cf/mannatech website and aloe vera question

[Guest guest]

Hi! A while back I had ran across a posting about someone having a website with

information about the use of mannatech products specifically for people with CF.

As I remember, it was not a website trying to sell the products, just a place

where people could ask questions and find out information about how the products

had worked for others. If anyone remembers this or knows the website, would you

please send it my way?

Thanks so much,

Amy (mom to Tristan, almost 3 with cf, Skyler 5, Joey 15, Cary 16 all w/ocf)

P.S. We were the family having great success with aloe vera juice. It is still

working really well and it has been at least 4 months I think. Did anyone else

end up trying it and how did it work?

[Guest guest]

Amy,

The website was probably

http://www.glycostory.com/referral/r.asp?r=58

(type the word cystic in the search field and click " go " .)

Another site that is useful is

http://www.freedom2live.com/

and all product information sheets can be accessed from

http://www.mannapages.com/ShareTheGift/

The product information sheets are in Adobe Acrobat format (.pdf

files). They list all the ingredients in each supplement, so there

is no mystery about what it's made of.

We have not used aloe vera juice. We do use the Mannatech stuff,

though.

~ Albright

Jewett, OH

Mannatech Associate

Mommy of 3, 1 with cf

> Hi! A while back I had ran across a posting about someone having a

website with information about the use of mannatech products

specifically for people with CF. As I remember, it was not a website

trying to sell the products, just a place where people could ask

questions and find out information about how the products had worked

for others. If anyone remembers this or knows the website, would you

please send it my way?

>

> Thanks so much,

>

> Amy (mom to Tristan, almost 3 with cf, Skyler 5, Joey 15, Cary 16

all w/ocf)

>

> P.S. We were the family having great success with aloe vera juice.

It is still working really well and it has been at least 4 months I

think. Did anyone else end up trying it and how did it work?

[Guest guest]

In a message dated 3/10/2003 3:54:06 PM Central Standard Time,

ma8169@... writes:

> Albright

>

How do you like the Mannatech stuff? How long has your kids been on it? Have

you notice any improvements. Deb A