? The CF Pharmacy requires me to have a prescription (we currenly have prescriptions of Pulmozyme and Xopenex)and we don't have a clinic appt for a few months (to get a script). If not I will see if her pediatrician can fax one to the CF Pharmacy. Thanks in advance for your help or comments. Becky stepmom to 9 year old w/cf ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2003 Report Share Posted March 14, 2003 Grandma Bev, Is that stuff sold here? I am always worried that everything isn't clean enough. B cleaning nebulizers I saw a post on here not long ago saying something about the CFF putting out new regulations on cleaning the nebs and that vinager is no longer a suitable cleaning agent. I know that boiling is still a good way of cleaning them but could anyone suggest any other way. I'm just afraid that the long term boiling will break down the plastic. Thanks a bunch. mom of Peyton 14mo w/cf/asthma and spoiled rotten ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2003 Report Share Posted March 15, 2003 Bev, I asked the ward nurse and she said that everything they use including masks, tubing and the containers are thrown away, Nothing is cleaned. Which is good. (Australia) cleaning nebulizers I saw a post on here not long ago saying something about the CFF putting out new regulations on cleaning the nebs and that vinager is no longer a suitable cleaning agent. I know that boiling is still a good way of cleaning them but could anyone suggest any other way. I'm just afraid that the long term boiling will break down the plastic. Thanks a bunch. mom of Peyton 14mo w/cf/asthma and spoiled rotten ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2003 Report Share Posted March 16, 2003 Dear , if you cant find, I will get our purchasing dept to check with the company & see. We do sell it 7 ship anywhere, I do not know what the shipping would cost though . I will also ask him to figure that out too. What is the exact addy it would have to come to..They aren't real expensive per bottle & I figure 2 would cover most of the year if done conservatively -----without weakening the value....it is a concentrate liquid form.....I cant do all that from home here, But will do on Monday (tomorrow at work. LOVE & HUGS, GRANDMOMBEV cleaning nebulizers I saw a post on here not long ago saying something about the CFF putting out new regulations on cleaning the nebs and that vinager is no longer a suitable cleaning agent. I know that boiling is still a good way of cleaning them but could anyone suggest any other way. I'm just afraid that the long term boiling will break down the plastic. Thanks a bunch. mom of Peyton 14mo w/cf/asthma and spoiled rotten ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2003 Report Share Posted May 5, 2003 , Now is a great time to call the chains & compare prices. Don’t let them sell you anything. Just tell them you have relatives near here & that you want the best price -ask if they have special prices for children with catastrophic illness. You might call it their compassion program. .Sometimes they can also get you the discount tickets to the park as well. They are all the same until you get to the 5 star ones. They each have to keep up with each other...................... Ask for one nearest what you want to see. They are all in same busy attraction area. Sometimes a bit further-- might be even less..... Does your sisters fiancé work in any of the parks? Maybe he would know also.. I know you will have a great time. Check on the web -they say they are very good deals there. especially now............... LOVE & HUGS, grandmomBEV. Grandma Bev > > > Are you in Orlando? We are going to be visiting Orlando in June and I > would love to meet you! > > > mom of Makenzie 6 w/o cf and Jaelyn 15 months wi cf > > > > ------------------------------------------- > The opinions and information exchanged on this list should IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR > TREATMENTS. > > ------------------------------------ > > > Quote Link to comment Share on other sites More sharing options...
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