To and

[Guest guest]

Thank you for responding. I have had 2 ercp' with sphincterotomies

and stent placement. They had told me the ercps had failed due to

duct tortuosity in the head of my pancreas. I have my doubts about

the true reason they had failed. The first one the stent was

supposed to be pulled in 3 weeks and stayed in for 10 before the doc

had time to pull it. The second he used a scope way to big for me,

it put pressure on my trachea and I was having respiratory

difficulties, so they made it a " quickie " . For months I have begged

my surgeon for a sphincteroplasty and he has been putting me off and

saying this and that about the whipple. Recently the pain has

gotten severe and I am running a low grade temp, I am afraid I may

be developing pseudocyst, which could lead to even greater

scarring. I am not sure as I dont know exactly what the symptoms of

a pseudocyst are. My pain is worsened by activity and not so much

by diet. I am getting extrememly weak, I have even had to hide at

work a few times to rest. Here's a real kicker, I am a RN and have

worked for many years with the surgeon as well as the GI who did the

ercp's; and they are still jerking my chain. This has been going on

for almost 3 years since that same surgeon took out my gall bladder;

which did not need to come out in the first place, but he was in

there to lysis some adhesions from a ventral hernia mesh placement

that he let rot in me for 6 months that became a huge 10cm seroma in

my pelvis that required surgical removal. That is another nightmare

of a story, with needle aspirations of fluid and JP placement in the

CLINIC weekly during that 6 months period.

Sorry this is so long but it did feel good to get it off my chest.

[Guest guest]

Why not try a different doctor? Dr Lehman at Indianapolis is very

good, as are the doctors at South Carolina. I found out when I went

to a hospital in a different state that there is an Angel Flight

Service that will transport patients free of charge in need of

medical attention. I will be using them again in November when I

have to go back to MD . They are pilots who donate their

time and planes and fuel to take the sick to hospitals otherwise out

of reach.