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Pam in Atlanta

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Hi Pam! I just thought I'd introduce myself. I have a daughter with CF

and we live in Tallahassee, but she goes to the CF Center in Atlanta at

Emory. Is that where you guys go? How are Gavin and Jake doing? My

daughter is six and she's doing great!

Lori in Florida

Message: 23

Date: Thu, 10 Apr 2003 21:27:43 -0400

Subject: Great Strides Ribbons

Hello, everyone -

This is my first post (in fact, I can't even figure out how to get back to

the website!), but I've been reading the Digests that come into my inbox. I

have 2 boys with CF - Gavin, 3 1/2 and Jake 10months. They were dx a year

ago - Jake through amnio after Gavin was dx. Anyway, I am the chairperson

of the Great Strides Walk in Atlanta and remember reading that someone on

here uses ribbons for its CF walkers for identifying purposes and to avoid

cross contamination. I've been working on getting them for our walk (on May

3rd), because it's such a great idea. My questions to those of you who use

them: what do they consist of? How are they perceived by those with CF?

Does it seem to honor the patients or set them apart? How are they

distributed? Any help would be greatly appreciated!

Thanks,

Pam mother of Gavin 3 1/2 wcf and Jake 10m wcf

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