Guest guest Posted July 21, 2003 Report Share Posted July 21, 2003 Dear Andy, It's hard to say whether or not you would get diabetes. Many CP patients don't. I will try to find the percentages if that will be of any help to you. I did get brittle diabetes, but my progression was very quick, and the deterioriation of my pancreatic function from slighly damaged to burn-out might be a record breaking statistic for all I know, since it happened in less than 18 months. Yet this is very, very uncommon. One other thing you could do other than a low fat diet and no alcohol, that you didn't mention as part of your preventative measures, would be to purchase a glucometer and test yourself on a frequent basis. While you can't stop diabetes, if you are aware of your blood glucose levels on a regular basis, you could certainly determine any change in your levels that would indicate the onset of the disease. The earlier one determines this, the more chance there is of getting immediate medical supervision and care that would help prevent complications in the future. Another thing you can do, which many don't, and is directly linked to the onset of diabetes type 2, would be to keep yourself on a healthy diet, avoid refined sugar products and fattening foods, be very careful of your carb intake, and by all costs avoid obesity. There is an alarming rate of young people and children, all across the country, who are recently developing diabetes. This is due to their eating habits and obesity, not anything genetic. I was at my diabetes support meeting this month and my endocrinologist had just returned from the annual diabetes medical seminar where this was the major topic of discussion - that children and young people were now the highest percentage of new diabetics! Other than this, Andy, I don't know of anything else you can do. As I said earlier, some people with pancreatitis get it, other's don't. Testing your blood glucose on a regular basis would let you know what's going on. As you already know and are doing, being strict with your low fat diet and abstinance from alcohol will do much to help, and as much as you can, try to avoid stress, as too much stress (good or bad) can cause an attack. I wish I could answer with more suggestions, but this is all I can think of right now. I hope this helps in some way. With hope and prayers, Heidi Heidi H. Griffeth South Carolina SC & SE Regional Rep. PAI, Intl. http://www.pancassociation.org/ourstories/#Heidi Note: All comments and advice are personal opinion only, and should not be substituted for professional medical consultation. > I'm currently a 24 year old male. I've had accute pancreatitis since i was a child, though it wasn't properly diagnosed until i was 15. Every day i get more scared my pancreas is just going to get damaged permanently and i will become a diabetic. So do any of you do anything special to prevent attacks other than the basics (healthy diet, no drinking, etc.)? Andy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2003 Report Share Posted July 21, 2003 Hi, Andy! Just wanted to chirp in on your question ... my husband (Barry) recently developed necrotizing pancreatitis as the result of an ERCP in April. All but the tip of the head of his pancreas is dead tissue. It's still new (3 months) and even with just an itty bitty bit of pancreas functioning, Barry isn't diabetic and possibly will not become one. (The pancreas is an amazing and yet wicked gland.) Just wanted you to hear a 'possibly' positive situation on that note. As Heidi said, keep aware though - as Barry must also do. Hang in there! Beth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2003 Report Share Posted July 21, 2003 In a message dated 7/21/2003 5:56:37 PM Eastern Daylight Time, beck_0316@... writes: > > >> > >>What type of success rate does this surgery have? > Is it good for a lifetime? I am very interested in > this for my husband. > The pancreatectomy and islet cell transplant was first performed on a patient in the 1970s and she is healthy and doing very well today. It would be very wise to read the web site that I posted and also give Dr. Sutherland a call or e-mail him. You can tell him your condition and he will let you know if you are a candidate for the surgery. He is very nice and would be very easy to talk with. I had my surgery December 2000 and I am well but I am now a mild diabetic. If enough islets can be harvested from the pancreas to inject into the liver then a patient will probably not be diabetic. I had two hundred and seventeen thousand islets taken from my pancreas and injected into my liver. Some patients have more and some have less. I believe the ideal amount is over 300,000 islets. Where are you from? It would be great if you could attend the symposium in Indiana. Dr. Sutherland will be speaking there Friday, August 29 and you could learn so much about the surgery that I had. Please feel free to ask me any questions you have. I will be happy to help in any way that I can. Shirley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2003 Report Share Posted July 22, 2003 Anita, I have had a stent put in that passed through without any problem 2 weeks after it was put in ..which is what it was supposed to do. This last stent I had placed, so it wouldn't fall out, the doctor put it in upside down so the little claws on it are embedded into the pancreas tissue. It is beginning to get blocked, (it's been in for 3 months now) so they need to take it out and put another one in. They don't want to put a permanent stent in me because of the problems that can occur, so they came up with this idea, just to keep me home and out of hospital..so if it means I have to have an ERCP once every 3-6 months, but get to stay home during that time, unlike what was happening before they did this, then so be it..It's working fairly well so far. Quote Link to comment Share on other sites More sharing options...
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